Re: How to incorporate new members - please read, Robynn also

[Guest guest]

Dear ellen

it would probably be a lot easier to have a website and organize topics there

and continually add or update info. sick people need to be able to access info

quickly, easily and effectively. the website protocol is better suited to

accomplish this. a support group, ideally in the flesh, is somewhat there for

info but, more importantly, for all the other emotional, psycholigical, etc

factors that a sick person requires to sustain himself through his battle toward

a cure.

yesterday, I spoke with a leader of the washington state group for about an

hour. It was very comforting and encouraging to share each other's stories and

although there were times during our chat that very difficult for us, I know

that if I got to feel well that she would have played some part in my recovery.

I'm truly grateful to her.

best

mike in ny

[ ] How to incorporate new members - please read, Robynn

also

I know many people are going thru intense situations, so may not be

able to respond now. Maybe put this post aside for when you are

feeling better.

I'd like to make this group very easy or as easy as possible for new-

comers.

New people naturally want to know -

when you were diagnosed, how long did you have it, what have you

done, what works for you, what made you choose Buhner's Herbal

Protocol, what about antibiotics, etc

Yet for those of us who have been on here since the beginning, or

for a while, it can be tedious to keep repeating those details.

So I am soliciting ideas - how to keep everyone up to date?

One idea- we could each - only those who want to of course- could

write one post with their 'story' up to now. Which will keep

changing.

Then when we make a comment on our condition, we could refer to Msg#

so-and-so, and there would be the background.

Then we would'nt have to keep repeating.

--

Another thing I've been thinking about - you can see I'm feeling

energetic right? (smile) - is a way to group the info contained in

the posts in such a way as to be accessible.

If a person knows they want info re red root for ex, the search

function would work. But I think there are many topics, that a

person would not even know they are here.

eg we have info re insomnia, babesia, headache, air hunger, brain

fog.

Speaking of brain fog, I'm thinking that esp for people with

neurolyme, it's hard to just scroll thru all the messages, looking.

I'd be willing to start going thru the messages and grouping the

info. I'm not sure of the best way to do so.

Robynn started with the collection of herb info. But maybe people

do not even know that info is there. Maybe once a month we should

post - look here for such-and-such info.

I think at least once a month we should post re 's Planet

Thrive, and that people can ask questions to Buhner.

Should we extract info, and make a FAQ? Or keep it in the person's

words, and say, if you want to know person' experience with red

root, go to these posts.

Longer-time members - think about what you would like to have

available if you were joining now to make best use of the list.

any tips appreciated.

thanks,

ellen

ps- Robynn- your ideas welcome, I'll do the work!

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[Guest guest]

Hi Ellen,

I started Planet Thrive due to exactly the same frustrations with the

groups that you

express here. The groups are great, but they do have their limitations,

especially

with accessing archived materials. My site is database-driven, and as such, is

the perfect

vehicle to categorize and access lots of information like what you refer to in

your email.

Right now there is a list of all the Buhner herbs on my site. Members have the

ability to

post their sources, and to rate and review each herb. It would be great if

people actually

utilized this. I can add topics (like air hunger, brain fog, etc) as well.

No pressure to use my site. It just seems a shame that I spent all that $$ and

years

developing and building it to support people in this way, and then not to make

use of it.

So please - anyone - let me know what you want to see and I will do my best to

create it.

Be well,

www.PlanetThrive.com

> Another thing I've been thinking about - you can see I'm feeling

> energetic right? (smile) - is a way to group the info contained in

> the posts in such a way as to be accessible.

[Guest guest]

Dear Mike,

Thaks for the response.

first, this I agree with and I think is behind my groping for some

means: As you say, " sick people need to be able to access info

quickly, easily and effectively. "

2nd, Can you say more about the web site idea, how it would address

the issues? I don't know how to make a web site, my computer

abilities are: I can surf the net, do e-mail, and obviously

participate in a group. Oh, yes and I have a blog! If the skills

needed are not too complicated, I could probably learn to keep a web

site up if someone would teach me.

3rd, how do others feel about a web site? I see one advantage of a

web site - I think- that if people were to search for 'natural

treatment of Lyme', the site would come up/ Is that correct?

