Guest guest Posted February 23, 2002 Report Share Posted February 23, 2002 Hi , How's Sebastian Coe doing these days? ;-). I used to be a runner. Anyway I'm a 52 year old male with low test levels,etc. I've been on the patch, both scrotal and the cellophane one and have been on AndoGel 5G./daily which is better than the others in my opinion but still hasen't been that great either. I finally get started this week on my new program from RenewYouth. After all blood tests etc. whew! I am starting out with a testosterone cream 100mg/daily(50mg. twice a day)especially compounded by their pharmacist. I do 2 month cycles then I do 2 weeks on Clomid(Clomiphene citrate)taken as a nightly oral trouche but I still take the testosterone cream but only 50mgs in the AM. After this cycle I will have another blood test to see if I need more or whatever. I also have been into lifting quite seriously(love them free squats and dead-lifts,eh;-)to improve over-all health,increase bone density etc. All that running I used to do(10 miles+ per day, religously)made me lean but also depressed my immune system. Perhaps you can offer an opinion. My PSA is low,0.65, so I probably don't need to take Saw Palmetto and this book on muscle building says to avoid this product as " The stimulation of the central nervous system by androgens that is based on the conversion of testosterone to DHT is lost while using Saw Palmetto. " Any opinion on this?<br> this is the site if intrested, good articles to read regardless and the people I spoke with are real nice.<br><a href=http://www.renewyouth.com/lowhormonesnheartattacks.shtml target=new>http://www.renewyouth.com/lowhormonesnheartattacks.shtml</a> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2003 Report Share Posted April 6, 2003 hi, my name is anita and i live in england. i hope you receive this as my pc is playing up. welcome to the family, you will receive all the info you need and if 1 person doesnt know, then someone else will, or just ask jerry. i was diagnosed oct 2002 put on 30mgs pred and 150mgs imuran, i am now down to 10mgs pred and expect to be on this for at least a year. in a year or so i will have another biopsy and maybe lower the imuran. i can only tell you of my problems, others are different, many have other auto-immune diseases, i have fibromyalgia and possibly myasthenia gravis, but some just have aih. i find depression, fatigue, pain and mood swings the worst, but again, so many of this group post to say how well they are and how there results are improving. as i said, i can only speak for myself. if you read some or all of the posts you will learn far more. just remember, we are alldifferent, and what one suffers, another may not, but as you get to know us all, you will feel so much more in control and you are not alone. i hope i hear from you again, as will the rest of this family,love,hugs and kisses anita ps whats your name ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2004 Report Share Posted January 14, 2004 When we are sick you must think what is my body doing??--it's speeding up isn't it--because it's trying to make you well by working very hard making those antibodies that are trying to attack your illness. Thus everything is going faster, our pulse, heart rate, ect. Throw into this mixture thyroid meds that do what cause your metabolism to speed up---thus you can't sleep---not good--it's very obvious here you need to reduce your meds when this happens to you. Take your pulse, do your own blood pressure--I bet it's very high-- this is very dangerous--you can have a heart attack going through something like this and the doctor just gave you sleeping pills---- whenever any one races with pulse or heart or blood pressure that is a sign that we are over doing something---thank-goodness you went off your drugs and slept--now go get your vitals checked. Gee I think doctors are going to kill all of us!!! -- In hypothyroidism , " margclark2000 " <margclark2000@y...> wrote: > Hi, I have been recently diagnosed with Hashimoto's. I am currently on 50mcg of > synthyroid and am battling bronchitus and a sinus infection. I have not slept since 5 > days ago. The doc prescribed sonata 5mg and I still haven't slept. I finally took myself > off the synthroid and all meds except for the antibiotitic and finally slept almost 7 > hours of a deep sleep. The drs. office thought I was crazy. I will put myself back on > the synthyrioid when I have had enough sleep to get over the bronchitus. Does > anyone have any solutions to offer? Thank you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2004 Report Share Posted October 8, 2004 I am sorry to hear about your cancer. My son had hodgkinson Disease before we knew he had CMT. He was given Vincristin twice for treatment before it had a disastrous affect. he lost the power in his legs and his hands. So please do not allow them to use vincistin . he did live for 13 years until he was 33. he had a full life but when i think he had to suffer bcause we did not know about his haveing cmt.But he was a brave would and taught us a lot. I also have CMT but it did not affect me until i was in my late 50's have . We know know that my 3 bothers have aklso passed it on to some of hteir children. i will pray for you that they find the right combinatio afmedication for your treatment Hugs from bobbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2004 Report Share Posted October 8, 2004 No words of advice as I am newly diagnosed with CMT, but will keep you in my prayers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2004 Report Share Posted October 9, 2004 , I am sorry to hear about this. I know a neurologist can answer these questions and help you avoid any neurotoxins during your treatment. I have been on the list for years now and there have been others with cancer that were able to avoid the medical alert medicines without any trouble. Please keep in touch with the list so we know how you are doing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2004 Report Share Posted October 10, 2004 NANCY, I HAD BREAST CANCER 30 YEARS AGO. I DID NOT HAVE TO HAVE ANY RADIATION OR CHEMOTHERAPY. HOWEVER, I DO BELIEVE I HAD ALL THE FEARS YOU HAVE AT THE TIME OF THE DIAGNOSIS. MY ADVICE WOULD BE TO TAKE IT ONE DAY AT A TIME DON'T RUSH INTO ANY TREATMENT WITHOUT TAKING TIME TO RESEARCH IT, OR ASK LOTS OF QUESTIONS. MANY BLESSINGS, ANGELA P. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2005 Report Share Posted June 18, 2005 New to group and recently diagnosed. After initial visits to two different rheumatologists, seems the " front-line thing to do " is begin taking methotrexate which I'm starting this weekend. I'd appreciate hearing from anyone who began this way--how it felt--I'm scared of course. I've never been big on the medical establishment way of throwing pharmaceuticals at you until something sticks-let alone listening to patients who like to do some research on their own:) I'm also interested in the diet/nutritional aspects of dealing with RA-since they have no idea what causes RA or how to cure it-can't hurt, eh? (so to speak). So--is it just all downhill from here, adding med after med until you're taking everything under the sun? Or trying one after another? Blessings to all, and thanks for responses. Wen Quote Link to comment Share on other sites More sharing options...
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