Re: Digest Number 1250

January 6, 2001

My dds temp is the same also and I am bf her. What does this mean exactly?

I didnt get to read the posts on this. Is this a good thing or a bad thing?

She is almost 8 mo. old and has only been ill one time and was over it in

about 3-4 days, I was over it in 1 day, and my hubby didnt get over it for

at least a week! I guess my dd and I have a good immune system? Does bf

help my immune system as well as my dd's? This is my first time bf, as I

wasn't able to do so with my first child. I just love bf and hope my dd

doesnt start to bite me now that she has 2 teeth! :-) Please let me know

what the 99 degree temp is all about. Thanks.

Ronda*

*mommy to unvaxed, bf, 7 1/2 mo. old Zayna Blair

and unfortunately vaxed, always sick, 6 year old, Darren Austin

> My son, Quinn's normal temp is 99 degrees... Yep... I have checked it

> frequently to make sure that my eyes weren't fooling me...*grins* Every

> time I felt his forehead and he was really warm... I would whip out the

temp

> and it would still say 99... so I figured...well.. I guess this is normal

> for him. *S* And he's hardly sick either... when he does get sick, he gets

> over it really quickly (within a couple days usually) as I am the one who

> usually gives it to him as I'm not THAT healthy like he is (I have

> allergies) and he still b.f. and I am already producing antibiodes to

fight

> mine...*S*

>

January 7, 2001

Ronda, we had just been discussing whether or not a higher body temperature

could possibly be a factor in someone having a healthier immune system. I

for one have a lower than normal body temperature, and am rarely if ever

sick. I think there are alot of reasons/variables that make a persons immune

system strong or weak...maybe body temperature does have something to do

with it. I haven't read or heard of any studies to support or deny it. As

for breastfeeding helping YOUR immune system, I've never heard of that

either. But with the breastfeeding topic...when my son bit me (once) when he

was getting teeth, I just screamed really loud right in his little face when

he did it. Scared the crap out of him (and me, smile) and he never did it

again. Mean, maybe, but VERY effective. My sister, on the other hand,

refused to let her son nurse for 5 -10 minutes after any time he bit her.

This was also very effective. If she does bite you, it is probably just

because it feels good on her newly emerging teeth/gums, and probably will

not last long. My son is 20 months old, still breastfeeding, and extremely

careful about not hurting his " nippies " or mommys' breasts. My

breasts/nipples are very sensitive and I have to admit, he is very

considerate...Sharon

Re: Digest Number 1250

> My dds temp is the same also and I am bf her. What does this mean

exactly?

> I didnt get to read the posts on this. Is this a good thing or a bad

thing?

> She is almost 8 mo. old and has only been ill one time and was over it in

> about 3-4 days, I was over it in 1 day, and my hubby didnt get over it for

> at least a week! I guess my dd and I have a good immune system? Does bf

> help my immune system as well as my dd's? This is my first time bf, as I

> wasn't able to do so with my first child. I just love bf and hope my dd

> doesnt start to bite me now that she has 2 teeth! :-) Please let me know

> what the 99 degree temp is all about. Thanks.

>

> Ronda*

>

> *mommy to unvaxed, bf, 7 1/2 mo. old Zayna Blair

> and unfortunately vaxed, always sick, 6 year old, Darren Austin

>

> > My son, Quinn's normal temp is 99 degrees... Yep... I have checked it

> > frequently to make sure that my eyes weren't fooling me...*grins* Every

> > time I felt his forehead and he was really warm... I would whip out the

> temp

> > and it would still say 99... so I figured...well.. I guess this is

normal

> > for him. *S* And he's hardly sick either... when he does get sick, he

gets

> > over it really quickly (within a couple days usually) as I am the one

who

> > usually gives it to him as I'm not THAT healthy like he is (I have

> > allergies) and he still b.f. and I am already producing antibiodes to

> fight

> > mine...*S*

> >

>

January 8, 2001

Ronda:)

Congradulations on breastfeeding:)

She probably will try to bite... everytime mine is teething, she bites...

but, they stop. My sister used to pluck her kids' mouths lightly when

they bit her. I cry out " ouch, that hurts mommie! " and I don't let her

nurse for a couple of minutes...

She still nurses and she'll be 2 in Feb... she now has 16 teeth and she

doesn't bite anymore:)~

BTW, she's very healthy too:)

Alison

La. SaHMommie to beautiful, breastfed, non-vax, co-sleeping Calista, born

2-13-99.

