Re : O2 Deprivation and Mitochondrial Myopathy

[Guest guest]

De : Christie <tab@...>

All in all, lyme dx was a great relief, as I had hope for improvement, but

with sick child and impending divorce - I am just a bit overwhelmed!

Christie,

hang in there! Unfortunately I know nothing about this MM you are worried

about, but one thing I DO know is that:

a) Lyme can give you just about any condition (some very reversible when

infection is treated, others vastly improved)

Rickettsia can do exactly the same

c) There was no real basis for your previous Dxs and yet baffled docs didn't

hesitate to give you the labels of Lupus, MS etc.

I understand your worries very well, (I for one don't want to have some

tests bec I'm afraid they'll be wrongly interpreted and then I'll be worried

sh--less about some stupid illness I might not even have). I really hope

you might be able to take some distance from what this guy said to you, as I

seem to think there was only very flimsy indications that you might fall in

the MM category. Afterall, most of these sx are nothing very specific, and

WE KNOW that smthng is not working right at the mitochondrial level so do

you really need this dx? Gee, I wish Drs were as enthusiastic about dxing

Lyme with so little evidence!

I'm sorry you're going through a divorce, and have to battle this as well as

you and you child being sick. Don't you wish you could just concentrate on

getting better, sitting by a pool in Florida, sipping Immunoca/Imuplus,

downing all them fun coloured pills, with your favorite co-Lymies and co

CFIDS friends, and we'd have beautiful looking, muscular and intelligent

(male) nurses giving us soothing and curative massages whenever we'd ask.

You get the picture?

We could also call for our chosen LLMDs and CFIDS docs to come and make home

visits, all in the name of the advancement of science, since we are guinea

pigs! At least THEY get fed and housed!

Nelly (raving on)