Re: Therapy during chelation

[Guest guest]

We did a ton of therapies while we chelated (we are still chelating). To teach

things my child couldn't do/learn while in the fog of autism. We did hire a

behavioral therapist to help me with ways to re-teach skills my child had lost

(he was older when he regressed - 4yrs old), like potty skills, getting dressed,

dealing with frustration tolerance, basic safety, how to phrase questions to get

a response, etc. We never did ABA - but I have philosophical issues with it and

I know others rave about the success they have had with it. We did OT, RDI,

speech, and homeschool so that every day, all day was 'therapy'. We were

incorporating all the therapies, social skills, life skills, and education all

into one every day.

The only therapies my son still has are psychological therapy (he is emotionally

traumatized from experiencing his regression, and has PTSD unrelated from a

surgery at a younger age), and he is part of special needs rec programs to

improve coordination and skills in taking part in a class environment. We still

homeschool, but that is because he turned out to be highly gifted and is working

too many grade levels above his age. It does make biomed easier though, and I

like not having him in the public school to be turned into a sheeple.

>

> I know by chelating we are ridding the body of what is damaging it, and it is

the right thing to do. I'm just wondering what kind of child I will have when we

have finished. Is she going to magically learn everything she has missed since

she has been in this fog? What therapies are you all using with your child? ABA?

Sonrise? Speech? OT? etc. Does everyone have their child in some kind of therapy

while going through chelation? Just wondering what's working for others to best

help my daughter.

>

> Thanks,

> Emerson

>

[Guest guest]

I think IF and WHAT type of therapy you do depends on your child, current

cognitive/receptive abilities, their level on the spectrum, etc.  To add, if

your child attends public school, what do they do while in school?  

It's different for everyone but I think chelation should be considered the base

then what you do on top of that depends on the needs of your child.

S.

>

>From: emjuliet7 <emjuliet7@...>

>

>Sent: Sun, October 3, 2010 12:20:49 AM

>Subject: [ ] Therapy during chelation

>

> 

>I know by chelating we are ridding the body of what is damaging it, and it is

>the right thing to do. I'm just wondering what kind of child I will have when

we

>have finished. Is she going to magically learn everything she has missed since

>she has been in this fog? What therapies are you all using with your child?

ABA?

>Sonrise? Speech? OT? etc. Does everyone have their child in some kind of

therapy

>while going through chelation? Just wondering what's working for others to best

>help my daughter.

>

>Thanks,

>Emerson

>

>

>

[Guest guest]

I took a few post grad courses in ABA from Florida Institute of Technology and I

learned to do therapy for my son. It does not seem that he is learning MOST of

the time, it is a real struggle. I read to him in the bathtub, sit in front of

him with his knees locked between mine to get him to attend to something I am

teaching, look in a mirror with him to make sounds/say words, I would LOVE to

have a swing in my house so I could teach him while he is swinging. Most of the

time, like I said, my efforts seem fruitless...but then there are those windows

where he comes out - he comes out and amazes us at what he knows or what he has

learned from very minimal teaching.

The other day he showed us he knew most of the numbers 21-30. We had only

worked on identifying them one or two times, and suddenly he is saying the

numbers my older son is holding up for him (this was in the car). He worked for

a Larabar, a kind of dried fruit and nut bar. It is amazing what your child

will do for things that motivate them. Find things that motivate and start

teaching, never stop teaching because they are IN THERE!

If you don't have the money to take courses, read some good books on how to

engage your child or watch videos of ABA therapy being done on Youtube. I used

a lot of resources and was creative as possible. I talked to therapists at

school about ideas and other moms. If you are getting frustrated, change your

method to fit your child's interests and learning style. You are going to have

to be very creative.

Liz

>

> I know by chelating we are ridding the body of what is damaging it, and it is

the right thing to do. I'm just wondering what kind of child I will have when we

have finished. Is she going to magically learn everything she has missed since

she has been in this fog? What therapies are you all using with your child? ABA?

Sonrise? Speech? OT? etc. Does everyone have their child in some kind of therapy

while going through chelation? Just wondering what's working for others to best

help my daughter.

