Guest guest Posted January 30, 2009 Report Share Posted January 30, 2009 Hi Lilian, Nice one, maybe they will be thinking of doing it 4 times like the salivary cortisol??!! Subject: What does this mean? On my blood test results they have put for the free T3. Results are not clinically validated (temporary result). Also they did the cortisol test which was 322 (taken about 10a.m.) and they have put a note for the consultant 'random cortisol is of no diagnostic value. If you wish to discuss, please contact the chemical pathologist. Lilian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2010 Report Share Posted October 8, 2010 My son has been chelating for a couple months. He is a gut kid. His gut pain makes him irritable and interferes with everything else. This continues to be our biggest problem. We didn't see much at first with the very low doses we started with. He is 42 lbs. The last 3 weeks we have given 12.5 mg dmsa and a VERY small amount of ALA (between 1 and 2 mg per dose). At the beginning of the rounds we don't see much, then in the middle he is more " out of it " and he complains of his tummy hurting (I think the pain is a little more than normal - keep in mind his tummy hurts most of the time, including off round). At the very end of the round - the very last dose or two, he is PAIN FREE!, he is elated, very with-it, engaging, happy. I see him doing things that are exceptional for him! It is wonderful! Then the round ends and slowly he gets worse and worse and worse again - pain, out-of-it, etc. My two questions are: What is happening? and How long can I extend a round? When I extend a round to 3.5 days the wonderful effects continue longer. Thanks for your help, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2010 Report Share Posted October 8, 2010 >>How long can I extend a round? When I extend a round to 3.5 days the wonderful effects continue longer. My son did best with 6 days on and 8 days off. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2010 Report Share Posted October 9, 2010 Thanks so much for both of your replies. So helpful and inspiring!!! > > > ----- Original Message ----- > From: LOuis Fow > > ====We had one of these kids who would get remarkedly better on the third day of the round, with the slow return to baseline as the time for the next round approached. Try extending the round, we did many 5-7 day rounds and in fact, even 3.5 days helped us hold onto the improvements. Andy has said that you can chelate as long as 2-3 weeks. > > Most kids do not do well on long rounds, adrenal issues start to surface, either at first or as rounds accumulate. For many yeast becomes too severe. We had no problems with adrenals, yeast was able to be controlled and with the longer rounds she just got better and better. > > Because this was many years ago and the protocol was relatively new and not so many kids were better on longer rounds this was puzzling to us also but she did go on after many rounds to completely recover and is today a totally typical, happy, healthy child who has just started the fourth grade in a regular public school with not a trace of the disease. > > Good luck! > > > > > > My son has been chelating for a couple months. He is a gut kid. His gut pain makes him irritable and interferes with everything else. This continues to be our biggest problem. We didn't see much at first with the very low doses we started with. He is 42 lbs. The last 3 weeks we have given 12.5 mg dmsa and a VERY small amount of ALA (between 1 and 2 mg per dose). At the beginning of the rounds we don't see much, then in the middle he is more " out of it " and he complains of his tummy hurting (I think the pain is a little more than normal - keep in mind his tummy hurts most of the time, including off round). At the very end of the round - the very last dose or two, he is PAIN FREE!, he is elated, very with-it, engaging, happy. I see him doing things that are exceptional for him! It is wonderful! Then the round ends and slowly he gets worse and worse and worse again - pain, out-of-it, etc. My two questions are: What is happening? and How long can I extend a round? When I extend a round to 3.5 days the wonderful effects continue longer. > > Thanks for your help, > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2010 Report Share Posted November 3, 2010 Can you point me in the right direction where I can see this officially Glynis. This is something I need to know about. Luv - Sheila Don't know what exception reporting is but I am aware that GP's only have to register hypo patients and commit to doing a blood test every 15 months to get paid. There is no qualifier, no checking and as long as the surgery do the above 2 things they score 100% on their care of hypo patients!! I'm livid!! Glynis > > What is exception reporting? > > Will this help our cause in any way? > Quote Link to comment Share on other sites More sharing options...
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