Hi future friends/supporters of RA

June 7, 2005

I'm finding it very interesting reading all the messages. It makes me

feel more human and that there are people out there that understand! I

was diagnosed with R.A. 2 1/2 yrs ago. On top of that I was also

daignosed with diabetes and liver disease. The liver disease is now

under control but I can't take the normal meds because they can cause

liver problems.

So I'm the experiment as one doc told me. I'm currently on Humiri and

Imuran, taking ibuprofen during the day, and pain meds at night if

needed. Prednisone is not good as it makes your blood sugar rise but I

have taken it and it does make the pain go away, but I can't take it

for long or I'll end up messing up my other organs. It is also bad for

bone mass and does make you gain weight, usually your face will pumpkin

out.

I still have pain somewhere every day, just some days are better than

others. I've learned to live with it most days. Without the meds, I'd

probably be disabled, as 2 years ago, I could barely walk, dress, or

start my car, let alone walk to work without tears.

This last month has been rough, not sure it is the change in weather

patterns or medicine changes since I just switched from Enbrel to

Humira 2 months ago, but my wrists feel like someone took a sledge

hammer to both of them this weekend. Without your hands, you are

pretty much useless. So let's just say I was in bed almost all

weekend, worrying if I'd be able to make it into work or not today.

But I made it! And I feel much better, thank God! As I had lost one

day last week.

I'm glad to hear others stories and wish all the best with this

terrible disease. I hope someday they find a cure or some better meds

that aren't so expensive and can keep us working and healthy!

So Jenni - eat some chocolate for me okay and take care! I'm so sorry

for all your pain. I feel for the children who have this terrible

disease and only glad it happened to me at this age rather than

earlier. How long have you had it?

You have just told me my worse fear, that I might have to be dependent

on family or someone else in the future, which scares me a lot as I've

always been independent and don't have anyone to take me in, my parents

have their own health issues. I have already been told by a few men

that they can't handle my health issues. But they ask me out, as I

look just fine, but when I tell them about my RA and diabetes, I'm

history.

That's my life.

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