On Sun, 7 Jan 2001 01:36:31 -0500 " mrjr " <mrjr@...> writes:

I just love bf and hope

> my dd

> doesnt start to bite me now that she has 2 teeth! :-)

>

> Ronda*

>

> *mommy to unvaxed, bf, 7 1/2 mo. old Zayna Blair

> and unfortunately vaxed, always sick, 6 year old, Darren Austin

________________________________________________________________

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January 11, 2002

Patty..you must be a an awesome mom and have a heart of gold! I am a 31 year vet of JRA and lead a support system forkids, teens, parents and young adults who have had lives altered by JA. There are never too many questions or the wrong type of questions to ask the peds. Unfortunately with this disease wveryone may have some similar traits but the course of treatment varies from child to child. Sometimes its a trial and error , guinea pig type of process. I do not want to make light of this, it is just that you will need communicate closely with the treatment team and work with them until you find the course of treatment that works best for . Each of us on the group will cross our fingers (to the best of our ability..LOL)that gets the best treatment for her on the first attempt. Welcome to this group...between you and I (and the group of course...) You have found the best place to be. Everyone here is super and the experience and knowledge are priceless! Welcome again and keep us up to date on !!

Hugs to you and yours!

Donna Fox FACES Young Adult & Children's support system

Facing Arthritis with Compassion, Encouragement, and Support

Faces1999@...

January 11, 2002

Hi again Patty....there are many camps and conferences for kids and families. I highly recommend The AJAO (American Juvenile Arthritis Organization) Conference. This is an opportunity for you to meet parents, medical profesionals and for to meet other children with JRA also the siblings will meet other siblings. Camps are across the US in various places. Info about both of these can be found on the Arthritis Foundation site at www.arthritis.org

I hope this helps!

Donna

FACES Young Adult & Children's support system

Facing Arthritis with Compassion, Encouragement, and Support

Faces1999@...

September 27, 2003

Hiya

We'll wave from I-696 as we drive by today on our way to Algonac....

Charlie sees Selwa, MD at U of M neurology. I understand that the

amino acid tests they do are of little value. He had been a patient at Ford

Hospital on W. Grand Blvd for years.

Our local doc's in Grass lake are doing the other kind of amino acid test

and organic urine test for a lab called Metametrix. We pay for these

ourselves as Medicaid does not cover them. I had hoped to come up with the

money to

take Charlie to www.pathmed.com to see Dr. Braverman in NYC. He is a highly

respected MD who specializes in brain disorders.

When you are in NYC, you might check into this resource too.

I've heard of Sutton but lost track of things.

I;ve not heard of Dr Casman and hope he brings some help to your child.

joel casman. he is located in southfield, and his phone number is [248]

352-5433

Keep in touch

In a message dated 9/27/03 8:08:31 AM Eastern Daylight Time,

writes:

> Date: Fri, 26 Sep 2003 16:00:12 -0000

> From: " sawobri0 " <sawobri0@...>

> Subject: Re: naturopathy-charlies mom

>

> hi charlies mom ;]

> hope all is well.i live in detroit, right outside of harperwoods. the

> neuropath i am seeing is named dr. joel casman. he is located in

> southfield, and his phone number is [248] 352-5433. i cant really

> tell u if this approach is working yet, since i just started seein

> him, but he has degrees up the.... and he seems to know what he is

> talking about. he is nice enough to explain everything too.

> the biochemist i am going to take briana to is named alex sutton. ive

> heard many good things about him, mainly from everyone on the

> internet.it doesnt cost much, but they have started taking

> appointments, so if you want to see him, id call now. you can go on

> his website, and go under consultations, and it will tell you how to

> get in touch with him. he was sposto go to chicago, but that has been

> canceled. can you tell me about charlie. what doctors does he go to.

> i just made an appointment at u of m, and requested a

> biochemical/metalbolic test, a test for celiac disease, and a

> parasite test. i have just recently learned all those can factor into

> uncontrolled epilepsy. good luck,

> sarah, brianas mom

>

MJH

January 22, 2004

I'm looking for a place to get bar soap packaging, either shrink bags, box,

or something of the sort. Does anyone know of a place, or have any ideas?

Amy Webster

Sweet Escence Bath & Body

www.sweetescence.com

September 15, 2005

I am curious about his new drug. Where are you in the country and where can I find details about this drug. I am interested. Once a month dosing is not too bad. Better than gicing yourself shots daily, twice a week, weekly or every two weeks. And with NO side effects this sounds very interesting.

I am starting plaquinil after not being able to tolerate MTX, Doxycycline, Arava and Enbrel.

