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Re: Statistic on Chelation

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I have never tried IV Chelation, but have a basic understanding of biochem and

metabolic processes. With child #1, I did chelation for 1.5 years, every week,

ACP. This protocol ultimately recovered my child. I don't deny it's hard to

get up at night, but as you slowly see those new gains, that's incentive enough

to keep going. My child went from a " walking coma " to a smart, intuitive,

funny, abstract thinking and highly social child. He is in mainstream school

without an aid doing age appropriate work.

Child #2, I did the same things. He got worse and I couldn't understand. I

even increased the yeast protocol and he kept going downhill. Come to find out

he had PANDAS. Now we're treating PANDAS successfully with antibiotics (still

has a long way to go). Started doing the ACP and making some great gains with

this child. My point of all this is before you start any kind of protocol,

please please take the time to understand what you are doing biochemically to

the body and the affinity of toxic metals to the CNS. The ACP has been

phenomenal for both my kids and I wouldn't even consider doing it any other way.

AC may appear a little harsh in his responses, but he knows the potential damage

you are about to cause in your already toxic child. The fact that he is

responding is very appreciated here because I always learn from his posts, as

well as some of the other moms/dads.

I love it that we have our child back, and anxiously awaiting our #2 child's

recovery. I pray and hope the rest of the struggling parents out there get

their child back as well.

Also, it wouldn't be a bad idea to check out Andy's books. I haven't read every

page, but they are great reference books which I've gone back to over and over

when I had questions or needed more info.

Pam

Pam

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PANDAS, is an abbreviation for Pediatric Autoimmune Neuropsychiatric Disorders

Associated with Streptococcal Infections. The term is used to describe a subset

of children who have Obsessive Compulsive Disorder (OCD) and/or tic disorders

such as Tourette's Syndrome, and in whom symptoms worsen following strep.

infections such as " Strep throat " and Scarlet Fever.

Basically strep gone bad. Becomes autoimmune and starts attacking the brain.

Long termed antibiotics seem to help with some. Others have had success with

IVIG.

>

> What does PANDAS mean?

>

> Ricky

>

>

>

>

> ________________________________

> From: praboli <praboli@...>

>

> Sent: Sun, October 10, 2010 8:17:19 PM

> Subject: [ ] Re: Statistic on Chelation

>

>  

> I have never tried IV Chelation, but have a basic understanding of biochem and

> metabolic processes. With child #1, I did chelation for 1.5 years, every week,

> ACP. This protocol ultimately recovered my child. I don't deny it's hard to

get

> up at night, but as you slowly see those new gains, that's incentive enough to

> keep going. My child went from a " walking coma " to a smart, intuitive, funny,

> abstract thinking and highly social child. He is in mainstream school without

an

> aid doing age appropriate work.

>

>

> Child #2, I did the same things. He got worse and I couldn't understand. I

even

> increased the yeast protocol and he kept going downhill. Come to find out he

had

> PANDAS. Now we're treating PANDAS successfully with antibiotics (still has a

> long way to go). Started doing the ACP and making some great gains with this

> child. My point of all this is before you start any kind of protocol, please

> please take the time to understand what you are doing biochemically to the

body

> and the affinity of toxic metals to the CNS. The ACP has been phenomenal for

> both my kids and I wouldn't even consider doing it any other way. AC may

appear

> a little harsh in his responses, but he knows the potential damage you are

about

> to cause in your already toxic child. The fact that he is responding is very

> appreciated here because I always learn from his posts, as well as some of the

> other moms/dads.

>

>

> I love it that we have our child back, and anxiously awaiting our #2 child's

> recovery. I pray and hope the rest of the struggling parents out there get

their

> child back as well.

>

> Also, it wouldn't be a bad idea to check out Andy's books. I haven't read

every

> page, but they are great reference books which I've gone back to over and over

> when I had questions or needed more info.

>

> Pam

>

> Pam

>

>

>

>

>

>

>

>

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Don't believe strep, or any bacteria for that matter can " go bad " unless there

has been a toxic insult to the person. Fixing the bacteria problem with

antibiotics before removing the toxic insult may result in more resistant

bacteria. Chelation should be done first. It is controversial whether

antibiotics are any more effective than not doing anything.

> >

> > What does PANDAS mean?