>

> Thanks,

> Emerson

>

[Guest guest]

Thanks for the input everyone! We have been doing ABA for almost a year

now...probably not as many hours as we should just because we can't afford it.

But I feel like my daughter needs something different. I'm in the process of

setting up a " preschool " in our home so we can work with her one on one. It's

just so difficult sometimes because we also have a 15 month old daughter who

definitely requires a lot of attention. It's hard when they both are pulling at

me wanting that individual attention!

> >

> > I know by chelating we are ridding the body of what is damaging it, and it

is the right thing to do. I'm just wondering what kind of child I will have when

we have finished. Is she going to magically learn everything she has missed

since she has been in this fog? What therapies are you all using with your

child? ABA? Sonrise? Speech? OT? etc. Does everyone have their child in some

kind of therapy while going through chelation? Just wondering what's working for

others to best help my daughter.

> >

> > Thanks,

> > Emerson

> >

>

[Guest guest]

I am sorry you feel your daughter needs something different. ABA is supposed to

be tailored to the needs of the child and is supposed to take place in a

" natural setting " , not specifically at the table doing discrete trial testing

anymore. I work with a 14 year old and since the BCBA set up the program we

have made many changes to accommodate her needs and she is doing really well

now. I always ask her parents what they think about certain things we are

doing, what else they want her to learn, etc.

It can be all about what you want it to be. You can use ABA to teach anything -

chores, life skills, academics, social skills, etc. You have a great

opportunity to tell the ABA therapist what is important in your eyes and

structure it from there. Even if you don't continue ABA, I hope you learned

something from it that you can carry over to the preschool you are setting up.

Liz

> > >

> > > I know by chelating we are ridding the body of what is damaging it, and it

is the right thing to do. I'm just wondering what kind of child I will have when

we have finished. Is she going to magically learn everything she has missed

since she has been in this fog? What therapies are you all using with your

child? ABA? Sonrise? Speech? OT? etc. Does everyone have their child in some

kind of therapy while going through chelation? Just wondering what's working for

others to best help my daughter.

> > >

> > > Thanks,

> > > Emerson

> > >

> >

>

[Guest guest]

To chime in Emerson and tag onto what Liz has said,

I took some courses too and had training in my home before I started

Homeschooling; I had some similar experiences with doing ABA at

home.  (I chose

ABA at home because that was the only protocol our old school district would do

in school; it was either she watch TV all day or I try to make them do ABA

correctly to be somewhat productive while in school).

So, in the beginning, it was hard until I started teaching outside, on walks,

on

hikes, etc. Also, when I started using material that had " meaning " to her, I

started getting eye contact. I had to do all of this to help out at school then

train the teachers at school. I was able to do this with a small amount

of success pre-chelation and post-GFCF but everything became easier once I

started chelation. My daughter started soaking in the information.

I also have switched how I work with my daughter at home.  We are in public

school in VA now but I still do work at home. The BIG change is insteading of

presenting what I want her to learn over and over again, I plan work by Blocks

on rotation cycles; so we will do a block of work one week then a diff block

the

next week, then cycle back to the original block of work maybe 3 to 4 weeks

later to see where we are. I am finding that my daughter is remembering more

and

more and the constant repetition until a goal is mastered is not working for us

now.  The constant repetition is actually making everything worse with the

generalization. 

I think the key is to chelate, chelate, chelate, use supplements appropriate for

your child and find out how your child learns (which can be hard initially

depending on the severity level).

  S.

>

>From: Liz <elizabethsoliday@...>

>

>Sent: Sun, October 3, 2010 10:14:22 PM

>Subject: [ ] Re: Therapy during chelation

>

> 

>I took a few post grad courses in ABA from Florida Institute of Technology and

I

>learned to do therapy for my son. It does not seem that he is learning MOST of

>the time, it is a real struggle. I read to him in the bathtub, sit in front of

>him with his knees locked between mine to get him to attend to something I am

>teaching, look in a mirror with him to make sounds/say words, I would LOVE to

>have a swing in my house so I could teach him while he is swinging. Most of the

>time, like I said, my efforts seem fruitless...but then there are those windows

>where he comes out - he comes out and amazes us at what he knows or what he has

>learned from very minimal teaching.

