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Re: No longer in remission

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Welcome to the board and sorry to hear that your RA has come back to plague you. I wasn't helped much by Arava alone or Methotrexate alone but when we added Remicade to the Methotrexate and gradually increased the Remicade dose I was able to get off Prednisone and lead a fairly normal life. I still have some problems but I'd rather put up with them than take additional medication.

I've never been on Plaquenil but I know some people have good luck with it. I have heard that it generally has mild side effects but occasionally can affect the eyes so needs semiannual eye exams. I hope it works for you and gets you back into remission. God bless.

----- Original Message -----

From: muiron266

Rheumatoid Arthritis

Sent: Thursday, July 28, 2005 9:46 AM

Subject: No longer in remission

Hello group. I found this group last week after after being diagnosed in acute flare of RA.I was first diagnosed in 1992, and became bed-ridden within a year. It took 2 years to find the drug combination/therapy that worked for me. I gradually got better and went in to remission in 1999.With the exception of residual joint damage, I have been pretty much symptom and medication free for 6 years - until a few months ago. I live in a new state and don't have access to my old records, and after being in denial about emerging symptoms, finally got to a new rheumatologist a couple of months ago.Blood work did not indicate an elevated R factor, and with just my word to go on, he was, uummmmmm, not convinced that I had RA. Finally, my right shoulder exploded a couple weeks ago, and I went in to the office ahead of my next sheduled visit. I felt the doc gave me the "hysterical menopausal-female eye roll" - some of you know what I'm talking about.After examining the shoulder, he drained almost 40cc of fluid, and made the RA diagnosis. I started on Metho and had blood drawn.I went again yesterday for follow-up. I have some joints "simmering", but the shoulder feels better, and said I was optimistic. He said not to get too optimistic - a sed rate of 79 was HIGH for just one joint inflamed, the shoulder was better from the draining/injection and he felt the disease was coming back with a vengeance. Added Plaquenil, which I have not taken before, to the metho.I'm starting to remember the nightmare I was in before going into remission, and fighting to keep my panic under control, because I know that won't help things. Hey, at least my husband said to 'get someone to clean the house'! Don't have to ask me twice on that one!!Don't know much about the plaquenil. What do you say? muiron

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hi, muiron! I tried methotrexate alone for two years, but my liver

function tests were all too high, so we had to abandon it. I also

tried the plaqenil, but broke out in a rash almost immediately, so that

did not work for me either. I am only on enbrel injections, and take

neurontin for pain, elavil to sleep, and fosamax once a week to stave

off osteoporosis. gentle hugs! Marcia, in western New York State

--- Harold Van Tuyl <hvantuyl@...> wrote:

> Welcome to the board and sorry to hear that your RA has come back to

> plague you. I wasn't helped much by Arava alone or Methotrexate

> alone but when we added Remicade to the Methotrexate and gradually

> increased the Remicade dose I was able to get off Prednisone and lead

> a fairly normal life. I still have some problems but I'd rather put

> up with them than take additional medication.

>

> I've never been on Plaquenil but I know some people have good luck

> with it. I have heard that it generally has mild side effects but

> occasionally can affect the eyes so needs semiannual eye exams. I

> hope it works for you and gets you back into remission. God bless.

> ----- Original Message -----

> From: muiron266

> Rheumatoid Arthritis

> Sent: Thursday, July 28, 2005 9:46 AM

> Subject: No longer in remission

>

>

> Hello group. I found this group last week after after being

> diagnosed

> in acute flare of RA.

>

> I was first diagnosed in 1992, and became bed-ridden within a year.

> It

> took 2 years to find the drug combination/therapy that worked for

> me.

> I gradually got better and went in to remission in 1999.

>

> With the exception of residual joint damage, I have been pretty

> much

> symptom and medication free for 6 years - until a few months ago. I

>

> live in a new state and don't have access to my old records, and

> after

> being in denial about emerging symptoms, finally got to a new

> rheumatologist a couple of months ago.

>

> Blood work did not indicate an elevated R factor, and with just my

> word to go on, he was, uummmmmm, not convinced that I had RA.

> Finally,

> my right shoulder exploded a couple weeks ago, and I went in to the

>

> office ahead of my next sheduled visit. I felt the doc gave me

> the " hysterical menopausal-female eye roll " - some of you know what

>

> I'm talking about.

>

> After examining the shoulder, he drained almost 40cc of fluid, and

> made the RA diagnosis. I started on Metho and had blood drawn.

>

> I went again yesterday for follow-up. I have some joints

> " simmering " ,

> but the shoulder feels better, and said I was optimistic. He said

> not

> to get too optimistic - a sed rate of 79 was HIGH for just one

> joint

> inflamed, the shoulder was better from the draining/injection and

> he

> felt the disease was coming back with a vengeance. Added Plaquenil,

>

> which I have not taken before, to the metho.

>

> I'm starting to remember the nightmare I was in before going into

> remission, and fighting to keep my panic under control, because I

> know

> that won't help things. Hey, at least my husband said to 'get

> someone

> to clean the house'! Don't have to ask me twice on that one!!

>

> Don't know much about the plaquenil. What do you say? muiron

>

>

>

>

>

>

>

>

>

>

>

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