> >

> > Ricky

> >

> >

> >

> >

> > ________________________________

> > From: praboli <praboli@>

> >

> > Sent: Sun, October 10, 2010 8:17:19 PM

> > Subject: [ ] Re: Statistic on Chelation

> >

> >  

> > I have never tried IV Chelation, but have a basic understanding of biochem

and

> > metabolic processes. With child #1, I did chelation for 1.5 years, every

week,

> > ACP. This protocol ultimately recovered my child. I don't deny it's hard to

get

> > up at night, but as you slowly see those new gains, that's incentive enough

to

> > keep going. My child went from a " walking coma " to a smart, intuitive,

funny,

> > abstract thinking and highly social child. He is in mainstream school

without an

> > aid doing age appropriate work.

> >

> >

> > Child #2, I did the same things. He got worse and I couldn't understand. I

even

> > increased the yeast protocol and he kept going downhill. Come to find out he

had

> > PANDAS. Now we're treating PANDAS successfully with antibiotics (still has a

> > long way to go). Started doing the ACP and making some great gains with this

> > child. My point of all this is before you start any kind of protocol, please

> > please take the time to understand what you are doing biochemically to the

body

> > and the affinity of toxic metals to the CNS. The ACP has been phenomenal for

> > both my kids and I wouldn't even consider doing it any other way. AC may

appear

> > a little harsh in his responses, but he knows the potential damage you are

about

> > to cause in your already toxic child. The fact that he is responding is very

> > appreciated here because I always learn from his posts, as well as some of

the

> > other moms/dads.

> >

> >

> > I love it that we have our child back, and anxiously awaiting our #2 child's

> > recovery. I pray and hope the rest of the struggling parents out there get

their

> > child back as well.

> >

> > Also, it wouldn't be a bad idea to check out Andy's books. I haven't read

every

> > page, but they are great reference books which I've gone back to over and

over

> > when I had questions or needed more info.

> >

> > Pam

> >

> > Pam

> >

> >

> >

> >

> >

> >

> >

> >

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> How about stirring up the viruses before chelaltion? With some supplements

(vit A, MB12, Virastop), my son's viruses started to show up (strep and herpes)

from time to time, which he never had before.

Strep is a bacteria, not a virus. I eliminated strep at my house with OLE.

Your child probably DID have it, it was just not presenting with physical

symptoms, it was dormant or worse, presenting with mental/behavioral symptoms.

I eliminated herpes virus with lysine.

Dana

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I meant to say strep bacteria, but both kids have viruses now and I guess that

was on my mind. Child #2 with PANDAS had verbal tics all day that he couldn't

control. At first, I thought it was a form of stimming, but it was just

constant, along with other behaviors that coincide with PANDAS. From our

experience, we only saw a difference in behaviors with antibiotics. We started

at once/week and that wasn't enough. Now we're on Zith.everyday for 6 weeks and

it's working. Afterward, maybe I'll start the OLE. My child is 40 lbs. What is

the dosage of OLE?

Pam

> > How about stirring up the viruses before chelaltion? With some supplements

(vit A, MB12, Virastop), my son's viruses started to show up (strep and herpes)

from time to time, which he never had before.

>

>

> Strep is a bacteria, not a virus. I eliminated strep at my house with OLE.

Your child probably DID have it, it was just not presenting with physical

symptoms, it was dormant or worse, presenting with mental/behavioral symptoms.

>

> I eliminated herpes virus with lysine.

>

> Dana

>

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Antibiotics were the only effective agent tried here. I did almost a year of

chelation with few gains. I have started with chelation again while on the

antibiotics and we're getting good results. I welcome any advice. I love the

natural route and favor it over drugs, but I think we exhausted all other

options.

> > >

> > > What does PANDAS mean?

> > >

> > > Ricky

> > >

> > >

> > >

> > >

> > > ________________________________

> > > From: praboli <praboli@>

> > >

> > > Sent: Sun, October 10, 2010 8:17:19 PM

> > > Subject: [ ] Re: Statistic on Chelation

> > >

> > >  

> > > I have never tried IV Chelation, but have a basic understanding of biochem

and

> > > metabolic processes. With child #1, I did chelation for 1.5 years, every

week,

> > > ACP. This protocol ultimately recovered my child. I don't deny it's hard

to get

> > > up at night, but as you slowly see those new gains, that's incentive

enough to

> > > keep going. My child went from a " walking coma " to a smart, intuitive,

funny,

> > > abstract thinking and highly social child. He is in mainstream school

without an

> > > aid doing age appropriate work.

