Re: Angry over IEP - how to help do what school fails to do

[Guest guest]

Nice work Irene. You're setting a fine template for others is my sense of it.

I'd insist (as with repetition? as with ABA) that your son be put into the

mainstream (as much as possible) so he could dovetail with normal in that

respect, (of the demands and rewards of as much?) otherwise I suspect he might

" diverge, " further and further, as I've seen so much with others

If he can't fit into a mainstream " kindergarten " class I'd say there's a

*glarring* discrepancy somewhere with someone's reality, you understand, what

you understand.. . Here's hoping for the best in that respect.

Best wishes, Thereof

Glavic

>

> My son has been in a public pre school disabled program for 2 years, from age

3 to 5 (he'll be 5 next month). Our district is supposed to have a great,

highly touted program, daily 9-3:30, lots of ABA, discrete trials, OT, speech,

APE, music, art computers etc - lots of " specials. " I foolishly thought, I will

do the biomed and the AC chelation and they will take care of the learning and

teaching. He has made lots of progress, knows hundreds of words, his letters,

his numbers, basic personal info etc However, at his IEP, they applied

standardized testing methods and tests involving non verbal cues and of course

he ended up scoring in the 1%. I was really angry and expressed my anger and

frustration at the IEP. He will be in an autistic kindergarten class, and I

understood that he is not ready to mainstream yet - however, I was annoyed at

what I perceived to be their failure to recognize his learning differences and

properly test his abilities and address his differences.

>

> I said to them that their testing modalities are useless and they all jumped

in to say that clinically he can do much more than the tests showed etc. I

expressed concern that he labels a lot - and why don't they work on verbs and

linking concepts together etc, and more " wh " questions - and it seems that the

teacher has a binder and an " approach " where things must be taught in a certain

order. Anyway, it rapidly became clear to me, that looking to the people who

think autism is a " genetic disorder " and that what I do with biomed, is just a

pathetic hope of a desperate parent, which is the attitude I get when I intimate

anything about diet and vitamins, and trying to " reverse " his autism, to really

teach my son, well, what was I thinking of? Anyway, I know that I need to do a

lot more on my own, in terms of retraining his brain. I thought just getting Hg

out of his brain would be my task, now it seems I need to more actively involve

myself in helping to retrain it as well. I have read here a bit about things

like Fast Forword, Samonas, the Listening Program, etc Can anyone suggest which

of these types of programs would be good to help increase language - in terms of

getting longer more complex sentences expressively and helping with receptive

understanding?

>

> Also, financially, well biomed is really stressing us out a lot just for

supps, can any of these systems be purchased and done by a parent at home

without paying for expensive therapists? I know I can't take these test results

to heart, and I should just view the IEP as a means to an end - to get my child

services that he needs. Nevertheless, I know my son has come so far and is

doing so well, and often deliberately pretends not to understand so as not to be

forced to do tasks he finds uninteresting. I know the school helps him,

however, they are too set in their ways, and approach learning and teaching from

one angle, and with autism, more creativity it appears is required, if he is

going to really realize his potential. Arguing with the school is like beating

your head against a wall I can see - I know I have to do more on my own to

enrich and encourage his learning/language abilities. I am just at a loss as

how to do so. So any suggestions would be appreciated. I figure we are more or

less on our own to reverse the vax damage, and we have been doing well in this

regard, so I know I can do this too.

>

> Thanks in advance.

>

> Irene

>

[Guest guest]

Your son will just be 5. Personally, I'd hold him back another year. He's

young, going in with issues, why not give him the best chance possibly to catch

up before kindergarten. Now if he's a huge kid and older I wouldn't even

recommend that. You might have a " new " child in another year.

I wouldn't push the entire biomedical thing too hard and don't worry about it.

I speak up about it myself but do get that look of " we'll see. " But as they see

improvements over the years, bring it up! They will! I plug carefully when I

can.

Another thing about kindergarten, honestly, they seem pretty blind to the

differences around them in other kids.

Don't get hung up on the testing. There is no one test out there to accurately

rate every child. I know, they'd love to do more on my 10.4, but I always say

depending on the sun and the moon that day, it can be so hit or miss what you

get. It's hard, been there. We started out 4th grade with his teacher asking

me about if we thought of medication. He's doesn't always seem to be paying

attention. By the end of the school year, that same teacher is amazed at his

learning, well behaved and how he must be listening more than they think. He's

an interesting, bright child. 100% on every geo bowl!

JMO.

