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Dear Yarrow,

Welcome!

I was also diagnosed/misdiagnosed with CFIDS for 14 years. Supposedly,

I had/have classic CFIDS symptoms, which I have since found out are

classic Lyme symptoms. I was re-tested at a proper Lyme testing lab

(IgeneX) over a year ago and tested positive for active Lyme.

If you cannot test for Lyme right now because of finances (I think

IgeneX also has some type of payment plan)but think that you have it

you could just start treating " as if " anyway. Many people who have

Lyme actually test negative, which is why treating based primarily on

clinical symptoms is so prevalent.

Some of us here also belong to the LymeStragegies board where salt/c

is the main protocol. You might want to look into that as well.

Glad that you decided to change your onlooker status :-).

Ballady

>

> Hello Dear Friends,

>

> This is my first post here, though i've been " browsing " for a few days.

> My internet name is Yarrow, and i've come here to explore and expand

and connect in the midst of healing.

>

> I've had what has been termed " cfids " for over twenty years, as well

as chemical sensitivity.

>

> For over thirty years i've studied herbs and natural healing, and my

greatest interest is in spiritual healing. I am a flower essence

practitioner when i am able to work.

>

> For a while now i've pushed away the possibility that i may have

chronic lyme disease. Now it seems a good likelihood, and i sense in

this group a beautiful gentleness and kindness, as well as an

openness, which i am grateful for.

>

> Before giving a bit about my own health stuff, i wanted to reply to

the person who wrote asking about Susun Weed and the varying views on

liver health. Susun Weed is a fascinating and radical herbalist.

Some people in the larger herbal community disagree with her.

Personally, i love reading her books, and i also enjoy reading lots of

other information as well. You might enjoy the beginning section of

her " Healing Wise " book, where she offers a most interesting

comparison of varying views/models of health and healings, (ie;

medical/holistic/wise woman)......i think your question touches on

this issue of people having different models or approaches toward

healing. Nourishment is a huge theme in her way of teaching. Clearly

Buhner respects her, as he offers gratitude to her in his intro in his

book on antibiotics. Hopefully you will be able to feel within

yourself what is right for you in the moment.

>

> Even as i have grown immensely on a spiritual level through these

many years of illness, and even as i have found countless moments of

clarity and well being, the body stuff has not gone away. I love to

meditate, to lead a quiet, sane life.....and i do! I'd LOVE to know

what it feels like not to have a severe, debilitating headache, muscle

and joint pain and fatigue. Often i feel weak all over, and i need

help with driving and physical chores. My history is somewhat classic

cfids (past over-exercising, etc.) yet i have lived in such a healing

way for so many years, that i would love to know what is my next

perfect step. Have just purchased Buhner's book and find it wonderful.

>

> I'm having a very hard time with the thought of spending four

hundred dollars to test for lyme, the price that iginex gave me via

phone for the initial lyme testing. Of all my symptoms, the most

debilitating are: severe constant headaches/migraines, severe heat,

light and sun sensitivity, pain all over and fatigue. I can handle

very little stimulation (noise, radio, etc.) There are other

symptoms, but these are extreme. I have lived in a healing,

semi-rural place, not far from the ocean, for almost fifteen years, as

i need a cooler temperature, and to stay out of the sun. Are any of

you familiar with these symptoms? Does it sound like lyme?

>

> I'm super sensitive to many things, including medications.

Antibiotics are way to hard on my system. I've been receiving

acupuncture treatments regularly for years, which seem to help my

nervous system somewhat, yet haven't touched the headache pain.

>

> The one symptom i have improved with is digestive.....for years i

had stomach pain, and i recently discovered active manuka honey. I

take a teaspoon in the morning on an empty stomach. After trying

countless herbs/foods/supplements, it was the one thing that helped

me. I mention this in case anyone else has stubborn digestive stuff.

>

> Hope this hello letter wasn't too long. Just didn't want to be an

onlooker any longer. Thank you so much for any ideas about the

testing thing or intuitions.

>

> Blessings and Peace to all,

> yarrow

>

>

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Dear Yarrow, Love your name. Welcome to you. I am one of the ones that wrote

about Susun Weed. I love her books.

I have had lyme for 24 or more yrs, had been dxed with cfids,fibro and ei.

Just dxed 2 yrs ago with lyme and co. Your story sounds so much like mine. As do

your symptions. I work on mind,body,spirit emotions and do all alternative

meds,including flower essences. I also use intuition,pendulum and muscle

testing. Although, at times like the last few weeks it has been hard for me to

stay grounded with all the physical going on and stress. This too shall pass.