> > >

> > >

> > > Child #2, I did the same things. He got worse and I couldn't understand. I

even

> > > increased the yeast protocol and he kept going downhill. Come to find out

he had

> > > PANDAS. Now we're treating PANDAS successfully with antibiotics (still has

a

> > > long way to go). Started doing the ACP and making some great gains with

this

> > > child. My point of all this is before you start any kind of protocol,

please

> > > please take the time to understand what you are doing biochemically to the

body

> > > and the affinity of toxic metals to the CNS. The ACP has been phenomenal

for

> > > both my kids and I wouldn't even consider doing it any other way. AC may

appear

> > > a little harsh in his responses, but he knows the potential damage you are

about

> > > to cause in your already toxic child. The fact that he is responding is

very

> > > appreciated here because I always learn from his posts, as well as some of

the

> > > other moms/dads.

> > >

> > >

> > > I love it that we have our child back, and anxiously awaiting our #2

child's

> > > recovery. I pray and hope the rest of the struggling parents out there get

their

> > > child back as well.

> > >

> > > Also, it wouldn't be a bad idea to check out Andy's books. I haven't read

every

> > > page, but they are great reference books which I've gone back to over and

over

> > > when I had questions or needed more info.

> > >

> > > Pam

> > >

> > > Pam

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

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If you are chelating and you start to see rashes or have fever, don't worry too

much about it, just give more epsom salt baths to help with comfort and opening

pores to let it out. I don't see anything wrong with using supplements for

bacteria/viruses along with chelation, but I do see something wrong with

antibiotic use early in chelation or continued antibiotic use without chelating.

Liz

> > >

> > > What does PANDAS mean?

> > >

> > > Ricky

> > >

> > >

> > >

> > >

> > > ________________________________

> > > From: praboli <praboli@>

> > >

> > > Sent: Sun, October 10, 2010 8:17:19 PM

> > > Subject: [ ] Re: Statistic on Chelation

> > >

> > >  

> > > I have never tried IV Chelation, but have a basic understanding of biochem

and

> > > metabolic processes. With child #1, I did chelation for 1.5 years, every

week,

> > > ACP. This protocol ultimately recovered my child. I don't deny it's hard

to get

> > > up at night, but as you slowly see those new gains, that's incentive

enough to

> > > keep going. My child went from a " walking coma " to a smart, intuitive,

funny,

> > > abstract thinking and highly social child. He is in mainstream school

without an

> > > aid doing age appropriate work.

> > >

> > >

> > > Child #2, I did the same things. He got worse and I couldn't understand. I

even

> > > increased the yeast protocol and he kept going downhill. Come to find out

he had

> > > PANDAS. Now we're treating PANDAS successfully with antibiotics (still has

a

> > > long way to go). Started doing the ACP and making some great gains with

this

> > > child. My point of all this is before you start any kind of protocol,

please

> > > please take the time to understand what you are doing biochemically to the

body

> > > and the affinity of toxic metals to the CNS. The ACP has been phenomenal

for

> > > both my kids and I wouldn't even consider doing it any other way. AC may

appear

> > > a little harsh in his responses, but he knows the potential damage you are

about

> > > to cause in your already toxic child. The fact that he is responding is

very

> > > appreciated here because I always learn from his posts, as well as some of

the

> > > other moms/dads.

> > >

> > >

> > > I love it that we have our child back, and anxiously awaiting our #2

child's

> > > recovery. I pray and hope the rest of the struggling parents out there get

their

> > > child back as well.

> > >

> > > Also, it wouldn't be a bad idea to check out Andy's books. I haven't read

every

> > > page, but they are great reference books which I've gone back to over and

over

> > > when I had questions or needed more info.

> > >

> > > Pam

> > >

> > > Pam

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

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Never IV chelation. Always AC.

> > > >

> > > > What does PANDAS mean?

> > > >

> > > > Ricky

> > > >

> > > >

> > > >

> > > >

> > > > ________________________________

> > > > From: praboli <praboli@>

> > > >

> > > > Sent: Sun, October 10, 2010 8:17:19 PM

> > > > Subject: [ ] Re: Statistic on Chelation

> > > >

> > > >  

> > > > I have never tried IV Chelation, but have a basic understanding of

biochem and

> > > > metabolic processes. With child #1, I did chelation for 1.5 years, every

week,

> > > > ACP. This protocol ultimately recovered my child. I don't deny it's hard

to get

> > > > up at night, but as you slowly see those new gains, that's incentive

enough to

> > > > keep going. My child went from a " walking coma " to a smart, intuitive,

funny,

> > > > abstract thinking and highly social child. He is in mainstream school

without an

> > > > aid doing age appropriate work.