Does it cost?

thanks Mike,

ellen

>

> Dear ellen

> it would probably be a lot easier to have a website and organize

topics there and continually add or update info. sick people need to

be able to access info quickly, easily and effectively. the website

protocol is better suited to accomplish this. a support group,

ideally in the flesh, is somewhat there for info but, more

importantly, for all the other emotional, psycholigical, etc factors

that a sick person requires to sustain himself through his battle

toward a cure.

> yesterday, I spoke with a leader of the washington state group for

about an hour. It was very comforting and encouraging to share each

other's stories and although there were times during our chat that

very difficult for us, I know that if I got to feel well that she

would have played some part in my recovery. I'm truly grateful to

her.

> best

> mike in ny

>

> [ ] How to incorporate new members - please

read, Robynn also

>

>

>

>

>

>

>

>

>

>

>

>

>

> I know many people are going thru intense situations,

so may not be

>

> able to respond now. Maybe put this post aside for when you are

>

> feeling better.

>

>

>

> I'd like to make this group very easy or as easy as possible for

new-

>

> comers.

>

>

>

> New people naturally want to know -

>

> when you were diagnosed, how long did you have it, what have you

>

> done, what works for you, what made you choose Buhner's Herbal

>

> Protocol, what about antibiotics, etc

>

>

>

> Yet for those of us who have been on here since the beginning, or

>

> for a while, it can be tedious to keep repeating those details.

>

> So I am soliciting ideas - how to keep everyone up to date?

>

>

>

> One idea- we could each - only those who want to of course- could

>

> write one post with their 'story' up to now. Which will keep

>

> changing.

>

> Then when we make a comment on our condition, we could refer to

Msg#

>

> so-and-so, and there would be the background.

>

> Then we would'nt have to keep repeating.

>

> --

>

> Another thing I've been thinking about - you can see I'm feeling

>

> energetic right? (smile) - is a way to group the info contained in

>

> the posts in such a way as to be accessible.

>

>

>

> If a person knows they want info re red root for ex, the search

>

> function would work. But I think there are many topics, that a

>

> person would not even know they are here.

>

> eg we have info re insomnia, babesia, headache, air hunger, brain

>

> fog.

>

> Speaking of brain fog, I'm thinking that esp for people with

>

> neurolyme, it's hard to just scroll thru all the messages,

looking.

>

>

>

> I'd be willing to start going thru the messages and grouping the

>

> info. I'm not sure of the best way to do so.

>

>

>

> Robynn started with the collection of herb info. But maybe people

>

> do not even know that info is there. Maybe once a month we should

>

> post - look here for such-and-such info.

>

>

>

> I think at least once a month we should post re 's Planet

>

> Thrive, and that people can ask questions to Buhner.

>

>

>

> Should we extract info, and make a FAQ? Or keep it in the person's

>

> words, and say, if you want to know person' experience with red

>

> root, go to these posts.

>

>

>

> Longer-time members - think about what you would like to have

>

> available if you were joining now to make best use of the list.

>

>

>

> any tips appreciated.

>

>

>

> thanks,

>

> ellen

>

> ps- Robynn- your ideas welcome, I'll do the work!

>

>

>

>

>

>

>

>

>

>

>

>

>

>

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>

[Guest guest]

-,

I appreciate that you spent $ and time and energy to develope your

web site, and I know that you have offered to any members of this

group, that you would give them a membership if they couldn't spend

the $25.00 membership fee.

Personally I could not have spent the $25. for a membership. To me

that is not a small amount of money. I am not working, and basically

I spend on food, rent, herbs. I could do a lot with $25. if I had

that to spend.

My point is - and I mean no offense to you - I would not recommend a

site to someone that they had to pay for to recieve certain of the

services (like the Buhner column).

I am not saying charging a fee is reasonable or unreasonable.

But there is as you know a wealth of good info on the internet. I

have never paid for any.

since this Buhner list was not formed to generate income, I

have to admit I was put off when I saw that you would charge people

to use Buhner's column. Since I believe the column idea came out of

this list. Maybe it didn't.