Tammy

[ ] Angry over IEP - how to help do what school fails to

do

My son has been in a public pre school disabled program for 2 years, from age

3 to 5 (he'll be 5 next month). Our district is supposed to have a great, highly

touted program, daily 9-3:30, lots of ABA, discrete trials, OT, speech, APE,

music, art computers etc - lots of " specials. " I foolishly thought, I will do

the biomed and the AC chelation and they will take care of the learning and

teaching. He has made lots of progress, knows hundreds of words, his letters,

his numbers, basic personal info etc However, at his IEP, they applied

standardized testing methods and tests involving non verbal cues and of course

he ended up scoring in the 1%. I was really angry and expressed my anger and

frustration at the IEP. He will be in an autistic kindergarten class, and I

understood that he is not ready to mainstream yet - however, I was annoyed at

what I perceived to be their failure to recognize his learning differences and

properly test his abilities and address his differences.

I said to them that their testing modalities are useless and they all jumped

in to say that clinically he can do much more than the tests showed etc. I

expressed concern that he labels a lot - and why don't they work on verbs and

linking concepts together etc, and more " wh " questions - and it seems that the

teacher has a binder and an " approach " where things must be taught in a certain

order. Anyway, it rapidly became clear to me, that looking to the people who

think autism is a " genetic disorder " and that what I do with biomed, is just a

pathetic hope of a desperate parent, which is the attitude I get when I intimate

anything about diet and vitamins, and trying to " reverse " his autism, to really

teach my son, well, what was I thinking of? Anyway, I know that I need to do a

lot more on my own, in terms of retraining his brain. I thought just getting Hg

out of his brain would be my task, now it seems I need to more actively involve

myself in helping to retrain it as well. I have read here a bit about things

like Fast Forword, Samonas, the Listening Program, etc Can anyone suggest which

of these types of programs would be good to help increase language - in terms of

getting longer more complex sentences expressively and helping with receptive

understanding?

Also, financially, well biomed is really stressing us out a lot just for

supps, can any of these systems be purchased and done by a parent at home

without paying for expensive therapists? I know I can't take these test results

to heart, and I should just view the IEP as a means to an end - to get my child

services that he needs. Nevertheless, I know my son has come so far and is doing

so well, and often deliberately pretends not to understand so as not to be

forced to do tasks he finds uninteresting. I know the school helps him, however,

they are too set in their ways, and approach learning and teaching from one

angle, and with autism, more creativity it appears is required, if he is going

to really realize his potential. Arguing with the school is like beating your

head against a wall I can see - I know I have to do more on my own to enrich and

encourage his learning/language abilities. I am just at a loss as how to do so.

So any suggestions would be appreciated. I figure we are more or less on our own

to reverse the vax damage, and we have been doing well in this regard, so I know

I can do this too.

Thanks in advance.

Irene

[Guest guest]

I am homeschooling. I couldn't take it anymore. I figure I will get him caught

up physically with his medical issues with chelation and biomed. And enjoy his

learning differences myself and teach him all sorts of things. I totally agree

with Tammy, a " new " child is on his way. Hold him back, let him heal and don't

worry about the labels. I put my son in a social skills class with NT and ASD

kids. Although, everytime I hit a birthday party it seems half are NT and the

other " on the spectrum " LOL. So, I put him in My Gym and go in there with him

and if he wants to follow directions great, if not I venture off with him to

check out the activities.

I know it seems like I have all the cash in the world. I don't. I had to quit

work and my hubby just got laid off. We just do it day by day, try to get some

funds from Grandpa for on ST, funds for meds from Ebay sales. Just one day at a

time. I figure it's like investing for his college.

I will have to take a night job soon, so that will make it more difficult. But I

just couldn't stand the IEP's right now, especially with the diet they never

helped me do GFCF he always was given playdough or wheat flour in OT, Ahhhhh!

Good luck, go with your gut.

BTW, I got all my homeschool stuff information from the TV family the Duggars,

from '19 and counting' on TLC. They have all kinds of resources.

Chelation is the key for us.

>

> Your son will just be 5. Personally, I'd hold him back another year. He's

young, going in with issues, why not give him the best chance possibly to catch

up before kindergarten. Now if he's a huge kid and older I wouldn't even

recommend that. You might have a " new " child in another year.

>

> I wouldn't push the entire biomedical thing too hard and don't worry about it.

I speak up about it myself but do get that look of " we'll see. " But as they see

improvements over the years, bring it up! They will! I plug carefully when I

can.

>

> Another thing about kindergarten, honestly, they seem pretty blind to the

differences around them in other kids.

>

> Don't get hung up on the testing. There is no one test out there to

accurately rate every child. I know, they'd love to do more on my 10.4, but I

always say depending on the sun and the moon that day, it can be so hit or miss

what you get. It's hard, been there. We started out 4th grade with his teacher

asking me about if we thought of medication. He's doesn't always seem to be

paying attention. By the end of the school year, that same teacher is amazed at

his learning, well behaved and how he must be listening more than they think.

He's an interesting, bright child. 100% on every geo bowl!

>

> JMO.

