Re: ALA Reaction - please help

[Guest guest]

I would say up your yeast protocol or add to it? Increase probiotics and make

sure you are doing all the supplements that are recommended while supplementing?

Are you doing no phenol digestive enzymes too?

1 mg ala? We use ALA from Kirkman Labs, they hypoallergenic ones. No issues

for my nt food allergy guy either. So is their a filler they are using that is

giving your son grieve? Would ask how it is compounded.

You didn't say the weight on your son? But I just did my second round on my nt

son and divided the 25 mg ala three ways. He did fine.

Sorry, hope things get better. So put him in the tub with some Epson salt and

see if he'll drink a little lemon and honey hot water drink with you. Something

special?

Tammy

[ ] ALA Reaction - please help

Hi everyone,

Well, I was the one attempting to give advice to folks a couple weeks ago

about ALA, and here I am in desperate need of some guidance.

My son is very sensitive to phenols so is on a very restrictive diet, multiple

supplements, and we have done 30 rounds of DMSA (up to 25mg now). We tried ALA

several months ago (5mg) and he went into a regression, but I believe it was

actually a strep infection. Either way I decided to use DMSA only for a few

more months before we tried again.

Well, this past weekend we reached that point and we did DMSA 25mg/ALA 5mg

every three hours -- I stopped the ALA after 2 days b/c of hyper behaviors and

red cheeks, but continued on with DMSA only for the 3rd day. I guess he was OK

in school on Monday b/c I didn't hear anything, but yesterday he was pushing

kids and spit in a little girls eye. Last night he was kind of OK, but this

morning he is completely out of control. I'm actually debating on keeping him

home from school b/c it's so bad. I ordered 1mg capsules of ALA to use this

weekend, but the reaction is so severe I'm thinking I'll hold off until his

winter break in February and is out of school. In the meantime I'm trying to

get us through this....

Does anyone have any thoughts or suggestions? It's just so frustrating b/c I

want him to be able to move forward with the ALA b/c I know that's the only

thing that's going to finally help heal his sulfation/phenol issues.

Thanks so much!

[Guest guest]

Where do you order 1mg ALA caps?I am looking for 5 -10mh caps to make things a

little easier.Thanks.

>

> Hi everyone,

>  

> Well, I was the one attempting to give advice to folks a couple weeks ago

about ALA, and here I am in desperate need of some guidance.

>  

> My son is very sensitive to phenols so is on a very restrictive diet, multiple

supplements, and we have done 30 rounds of DMSA (up to 25mg now).  We tried ALA

several months ago (5mg) and he went into a regression, but I believe it was

actually a strep infection.  Either way I decided to use DMSA only for a few

more months before we tried again. 

>  

> Well, this past weekend we reached that point and we did DMSA 25mg/ALA 5mg

every three hours -- I stopped the ALA after 2 days b/c of hyper behaviors and

red cheeks, but continued on with DMSA only for the 3rd day.  I guess he was OK

in school on Monday b/c I didn't hear anything, but yesterday he was pushing

kids and spit in a little girls eye.  Last night he was kind of OK, but this

morning he is completely out of control.  I'm actually debating on keeping him

home from school b/c it's so bad.  I ordered 1mg capsules of ALA to use this

weekend, but the reaction is so severe I'm thinking I'll hold off until his

winter break in February and is out of school.  In the meantime I'm trying to

get us through this....

>  

> Does anyone have any thoughts or suggestions?  It's just so frustrating b/c I

want him to be able to move forward with the ALA b/c I know that's the only

thing that's going to finally help heal his sulfation/phenol issues.

>  

> Thanks so much!

>

>

>

>

>

[Guest guest]

I appreciate your thoughts, Tammy.  My son is already on diflucan and I also

give him biotin.  He takes about 225 billion CTU (or whatever the measurement

is) of probiotics daily -- I could increase it a little more though.  He's on

several other vitamins, minerals, enzymes, CLO, etc, which I have continued. 

He takes trenza, which has no=phenol in it.  I have bough the np-phenol, but

haven't tried it with hi m.  We tried it a year or so ago and had a bad

reaction so I've been reluctant.  He seems to be doing fine though with the

broad spectrum enzyme though, like trienza.

 

We got the 5mg capsules compunded at Wellness Pharmacy.  They always compound

our medications so they know not to put extra fillers, etc.  My son is 5 years

old and 42 lbs.  At this point, I need to go much lower or stop all together

for a while.

 

Thanks again for your suggestions!

From: Tammy Kuhn <tkuhn1@...>

Subject: Re: [ ] ALA Reaction - please help

Date: Wednesday, January 6, 2010, 5:57 AM

 

I would say up your yeast protocol or add to it? Increase probiotics and make

sure you are doing all the supplements that are recommended while supplementing?

Are you doing no phenol digestive enzymes too?

1 mg ala? We use ALA from Kirkman Labs, they hypoallergenic ones. No issues for

my nt food allergy guy either. So is their a filler they are using that is

giving your son grieve? Would ask how it is compounded.

You didn't say the weight on your son? But I just did my second round on my nt

son and divided the 25 mg ala three ways. He did fine.

