Guest guest Posted April 25, 2000 Report Share Posted April 25, 2000 This is my official response at Crichton's website to his affiliation with the June 1st " gala " ALDF Event: I read that you will be attending a Lyme disease " gala " which the ALDF is sponsoring on June 1st. Why are you attending this event? Are you aware that ALL patient advocacy and support groups view this group as inbred, greedy, and completely opposed to helping Lyme disease victims? The common perception in the Lyme community is that their board members work for insurance companies who seek to deny Lyme victims much-needed antibiotics, and that they are harassing our Lyme literate doctors by filing complaints against them with licensing boards for overuse of antibiotics. Please reconsider your association with this group. There is nothing to be " festive " about at a gala dance when Lyme disease victims are in wheelchairs, and have neurotoxins clouding their brains and destroying their lives. I was an attorney for 17 years, as well as a 4th year Seminary student when Lyme disease incapacitated me, and my entire family, in August of 1998. My husband and daughter are now asymptomatic after 9 months of long-term antibiotics, but my 14 year old son, who used to be in the gifted program in school is now failing and needs to be on long-term antibiotics but his doctor's license was revoked for treating Lyme patients with long-term antibiotics. My son's life and my life are ruined, and yet the ALDF believes there is something to celebrate! I simply cannot fathom this - would there be a gala event, and dance with festivities for polio victims, or AIDS victims? I hardly think so. I trust that you will make the right decision and end your affiliation with this event. I have read all of your books, but unfortunately, I can no longer read because of this illness, and I must wear sunglasses indoors due to light sensitivity. I cannot integrate letters into a Scrabble Board - this is an absolutely devastating disease, and certainly not one to be celebrated! I am happy to discuss this further with you if you are interested. Lovette Mott, Esquire 2389 Chambersburg Road Biglerville, PA 17307 (717) 334-6339 smott@... Quote Link to comment Share on other sites More sharing options...
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