>

> Tammy

>

> [ ] Angry over IEP - how to help do what school fails

to do

>

>

>

> My son has been in a public pre school disabled program for 2 years, from

age 3 to 5 (he'll be 5 next month). Our district is supposed to have a great,

highly touted program, daily 9-3:30, lots of ABA, discrete trials, OT, speech,

APE, music, art computers etc - lots of " specials. " I foolishly thought, I will

do the biomed and the AC chelation and they will take care of the learning and

teaching. He has made lots of progress, knows hundreds of words, his letters,

his numbers, basic personal info etc However, at his IEP, they applied

standardized testing methods and tests involving non verbal cues and of course

he ended up scoring in the 1%. I was really angry and expressed my anger and

frustration at the IEP. He will be in an autistic kindergarten class, and I

understood that he is not ready to mainstream yet - however, I was annoyed at

what I perceived to be their failure to recognize his learning differences and

properly test his abilities and address his differences.

>

> I said to them that their testing modalities are useless and they all jumped

in to say that clinically he can do much more than the tests showed etc. I

expressed concern that he labels a lot - and why don't they work on verbs and

linking concepts together etc, and more " wh " questions - and it seems that the

teacher has a binder and an " approach " where things must be taught in a certain

order. Anyway, it rapidly became clear to me, that looking to the people who

think autism is a " genetic disorder " and that what I do with biomed, is just a

pathetic hope of a desperate parent, which is the attitude I get when I intimate

anything about diet and vitamins, and trying to " reverse " his autism, to really

teach my son, well, what was I thinking of? Anyway, I know that I need to do a

lot more on my own, in terms of retraining his brain. I thought just getting Hg

out of his brain would be my task, now it seems I need to more actively involve

myself in helping to retrain it as well. I have read here a bit about things

like Fast Forword, Samonas, the Listening Program, etc Can anyone suggest which

of these types of programs would be good to help increase language - in terms of

getting longer more complex sentences expressively and helping with receptive

understanding?

>

> Also, financially, well biomed is really stressing us out a lot just for

supps, can any of these systems be purchased and done by a parent at home

without paying for expensive therapists? I know I can't take these test results

to heart, and I should just view the IEP as a means to an end - to get my child

services that he needs. Nevertheless, I know my son has come so far and is doing

so well, and often deliberately pretends not to understand so as not to be

forced to do tasks he finds uninteresting. I know the school helps him, however,

they are too set in their ways, and approach learning and teaching from one

angle, and with autism, more creativity it appears is required, if he is going

to really realize his potential. Arguing with the school is like beating your

head against a wall I can see - I know I have to do more on my own to enrich and

encourage his learning/language abilities. I am just at a loss as how to do so.

So any suggestions would be appreciated. I figure we are more or less on our own

to reverse the vax damage, and we have been doing well in this regard, so I know

I can do this too.

>

> Thanks in advance.

>

> Irene

>

>

>

>

>

>

[Guest guest]

Of course, you may not want to go with " mainstream. " Many of us *don't*.. .

(Homeschoolers somewhat, if not essentially?) When in doubt you might want to

check with your son on that, (I would! in the ways that we can, of

Communication?) towards what would be most meaningful for your son in that

respect, of all things considered, for what is best, Thereof (

We seem to be doing alright by that. I certainly would recommend that over

beating your head against a wall (or another hard place? .. .

Go with what you've got (accept what you haven't? of principle? (where that

might not be the mainstream way.. .

On being that ambitious, of my strength/s, Thereof

My sense of It (and hope for you!

Glavic

I certainly seem to have found my niche?!.

It really isn't a bad place

BWT.

> >

> > My son has been in a public pre school disabled program for 2 years, from

age 3 to 5 (he'll be 5 next month). Our district is supposed to have a great,

highly touted program, daily 9-3:30, lots of ABA, discrete trials, OT, speech,

APE, music, art computers etc - lots of " specials. " I foolishly thought, I will

do the biomed and the AC chelation and they will take care of the learning and

teaching. He has made lots of progress, knows hundreds of words, his letters,

his numbers, basic personal info etc However, at his IEP, they applied

standardized testing methods and tests involving non verbal cues and of course

he ended up scoring in the 1%. I was really angry and expressed my anger and

frustration at the IEP. He will be in an autistic kindergarten class, and I

understood that he is not ready to mainstream yet - however, I was annoyed at

what I perceived to be their failure to recognize his learning differences and

properly test his abilities and address his differences.