Anyway I feel very strongly that people's getting the help they need

should not be dependent on how much money they have.

Sorry if this is a rant, I've been denied much in my life because of

lack of money. As little as I have, I still give to people when I

can, what I can, including volunteering my tutoring skills to those

who can't pay. So I do practice what I preach.

best,

ellen

, " lunagirl32002 " <j_genser@...>

wrote:

>

> Hi Ellen,

> I started Planet Thrive due to exactly the same frustrations with

the groups that you

> express here. The groups are great, but they do have their

limitations, especially

> with accessing archived materials. My site is database-driven, and

as such, is the perfect

> vehicle to categorize and access lots of information like what you

refer to in your email.

>

> Right now there is a list of all the Buhner herbs on my site.

Members have the ability to

> post their sources, and to rate and review each herb. It would be

great if people actually

> utilized this. I can add topics (like air hunger, brain fog, etc)

as well.

>

> No pressure to use my site. It just seems a shame that I spent all

that $$ and years

> developing and building it to support people in this way, and then

not to make use of it.

> So please - anyone - let me know what you want to see and I will

do my best to create it.

>

> Be well,

> www.PlanetThrive.com

>

>

> > Another thing I've been thinking about - you can see I'm feeling

> > energetic right? (smile) - is a way to group the info contained

in

> > the posts in such a way as to be accessible.

>

[Guest guest]

Dear El

the website is really just a structure to present info. we would need a

name(domain name) which would cost about $5-10 dollars/year to register. then we

would need an address(the physical location of the website) which could be free

if its thru one's internet service provider or of nominal cost thru go daddy,

ipower, etc. use of a template would make the setup painless for anyone willing

and the webmaster would just have to parent the site which someone like

earthwalker at planet thrive might elaborate on. if the site is not too

interactive, the chores and skill sets are very low tech.

I envision a site with hot buttons as most are. for example a hot button for

abx, or herbs, or protocols, etc and then a drop down listing all the ones

peeps have tried. click one and it would describe dosages, costs, etc and then

another click for further experiential details, allowing the searcher some

concrete idea of effectiveness, etc. sharing our struggles with the hope of

illuminating a way for others. n'est pas!

As you say, having a website allows a surfer the opportunity to search and find.

having cogent answers easily available to a sufferer is paramount.

[ ] How to incorporate new members - please

read, Robynn also

>

>

>

>

>

>

>

>

>

>

>

>

>

> I know many people are going thru intense situations,

so may not be

>

> able to respond now. Maybe put this post aside for when you are

>

> feeling better.

>

>

>

> I'd like to make this group very easy or as easy as possible for

new-

>

> comers.

>

>

>

> New people naturally want to know -

>

> when you were diagnosed, how long did you have it, what have you

>

> done, what works for you, what made you choose Buhner's Herbal

>

> Protocol, what about antibiotics, etc

>

>

>

> Yet for those of us who have been on here since the beginning, or

>

> for a while, it can be tedious to keep repeating those details.

>

> So I am soliciting ideas - how to keep everyone up to date?

>

>

>

> One idea- we could each - only those who want to of course- could

>

> write one post with their 'story' up to now. Which will keep

>

> changing.

>

> Then when we make a comment on our condition, we could refer to

Msg#

>

> so-and-so, and there would be the background.

>

> Then we would'nt have to keep repeating.

>

> --

>

> Another thing I've been thinking about - you can see I'm feeling

>

> energetic right? (smile) - is a way to group the info contained in

>

> the posts in such a way as to be accessible.

>

>

>

> If a person knows they want info re red root for ex, the search

>

> function would work. But I think there are many topics, that a

>

> person would not even know they are here.

>

> eg we have info re insomnia, babesia, headache, air hunger, brain

>

> fog.

>

> Speaking of brain fog, I'm thinking that esp for people with

>

> neurolyme, it's hard to just scroll thru all the messages,

looking.

>

>

>

> I'd be willing to start going thru the messages and grouping the

>

> info. I'm not sure of the best way to do so.

>

>

>

> Robynn started with the collection of herb info. But maybe people

>

> do not even know that info is there. Maybe once a month we should

>

> post - look here for such-and-such info.

