Re: Lyme......and Celeste my daughter

[Guest guest]

My daughters have never been tested for Lyme disease...Celeste has had

problems even before she was born......all of my children have had some

problems of sorts...but nothing like Celeste...she has Hydrocephalus *in the

third ventricle of the brain...too much CSF on the brain* and Dandy

Malformation *an enlargement and cyst in the fourth ventricle of the brain.*

Celeste is also a failure to thrive *meaning she doesn't grow as she should*

She is now three and a half and weighs 22 lb. 6 oz. She is on a feeding

pump......to attempt to get her to grow...but it is still slow pace...I

recently talked to one of the mother's on Dandy onelist of mine and

she believes she has Lyme's and that is what has caused her son Cody's

problems......She is diagnosed with Fibromyalgia.....what a small world at

times.....but yet so large on ignorance....*not meaning everyone, just a

good portion of the people* She is now feeling like she may have answers to

her prayers....she never believed she had Fibromyalgia, like me....but

doctors kept telling her she couldn't have it....... it is good to feel

like perhaps I have helped someone...thanks to all of my lyme family for all

your support...to help me get the courage to where I am today...and the

courage I now have for the future....

Cyntha Landon Idaho

PS....all three of my daughters I scheduled an appointment with their

pediatrician on the 29th...wish me luck...I am going to demand they be

tested and treated........

Re: [Lyme-aid] platelet?

> >>

> >>

> >> >From: EJFisch@...

> >> >

> >> >In a message dated 09/24/1999 7:11:45 AM Pacific Daylight Time,

> >> >starshar@... writes:

> >> >

> >> ><< From: " Anita " <starshar@...>

> >> >

> >> > Hi all...

> >> >

> >> > I'm having trhe worst herx I'e ever had on this Flagyl...all neuro

> tsuff

> >> and

> >> > I feel like I'm losing it. I know m t typing stinks and I dont care

> >right

> >> > now..lol.

> >> >

> >> > My doc says my platelets dropped a bit. I have no idea what he was

> >> talking

> >> > about and was too sick to ask any more questions....

> >> >

> >> > soooo....what exactly does low platelets mean?

> >> >

> >> > thanks >>

> >> >ANITA, our platelets are the part of our blood that help with

clotting.

> >> >Flagyl is known to cause Thyropocytopenia (lowered platelet count).

> >Knowing

> >> >Dr. L. he will keep a close eye on this. Carol

> >> >

> >> >>Send to -Offtopiconelist messages unrelated to lyme,

> >please.

> >> >/archives.cgi/

> >> >/archives.cgi/Lyme-Documents

> >> >To unsubscribe, send email to -unsubscribeonelist

> >> >You may substitute " subscribe " , or " digest " or " normal " for

> >> >the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave

> >blank

> >> both the message and subject header.

> >> >

> >>

> >> > Send to -Offtopiconelist messages unrelated to lyme,

> please.

> >> /archive/lyme-aid

> >> /archives.cgi/Lyme-Documents

> >> To unsubscribe, send email to -unsubscribeonelist

> >> You may substitute " subscribe " , or " digest " or " normal " for

> >> the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave

> >blank both the message and subject header.

> >>

> >

> >>Send to -Offtopiconelist messages unrelated to lyme,

please.

> >/archive/lyme-aid

> >/archives.cgi/Lyme-Documents

> >To unsubscribe, send email to -unsubscribeonelist

> >You may substitute " subscribe " , or " digest " or " normal " for

> >the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave

blank

> both the message and subject header.

> >

>

> > Send to -Offtopiconelist messages unrelated to lyme, please.

> /archive/lyme-aid

> /archives.cgi/Lyme-Documents

> To unsubscribe, send email to -unsubscribeonelist

> You may substitute " subscribe " , or " digest " or " normal " for

> the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave

blank both the message and subject header.

