Re: help <AMY>

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In a message dated 9/18/99 2:55:23 AM EST, amycasca@... writes:

<< At this point he needs a walker to get even to the bathroom...Whatever

this is has basically destroyed his life..He has lost his wife,his

business etc...

He is now staying in a back room at his brothers house.And ends up

spending most of his time alone.

He says that he can see but it is very blurred and things " move around "

Have any of you experienced this. >>

Hi Amy,

I'm so sorry that ur friend is having such a hard time. It took me over two

yrs to find a doctor who would treat me. I started out with the same

symptoms. My legs were so weak that I had to use a cane to get around and

then My arms could not hold thevane anymore and I was bedridden. I saw

everything around me very blurry. Almost as if I were looking through a long

tube. I remember looking out the window and the leaves on the trees used to

freak me out.. they used to move all over.. round and round. I had no

control of my eyeballs or sight. That among many other symptoms like your

friend has. Fortunatley I was able to find a Lyme Disease Doctor and get

treated Intravenously with Rocephin. I started to get better right away . I

was able to walk again and my sight cleared up after only several weeks. It

felt great to get out of the house again. But I DO remember how horrible it

felt to feel that way and not know what was wrong with me for so long. The

speculation was horrible. I read every medical book around ( b4 my eyes got

waky)and thought I had every disease that I read abt.

Amy.. Chemo sounds crazy !!!!!!! How any doc could reccomend CHEMO w/out a

valid reason is CRAZY !!!! I am not a doctor, but I can't understand how any

doc could reccomend CHEMO not knowing what is wrong with the patient.

Truthfully I'd RUN to another doc.

Please Tell ur friend to hang in there and to NOT GIVE UP !! I know what it

is like to feel desperate and so sick . But he will get better. I have said

this before and I truly do believe that God never gives any more than he

knows we can handle, and just when we think we really can't handle anymore

he will help us. Many of us on this list will agree I am sure. Look at My

Dear Lymie friend Cyntha..Thank God she is on Doxy now, and heading in the

right direction to better health. Prayer is a great thing, I will pray for

your friend as I do for each and every one of us every night. I have a good

feeling abt him. Just HANG IN THERE and BE STRONG !!