>

>

>The other day he showed us he knew most of the numbers 21-30. We had only

worked

>on identifying them one or two times, and suddenly he is saying the numbers my

>older son is holding up for him (this was in the car). He worked for a Larabar,

>a kind of dried fruit and nut bar. It is amazing what your child will do for

>things that motivate them. Find things that motivate and start teaching, never

>stop teaching because they are IN THERE!

>

>

>If you don't have the money to take courses, read some good books on how to

>engage your child or watch videos of ABA therapy being done on Youtube. I used

a

>lot of resources and was creative as possible. I talked to therapists at school

>about ideas and other moms. If you are getting frustrated, change your method

to

>fit your child's interests and learning style. You are going to have to be very

>creative.

>

>Liz

>

>

>>

>> I know by chelating we are ridding the body of what is damaging it, and it is

>>the right thing to do. I'm just wondering what kind of child I will have when

we

>>have finished. Is she going to magically learn everything she has missed since

>>she has been in this fog? What therapies are you all using with your child?

ABA?

>>Sonrise? Speech? OT? etc. Does everyone have their child in some kind of

therapy

>>while going through chelation? Just wondering what's working for others to

best

>>help my daughter.

>>

>> Thanks,

>> Emerson

>>

>

>

>

[Guest guest]

It's a great idea to rotate the material in blocks and continue to try

different things.

I had one student who only knew the letter X for 8 weeks... I didn't just

flash card him 2 or 3 times daily but we did alphabet songs, u-tubes, I

taught them ASL (sign language), they did alpha puzzles, pinning the letters on

various things in the classroom, playing racing games on the ABC carpet

and made alpha paintings and pictures in the classroom, in the sand and with

water on the walls - I did many different alpha activities. Finally he also

got Z... for a few weeks he only knew X and Z...

THEN it kicked in and within a few more weeks he had all 26 letters and

soon after that his sounds. I never knew what his diagnosis is but found

many teachers SAT a child like this after working with them just a few weeks

and sometimes give up even before that. Some kids need much more rep. and

many different ways to have the information presented (check out the multiple

intelligence on google and find one or two that are your child's learning

style). If you find something that works, it's a great idea to try to train

the teachers (some won't be receptive but many will).

People give up too soon on repetition and don't rotate things done to teach

a concept. They also show frustration which children with learning

disabilities may be extra sensitive to. Everyone knew my special boy got to

paint the X, place the X on the puzzle, say the X when the card was shown so

he could feel successful. Pretty soon he was proud that he could also do Z.

He'd giggle and say, 'those are my letters.' And the class cheered when

he could say more letters and sounds and would pat him on the head saying,

" he's doing such a good job Ms. W. "

Just wanted to say keep on trying stuff and don't get give up. After

about 6 weeks, I never thought this child would know more than X. I couldn't

believe that within another 6 weeks, he'd have the whole alphabet and

sounds. I was so glad that I didn't give up and used parent helpers to also

work

with him one-on-one.

/Rosegvr

[Guest guest]

I have a hard time getting my son to read, so I sit look at what he choses to

watch on TV, pause it, and write a sentence on a white board about it. Then I

read it to him, and have him read it again with me. We watch the same scene

three or four times (if interesting enough) and write sentences about different

things we see. Maybe this would help engage your child and give the opportunity

for speaking along with reading.

>

> My son has a problem with sentences construction. The speech therapist gave

him

> a picture say a dog painting his house and she wants him to say " the dog is

> painting his house " which he doesn't say. He will say dog or house.

> But when he speaks to me he will say " please put glass in the kitchen " or " JJ

> bothers me " .

> It just feel as if this technique doesn't work and if we aren't getting any

> where.

> He use to struggle to say " the " so I made some " THE " on the computer on put it

> on the wall, the couch, door, tv etc. And I would say pointing the door, the

> wall, the cupboard for 2 months and suddenly one day he pointed the wall, the

> door, I burst into tears. His problem lays with using abstract words. Any

ideas

> on techniques for construction of sentences.