>

[Guest guest]

,

Now I remember your previous posts about your daughters - Lyme brain. Anyway

I do wish you lots of luck with the pediatrician. Don't take no for an

answer. Boy do you have your hands full! My deepest well wishes to you (an

all)

Vicki

Re: [Lyme-aid] Lyme......and Celeste my daughter

>From: " Cyntha Landon " <cyntha@...>

>

>My daughters have never been tested for Lyme disease...Celeste has had

>problems even before she was born......all of my children have had some

>problems of sorts...but nothing like Celeste...she has Hydrocephalus *in

the

>third ventricle of the brain...too much CSF on the brain* and Dandy

>Malformation *an enlargement and cyst in the fourth ventricle of the

brain.*

>Celeste is also a failure to thrive *meaning she doesn't grow as she

should*

>She is now three and a half and weighs 22 lb. 6 oz. She is on a feeding

>pump......to attempt to get her to grow...but it is still slow pace...I

>recently talked to one of the mother's on Dandy onelist of mine and

>she believes she has Lyme's and that is what has caused her son Cody's

>problems......She is diagnosed with Fibromyalgia.....what a small world at

>times.....but yet so large on ignorance....*not meaning everyone, just a

>good portion of the people* She is now feeling like she may have answers

to

>her prayers....she never believed she had Fibromyalgia, like me....but

>doctors kept telling her she couldn't have it....... it is good to feel

>like perhaps I have helped someone...thanks to all of my lyme family for

all

>your support...to help me get the courage to where I am today...and the

>courage I now have for the future....

>

>Cyntha Landon Idaho

>

>PS....all three of my daughters I scheduled an appointment with their

>pediatrician on the 29th...wish me luck...I am going to demand they be

>tested and treated........

>

> Re: [Lyme-aid] platelet?

>> >>

>> >>

>> >> >From: EJFisch@...

>> >> >

>> >> >In a message dated 09/24/1999 7:11:45 AM Pacific Daylight Time,

>> >> >starshar@... writes:

>> >> >

>> >> ><< From: " Anita " <starshar@...>

>> >> >

>> >> > Hi all...

>> >> >

>> >> > I'm having trhe worst herx I'e ever had on this Flagyl...all neuro

>> tsuff

>> >> and

>> >> > I feel like I'm losing it. I know m t typing stinks and I dont care

>> >right

>> >> > now..lol.

>> >> >

>> >> > My doc says my platelets dropped a bit. I have no idea what he was

>> >> talking

>> >> > about and was too sick to ask any more questions....

>> >> >

>> >> > soooo....what exactly does low platelets mean?

>> >> >

>> >> > thanks >>

>> >> >ANITA, our platelets are the part of our blood that help with

>clotting.

>> >> >Flagyl is known to cause Thyropocytopenia (lowered platelet count).

>> >Knowing

>> >> >Dr. L. he will keep a close eye on this. Carol

>> >> >

[Guest guest]

Thankyou Vicki you are a wonderful wonderful friend...don't worry about the

Lyme brain fog...I often have to reask things too.

Cyntha Landon Idaho

Re: [Lyme-aid] platelet?

> >> >>

> >> >>

> >> >> >From: EJFisch@...

> >> >> >

> >> >> >In a message dated 09/24/1999 7:11:45 AM Pacific Daylight Time,

> >> >> >starshar@... writes:

> >> >> >

> >> >> ><< From: " Anita " <starshar@...>

> >> >> >

> >> >> > Hi all...

> >> >> >

> >> >> > I'm having trhe worst herx I'e ever had on this Flagyl...all neuro

> >> tsuff

> >> >> and

> >> >> > I feel like I'm losing it. I know m t typing stinks and I dont

care

> >> >right

> >> >> > now..lol.

> >> >> >

> >> >> > My doc says my platelets dropped a bit. I have no idea what he

was

> >> >> talking

> >> >> > about and was too sick to ask any more questions....

> >> >> >

> >> >> > soooo....what exactly does low platelets mean?

> >> >> >

> >> >> > thanks >>

> >> >> >ANITA, our platelets are the part of our blood that help with

> >clotting.

> >> >> >Flagyl is known to cause Thyropocytopenia (lowered platelet count).

> >> >Knowing

> >> >> >Dr. L. he will keep a close eye on this. Carol

> >> >> >

>

> > Send to -Offtopiconelist messages unrelated to lyme, please.

> /archive/lyme-aid

> /archives.cgi/Lyme-Documents

> To unsubscribe, send email to -unsubscribeonelist

> You may substitute " subscribe " , or " digest " or " normal " for

> the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave

blank both the message and subject header.

>