Guest guest Posted October 10, 2010 Report Share Posted October 10, 2010 What does PANDAS mean? Ricky ________________________________ From: praboli <praboli@...> Sent: Sun, October 10, 2010 8:17:19 PM Subject: [ ] Re: Statistic on Chelation  I have never tried IV Chelation, but have a basic understanding of biochem and metabolic processes. With child #1, I did chelation for 1.5 years, every week, ACP. This protocol ultimately recovered my child. I don't deny it's hard to get up at night, but as you slowly see those new gains, that's incentive enough to keep going. My child went from a " walking coma " to a smart, intuitive, funny, abstract thinking and highly social child. He is in mainstream school without an aid doing age appropriate work. Child #2, I did the same things. He got worse and I couldn't understand. I even increased the yeast protocol and he kept going downhill. Come to find out he had PANDAS. Now we're treating PANDAS successfully with antibiotics (still has a long way to go). Started doing the ACP and making some great gains with this child. My point of all this is before you start any kind of protocol, please please take the time to understand what you are doing biochemically to the body and the affinity of toxic metals to the CNS. The ACP has been phenomenal for both my kids and I wouldn't even consider doing it any other way. AC may appear a little harsh in his responses, but he knows the potential damage you are about to cause in your already toxic child. The fact that he is responding is very appreciated here because I always learn from his posts, as well as some of the other moms/dads. I love it that we have our child back, and anxiously awaiting our #2 child's recovery. I pray and hope the rest of the struggling parents out there get their child back as well. Also, it wouldn't be a bad idea to check out Andy's books. I haven't read every page, but they are great reference books which I've gone back to over and over when I had questions or needed more info. Pam Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2010 Report Share Posted October 11, 2010 How about stirring up the viruses before chelaltion? With some supplements (vit A, MB12, Virastop), my son's viruses started to show up (strep and herpes) from time to time, which he never had before. Can this be harmful, and should I try not to " bother " them? To not go high doses MB12, in particular? thanks!   From: Liz <elizabethsoliday@...> Subject: [ ] Re: Statistic on Chelation Date: Monday, October 11, 2010, 3:30 AM  Don't believe strep, or any bacteria for that matter can " go bad " unless there has been a toxic insult to the person. Fixing the bacteria problem with antibiotics before removing the toxic insult may result in more resistant bacteria. Chelation should be done first. It is controversial whether antibiotics are any more effective than not doing anything. > > > > What does PANDAS mean? > > > > Ricky > > > > > > > > > > ________________________________ > > From: praboli <praboli@> > > > > Sent: Sun, October 10, 2010 8:17:19 PM > > Subject: [ ] Re: Statistic on Chelation > > > >  > > I have never tried IV Chelation, but have a basic understanding of biochem and > > metabolic processes. With child #1, I did chelation for 1.5 years, every week, > > ACP. This protocol ultimately recovered my child. I don't deny it's hard to get > > up at night, but as you slowly see those new gains, that's incentive enough to > > keep going. My child went from a " walking coma " to a smart, intuitive, funny, > > abstract thinking and highly social child. He is in mainstream school without an > > aid doing age appropriate work. > > > > > > Child #2, I did the same things. He got worse and I couldn't understand. I even > > increased the yeast protocol and he kept going downhill. Come to find out he had > > PANDAS. Now we're treating PANDAS successfully with antibiotics (still has a > > long way to go). Started doing the ACP and making some great gains with this > > child. My point of all this is before you start any kind of protocol, please > > please take the time to understand what you are doing biochemically to the body > > and the affinity of toxic metals to the CNS. The ACP has been phenomenal for > > both my kids and I wouldn't even consider doing it any other way. AC may appear > > a little harsh in his responses, but he knows the potential damage you are about > > to cause in your already toxic child. The fact that he is responding is very > > appreciated here because I always learn from his posts, as well as some of the > > other moms/dads. > > > > > > I love it that we have our child back, and anxiously awaiting our #2 child's > > recovery. I pray and hope the rest of the struggling parents out there get their > > child back as well. > > > > Also, it wouldn't be a bad idea to check out Andy's books. I haven't read every > > page, but they are great reference books which I've gone back to over and over > > when I had questions or needed more info. > > > > Pam > > > > Pam > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2010 Report Share Posted October 11, 2010 Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcal Infections. In a message dated 10/10/2010 9:32:43 P.M. Eastern Daylight Time, rickyyu8888@... writes: What does PANDAS mean? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2010 Report Share Posted October 11, 2010 It's not the strep that has gone bad, it's the immune system. The immune system is screwed up and reacts improperly when strep is present. The immune system thinks the basal ganglia is strep and attacks it, that is why you still can have symptoms even when strep is no longer present. The immune system thinks it is present. Kerrie In a message dated 10/11/2010 3:30:35 A.M. Eastern Daylight Time, elizabethsoliday@... writes: > > Basically strep gone bad. Becomes autoimmune and starts attacking the brain. Long termed antibiotics seem to help with some. Others have had success with IVIG. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2010 Report Share Posted October 11, 2010 Did you IV chelation? From: praboli <praboli@...