>

> Thank you

> Heleen

>

>

>

> ________________________________

> From: " RoseGvr@... " <RoseGvr@...>

>

> Sent: Thu, October 7, 2010 5:52:35 AM

> Subject: [ ] Re: Therapy during chelation

>

>

> It's a great idea to rotate the material in blocks and continue to try

> different things.

>

> I had one student who only knew the letter X for 8 weeks... I didn't just

> flash card him 2 or 3 times daily but we did alphabet songs, u-tubes, I

> taught them ASL (sign language), they did alpha puzzles, pinning the letters

on

>

> various things in the classroom, playing racing games on the ABC carpet

> and made alpha paintings and pictures in the classroom, in the sand and with

> water on the walls - I did many different alpha activities. Finally he also

> got Z... for a few weeks he only knew X and Z...

>

> THEN it kicked in and within a few more weeks he had all 26 letters and

> soon after that his sounds. I never knew what his diagnosis is but found

> many teachers SAT a child like this after working with them just a few weeks

> and sometimes give up even before that. Some kids need much more rep. and

> many different ways to have the information presented (check out the multiple

> intelligence on google and find one or two that are your child's learning

> style). If you find something that works, it's a great idea to try to train

> the teachers (some won't be receptive but many will).

>

> People give up too soon on repetition and don't rotate things done to teach

> a concept. They also show frustration which children with learning

> disabilities may be extra sensitive to. Everyone knew my special boy got to

> paint the X, place the X on the puzzle, say the X when the card was shown so

> he could feel successful. Pretty soon he was proud that he could also do Z.

> He'd giggle and say, 'those are my letters.' And the class cheered when

> he could say more letters and sounds and would pat him on the head saying,

> " he's doing such a good job Ms. W. "

>

> Just wanted to say keep on trying stuff and don't get give up. After

> about 6 weeks, I never thought this child would know more than X. I couldn't

> believe that within another 6 weeks, he'd have the whole alphabet and

> sounds. I was so glad that I didn't give up and used parent helpers to also

> work

>

> with him one-on-one.

>

> /Rosegvr

>

>

[Guest guest]

Lakeshore Learning has a sentence game/puzzle type activity called 'silly

sentences.' You separate them into verbs, nouns, pronouns, adjectives and

etc. and the kids make up a silly sentence and read it. You could play it

with him and take turns making 'silly sentences.'

They also have dice with letters and words in them (very cheap). You roll

and see how many words or sentences you can come up with.

You can check out sentence activities and games online at Lakeshore

Learning (teacher supply store). You can also use construction paper or get

sentence strips there and write out sentences and have your child put them

together. If he can figure them out, he gets a treat. Like, 'the cookie is in

the closet.' Then he can go find it. Or the quarter is in the master

bathroom.' You cut them up, mix up the words and let him put them together and

go get his reward.

Try different things and don't get discouraged if you have to help him with

a few words. Pretty soon, he'll get better and better. Then he can write

sentences, cut them up and have you put them together for his treasure

hunt.

Best wishes,

/Rosegvr

[Guest guest]

Thank you,

I forget to mention that he is turning 5 this week. We speak Afrikaans, but I'm

sure I can use the ideas. Because he is only 4 the speech therapist feels that

writing the sentences won't help him because he doesn't know how the sounds look

and can't read yet. I have to repeat it to him over and over by saying the

sentence so that he will remember it and say it back to me. She would give me an

rhyme with 8 lines and expect him to learn it in 1 weeks time. This technique is

not working at all, I just feel there must be another way to help him.

________________________________

From: " RoseGvr@... " <RoseGvr@...>

Sent: Sat, October 9, 2010 7:12:38 AM

Subject: [ ] Re: Therapy during chelation

Lakeshore Learning has a sentence game/puzzle type activity called 'silly

sentences.' You separate them into verbs, nouns, pronouns, adjectives and

etc. and the kids make up a silly sentence and read it. You could play it

with him and take turns making 'silly sentences.'

They also have dice with letters and words in them (very cheap). You roll

and see how many words or sentences you can come up with.

