Guest guest Posted March 18, 2010 Report Share Posted March 18, 2010 How did you find out he was copper poisoned? From: yogamom1972 <patmarsh67@...> Subject: [ ] approx. how many rounds of ala needed? Date: Thursday, March 18, 2010, 2:21 PM Â Hi all- haven't visited the group for a long time but I'm hopeful that someone has some info that can help me about ala. We started chelating when our son was 8. After finding out he was copper poisoned we were advised to use only dmsa until his copper levels were normal. Copper levels came down when he was 11. We were hit or miss with doing chelation rounds. So far we have done 44 rounds with dmsa. Only 7 rounds have included ala and dmsa together. He is indistinguishable from his peers except that he has ocd, mild physical stims and verbal stims/perseveration when his strep (P.A.N.D.A.S. )flares up. this is maybe every 2 mos. or so. Now, being 13 he is quite aware that he is different from his peers in that he has to take enzymes, a ga-zillion supplements a day and B-12 shots. Needless to say he doesn't want to be different in any way. It has become more difficult to fit in the chelation rounds over the last 2 years because of increased social activities i.e. sleepovers, sports. He has also become resistant to doing them. Soooo...how many more rounds would be advisable? For some reason 50 rounds total with ala sticks in my head. Any help is very much appreciated! ! Peace, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2010 Report Share Posted March 18, 2010 his first hair test measured all toxic metal levels. the chart showed copper levels all the way into the red column and beyond to the right. We posted the results and asked this group for help reading the test. We were alerted about the risk of raising those levels further with ala chelation > > > From: yogamom1972 <patmarsh67@...> > Subject: [ ] approx. how many rounds of ala needed? > > Date: Thursday, March 18, 2010, 2:21 PM > > > Â > > > > Hi all- > haven't visited the group for a long time but I'm hopeful that someone has some info that can help me about ala. > We started chelating when our son was 8. After finding out he was copper poisoned we were advised to use only dmsa until his copper levels were normal. > Copper levels came down when he was 11. We were hit or miss with doing chelation rounds. So far we have done 44 rounds with dmsa. Only 7 rounds have included ala and dmsa together. He is indistinguishable from his peers except that he has ocd, mild physical stims and verbal stims/perseveration when his strep (P.A.N.D.A.S. )flares up. this is maybe every 2 mos. or so. > Now, being 13 he is quite aware that he is different from his peers in that he has to take enzymes, a ga-zillion supplements a day and B-12 shots. Needless to say he doesn't want to be different in any way. It has become more difficult to fit in the chelation rounds over the last 2 years because of increased social activities i.e. sleepovers, sports. He has also become resistant to doing them. Soooo...how many more rounds would be advisable? For some reason 50 rounds total with ala sticks in my head. > Any help is very much appreciated! ! > Peace, > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2010 Report Share Posted March 18, 2010 ----- Original Message ----- From: yogamom1972 ===>I don't have good news, you chelate until all issues are gone, every last one, no supplements are needed and they can eat anything without symptoms. Usually that means 100-300 rounds. Hi all- haven't visited the group for a long time but I'm hopeful that someone has some info that can help me about ala. We started chelating when our son was 8. After finding out he was copper poisoned we were advised to use only dmsa until his copper levels were normal. Copper levels came down when he was 11. We were hit or miss with doing chelation rounds. So far we have done 44 rounds with dmsa. Only 7 rounds have included ala and dmsa together. He is indistinguishable from his peers except that he has ocd, mild physical stims and verbal stims/perseveration when his strep (P.A.N.D.A.S.)flares up. this is maybe every 2 mos. or so. Now, being 13 he is quite aware that he is different from his peers in that he has to take enzymes, a ga-zillion supplements a day and B-12 shots. Needless to say he doesn't want to be different in any way. It has become more difficult to fit in the chelation rounds over the last 2 years because of increased social activities i.e. sleepovers, sports. He has also become resistant to doing them. Soooo...how many more rounds would be advisable? For some reason 50 rounds total with ala sticks in my head. Any help is very much appreciated!! Peace, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2010 Report Share Posted March 19, 2010 >>Soooo...how many more rounds would be advisable? For some reason 50 rounds total with ala sticks in my head. I used ALA only. My son needed approx 100 rounds. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2010 Report Share Posted March 19, 2010 [ ] Re: approx. how many rounds of ala needed? >>Soooo...how many more rounds would be advisable? For some reason 50 rounds total with ala sticks in my head. I used ALA only. My son needed approx 100 rounds. ====>Not to start an argument but it should have been said that you didn't chelate your son until every one of his issues were gone. That's a HUGE difference in the amount of rounds needed. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2010 Report Share Posted March 19, 2010 and Dana PLEASE help. I'm confused. I'm truly sorry if I'm being a bit dense here but is that to say that I should perhaps work on the P.A.N.D.A.S. first? Then when it is cleared through high dose vite. A therapy or plasma transfusion would he need fewer rounds total to be fully chelated than if we keep chelating right now and deal with the P.A.N.D.A.S. after? I am positive that I've read here many times that one or more of Dana's childrens' issues vanished AFTER about round 50 with ala. I remember round 50 being a " marker " of sorts though she completed many more rounds total until he or she was fully chelated. I also know that I read at one point that 1 of her children never had a yeast issue as far as she knew until begining ala chelation. What I'm asking is, should I attempt to get rid of some other issues first and if so which ones? Also, if I am able to resolve the other issues will that make it so that fewer ala rounds total are needed? Thank you for all of your help! > >>Soooo...how many more rounds would be advisable? For some reason 50 rounds total with ala sticks in my head. > > I used ALA only. My son needed approx 100 rounds. > > > ====>Not to start an argument but it should have been said that you didn't chelate your son until every one of his issues were gone. That's a HUGE difference in the amount of rounds needed. > > > > Dana > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2010 Report Share Posted March 20, 2010 > ====>Not to start an argument but it should have been said that you didn't chelate your son until every one of his issues were gone. That's a HUGE difference in the amount of rounds needed. Yes this is true. My son needed much more than chelation to recover from all his issues. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2010 Report Share Posted March 20, 2010 > and Dana PLEASE help. I'm confused. I'm truly sorry if I'm being a bit dense here but is that to say that I should perhaps work on the P.A.N.D.A.S. first? PANDAS is a strep symptom. I used OLE to eliminate strep bacteria here. >>Then when it is cleared through high dose vite. A therapy or plasma transfusion would he need fewer rounds total to be fully chelated than if we keep chelating right now and deal with the P.A.N.D.A.S. after? I would start addressing one of them, wait a month or so, to be sure he is doing okay, then consider starting the other one. > I am positive that I've read here many times that one or more of Dana's childrens' issues vanished AFTER about round 50 with ala. My son tolerated most foods and also started tolerating most supplements at about round 50. Also, at round 50 his gut yeast issue was gone. >>I remember round 50 being a " marker " of sorts though she completed many more rounds total until he or she was fully chelated. Approx 100 rounds of ALA. >>I also know that I read at one point that 1 of her children never had a yeast issue as far as she knew until begining ala chelation. Yes, it did appear that way. > What I'm asking is, should I attempt to get rid of some other issues first and if so which ones? Depends on which issues, and whether your child tolerates the supplements required to address the issue. My son did not tolerate most supplements until round 50 of ALA chelation, so I was unable to address most of his issues until chelation had progressed that far. >>Also, if I am able to resolve the other issues will that make it so that fewer ala rounds total are needed? I don't know the answer to this question, since I was unable to resolve my son's other issues *until* he was well-along with chelation. Good luck. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2010 Report Share Posted March 20, 2010 ----- Original Message ----- From: yogamom1972 ===>No, don't work on PANDAS first, you'll never be done. Chelate, the viruses/other issues will clear when the metals leave. And again not to be argumentative but Dana did not fully chelate her kids, fully chelated means they have no more issues, that's not what she did. Dana did not use AC chelation. Do not go by Dana's example if you want your kids to be totally recovered. Chelation is the priority, puttering around with other things will not reduce the rounds you need to do. Most find yeast " lessens " but does not leave at around round 50, that was not the case here, it lessened then worsened then lessened and on and on until we were fully chelated (no issues, no supplements needed, could eat anything with no symptoms). and Dana PLEASE help. I'm confused. I'm truly sorry if I'm being a bit dense here but is that to say that I should perhaps work on the P.A.N.D.A.S. first? Then when it is cleared through high dose vite. A therapy or plasma transfusion would he need fewer rounds total to be fully chelated than if we keep chelating right now and deal with the P.A.N.D.A.S. after? I am positive that I've read here many times that one or more of Dana's childrens' issues vanished AFTER about round 50 with ala. I remember round 50 being a " marker " of sorts though she completed many more rounds total until he or she was fully chelated. I also know that I read at one point that 1 of her children never had a yeast issue as far as she knew until begining ala chelation. What I'm asking is, should I attempt to get rid of some other issues first and if so which ones? Also, if I am able to resolve the other issues will that make it so that fewer ala rounds total are needed? Thank you for all of your help! > >>Soooo...how many more rounds would be advisable? For some reason 50 rounds total with ala sticks in my head. > > I used ALA only. My son needed approx 100 rounds. > > > ====>Not to start an argument but it should have been said that you didn't chelate your son until every one of his issues were gone. That's a HUGE difference in the amount of rounds needed. > > > > Dana > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2010 Report Share Posted March 20, 2010 Many thanks, Dana. Things are looking clearer to me now. He tolerates all supplements and enzymes (though lately, after doing some reading on strep, I'm wondering if some probiotics cause flare-ups for him). For PANDAS we are using 500 mg o.l.e.2x/day, 10,000i.u. A 1x/day. If I see symptoms of a flare up, I add another 500mg o.l.e. mid-day and Oil of Oregano 150mg 2x/day for about a week and he's back to functioning typically. It seems that we're in a holding pattern here. Just keeping the strep bacteria down but not getting rid of it. He seems to tolerate chelation along with the ongoing strep treatments. The only time he doesn't seem typical is when the PANDAS flares and he has o.c.d. symptoms like feeling he MUST finish a task or talking nonstop and perseverating on whatever he's decided he MUST do. He also moves his hands around a lot while talking,and is irritable and argumentative.So it APPEARES that P.A.N.D.A.S. is our main problem. Will removing more mercury from his system help resolve everything? including the P.A.N.D.A.S.? or are they seperate issues? I will attack them both at once if that is the best course to take. My goal is to have him off to college in 5 years fully recovered. What we have now is a MANAGED recovery. Thank you again for your help. Your guidance has been helpful so many times! We even took a chance on homeschooling after reading that it worked well for you and we all love it. Our son made unbelievable gains after his copper + lead levels were brought into normal range via chelation. I've been away from the group for a couple of years trying N.M.T., mb12 and some other treatments. Thanks,too, for clearing up my confusion about round 50...just wishful thinking on my part that we could be done sooner! Very Sincerely, > > and Dana PLEASE help. I'm confused. I'm truly sorry if I'm being a bit dense here but is that to say that I should perhaps work on the P.A.N.D.A.S. first? > > > PANDAS is a strep symptom. I used OLE to eliminate strep bacteria here. > > > >>Then when it is cleared through high dose vite. A therapy or plasma transfusion would he need fewer rounds total to be fully chelated than if we keep chelating right now and deal with the P.A.N.D.A.S. after? > > > I would start addressing one of them, wait a month or so, to be sure he is doing okay, then consider starting the other one. > > > > I am positive that I've read here many times that one or more of Dana's childrens' issues vanished AFTER about round 50 with ala. > > > My son tolerated most foods and also started tolerating most supplements at about round 50. Also, at round 50 his gut yeast issue was gone. > > > >>I remember round 50 being a " marker " of sorts though she completed many more rounds total until he or she was fully chelated. > > > Approx 100 rounds of ALA. > > > >>I also know that I read at one point that 1 of her children never had a yeast issue as far as she knew until begining ala chelation. > > > Yes, it did appear that way. > > > > What I'm asking is, should I attempt to get rid of some other issues first and if so which ones? > > > Depends on which issues, and whether your child tolerates the supplements required to address the issue. My son did not tolerate most supplements until round 50 of ALA chelation, so I was unable to address