Guest guest Posted February 2, 2002 Report Share Posted February 2, 2002 hi Sharon,<br><br>i've been having knee problems for 13 years, used a brace for 12 years, and only a few months ago when i started pt i started taping myself- and it is much better than bracing. my patellas feel great when being taped.<br><br>i think that an os who tells you u to live with the pain, and at the same time doesn't want you to do something that helps you (taping your knees in your case) is not an os that i could trust.<br><br>i understand the frustration from seeing too many docrtors who don't seem to even listen - i went to 7 different os's in the past couple of years, until i found someone who seems to know what he is talking about. <br><br>in general, i cannot trust os's who tell me to " there's nothing i can do, you have to live with the pain " . i would look for a different os. <br><br>-sigal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2010 Report Share Posted October 9, 2010 Well at best I can say to tread cautiously. Many people take offense at advice they don't ask for. Perhaps talking about how great you've felt since going gf might open the conversation a bit about what the diet is and how it helps you cognitively. Then casually mentioning that you have heard it's also been really helpful to children with autism. (This is providing she knows he has autism and has been diagnosed, rather than you he has it and she does not yet) This diet helps some kids tremendously and others it does not. It did not do anything for my son. But it has helped me and my NT child a lot. I think it's worth exploring. But over the years I've learned that many parents, even relatives don't want my input on how to help their special needs child. Sadly, because what I know could help them so much...but they just aren't receptive to it. I guess you will have to kind of feel out if she is open to suggestions on helping manage her son's condition. Good luck! Jan > > Today I babysat a friend's son... my friend has been told her little boy has " mild autism. " He is the sweetest, kindest boy I've ever met... just 4 1/2 years old. I was watching him for signs of Autism...and can see that he sometimes he just isn't " all there. " I myself have Celiac and have to eat gluten-free. I have noticed many positive neurological changes since going GF. especially the feeling of " haziness " and " disorientation " that I had almost 24/7.... and so now am wondering if this child should be on a Gluten-Free diet? > > How should I go about telling my friend about the GF diet... and that perhaps it might help her son's condition?? (Or would that be offensive to her?) I feel like it's worth a try! Do any of you out there have young children w/ Autism on a GF diet, and how has it helped or not helped?? > > -Christie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2010 Report Share Posted October 9, 2010 We have seen TREMENDOUS improvements in our son since starting the GFCF diet with probiotics and an anti-candida protocol. He was born with a massive brain deformity, had the left half of his brain removed in a series of three surgeries to stop intractable seizures (the first surgery at 3 months old), is partially paralyzed, non-verbal, and has a chiari malformation. Relevant to this group is that he has been bombarded with antibiotics since birth due to his many hospitalizations for seizures, surgery (the last hospitalization was one month in the ICU) and received all vaccinations. Now he has been diagnosed with autism. His doctors just shrug their shoulders “… it could be the seizures…. Maybe the good half wasn’t as good as we thought” for the cause of the autism. Uh, sorry docs, but not a good enough answer for me. We started him on GFCF etc at 3 ½ years old and within two weeks his eye contact improved, he’s started trying to talk again (remember that the part of the brain which houses expressive and receptive language for him is gone), trying to sign, and his bowel movements are spectacular! The diet for us is easy because we’re very healthy eaters and have never really turned to fast food or pre-packaged foods for meals. The best way to approach it is to just inquire about how things are going with the autism diagnosis, has she seen improvements with therapy, etc. Get her to talk about it a bit. Then talk about the diet. I’ve learned in my almost four years in this world of extreme special needs that there are some parents that get it and some parents that don’t. Not much you can do about that other than to gently coax her along. Monika _____ From: [mailto: ] On Behalf Of mercurybabies2 Sent: Saturday, October 09, 2010 7:31 AM Subject: [ ] Re: Advice Needed!! Well at best I can say to tread cautiously. Many people take offense at advice they don't ask for. Perhaps talking about how great you've felt since going gf might open the conversation a bit about what the diet is and how it helps you cognitively. Then casually mentioning that you have heard it's also been really helpful to children with autism. (This is providing she knows he has autism and has been diagnosed, rather than you he has it and she does not yet) This diet helps some kids tremendously and others it does not. It did not do anything for my son. But it has helped me and my NT child a lot. I think it's worth exploring. But over the years I've learned that many parents, even relatives don't want my input on how to help their special needs child. Sadly, because what I know could help them so much...but they just aren't receptive to it. I guess you will have to kind of feel out if she is open to suggestions on helping manage her son's condition. Good luck! Jan > > Today I babysat a friend's son... my friend has been told her little boy has " mild autism. " He is the sweetest, kindest boy I've ever met... just 4 1/2 years old. I was watching him for signs of Autism...and can see that he sometimes he just isn't " all there. " I myself have Celiac and have to eat gluten-free. I have noticed many positive neurological changes since going GF. especially the feeling of " haziness " and " disorientation " that I had almost 24/7.... and so now am wondering if this child should be on a Gluten-Free diet? > > How should I go about telling my friend about the GF diet... and that perhaps it might help her son's condition?? (Or would that be offensive to her?) I feel like it's worth a try! Do any of you out there have young children w/ Autism on a GF diet, and how has it helped or not helped?? > > -Christie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2010 Report Share Posted October 9, 2010 Sounds great... THANK YOU so much for your advice. And I'm so happy that your son has seen so many improvements!!! -Christie > > > > Today I babysat a friend's son... my friend has been told her little boy > has " mild autism. " He is the sweetest, kindest boy I've ever met... just 4 > 1/2 years old. I was watching him for signs of Autism...and can see that he > sometimes he just isn't " all there. " I myself have Celiac and have to eat > gluten-free. I have noticed many positive neurological changes since going > GF. especially the feeling of " haziness " and " disorientation " that I had > almost 24/7.... and so now am wondering if this child should be on a > Gluten-Free diet? > > > > How should I go about telling my friend about the GF diet... and that > perhaps it might help her son's condition?? (Or would that be offensive to > her?) I feel like it's worth a try! Do any of you out there have young > children w/ Autism on a GF diet, and how has it helped or not helped?? > > > > -Christie > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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