You can check out sentence activities and games online at Lakeshore

Learning (teacher supply store). You can also use construction paper or get

sentence strips there and write out sentences and have your child put them

together. If he can figure them out, he gets a treat. Like, 'the cookie is in

the closet.' Then he can go find it. Or the quarter is in the master

bathroom.' You cut them up, mix up the words and let him put them together and

go get his reward.

Try different things and don't get discouraged if you have to help him with

a few words. Pretty soon, he'll get better and better. Then he can write

sentences, cut them up and have you put them together for his treasure

hunt.

Best wishes,

/Rosegvr

[Guest guest]

That's okay - do some alphabet games and save the sentence activities for a

couple years down the road. Lakeshore has tons of those too and kids love

them. You can also get pictures of animals and have him use the word in a

sentence. That may help - you can prompt him or just demonstrate. He is

learning even when he isn't yet responding.

[Guest guest]

Thanks . I just have to have faith and keep going.

________________________________

From: " RoseGvr@... " <RoseGvr@...>

Sent: Mon, October 11, 2010 7:55:32 PM

Subject: [ ] Re: Therapy during chelation

That's okay - do some alphabet games and save the sentence activities for a

couple years down the road. Lakeshore has tons of those too and kids love

them. You can also get pictures of animals and have him use the word in a

sentence. That may help - you can prompt him or just demonstrate. He is

learning even when he isn't yet responding.

[Guest guest]

My son had the same issue. His obsession was with shapes and colors so I made

simple three work sentences using his favorite colored shapes. The blue square

represented articles like " a " and " the " . I used a yellow circle (like a face)

for nouns or pronouns and green triangle for verbs (action green) I would say

the words while taking the shape and arrange it in front of my son and have him

repeat what he could...slowly he started from one word sentences to two, then

three. When I started teaching him other words I always put them in their

" gramatical shape " . That was a year ago. Now I am testing rosetta stone english

version 1 cause its great to show those social expressions along with the

sentence structure. I guess find what your childs affinity is for and see if

you can " create " your own vsual aid to go with the language structure. Our kids

need multi_sensory exposure as you already seen, sometimes we just need to make

it fun and in their " terms " m. Good luck!

Sent from my BlackBerry® by Boost Mobile

[ ] Re: Therapy during chelation

It's a great idea to rotate the material in blocks and continue to try

different things.

I had one student who only knew the letter X for 8 weeks... I didn't just

flash card him 2 or 3 times daily but we did alphabet songs, u-tubes, I

taught them ASL (sign language), they did alpha puzzles, pinning the letters on

various things in the classroom, playing racing games on the ABC carpet

and made alpha paintings and pictures in the classroom, in the sand and with

water on the walls - I did many different alpha activities. Finally he also

got Z... for a few weeks he only knew X and Z...

THEN it kicked in and within a few more weeks he had all 26 letters and

soon after that his sounds. I never knew what his diagnosis is but found

many teachers SAT a child like this after working with them just a few weeks

and sometimes give up even before that. Some kids need much more rep. and

many different ways to have the information presented (check out the multiple

intelligence on google and find one or two that are your child's learning

style). If you find something that works, it's a great idea to try to train

the teachers (some won't be receptive but many will).

People give up too soon on repetition and don't rotate things done to teach

a concept. They also show frustration which children with learning

disabilities may be extra sensitive to. Everyone knew my special boy got to

paint the X, place the X on the puzzle, say the X when the card was shown so

he could feel successful. Pretty soon he was proud that he could also do Z.

He'd giggle and say, 'those are my letters.' And the class cheered when

he could say more letters and sounds and would pat him on the head saying,

" he's doing such a good job Ms. W. "

Just wanted to say keep on trying stuff and don't get give up. After

about 6 weeks, I never thought this child would know more than X. I couldn't

believe that within another 6 weeks, he'd have the whole alphabet and

sounds. I was so glad that I didn't give up and used parent helpers to also

work

with him one-on-one.

/Rosegvr

[Guest guest]

Great ideas Catsncradle! I also used the Baby Can Read videos for my

kinders. They got to use white board and markers (which kids love) to write

all

the words. They never wanted to just 'watch.' Maybe a few did but most

wanted the activity of getting to use their hands.