Toni in Texas

In a message dated 9/14/2005 1:37:45 P.M. Central Daylight Time, Rheumatoid Arthritis writes:

bunnylover" <mpalevsky@...>Subject: I had the Abatacept (study drug) Infusion TodayThe Abatacept infusion went great today! I got 750mg of the medicine, its based on your weight but they said this is the average. The infusion took only 30 minutes and that is because the doctor wanted it slowed down from the recommended 15 minutes. He also required that I stay for 30 minutes afterwards to be sure I was feeling ok.So far, I have had no side affects at all! My next 2 infusions are at 2 week intervals, and then they go to the standard monthly ones.They said that most people are reporting results by the second infusion, so I am really holding out high hopes. Thanks,Miriam

September 15, 2005

I live in Cleveland, Ohio, but this drug is being tested worldwide.

Abatacept has a list of potential side effect (as do all drugs), but

I have not had any.

By the end of the first evening, the red and swelling was gone from

my hands and my skin did not feel like it was on fire. The

underlying RA pain is still there (and severe), but I have been

thankful to have the burning, redness and swelling gone.

You can find information at these links:

http://mednews.stanford.edu/releases/2005/september/rheumatoid.html

http://arthritis.about.com/od/abatacept/

http://www.bms.com/news/press/data/pf_press_release_5828.html

My daughter takes plaquenil and it works well for her, when I tried

it, my liver values went through the roof. Enbrel worked for me for

a while, but my body decided it was smarter!

Good luck to you,

Miriam

>

> I am curious about his new drug. Where are you in the country

and where can

> I find details about this drug. I am interested. Once a month

dosing is

> not too bad. Better than gicing yourself shots daily, twice a

week, weekly or

> every two weeks. And with NO side effects this sounds very

interesting.

>

> I am starting plaquinil after not being able to tolerate MTX,

Doxycycline,

> Arava and Enbrel.

>

> Toni in Texas

>

> In a message dated 9/14/2005 1:37:45 P.M. Central Daylight Time,

> Rheumatoid Arthritis writes:

>

> bunnylover " <mpalevsky@m...>

> Subject: I had the Abatacept (study drug) Infusion Today

>

> The Abatacept infusion went great today! I got 750mg of the

medicine,

> its based on your weight but they said this is the average. The

> infusion took only 30 minutes and that is because the doctor

wanted it

> slowed down from the recommended 15 minutes. He also required

that I

> stay for 30 minutes afterwards to be sure I was feeling ok.

>

> So far, I have had no side affects at all! My next 2 infusions

are at

> 2 week intervals, and then they go to the standard monthly ones.

>

> They said that most people are reporting results by the second

> infusion, so I am really holding out high hopes.

>

> Thanks,

> Miriam

September 16, 2005

Hi Toni,

This is Steph in VA. You can find more info about Orencia from the

Bristol Myers Squibb website and the FDA website, among the others

mentioned.

Just remember, all drugs have side effects. I have been taking Remicade

for almost 5.5 years and have not had a single side effect. I've been very

fortunate that way.

By the way, based on my experience Centocor has asked me to be a

spokesperson for Remicade. I'm so excited to have this opportunity.

Take care!

Steph in VA:)

I am curious about his new drug. Where are you in the country and where can

I find details about this drug. I am interested. Once a month dosing is

not too bad. Better than gicing yourself shots daily, twice a week, weekly

or every two weeks. And with NO side effects this sounds very interesting.I

am starting plaquinil after not being able to tolerate MTX, Doxycycline,

Arava and Enbrel.

Toni in Texas

I had the Abatacept (study drug) Infusion Today The Abatacept

infusion went great today! I got 750mg of the medicine, its based on

your weight but they said this is the average. The infusion took only

30 minutes and that is because the doctor wanted it slowed down from the

recommended 15 minutes. He also required that I stay for 30 minutes

afterwards to be sure I was feeling ok. So far, I have had no side

affects at all! My next 2 infusions are at 2 week intervals, and then

they go to the standard monthly ones.They said that most people are

reporting results by the second infusion, so I am really holding out

high hopes.

Thanks,

Miriam

September 16, 2005

Hi , that's cool about being a spokes person for Centocor.......let

us know how that goes for you.

Dorey

www.LivingWithRheumatoidArthritis.com

----- Original Message -----

From: " DeNicola " <sdenicola@...>

Sent: Thursday, September 15, 2005 6:39 PM

Subject: Re: Digest Number 1250

> Hi Toni,

> This is Steph in VA. You can find more info about Orencia from the

> Bristol Myers Squibb website and the FDA website, among the others

> mentioned.

> Just remember, all drugs have side effects. I have been taking

> Remicade

> for almost 5.5 years and have not had a single side effect. I've been very

> fortunate that way.

> By the way, based on my experience Centocor has asked me to be a

> spokesperson for Remicade. I'm so excited to have this opportunity.

>

> Take care!