> Subject: [ ] Re: Statistic on Chelation Date: Monday, October 11, 2010, 10:28 AM  Antibiotics were the only effective agent tried here. I did almost a year of chelation with few gains. I have started with chelation again while on the antibiotics and we're getting good results. I welcome any advice. I love the natural route and favor it over drugs, but I think we exhausted all other options. > > > > > > What does PANDAS mean? > > > > > > Ricky > > > > > > > > > > > > > > > ________________________________ > > > From: praboli <praboli@> > > > > > > Sent: Sun, October 10, 2010 8:17:19 PM > > > Subject: [ ] Re: Statistic on Chelation > > > > > >  > > > I have never tried IV Chelation, but have a basic understanding of biochem and > > > metabolic processes. With child #1, I did chelation for 1.5 years, every week, > > > ACP. This protocol ultimately recovered my child. I don't deny it's hard to get > > > up at night, but as you slowly see those new gains, that's incentive enough to > > > keep going. My child went from a " walking coma " to a smart, intuitive, funny, > > > abstract thinking and highly social child. He is in mainstream school without an > > > aid doing age appropriate work. > > > > > > > > > Child #2, I did the same things. He got worse and I couldn't understand. I even > > > increased the yeast protocol and he kept going downhill. Come to find out he had > > > PANDAS. Now we're treating PANDAS successfully with antibiotics (still has a > > > long way to go). Started doing the ACP and making some great gains with this > > > child. My point of all this is before you start any kind of protocol, please > > > please take the time to understand what you are doing biochemically to the body > > > and the affinity of toxic metals to the CNS. The ACP has been phenomenal for > > > both my kids and I wouldn't even consider doing it any other way. AC may appear > > > a little harsh in his responses, but he knows the potential damage you are about > > > to cause in your already toxic child. The fact that he is responding is very > > > appreciated here because I always learn from his posts, as well as some of the > > > other moms/dads. > > > > > > > > > I love it that we have our child back, and anxiously awaiting our #2 child's > > > recovery. I pray and hope the rest of the struggling parents out there get their > > > child back as well. > > > > > > Also, it wouldn't be a bad idea to check out Andy's books. I haven't read every > > > page, but they are great reference books which I've gone back to over and over > > > when I had questions or needed more info. > > > > > > Pam > > > > > > Pam > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2010 Report Share Posted October 11, 2010 Hi Dana,  Thanks for your answer and correcting!  May I ask you how did you know that they were eliminated? Was it general developmental improvement, or a massive symptoms of bacterial/viral infection  that came once and went away? My son never had neither antibodies, nor symptoms. I would be very glad if he eventually becomes " really sick " with herpes or strep, or any other thing that is probably staying inside him.  Another question is, when giving lysine as well as other amino acids, how did you make sure that they are in balance? Was it blood testing? What is the safe routine to give amino acids so that their balance is still kept?  Thank you very much for sharing your knowledge!  With best regards, Asem From: danasview <danasview@...> Subject: [ ] Re: Statistic on Chelation Date: Monday, October 11, 2010, 9:33 AM  > How about stirring up the viruses before chelaltion? With some supplements (vit A, MB12, Virastop), my son's viruses started to show up (strep and herpes) from time to time, which he never had before. Strep is a bacteria, not a virus. I eliminated strep at my house with OLE. Your child probably DID have it, it was just not presenting with physical symptoms, it was dormant or worse, presenting with mental/behavioral symptoms. I eliminated herpes virus with lysine. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2010 Report Share Posted October 11, 2010 Thanks! From: Liz <elizabethsoliday@...> Subject: [ ] Re: Statistic on Chelation Date: Monday, October 11, 2010, 12:32 PM  If you are chelating and you start to see rashes or have fever, don't worry too much about it, just give more epsom salt baths to help with comfort and opening pores to let it out. I don't see anything wrong with using supplements for bacteria/viruses along with chelation, but I do see something wrong with antibiotic use early in chelation or continued antibiotic use without chelating. Liz > > > > > > What does PANDAS mean? > > > > > > Ricky > > > > > > > > > > > > > > > ________________________________ > > > From: praboli <praboli@> > > > > > > Sent: Sun, October 10, 2010 8:17:19 PM > > > Subject: [ ] Re: Statistic on Chelation > > > > > >  > > > I have never tried IV Chelation, but have a basic understanding of biochem and > > > metabolic processes. With child #1, I did chelation for 1.5 years, every week, > > > ACP. This protocol ultimately recovered my child. I don't deny it's hard to get > > > up at night, but as you slowly see those new gains, that's incentive enough to > > > keep going. My child went from a " walking coma " to a smart, intuitive, funny, > > > abstract thinking and highly social child. He is in mainstream school without an > > > aid doing age appropriate work. > > > > > > > > > Child #2, I did the same things. He got worse and I couldn't understand. I even > > > increased the yeast protocol and he kept going downhill. Come to find out he had > > > PANDAS. Now we're treating PANDAS successfully with antibiotics (still has a > > > long way to go). Started doing the ACP and making some great gains with this > > > child. My point of all this is before you start any kind of protocol, please > > > please take the time to understand what you are doing biochemically to the body > > > and the affinity of toxic metals to the CNS. The ACP has been phenomenal for > > > both my kids and I wouldn't even consider doing it any other way. AC may appear > > > a little harsh in his responses, but he knows the potential damage you are about > > > to cause in your already toxic child. The fact that he is responding is very > > > appreciated here because I always learn from his posts, as well as some of the > > > other moms/dads. > > > > > > > > > I love it that we have our child back, and anxiously awaiting our #2 child's > > > recovery. I pray and hope the rest of the struggling parents out there get their > > > child back as well. > > > > > > Also, it wouldn't be a bad idea to check out Andy's books. I haven't read every > > > page, but they are great reference books which I've gone back to over and over > > > when I had questions or needed more info. > > > > > > Pam > > > > > > Pam > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2010 Report Share Posted October 12, 2010 Dana, Which aminos did you have to give separately? Haven Quote Link to comment Share on other sites More sharing options...
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