Sorry, hope things get better. So put him in the tub with some Epson salt and

see if he'll drink a little lemon and honey hot water drink with you. Something

special?

Tammy

[ ] ALA Reaction - please help

Hi everyone,

Well, I was the one attempting to give advice to folks a couple weeks ago about

ALA, and here I am in desperate need of some guidance.

My son is very sensitive to phenols so is on a very restrictive diet, multiple

supplements, and we have done 30 rounds of DMSA (up to 25mg now). We tried ALA

several months ago (5mg) and he went into a regression, but I believe it was

actually a strep infection. Either way I decided to use DMSA only for a few more

months before we tried again.

Well, this past weekend we reached that point and we did DMSA 25mg/ALA 5mg every

three hours -- I stopped the ALA after 2 days b/c of hyper behaviors and red

cheeks, but continued on with DMSA only for the 3rd day. I guess he was OK in

school on Monday b/c I didn't hear anything, but yesterday he was pushing kids

and spit in a little girls eye. Last night he was kind of OK, but this morning

he is completely out of control. I'm actually debating on keeping him home from

school b/c it's so bad. I ordered 1mg capsules of ALA to use this weekend, but

the reaction is so severe I'm thinking I'll hold off until his winter break in

February and is out of school. In the meantime I'm trying to get us through

this....

Does anyone have any thoughts or suggestions? It's just so frustrating b/c I

want him to be able to move forward with the ALA b/c I know that's the only

thing that's going to finally help heal his sulfation/phenol issues.

Thanks so much!

[Guest guest]

Our dr. calls in an Rx to Wellness Pharmacy and we have it compunded there. 

It's much more expensive, but the best option for us at this point.

[Guest guest]

Is your child on molybdenum? This stopped my son's phenol reactions.

> >

> > Hi everyone,

> >  

> > Well, I was the one attempting to give advice to folks a couple weeks ago

about ALA, and here I am in desperate need of some guidance.

> >  

> > My son is very sensitive to phenols so is on a very restrictive diet,

multiple supplements, and we have done 30 rounds of DMSA (up to 25mg now).  We

tried ALA several months ago (5mg) and he went into a regression, but I believe

it was actually a strep infection.  Either way I decided to use DMSA only for a

few more months before we tried again. 

> >  

> > Well, this past weekend we reached that point and we did DMSA 25mg/ALA 5mg

every three hours -- I stopped the ALA after 2 days b/c of hyper behaviors and

red cheeks, but continued on with DMSA only for the 3rd day.  I guess he was OK

in school on Monday b/c I didn't hear anything, but yesterday he was pushing

kids and spit in a little girls eye.  Last night he was kind of OK, but this

morning he is completely out of control.  I'm actually debating on keeping him

home from school b/c it's so bad.  I ordered 1mg capsules of ALA to use this

weekend, but the reaction is so severe I'm thinking I'll hold off until his

winter break in February and is out of school.  In the meantime I'm trying to

get us through this....

> >  

> > Does anyone have any thoughts or suggestions?  It's just so frustrating b/c

I want him to be able to move forward with the ALA b/c I know that's the only

thing that's going to finally help heal his sulfation/phenol issues.

> >  

> > Thanks so much!

> >

> >

> >

> >

> >

[Guest guest]

Yes, right now about 600mg per day.  How much did your child take?  Thanks!

From: <ckrupa3672@...>

Subject: [ ] Re: ALA Reaction - please help

Date: Wednesday, January 6, 2010, 2:23 PM

 

Is your child on molybdenum? This stopped my son's phenol reactions.

> >

> > Hi everyone,

> >  

> > Well, I was the one attempting to give advice to folks a couple weeks ago

about ALA, and here I am in desperate need of some guidance.

> >  

> > My son is very sensitive to phenols so is on a very restrictive diet,

multiple supplements, and we have done 30 rounds of DMSA (up to 25mg now).  We

tried ALA several months ago (5mg) and he went into a regression, but I believe

it was actually a strep infection.  Either way I decided to use DMSA only for a

few more months before we tried again. 

> >  

> > Well, this past weekend we reached that point and we did DMSA 25mg/ALA 5mg

every three hours -- I stopped the ALA after 2 days b/c of hyper behaviors and

red cheeks, but continued on with DMSA only for the 3rd day.  I guess he was OK

in school on Monday b/c I didn't hear anything, but yesterday he was pushing

kids and spit in a little girls eye.  Last night he was kind of OK, but this

morning he is completely out of control.  I'm actually debating on keeping him

home from school b/c it's so bad.  I ordered 1mg capsules of ALA to use this

weekend, but the reaction is so severe I'm thinking I'll hold off until his

winter break in February and is out of school.  In the meantime I'm trying to

get us through this....

> >  

> > Does anyone have any thoughts or suggestions?  It's just so frustrating b/c

I want him to be able to move forward with the ALA b/c I know that's the only

thing that's going to finally help heal his sulfation/phenol issues.

> >  

> > Thanks so much!

> >

> >

> >

> >

> >

[Guest guest]

he's also on 600 mcgs a day. Perhaps you should increase? I think Andy

recommends up to 1000 mcgs a day.

