How to deal

[Guest guest]

I was diagnosed with RA & PA about a year ago. I am on Remicade

infusions & Arava. The pain is unbelievable some days...like today.

I am 44, married and have a 12 year old son. My question for

everyone

is: How do you get your spouse to understand some of what you are

going through on a daily basis? He treats me like I am a cripple. I

am in tears as I write this. He doesn't understand the disease aat

all and has never read any of the information that I have given to

him. He tells what I can & can't do....no 4-wheeling with him & the

group because.. " you'll get beat around " . No bike riding...no

exercising. He refused to go to the city today...WHY?? His

excuse: " You can't walk any way " . He says things like that all time.

I have to sneak to do things. When I am in a lot of pain I hear the

same old line.... " you're alway's sick and in pain " . I still can do a

lot of things and I know my limits (most times ! I work 30 to 40

hours a week and I am on my feet during the entire shift. I feel

really depressed right now and keep fighting the tears back. I feel

really angry at my disease and my husband. Being protective is one

thing but I feel like my life is being taken away not only from the

disease but my husband. So I am hoping I can find people on here

that

I can talk to becausse it's really difficult to have no one.