Anyway, just want to welcome you and say that I am sure you will be a great

added addition to our wonderful group. Blessings to your healing. Namaste' Joyce

gently be <gentlybe1@...> wrote: Hello

Dear Friends,

This is my first post here, though i've been " browsing " for a few days.

My internet name is Yarrow, and i've come here to explore and expand and

connect in the midst of healing.

I've had what has been termed " cfids " for over twenty years, as well as

chemical sensitivity.

For over thirty years i've studied herbs and natural healing, and my greatest

interest is in spiritual healing. I am a flower essence practitioner when i am

able to work.

For a while now i've pushed away the possibility that i may have chronic lyme

disease. Now it seems a good likelihood, and i sense in this group a beautiful

gentleness and kindness, as well as an openness, which i am grateful for.

Before giving a bit about my own health stuff, i wanted to reply to the person

who wrote asking about Susun Weed and the varying views on liver health. Susun

Weed is a fascinating and radical herbalist. Some people in the larger herbal

community disagree with her. Personally, i love reading her books, and i also

enjoy reading lots of other information as well. You might enjoy the beginning

section of her " Healing Wise " book, where she offers a most interesting

comparison of varying views/models of health and healings, (ie;

medical/holistic/wise woman)......i think your question touches on this issue of

people having different models or approaches toward healing. Nourishment is a

huge theme in her way of teaching. Clearly Buhner respects her, as he offers

gratitude to her in his intro in his book on antibiotics. Hopefully you will

be able to feel within yourself what is right for you in the moment.

Even as i have grown immensely on a spiritual level through these many years of

illness, and even as i have found countless moments of clarity and well being,

the body stuff has not gone away. I love to meditate, to lead a quiet, sane

life.....and i do! I'd LOVE to know what it feels like not to have a severe,

debilitating headache, muscle and joint pain and fatigue. Often i feel weak all

over, and i need help with driving and physical chores. My history is somewhat

classic cfids (past over-exercising, etc.) yet i have lived in such a healing

way for so many years, that i would love to know what is my next perfect step.

Have just purchased Buhner's book and find it wonderful.

I'm having a very hard time with the thought of spending four hundred dollars

to test for lyme, the price that iginex gave me via phone for the initial lyme

testing. Of all my symptoms, the most debilitating are: severe constant

headaches/migraines, severe heat, light and sun sensitivity, pain all over and

fatigue. I can handle very little stimulation (noise, radio, etc.) There are

other symptoms, but these are extreme. I have lived in a healing, semi-rural

place, not far from the ocean, for almost fifteen years, as i need a cooler

temperature, and to stay out of the sun. Are any of you familiar with these

symptoms? Does it sound like lyme?

I'm super sensitive to many things, including medications. Antibiotics are way

to hard on my system. I've been receiving acupuncture treatments regularly for

years, which seem to help my nervous system somewhat, yet haven't touched the

headache pain.

The one symptom i have improved with is digestive.....for years i had stomach

pain, and i recently discovered active manuka honey. I take a teaspoon in the

morning on an empty stomach. After trying countless herbs/foods/supplements, it

was the one thing that helped me. I mention this in case anyone else has

stubborn digestive stuff.

Hope this hello letter wasn't too long. Just didn't want to be an onlooker any

longer. Thank you so much for any ideas about the testing thing or intuitions.

Blessings and Peace to all,

yarrow

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Welcome Yarrow. You have so many things that I/we relate to.

Although I dont have time to respond to many post I did want to

welcome you. I think there are many on this list including Ellen,

Joyce, me and quite a few others who can surely relate to your

story. I am completely overwhelmed here at work and probably will be

for next 3 months with huge job. We do industrial engraving and its

very noisy and not condusive to healing and I feel stuck in a

unfortunate situation that I only have myself to blame (be careful

of what you ask for)- Anyways I wont be a participant much but will

be eagerly looking forward to yours and others beautiful dialog and

sharing of experiences and success stories.

I love this subject heading...

Gratitude & more............

Blessings and Peace to you as well,

Sam H.

Hello Dear Friends,

>

> This is my first post here, though i've been " browsing " for a few

days.

> My internet name is Yarrow, and i've come here to explore and

expand and connect in the midst of healing.

>

> I've had what has been termed " cfids " for over twenty years, as

well as chemical sensitivity.

>

> For over thirty years i've studied herbs and natural healing, and

my greatest interest is in spiritual healing. I am a flower essence

practitioner when i am able to work.

>

> For a while now i've pushed away the possibility that i may have

chronic lyme disease. Now it seems a good likelihood, and i sense in

this group a beautiful gentleness and kindness, as well as an

openness, which i am grateful for.

