Re: RA question about remission

[Guest guest]

Hi .......I've been in a TEAR Study for almost a year

now....haven't gone into remission yet....have days that are better

and of course over do it....gotta learn to budget those good

days.....LOL. I'm 41 now.....not in menopause yet...tho the hot

flashes and night sweats make it seem that way...all blood work

comes back normal on hormones. So don't know what remission feels

like yet...tho still hopeful.

According to my paper work at the Rheumy's....they are treating me

for Agressive RA....tho with my

luck lately.....I don't doubt that some of my meds are placeboes..

.....(@@). I can tell when it's time for the MTX ....and can't tell

any difference with the enbrel ...when I stop it for infections....I

can't tell that I didn't take it...but if I have to miss the MTX

dosage...I can TELL really fast... Could be enbrel is the real

thing and it's not working for me....Won't know til the study ends

tho.....I just take it one day at a time.

Carla

> Hi all,

>

> I mainly lurk and read, but have a question. I am 53 was diagnosed

> with RA in 5/04, but have certainly had it for 2-3 years prior to

> that. I am in the TEAR study through my Rheumy and my RA is somewhat

> controlled but not great.

>

> My question is has anyone had their RA go into remission and if for

how

> long? Does RA ever stay in remission? Have any of the women who had

> it go into remission have this happen around menopause?

>

> Thanks for any responses,

>

[Guest guest]

Carla,

My RA doctor asked about me doing a study on a new drug for RA and one

of my concerns was that how do I know I'm not getting placebo because

some of the people in the study are given placebo. I'd waste a year and

a half of time I could be on something that works better for me like

Humira, Enbrel or Remicade. I'd love to help but don't want to waste

anymore time fixing myself. So could be like you said that what you are

in the study for doesn't work for you...guess you won't know til it's

over? Good luck..I hope you get better.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Maggie

http://www.4HockeyFans.com

http://www.4FloridaHockey.com

MSN: Maggies1429

AOL: Maggies85

frogge wrote:

>Hi .......I've been in a TEAR Study for almost a year

>now....haven't gone into remission yet....have days that are better

> and of course over do it....gotta learn to budget those good

>days.....LOL. I'm 41 now.....not in menopause yet...tho the hot

>flashes and night sweats make it seem that way...all blood work

>comes back normal on hormones. So don't know what remission feels

>like yet...tho still hopeful.

>

> According to my paper work at the Rheumy's....they are treating me

>for Agressive RA....tho with my

>luck lately.....I don't doubt that some of my meds are placeboes..

>....(@@). I can tell when it's time for the MTX ....and can't tell

>any difference with the enbrel ...when I stop it for infections....I

>can't tell that I didn't take it...but if I have to miss the MTX

>dosage...I can TELL really fast... Could be enbrel is the real

>thing and it's not working for me....Won't know til the study ends

>tho.....I just take it one day at a time.

>

>Carla

>

>

>

>

>

[Guest guest]

hi, ! no remission here....have had RA & OA since age 43....now

55, and post-menapausal = no change = sorry = gentle hugs, Marcia

--- pretty24355 <kfonseca@...> wrote:

> Hi all,

>

> I mainly lurk and read, but have a question. I am 53 was diagnosed

> with RA in 5/04, but have certainly had it for 2-3 years prior to

> that. I am in the TEAR study through my Rheumy and my RA is somewhat

>

> controlled but not great.

>

> My question is has anyone had their RA go into remission and if for

> how

> long? Does RA ever stay in remission? Have any of the women who had

>

> it go into remission have this happen around menopause?

>

> Thanks for any responses,

>

>

>

>

__________________________________________________

[Guest guest]

I think that I've got the insidious RA. It was described as

smouldering and has never truly gone though the Methotrexate has kept

it pretty quiet until this past year.

I too went on a trial drug and they were pretty fussy about other

medications. Every time I took something new they fussed but I never

thought of asking for permission. Of course my study only lasted 12

weeks, and got pulled a week before the end so it wasn't the same as

yours.

If I were to go on another one I would have to wait a few months for

this drug or placebo to clear out of my system.

Annette

On 7/5/05, frogge <lilypadluxuries@...> wrote:

> Hi .......I've been in a TEAR Study for almost a year

> now....haven't gone into remission yet....have days that are better

> and of course over do it....gotta learn to budget those good

> days.....LOL. I'm 41 now.....not in menopause yet...tho the hot

> flashes and night sweats make it seem that way...all blood work

> comes back normal on hormones. So don't know what remission feels

> like yet...tho still hopeful.

>

> According to my paper work at the Rheumy's....they are treating me

> for Agressive RA....tho with my

> luck lately.....I don't doubt that some of my meds are placeboes..

> ....(@@). I can tell when it's time for the MTX ....and can't tell

> any difference with the enbrel ...when I stop it for infections....I

> can't tell that I didn't take it...but if I have to miss the MTX

> dosage...I can TELL really fast... Could be enbrel is the real

> thing and it's not working for me....Won't know til the study ends

> tho.....I just take it one day at a time.

>

> Carla

>

[Guest guest]

Hi Sam, It is common for RA to flare after birth because of hormones and/or the experience is traumatic to the body.

My rheumy has said he feels I should do well during pregnancy, even without meds, but I will not be able to breastfeed because I will need to go back on my meds right away. If Remicade is still working for me when I plan a pregnancy, he mentioned infused me again in the hospital after I have the baby. I just got engaged & am not getting married until next May but it is comforting to know my rheumy has a plan if we choose to have a baby in the future.

Take care,

Steph in VA

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~>Hi ...>I was first diagnosed at age 16. It went in to remission when I was >19 and stayed gone until the birth of my last baby at 34. It's been >back for the past two years. I truly believe, though cannot prove, >there is a hormonal link on some level.>Good Luck to you.>Sam