Baby Can Read incorporates nursery rhymes for the kids and all sorts of

things. There are 5 or 6 different videos. I think I found mine at 1/2 cost on

ebay too. The kids loved them and by the end of kindergarten they were

spelling all kids of bigger kids words and animal words (like gorilla and

even hippopotamus). Sometimes I can't even spell that! /Rosegvr

[Guest guest]

Thank you, it is a great idea.

At a seminar for adhd children they said everybody expect children to sit still

and learn which doesn't work with these kids. So I started a jumping game to

teach his sentences, after the 3rd time he said his sentence. The next sentence

was difficult for him, saying the verb at the end so I jump the first 2 words

" The cat " I sat down on the floor for " sat " and then step into a box for " in his

basket " . It seems like it is working so far. He learnt the first 4 lines of his

rhyme in 30 min, I'm so excited.

I bought a book Mind Moves - moves that mend the mind - DR Melodie de Jager.

(www.mindmoves.co.za)

Mind Moves is an easy- to -use self-help guide for parents and teachers to

remove learning barriers like ADD and ADHD, and improve sensory-motor

integration, auditory processing, articulation and language, concentration,

reading, spelling, aberrant primitive reflexes etc.

The first moves we started state in the book that it repair the balance between

the gut and speech (very interesting). If my son benefits from this, great, if

not I know I've tried.

Thanks for all the great ideas, I'll definitely try them.

________________________________

From: " katsnacradle@... " <katsnacradle@...>

Sent: Fri, October 15, 2010 6:47:59 AM

Subject: Re: [ ] Re: Therapy during chelation

My son had the same issue. His obsession was with shapes and colors so I made

simple three work sentences using his favorite colored shapes. The blue square

represented articles like " a " and " the " . I used a yellow circle (like a face)

for nouns or pronouns and green triangle for verbs (action green) I would say

the words while taking the shape and arrange it in front of my son and have him

repeat what he could...slowly he started from one word sentences to two, then

three. When I started teaching him other words I always put them in their

" gramatical shape " . That was a year ago. Now I am testing rosetta stone english

version 1 cause its great to show those social expressions along with the

sentence structure. I guess find what your childs affinity is for and see if

you can " create " your own vsual aid to go with the language structure. Our kids

need multi_sensory exposure as you already seen, sometimes we just need to make

it fun and in their " terms " m. Good luck!

Sent from my BlackBerry® by Boost Mobile

[ ] Re: Therapy during chelation

It's a great idea to rotate the material in blocks and continue to try

different things.

I had one student who only knew the letter X for 8 weeks... I didn't just

flash card him 2 or 3 times daily but we did alphabet songs, u-tubes, I

taught them ASL (sign language), they did alpha puzzles, pinning the letters on

various things in the classroom, playing racing games on the ABC carpet

and made alpha paintings and pictures in the classroom, in the sand and with

water on the walls - I did many different alpha activities. Finally he also

got Z... for a few weeks he only knew X and Z...

THEN it kicked in and within a few more weeks he had all 26 letters and

soon after that his sounds. I never knew what his diagnosis is but found

many teachers SAT a child like this after working with them just a few weeks

and sometimes give up even before that. Some kids need much more rep. and

many different ways to have the information presented (check out the multiple

intelligence on google and find one or two that are your child's learning

style). If you find something that works, it's a great idea to try to train

the teachers (some won't be receptive but many will).

People give up too soon on repetition and don't rotate things done to teach

a concept. They also show frustration which children with learning

disabilities may be extra sensitive to. Everyone knew my special boy got to

paint the X, place the X on the puzzle, say the X when the card was shown so

he could feel successful. Pretty soon he was proud that he could also do Z.

He'd giggle and say, 'those are my letters.' And the class cheered when

he could say more letters and sounds and would pat him on the head saying,

" he's doing such a good job Ms. W. "

Just wanted to say keep on trying stuff and don't get give up. After

about 6 weeks, I never thought this child would know more than X. I couldn't

believe that within another 6 weeks, he'd have the whole alphabet and

sounds. I was so glad that I didn't give up and used parent helpers to also

work

with him one-on-one.

/Rosegvr