>

> Before giving a bit about my own health stuff, i wanted to reply

to the person who wrote asking about Susun Weed and the varying

views on liver health. Susun Weed is a fascinating and radical

herbalist. Some people in the larger herbal community disagree with

her. Personally, i love reading her books, and i also enjoy reading

lots of other information as well. You might enjoy the beginning

section of her " Healing Wise " book, where she offers a most

interesting comparison of varying views/models of health and

healings, (ie; medical/holistic/wise woman)......i think your

question touches on this issue of people having different models or

approaches toward healing. Nourishment is a huge theme in her way

of teaching. Clearly Buhner respects her, as he offers gratitude to

her in his intro in his book on antibiotics. Hopefully you will be

able to feel within yourself what is right for you in the moment.

>

> Even as i have grown immensely on a spiritual level through these

many years of illness, and even as i have found countless moments

of clarity and well being, the body stuff has not gone away. I

love to meditate, to lead a quiet, sane life.....and i do! I'd

LOVE to know what it feels like not to have a severe, debilitating

headache, muscle and joint pain and fatigue. Often i feel weak all

over, and i need help with driving and physical chores. My history

is somewhat classic cfids (past over-exercising, etc.) yet i have

lived in such a healing way for so many years, that i would love to

know what is my next perfect step. Have just purchased Buhner's

book and find it wonderful.

>

> I'm having a very hard time with the thought of spending four

hundred dollars to test for lyme, the price that iginex gave me via

phone for the initial lyme testing. Of all my symptoms, the most

debilitating are: severe constant headaches/migraines, severe heat,

light and sun sensitivity, pain all over and fatigue. I can handle

very little stimulation (noise, radio, etc.) There are other

symptoms, but these are extreme. I have lived in a healing, semi-

rural place, not far from the ocean, for almost fifteen years, as i

need a cooler temperature, and to stay out of the sun. Are any of

you familiar with these symptoms? Does it sound like lyme?

>

> I'm super sensitive to many things, including medications.

Antibiotics are way to hard on my system. I've been receiving

acupuncture treatments regularly for years, which seem to help my

nervous system somewhat, yet haven't touched the headache pain.

>

> The one symptom i have improved with is digestive.....for years i

had stomach pain, and i recently discovered active manuka honey. I

take a teaspoon in the morning on an empty stomach. After trying

countless herbs/foods/supplements, it was the one thing that helped

me. I mention this in case anyone else has stubborn digestive stuff.

>

> Hope this hello letter wasn't too long. Just didn't want to be

an onlooker any longer. Thank you so much for any ideas about the

testing thing or intuitions.

>

> Blessings and Peace to all,

> yarrow

>

>

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Dear Yarrow,

welcome, I'm sure we'll learn from you, as well as vice versa.

I love your name!

Yarrow is my favorite herb, because of its many healing properties.

I encourage it to grow all over my garden.

I'm sorry you have headaches and such pain. I hope you will gain

relief and healing from Buhner's Herbal Protocol if you choose to go

that way.

Wonder if you have tried feverfew for your migranes? I don't have

any personal experience with it, have heard it is recommended.

I agree that if you can't afford the test, start treating the

symptoms. I don't have insurance, so I can relate.

As far as your symptoms, I'm not familiar with all of them, but I do

know that muscle, joint pain, headache and fatigue are classic Lyme

symptoms [as well as symptoms of a dozen other conditions,

unfortunately!].

I have only recently begun to experience life without that

debilitating fatigue, which is really hard to explain to people who

have not experienced it. It's nothing like 'being tired', is it?

That fatigue was so pervasive for me, I had forgotten there was any

other way to be. Now I feel my stamina returning, it's made a big

improvement in my mental/emotional outlook.

Let us know how you do, feel free to ask lots of questions. There is

a lot of info on the list, so I suggest you also look back.

You sound like you have such a nice life, living by the ocean, etc,

if you can just get hold of this one thing.

I'm pulling for you!

best,

ellen

ps- no post is too long in my opinion.(smile)

>

> Hello Dear Friends,

>

> This is my first post here, though i've been " browsing " for a few

days.

> My internet name is Yarrow, and i've come here to explore and

expand and connect in the midst of healing.

>

> I've had what has been termed " cfids " for over twenty years, as

well as chemical sensitivity.

>

> For over thirty years i've studied herbs and natural healing, and

my greatest interest is in spiritual healing. I am a flower essence

practitioner when i am able to work.

>

> For a while now i've pushed away the possibility that i may have

chronic lyme disease. Now it seems a good likelihood, and i sense in

this group a beautiful gentleness and kindness, as well as an

openness, which i am grateful for.

