Re: Upset by my Rheumatologist today

[Guest guest]

I dunno....that seems kinda strange. I'd

be scared to let it go too...

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Maggie

http://www.4HockeyFans.com

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MSN: Maggies1429

AOL: Maggies85

wrote:

The Rheum. that I see is not the one who originally diagnosed me with my RA. He was a wonderful doctor but unfortunately became too sick to practice any more, but I credit him with saving my life and joints.

I was forced to get this new doctor, its really hard to find good ones where I live, I was going into New York City to see my last one, but this one is supposed to be good. I started seeing him due to Costochondritis. Anyway these past couple of months I have had flares on and off, but never when I see him! I am preparing to try to have a baby and today he talked to me about stepping down off of Humira, like injecting every 3 weeks instead of 2. I don't want to be on any of my meds when I am trying to conceive but I am most afraid of giving up Humira.

He said I was "psychologically dependent on Humira". I said, "No, my pain is real, my joints swell, I am not imagining this!" And he said, "No you misinterpreted what I meant, I mean that I think you do not need the Humira like you think you do but it has helped you so much you are scared to let it go".

I reminded him of the time in March when I had the flu and missed a dose. I felt for sure it wouldn't bother me because I had been taking it for so long and thought I wouldn't even miss it. I wasn't looking for my RA to come back but it did, after missing just one dose.

Anyway, sorry to ramble, just want to know what you all think? He said he would treat me with low doses of pred and tylenol when I go off the Humira. Sometimes I get the feeling he does not believe I have RA! Its just because he never saw me at my worse before I started Enbrel and Humira.

Thanks for reading,

[Guest guest]

General FYI about pregnancy and humira for everyone http://www.gicare.com/pated/infliximab.htm http://www.gicare.com/pated/infliximab.htm

[Guest guest]

If you are concerned that your doctor doesn't think you have RA, please have a serious discussion with him to let him know your concerns. If you can't be comfortable in discussing things with your doctor openly and honestly then you need a different doctor. God bless.

----- Original Message -----

From:

Rheumatoid Arthritis

Sent: Monday, August 29, 2005 5:56 PM

Subject: Upset by my Rheumatologist today

The Rheum. that I see is not the one who originally diagnosed me with my RA. He was a wonderful doctor but unfortunately became too sick to practice any more, but I credit him with saving my life and joints.I was forced to get this new doctor, its really hard to find good ones where I live, I was going into New York City to see my last one, but this one is supposed to be good. I started seeing him due to Costochondritis. Anyway these past couple of months I have had flares on and off, but never when I see him! I am preparing to try to have a baby and today he talked to me about stepping down off of Humira, like injecting every 3 weeks instead of 2. I don't want to be on any of my meds when I am trying to conceive but I am most afraid of giving up Humira.He said I was "psychologically dependent on Humira". I said, "No, my pain is real, my joints swell, I am not imagining this!" And he said, "No you misinterpreted what I meant, I mean that I think you do not need the Humira like you think you do but it has helped you so much you are scared to let it go".I reminded him of the time in March when I had the flu and missed a dose. I felt for sure it wouldn't bother me because I had been taking it for so long and thought I wouldn't even miss it. I wasn't looking for my RA to come back but it did, after missing just one dose.Anyway, sorry to ramble, just want to know what you all think? He said he would treat me with low doses of pred and tylenol when I go off the Humira. Sometimes I get the feeling he does not believe I have RA! Its just because he never saw me at my worse before I started Enbrel and Humira.Thanks for reading,