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Re: No longer in remission-Murion

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THANKYOU FOR......

Hi Murion,

No matter where you go you can always sign a form to get your old medical records from where-ever you came from. You have to sign a release of information so that they will send you the medical records. Have the doc that you went to, his office to fax or send that and the place that has your records will send them to the doc free of charge but if you ask for them yourself they will probably charge you for them.

DO NOT REGRET GROWING OLD; MANY ARE DENIED THE PRIVILEGE

-------Original Message-------

From: Harold Van Tuyl

Date: 08/01/05 11:45:53

Rheumatoid Arthritis

Subject: Re: No longer in remission

Welcome to the board and sorry to hear that your RA has come back to plague you. I wasn't helped much by Arava alone or Methotrexate alone but when we added Remicade to the Methotrexate and gradually increased the Remicade dose I was able to get off Prednisone and lead a fairly normal life. I still have some problems but I'd rather put up with them than take additional medication.

I've never been on Plaquenil but I know some people have good luck with it. I have heard that it generally has mild side effects but occasionally can affect the eyes so needs semiannual eye exams. I hope it works for you and gets you back into remission. God bless.

----- Original Message -----

From: muiron266

Rheumatoid Arthritis

Sent: Thursday, July 28, 2005 9:46 AM

Subject: No longer in remission

Hello group. I found this group last week after after being diagnosed in acute flare of RA.I was first diagnosed in 1992, and became bed-ridden within a year. It took 2 years to find the drug combination/therapy that worked for me. I gradually got better and went in to remission in 1999.With the exception of residual joint damage, I have been pretty much symptom and medication free for 6 years - until a few months ago. I live in a new state and don't have access to my old records, and after being in denial about emerging symptoms, finally got to a new rheumatologist a couple of months ago.Blood work did not indicate an elevated R factor, and with just my word to go on, he was, uummmmmm, not convinced that I had RA. Finally, my right shoulder exploded a couple weeks ago, and I went in to the office ahead of my next sheduled visit. I felt the doc gave me the "hysterical menopausal-female eye roll" - some of you know what I'm talking about.After examining the shoulder, he drained almost 40cc of fluid, and made the RA diagnosis. I started on Metho and had blood drawn.I went again yesterday for follow-up. I have some joints "simmering", but the shoulder feels better, and said I was optimistic. He said not to get too optimistic - a sed rate of 79 was HIGH for just one joint inflamed, the shoulder was better from the draining/injection and he felt the disease was coming back with a vengeance. Added Plaquenil, which I have not taken before, to the metho.I'm starting to remember the nightmare I was in before going into remission, and fighting to keep my panic under control, because I know that won't help things. Hey, at least my husband said to 'get someone to clean the house'! Don't have to ask me twice on that one!!Don't know much about the plaquenil. What do you say? muiron

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