>

> Before giving a bit about my own health stuff, i wanted to reply

to the person who wrote asking about Susun Weed and the varying

views on liver health. Susun Weed is a fascinating and radical

herbalist. Some people in the larger herbal community disagree with

her. Personally, i love reading her books, and i also enjoy reading

lots of other information as well. You might enjoy the beginning

section of her " Healing Wise " book, where she offers a most

interesting comparison of varying views/models of health and

healings, (ie; medical/holistic/wise woman)......i think your

question touches on this issue of people having different models or

approaches toward healing. Nourishment is a huge theme in her way

of teaching. Clearly Buhner respects her, as he offers gratitude to

her in his intro in his book on antibiotics. Hopefully you will be

able to feel within yourself what is right for you in the moment.

>

> Even as i have grown immensely on a spiritual level through these

many years of illness, and even as i have found countless moments

of clarity and well being, the body stuff has not gone away. I

love to meditate, to lead a quiet, sane life.....and i do! I'd

LOVE to know what it feels like not to have a severe, debilitating

headache, muscle and joint pain and fatigue. Often i feel weak all

over, and i need help with driving and physical chores. My history

is somewhat classic cfids (past over-exercising, etc.) yet i have

lived in such a healing way for so many years, that i would love to

know what is my next perfect step. Have just purchased Buhner's

book and find it wonderful.

>

> I'm having a very hard time with the thought of spending four

hundred dollars to test for lyme, the price that iginex gave me via

phone for the initial lyme testing. Of all my symptoms, the most

debilitating are: severe constant headaches/migraines, severe heat,

light and sun sensitivity, pain all over and fatigue. I can handle

very little stimulation (noise, radio, etc.) There are other

symptoms, but these are extreme. I have lived in a healing, semi-

rural place, not far from the ocean, for almost fifteen years, as i

need a cooler temperature, and to stay out of the sun. Are any of

you familiar with these symptoms? Does it sound like lyme?

>

> I'm super sensitive to many things, including medications.

Antibiotics are way to hard on my system. I've been receiving

acupuncture treatments regularly for years, which seem to help my

nervous system somewhat, yet haven't touched the headache pain.

>

> The one symptom i have improved with is digestive.....for years i

had stomach pain, and i recently discovered active manuka honey. I

take a teaspoon in the morning on an empty stomach. After trying

countless herbs/foods/supplements, it was the one thing that helped

me. I mention this in case anyone else has stubborn digestive stuff.

>

> Hope this hello letter wasn't too long. Just didn't want to be an

onlooker any longer. Thank you so much for any ideas about the

testing thing or intuitions.

>

> Blessings and Peace to all,

> yarrow

>

>

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Hi Yarrow,

I loved to read your introduction and the answers of the members!

You seem to have lyme by the description of your symptoms...

I had, I think, all of your symptoms and more. I still got babesia,

so had the awful air hunger, fevers etc, to add to lyme symptoms.

Now I'm 95% well, except when I take metal chelators.

You'll love to be again able to be under the sun, stand strong light,

and get your stamina back. I would never think standing sunlight

would cause so much pleasure. It's like being reborn again!

You didn't mention chills, it's funny. Most lyme sufferers have

chills (or only feel cold, low body temperature).

Hope you'll like the group! Welcome!

Selma

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Hi Yarrow,

Welcome. You may have read that Buhner is doing an advice column on my website

Planet

Thrive. I just wanted to let everyone know that Susun Weed has agreed to a

column as well

and I am in the process of setting that up. I am very very excited about this.

We will have 2

expert herbalists and you will be able to learn more about her approach to

healing on my

site soon. Her focus is not on Lyme but I am sure her words will be of great

interest to

many of you.

I too have extensive chemical sensitivities and a recent Lyme diagnosis and am

hoping

that treating the Lyme will address the MCS as well.

It's so nice to have you on this list.

Cheers,

www.PlanetThrive.com

>

> Hello Dear Friends,

> ...Before giving a bit about my own health stuff, i wanted to reply to the

person who

wrote asking about Susun Weed and the varying views on liver health. Susun Weed

is a

fascinating and radical herbalist. Some people in the larger herbal community

disagree

with her. Personally, i love reading her books, and i also enjoy reading lots

of other

information as well. You might enjoy the beginning section of her " Healing

Wise " book,

where she offers a most interesting comparison of varying views/models of health

and

healings, (ie; medical/holistic/wise woman)......i think your question touches

on this issue

of people having different models or approaches toward healing. Nourishment is

a huge

theme in her way of teaching. Clearly Buhner respects her, as he offers

gratitude to her in

his intro in his book on antibiotics. Hopefully you will be able to feel

within yourself what

is right for you in the moment.

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