>

>

>

> I think at least once a month we should post re 's Planet

>

> Thrive, and that people can ask questions to Buhner.

>

>

>

> Should we extract info, and make a FAQ? Or keep it in the person's

>

> words, and say, if you want to know person' experience with red

>

> root, go to these posts.

>

>

>

> Longer-time members - think about what you would like to have

>

> available if you were joining now to make best use of the list.

>

>

>

> any tips appreciated.

>

>

>

> thanks,

>

> ellen

>

> ps- Robynn- your ideas welcome, I'll do the work!

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> <!--

>

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[Guest guest]

Dear Mike and Ellen, I believe this is what said she would offer if people

will just ask her. Planet Thrive is wonderful. Are you proposing a whole new

site? We have 2 this one and Planet Thrive. Ask and it will happen.

Blessings to everyones needs being met. Joyce

rasheedaas <rasheedaas@...> wrote: Dear

Mike,

Thaks for the response.

first, this I agree with and I think is behind my groping for some

means: As you say, " sick people need to be able to access info

quickly, easily and effectively. "

2nd, Can you say more about the web site idea, how it would address

the issues? I don't know how to make a web site, my computer

abilities are: I can surf the net, do e-mail, and obviously

participate in a group. Oh, yes and I have a blog! If the skills

needed are not too complicated, I could probably learn to keep a web

site up if someone would teach me.

3rd, how do others feel about a web site? I see one advantage of a

web site - I think- that if people were to search for 'natural

treatment of Lyme', the site would come up/ Is that correct?

Does it cost?

thanks Mike,

ellen

>

> Dear ellen

> it would probably be a lot easier to have a website and organize

topics there and continually add or update info. sick people need to

be able to access info quickly, easily and effectively. the website

protocol is better suited to accomplish this. a support group,

ideally in the flesh, is somewhat there for info but, more

importantly, for all the other emotional, psycholigical, etc factors

that a sick person requires to sustain himself through his battle

toward a cure.

> yesterday, I spoke with a leader of the washington state group for

about an hour. It was very comforting and encouraging to share each

other's stories and although there were times during our chat that

very difficult for us, I know that if I got to feel well that she

would have played some part in my recovery. I'm truly grateful to

her.

> best

> mike in ny

>

> [ ] How to incorporate new members - please

read, Robynn also

>

>

>

>

>

>

>

>

>

>

>

>

>

> I know many people are going thru intense situations,

so may not be

>

> able to respond now. Maybe put this post aside for when you are

>

> feeling better.

>

>

>

> I'd like to make this group very easy or as easy as possible for

new-

>

> comers.

>

>

>

> New people naturally want to know -

>

> when you were diagnosed, how long did you have it, what have you

>

> done, what works for you, what made you choose Buhner's Herbal

>

> Protocol, what about antibiotics, etc

>

>

>

> Yet for those of us who have been on here since the beginning, or

>

> for a while, it can be tedious to keep repeating those details.

>

> So I am soliciting ideas - how to keep everyone up to date?

>

>

>

> One idea- we could each - only those who want to of course- could

>

> write one post with their 'story' up to now. Which will keep

>

> changing.

>

> Then when we make a comment on our condition, we could refer to

Msg#

>

> so-and-so, and there would be the background.

>

> Then we would'nt have to keep repeating.

>

> --

>

> Another thing I've been thinking about - you can see I'm feeling

>

> energetic right? (smile) - is a way to group the info contained in

>

> the posts in such a way as to be accessible.

>

>

>

> If a person knows they want info re red root for ex, the search

>

> function would work. But I think there are many topics, that a

>

> person would not even know they are here.

>

> eg we have info re insomnia, babesia, headache, air hunger, brain

>

> fog.

>

> Speaking of brain fog, I'm thinking that esp for people with

>

> neurolyme, it's hard to just scroll thru all the messages,

looking.

>

>

>

> I'd be willing to start going thru the messages and grouping the

>

> info. I'm not sure of the best way to do so.

>

>

>

> Robynn started with the collection of herb info. But maybe people

>

> do not even know that info is there. Maybe once a month we should

>

> post - look here for such-and-such info.