most of his issues until chelation had progressed that far. > > > >>Also, if I am able to resolve the other issues will that make it so that fewer ala rounds total are needed? > > > I don't know the answer to this question, since I was unable to resolve my son's other issues *until* he was well-along with chelation. > > Good luck. > > Dana > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2010 Report Share Posted March 20, 2010 Thanks . sorry for addressing you as " " earlier!! oops. I wasn't aware that continued chelation would make it so that the PANDAS would be resolved as well. Thanks for your patience amid my confusuion! Looks like there's nothing to do here but get back down to business and chelate every weekend til all issues are resolved. Your guidance is appreciated. > > >>Soooo...how many more rounds would be advisable? For some reason 50 rounds total with ala sticks in my head. > > > > I used ALA only. My son needed approx 100 rounds. > > > > > > ====>Not to start an argument but it should have been said that you didn't chelate your son until every one of his issues were gone. That's a HUGE difference in the amount of rounds needed. > > > > > > > > Dana > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2010 Report Share Posted March 21, 2010 > Many thanks, Dana. Things are looking clearer to me now. He tolerates all supplements and enzymes (though lately, after doing some reading on strep, I'm wondering if some probiotics cause flare-ups for him). Watch for probiotics that contain strep strains, because many kids with strep/PANDAS issues will have problems with strep strains in probiotics, even tho they are supposed to be " good strep " strains. > Will removing more mercury from his system help resolve everything? including the P.A.N.D.A.S.? or are they seperate issues? Chelation did not resolve many of my son's issues, but it did allow him to tolerate the supplements which then *did* resolve his issues. > I will attack them both at once if that is the best course to take. This is what I would do. You might want to keep the higher doses of OLE all the time, rather than just increasing it when there is a flare. My son had OCD issues from more than just strep, so just because your child has OCD issues, don't assume that it is only because of strep bacteria. > My goal is to have him off to college in 5 years fully recovered. What we have now is a MANAGED recovery. That was my goal also. My husband and I wanted my son to have no chance at regression, once we were dead and gone. Right now, my son can eat anything, never has a yeast or bacteria issue, and only needs one supplement. So he is almost there. > Thank you again for your help. Your guidance has been helpful so many times! We even took a chance on homeschooling after reading that it worked well for you and we all love it. Great! Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2010 Report Share Posted March 21, 2010 I'm very thankful for your help... we'll " stay-the-course " with chelation and watch for changes w/different probiotics...then try sticking with the higher OLE dose. Having the input of other parents is priceless! Peace, > > Many thanks, Dana. Things are looking clearer to me now. He tolerates all supplements and enzymes (though lately, after doing some reading on strep, I'm wondering if some probiotics cause flare-ups for him). > > > Watch for probiotics that contain strep strains, because many kids with strep/PANDAS issues will have problems with strep strains in probiotics, even tho they are supposed to be " good strep " strains. > > > > Will removing more mercury from his system help resolve everything? including the P.A.N.D.A.S.? or are they seperate issues? > > > Chelation did not resolve many of my son's issues, but it did allow him to tolerate the supplements which then *did* resolve his issues. > > > > I will attack them both at once if that is the best course to take. > > > This is what I would do. You might want to keep the higher doses of OLE all the time, rather than just increasing it when there is a flare. > > My son had OCD issues from more than just strep, so just because your child has OCD issues, don't assume that it is only because of strep bacteria. > > > > My goal is to have him off to college in 5 years fully recovered. What we have now is a MANAGED recovery. > > > That was my goal also. My husband and I wanted my son to have no chance at regression, once we were dead and gone. Right now, my son can eat anything, never has a yeast or bacteria issue, and only needs one supplement. So he is almost there. > > > > Thank you again for your help. Your guidance has been helpful so many times! We even took a chance on homeschooling after reading that it worked well for you and we all love it. > > > Great! > > Dana > Quote Link to comment Share on other sites More sharing options...
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