> > >

> > > Hi everyone,

> > >  

> > > Well, I was the one attempting to give advice to folks a couple weeks ago

about ALA, and here I am in desperate need of some guidance.

> > >  

> > > My son is very sensitive to phenols so is on a very restrictive diet,

multiple supplements, and we have done 30 rounds of DMSA (up to 25mg now).  We

tried ALA several months ago (5mg) and he went into a regression, but I believe

it was actually a strep infection.  Either way I decided to use DMSA only for a

few more months before we tried again. 

> > >  

> > > Well, this past weekend we reached that point and we did DMSA 25mg/ALA 5mg

every three hours -- I stopped the ALA after 2 days b/c of hyper behaviors and

red cheeks, but continued on with DMSA only for the 3rd day.  I guess he was OK

in school on Monday b/c I didn't hear anything, but yesterday he was pushing

kids and spit in a little girls eye.  Last night he was kind of OK, but this

morning he is completely out of control.  I'm actually debating on keeping him

home from school b/c it's so bad.  I ordered 1mg capsules of ALA to use this

weekend, but the reaction is so severe I'm thinking I'll hold off until his

winter break in February and is out of school.  In the meantime I'm trying to

get us through this....

> > >  

> > > Does anyone have any thoughts or suggestions?  It's just so frustrating

b/c I want him to be able to move forward with the ALA b/c I know that's the

only thing that's going to finally help heal his sulfation/phenol issues.

> > >  

> > > Thanks so much!

> > >

> > >

> > >

> > >

> > >

[Guest guest]

There are no 1mg caps of ala. The lowest I have seen is 25mg so you have to open

them and divide it up.

> > > >

> > > > Hi everyone,

> > > >  

> > > > Well, I was the one attempting to give advice to folks a couple weeks

ago about ALA, and here I am in desperate need of some guidance.

> > > >  

> > > > My son is very sensitive to phenols so is on a very restrictive diet,

multiple supplements, and we have done 30 rounds of DMSA (up to 25mg now).  We

tried ALA several months ago (5mg) and he went into a regression, but I believe

it was actually a strep infection.  Either way I decided to use DMSA only for a

few more months before we tried again. 

> > > >  

> > > > Well, this past weekend we reached that point and we did DMSA 25mg/ALA

5mg every three hours -- I stopped the ALA after 2 days b/c of hyper behaviors

and red cheeks, but continued on with DMSA only for the 3rd day.  I guess he

was OK in school on Monday b/c I didn't hear anything, but yesterday he was

pushing kids and spit in a little girls eye.  Last night he was kind of OK, but

this morning he is completely out of control.  I'm actually debating on keeping

him home from school b/c it's so bad.  I ordered 1mg capsules of ALA to use

this weekend, but the reaction is so severe I'm thinking I'll hold off until his

winter break in February and is out of school.  In the meantime I'm trying to

get us through this....

> > > >  

> > > > Does anyone have any thoughts or suggestions?  It's just so frustrating

b/c I want him to be able to move forward with the ALA b/c I know that's the

only thing that's going to finally help heal his sulfation/phenol issues.

> > > >  

> > > > Thanks so much!

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

I am quite sure I react also to ALA because of some sensitivity. I have

not been able to find out what ALA is made from or how they process it that

may be causing a reaction. I have reactions to sals/ amines/ dairy and

gluten.

I have just found an ALA which is claiming to be sal free. by Olympian

Labs.. I have phoned them to ask and they said if it says it is sal

free it is.. Whether or not ?? I am going to try it my next chelating

round..Email me personally if you want me to let you know.. It will be

another few weeks before I do another round though..

nanci.

>

> Hi everyone,

>  

> Well, I was the one attempting to give advice to folks a couple weeks ago

about ALA, and here I am in desperate need of some guidance.

>  

> My son is very sensitive to phenols so is on a very restrictive diet, multiple

supplements, and we have done 30 rounds of DMSA (up to 25mg now).  We tried ALA

several months ago (5mg) and he went into a regression, but I believe it was

actually a strep infection.  Either way I decided to use DMSA only for a few

more months before we tried again. 

>  

> Well, this past weekend we reached that point and we did DMSA 25mg/ALA 5mg

every three hours -- I stopped the ALA after 2 days b/c of hyper behaviors and

red cheeks, but continued on with DMSA only for the 3rd day.  I guess he was OK

in school on Monday b/c I didn't hear anything, but yesterday he was pushing

kids and spit in a little girls eye.  Last night he was kind of OK, but this

morning he is completely out of control.  I'm actually debating on keeping him

home from school b/c it's so bad.  I ordered 1mg capsules of ALA to use this

weekend, but the reaction is so severe I'm thinking I'll hold off until his

winter break in February and is out of school.  In the meantime I'm trying to

get us through this....

>  

> Does anyone have any thoughts or suggestions?  It's just so frustrating b/c I

want him to be able to move forward with the ALA b/c I know that's the only

thing that's going to finally help heal his sulfation/phenol issues.

>  

> Thanks so much!

>

>

>

>

>