>

>

>

> I think at least once a month we should post re 's Planet

>

> Thrive, and that people can ask questions to Buhner.

>

>

>

> Should we extract info, and make a FAQ? Or keep it in the person's

>

> words, and say, if you want to know person' experience with red

>

> root, go to these posts.

>

>

>

> Longer-time members - think about what you would like to have

>

> available if you were joining now to make best use of the list.

>

>

>

> any tips appreciated.

>

>

>

> thanks,

>

> ellen

>

> ps- Robynn- your ideas welcome, I'll do the work!

>

>

>

>

>

>

>

>

>

>

>

>

>

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[Guest guest]

Ellen,

There are MANY things we can do to accomplish these and other goals!

There is a Files section for this list. (

/files/ ) In

this section we can create Folders with different attributes for

different reasons. We could easily create a folder for personal

stories where individuals could post their stories and keep them

updated.

We can create files that are sent automatically to the list once a

month with reminders for folks to visit the different resources

available through the site.

If you wanted to create folders with specific topics and then create

files from email messages that is completely possible. But I

caution you about repeating too much information in multiple

places. We do have a limited amount of space offered to us, though

I have yet to have a problem with space on any of my .

Maybe there is a better way to collate information previously found

in postings?

We also have the Links section at

/links . Maybe

it would be easier to send folks to other websites where they can

learn information from citable resources other than repeating

personal email messages?

We also have a Database section at

/database .

Maybe some of the information you would like to present can be more

easily interpreted through a spreadsheet?

Let me know what kind of things you would like to try! I'm willing

to help or just stay out of your way if you have ideas you want to

try. =)

=)

Robynn

>

> I know many people are going thru intense situations, so may not

be

> able to respond now. Maybe put this post aside for when you are

> feeling better.

>

> I'd like to make this group very easy or as easy as possible for

new-

> comers.

>

> New people naturally want to know -

> when you were diagnosed, how long did you have it, what have you

> done, what works for you, what made you choose Buhner's Herbal

> Protocol, what about antibiotics, etc

>

> Yet for those of us who have been on here since the beginning, or

> for a while, it can be tedious to keep repeating those details.

> So I am soliciting ideas - how to keep everyone up to date?

>

> One idea- we could each - only those who want to of course- could

> write one post with their 'story' up to now. Which will keep

> changing.

> Then when we make a comment on our condition, we could refer to

Msg#

> so-and-so, and there would be the background.

> Then we would'nt have to keep repeating.

> --

> Another thing I've been thinking about - you can see I'm feeling

> energetic right? (smile) - is a way to group the info contained in

> the posts in such a way as to be accessible.

>

> If a person knows they want info re red root for ex, the search

> function would work. But I think there are many topics, that a

> person would not even know they are here.

> eg we have info re insomnia, babesia, headache, air hunger, brain

> fog.

> Speaking of brain fog, I'm thinking that esp for people with

> neurolyme, it's hard to just scroll thru all the messages,

looking.

>

> I'd be willing to start going thru the messages and grouping the

> info. I'm not sure of the best way to do so.

>

> Robynn started with the collection of herb info. But maybe people

> do not even know that info is there. Maybe once a month we should

> post - look here for such-and-such info.

>

> I think at least once a month we should post re 's Planet

> Thrive, and that people can ask questions to Buhner.

>

> Should we extract info, and make a FAQ? Or keep it in the person's

> words, and say, if you want to know person' experience with red

> root, go to these posts.

>

>

> Longer-time members - think about what you would like to have

> available if you were joining now to make best use of the list.

>

> any tips appreciated.

>

> thanks,

> ellen

> ps- Robynn- your ideas welcome, I'll do the work!

>

[Guest guest]

Hi Robynn,

Nice to hear from you!

Well I didn't mean you should stay out of my way, esp since I don't

know what direction I'm in. (smile)

I didn't want to volunteer you to do more work, since I don't know

what is involved in implementing my suggestions.

Your help and input are always appreciated.

My thinking is that I'd like to let new people know what info we

have here, and make it easy as possible to access it.