> Steph in VA:)

>

> I am curious about his new drug. Where are you in the country and where

> can

> I find details about this drug. I am interested. Once a month dosing is

> not too bad. Better than gicing yourself shots daily, twice a week,

> weekly

> or every two weeks. And with NO side effects this sounds very

> interesting.I

> am starting plaquinil after not being able to tolerate MTX, Doxycycline,

> Arava and Enbrel.

>

> Toni in Texas

>

> I had the Abatacept (study drug) Infusion Today The Abatacept

> infusion went great today! I got 750mg of the medicine, its based on

> your weight but they said this is the average. The infusion took only

> 30 minutes and that is because the doctor wanted it slowed down from the

> recommended 15 minutes. He also required that I stay for 30 minutes

> afterwards to be sure I was feeling ok. So far, I have had no side

> affects at all! My next 2 infusions are at 2 week intervals, and then

> they go to the standard monthly ones.They said that most people are

> reporting results by the second infusion, so I am really holding out

> high hopes.

> Thanks,

> Miriam

>

September 16, 2005

That is great Steph; looking forward to

see you on TV.

Have a great day,

Lynette & Queen Molly

(the fruit stealing Boston Terrier)

land/ Zone

7

Visit Molly at http://community.webshots.com/user/lmthib

----- Original Message -----

From: " DeNicola " <sdenicola@...>

Sent: Thursday, September 15, 2005 6:39 PM

Subject: Re: Digest Number

1250

By the way, based on my experience Centocor has

asked me to be a

> spokesperson for Remicade. I'm so excited to

have this opportunity.

>

> Take care!

> Steph in VA:)

>

September 17, 2005

--- Sam Rocci < How does

> it work? Do you do it in a doctor's office? How long

> does it take? Is

> it uncomfortable?

> Thanks for the input,

> Sam

>

Hi Sam,

I took Remicaid for over a year it was giveing in

the hospital at frist to me but can be giveing at the

drs office ,infussion center , or at home by home

health as long as a RN gives it, it really depends on

what your insurance requires for it to pay for it .

your most times giveing a tyinol and a benadril

before hand then they'll stick you and set you up for

an IV me always in the hand they start off slow for 30

mins then stop a while watching for side effects then

they give you the rest of it over 2 1/2 hours so time

they order or mix the med youer there close to 3 1/2

to 4 hours so perpare to sleep or take you a book they

woll watch your blood pressure and temp , pulse the

whole time at intervels , youll be in a recliner most

times and i didn't consider it uncomfortable at all

just have to be a patient person .

john

> >

>

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

September 17, 2005

Hi Sam,

Basically, being a spokesperson means they will be using my story of

diagnosis and treatment as a testimonial in their press ads for other

people. I've received Remicade in a doctor's office for a few months, in a

hospital's infusion onocoloy/hematology center (they and comfy chairs) and

now I receive it at home with home health care and my own RN. It has always

been determined by my insurance company. I like getting the infusion at home

b/c the timing is flexible and my insurance covers it 100%.

I get Tylenol & Benadryl as pre-meds to prevent an allergic reaction. I

take them about 30 minutes before the infusion starts. It starts out slow

and then speeds up every 30 minutes. It takes about 2 hours for me to

finish. It isn't as uncomfortable as you would think. The Benadryl lets me

have a nice nap. I've been on it so long that I can do a bunch of things

while hooked up -- eat, go to the bathroom and read. When I first started

Remicade I needed help with those things because I didn't know how strong

the tape was that holds the IV in.

Before being on Remicade I was on Enbrel for a few months. I take

Remicade every 6-8 weeks. Aside from the fact that I've had a better

response to Remicade, I prefer every 6-8 weeks to every so many hours like

Enbrel. It is more flexible, which I prefer.

Feel free to send more questions if you would like.

Take care,

Steph in VA

What does it mean to be spokesperson? I am on the verge of being switched

from Humira to Remicade... the IV thing is scary. How does it work? Do you

do it in a doctor's office? How long does it take? Is it uncomfortable?

Thanks for the input,

Sam

On Sep 15, 2005, at 6:39 PM, DeNicola wrote:

Hi Toni,

This is Steph in VA. You can find more info about Orencia from the

Bristol Myers Squibb website and the FDA website, among the others

mentioned.

Just remember, all drugs have side effects. I have been taking

Remicade for almost 5.5 years and have not had a single side effect. I've

been very fortunate that way.

By the way, based on my experience Centocor has asked me to be a

spokesperson for Remicade. I'm so excited to have this opportunity.

Take care!

Steph in VA:)

I am curious about his new drug. Where are you in the country and where

can I find details about this drug. I am interested. Once a month dosing

is not too bad. Better than gicing yourself shots daily, twice a week,

weekly or every two weeks. And with NO side effects this sounds very

interesting.I am starting plaquinil after not being able to tolerate MTX,

Doxycycline, Arava and Enbrel.