> >

> > I said to them that their testing modalities are useless and they all jumped

in to say that clinically he can do much more than the tests showed etc. I

expressed concern that he labels a lot - and why don't they work on verbs and

linking concepts together etc, and more " wh " questions - and it seems that the

teacher has a binder and an " approach " where things must be taught in a certain

order. Anyway, it rapidly became clear to me, that looking to the people who

think autism is a " genetic disorder " and that what I do with biomed, is just a

pathetic hope of a desperate parent, which is the attitude I get when I intimate

anything about diet and vitamins, and trying to " reverse " his autism, to really

teach my son, well, what was I thinking of? Anyway, I know that I need to do a

lot more on my own, in terms of retraining his brain. I thought just getting Hg

out of his brain would be my task, now it seems I need to more actively involve

myself in helping to retrain it as well. I have read here a bit about things

like Fast Forword, Samonas, the Listening Program, etc Can anyone suggest which

of these types of programs would be good to help increase language - in terms of

getting longer more complex sentences expressively and helping with receptive

understanding?

> >

> > Also, financially, well biomed is really stressing us out a lot just for

supps, can any of these systems be purchased and done by a parent at home

without paying for expensive therapists? I know I can't take these test results

to heart, and I should just view the IEP as a means to an end - to get my child

services that he needs. Nevertheless, I know my son has come so far and is

doing so well, and often deliberately pretends not to understand so as not to be

forced to do tasks he finds uninteresting. I know the school helps him,

however, they are too set in their ways, and approach learning and teaching from

one angle, and with autism, more creativity it appears is required, if he is

going to really realize his potential. Arguing with the school is like beating

your head against a wall I can see - I know I have to do more on my own to

enrich and encourage his learning/language abilities. I am just at a loss as

how to do so. So any suggestions would be appreciated. I figure we are more or

less on our own to reverse the vax damage, and we have been doing well in this

regard, so I know I can do this too.

> >

> > Thanks in advance.

> >

> > Irene

> >

>

[Guest guest]

Of course we should always be homeschooling as well. Duh? .. .

Glavic

Niche master?!.

> > >

> > > My son has been in a public pre school disabled program for 2 years, from

age 3 to 5 (he'll be 5 next month). Our district is supposed to have a great,

highly touted program, daily 9-3:30, lots of ABA, discrete trials, OT, speech,

APE, music, art computers etc - lots of " specials. " I foolishly thought, I will

do the biomed and the AC chelation and they will take care of the learning and

teaching. He has made lots of progress, knows hundreds of words, his letters,

his numbers, basic personal info etc However, at his IEP, they applied

standardized testing methods and tests involving non verbal cues and of course

he ended up scoring in the 1%. I was really angry and expressed my anger and

frustration at the IEP. He will be in an autistic kindergarten class, and I

understood that he is not ready to mainstream yet - however, I was annoyed at

what I perceived to be their failure to recognize his learning differences and

properly test his abilities and address his differences.

> > >

> > > I said to them that their testing modalities are useless and they all

jumped in to say that clinically he can do much more than the tests showed etc.

I expressed concern that he labels a lot - and why don't they work on verbs and

linking concepts together etc, and more " wh " questions - and it seems that the

teacher has a binder and an " approach " where things must be taught in a certain

order. Anyway, it rapidly became clear to me, that looking to the people who

think autism is a " genetic disorder " and that what I do with biomed, is just a

pathetic hope of a desperate parent, which is the attitude I get when I intimate

anything about diet and vitamins, and trying to " reverse " his autism, to really

teach my son, well, what was I thinking of? Anyway, I know that I need to do a

lot more on my own, in terms of retraining his brain. I thought just getting Hg

out of his brain would be my task, now it seems I need to more actively involve

myself in helping to retrain it as well. I have read here a bit about things

like Fast Forword, Samonas, the Listening Program, etc Can anyone suggest which

of these types of programs would be good to help increase language - in terms of

getting longer more complex sentences expressively and helping with receptive

understanding?

> > >

> > > Also, financially, well biomed is really stressing us out a lot just for

supps, can any of these systems be purchased and done by a parent at home

without paying for expensive therapists? I know I can't take these test results

to heart, and I should just view the IEP as a means to an end - to get my child

services that he needs. Nevertheless, I know my son has come so far and is

doing so well, and often deliberately pretends not to understand so as not to be

forced to do tasks he finds uninteresting. I know the school helps him,

however, they are too set in their ways, and approach learning and teaching from

one angle, and with autism, more creativity it appears is required, if he is

going to really realize his potential. Arguing with the school is like beating

your head against a wall I can see - I know I have to do more on my own to

enrich and encourage his learning/language abilities. I am just at a loss as

how to do so. So any suggestions would be appreciated. I figure we are more or

less on our own to reverse the vax damage, and we have been doing well in this

regard, so I know I can do this too.

> > >

> > > Thanks in advance.

> > >

> > > Irene

> > >

> >

>

[Guest guest]

Irene, if you do not agree with the school's evaluations, you have the

right to request an independent evaluation at the school district's expense. I

suggest you call your state's Parent Information Training Center to learn

more about the basics of IDEA law and procedural safeguards that are put

into place to help us parents.

-BJ