I think your idea of an automatic monthly post which would let

people know what resources are available is an excellent idea. Also

I can try, whenever a new member joins, to notice and also send them

that msg.

I know for myself, when I join a list, I *never* look at the links.

I just jump in to the conversation. I suspect others do too.

" We could easily create a folder for personal

stories where individuals could post their stories and keep them

updated. "

This too good idea. I think this could be helpful to ourselves too.

Perhaps to Buhner also.

" If you wanted to create folders with specific topics and then create

files from email messages that is completely possible. But I

caution you about repeating too much information in multiple

places. "

Yes I agree with you, plus it might become too confusing. How 'bout

if, in the automatic monthly post, we said, eg 'messages available

on topics such as insominia, etc. Use search function.' Or maybe

that's not even necessary, just let people ask their questions as

they come up.

If any of this sounds good to you to implement, let mw know how I

can help.

best,

ellen

> >

> > I know many people are going thru intense situations, so may not

> be

> > able to respond now. Maybe put this post aside for when you are

> > feeling better.

> >

> > I'd like to make this group very easy or as easy as possible for

> new-

> > comers.

> >

> > New people naturally want to know -

> > when you were diagnosed, how long did you have it, what have you

> > done, what works for you, what made you choose Buhner's Herbal

> > Protocol, what about antibiotics, etc

> >

> > Yet for those of us who have been on here since the beginning,

or

> > for a while, it can be tedious to keep repeating those details.

> > So I am soliciting ideas - how to keep everyone up to date?

> >

> > One idea- we could each - only those who want to of course-

could

> > write one post with their 'story' up to now. Which will keep

> > changing.

> > Then when we make a comment on our condition, we could refer to

> Msg#

> > so-and-so, and there would be the background.

> > Then we would'nt have to keep repeating.

> > --

> > Another thing I've been thinking about - you can see I'm feeling

> > energetic right? (smile) - is a way to group the info contained

in

> > the posts in such a way as to be accessible.

> >

> > If a person knows they want info re red root for ex, the search

> > function would work. But I think there are many topics, that a

> > person would not even know they are here.

> > eg we have info re insomnia, babesia, headache, air hunger,

brain

> > fog.

> > Speaking of brain fog, I'm thinking that esp for people with

> > neurolyme, it's hard to just scroll thru all the messages,

> looking.

> >

> > I'd be willing to start going thru the messages and grouping the

> > info. I'm not sure of the best way to do so.

> >

> > Robynn started with the collection of herb info. But maybe

people

> > do not even know that info is there. Maybe once a month we

should

> > post - look here for such-and-such info.

> >

> > I think at least once a month we should post re 's Planet

> > Thrive, and that people can ask questions to Buhner.

> >

> > Should we extract info, and make a FAQ? Or keep it in the

person's

> > words, and say, if you want to know person' experience with red

> > root, go to these posts.

> >

> >

> > Longer-time members - think about what you would like to have

> > available if you were joining now to make best use of the list.

> >

> > any tips appreciated.

> >

> > thanks,

> > ellen

> > ps- Robynn- your ideas welcome, I'll do the work!

> >

>

[Guest guest]

Hi Jo and all, Is it just me that likes seeing the whole e-mail responded to?

With my brain fog it gets so confusing to me if I cant see see it all. I forget

what is being talked about. And it gets overwhelming to go to the site and

search etc.

Feed back please. Joyce

wyomin@... wrote: Hi, I dont' post a lot,

but I alwasy read all the posts. I so appreciate

having this resource. I havn't gotten into treatment yet and will

likely have more questions once I do.

I do have a suggstion to make the list more user friendly. If people

could somehow avoid reposting the whole email you are responding to, it

would cut down the lengthy time it takes my old, dial up system to load.

Its not a biggie, and I don't want to offend anyone, but just a

suggstion to make it easier to use the site.

Thanks, jo

---------------------------------

Want to start your own business? Learn how on Small Business.

[Guest guest]

Joyce, I can understand your point (wanting to see the whole email

someone is responding to). Its ok with me to keep it this way. I can

handle it ok, and I know wha tyo mean about not being able to remember.

jo