> > > >

> > > >

> > > > Child #2, I did the same things. He got worse and I couldn't understand.

I even

> > > > increased the yeast protocol and he kept going downhill. Come to find

out he had

> > > > PANDAS. Now we're treating PANDAS successfully with antibiotics (still

has a

> > > > long way to go). Started doing the ACP and making some great gains with

this

> > > > child. My point of all this is before you start any kind of protocol,

please

> > > > please take the time to understand what you are doing biochemically to

the body

> > > > and the affinity of toxic metals to the CNS. The ACP has been phenomenal

for

> > > > both my kids and I wouldn't even consider doing it any other way. AC may

appear

> > > > a little harsh in his responses, but he knows the potential damage you

are about

> > > > to cause in your already toxic child. The fact that he is responding is

very

> > > > appreciated here because I always learn from his posts, as well as some

of the

> > > > other moms/dads.

> > > >

> > > >

> > > > I love it that we have our child back, and anxiously awaiting our #2

child's

> > > > recovery. I pray and hope the rest of the struggling parents out there

get their

> > > > child back as well.

> > > >

> > > > Also, it wouldn't be a bad idea to check out Andy's books. I haven't

read every

> > > > page, but they are great reference books which I've gone back to over

and over

> > > > when I had questions or needed more info.

> > > >

> > > > Pam

> > > >

> > > > Pam

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

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Many thanks for your story, Pam! Somehow I overlooked your post and didn't reply

to it immediately.

I am reading Andy's books, still parents' encouragement is important.

Asem

>

> I have never tried IV Chelation, but have a basic understanding of biochem and

metabolic processes. With child #1, I did chelation for 1.5 years, every week,

ACP. This protocol ultimately recovered my child. I don't deny it's hard to

get up at night, but as you slowly see those new gains, that's incentive enough

to keep going. My child went from a " walking coma " to a smart, intuitive,

funny, abstract thinking and highly social child. He is in mainstream school

without an aid doing age appropriate work.

>

> Child #2, I did the same things. He got worse and I couldn't understand. I

even increased the yeast protocol and he kept going downhill. Come to find out

he had PANDAS. Now we're treating PANDAS successfully with antibiotics (still

has a long way to go). Started doing the ACP and making some great gains with

this child. My point of all this is before you start any kind of protocol,

please please take the time to understand what you are doing biochemically to

the body and the affinity of toxic metals to the CNS. The ACP has been

phenomenal for both my kids and I wouldn't even consider doing it any other way.

AC may appear a little harsh in his responses, but he knows the potential damage

you are about to cause in your already toxic child. The fact that he is

responding is very appreciated here because I always learn from his posts, as

well as some of the other moms/dads.

>

> I love it that we have our child back, and anxiously awaiting our #2 child's

recovery. I pray and hope the rest of the struggling parents out there get

their child back as well.

>

> Also, it wouldn't be a bad idea to check out Andy's books. I haven't read

every page, but they are great reference books which I've gone back to over and

over when I had questions or needed more info.

>

> Pam

>

> Pam

>

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> I meant to say strep bacteria, but both kids have viruses now and I guess that

was on my mind. Child #2 with PANDAS had verbal tics all day that he couldn't

control. At first, I thought it was a form of stimming, but it was just

constant, along with other behaviors that coincide with PANDAS. From our

experience, we only saw a difference in behaviors with antibiotics. We started

at once/week and that wasn't enough. Now we're on Zith.everyday for 6 weeks and

it's working. Afterward, maybe I'll start the OLE. My child is 40 lbs. What is

the dosage of OLE?

Good luck with the Zithromax, it did nothing here.

I started with 250mg OLE and worked up as required.

Dana

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> Hi Dana,

> May I ask you how did you know that they were eliminated? Was it general

developmental improvement, or a massive symptoms of bacterial/viral infectionÂ

 that came once and went away?

Sort of both. We had waves of physical symptoms [not just " came once " ], and

with each wave, behaviors and development improved. At the end, I saw toxicity

symptoms with giving the supplements.

> Another question is, when giving lysine as well as other amino acids, how did

you make sure that they are in balance?

I gave a general multi amino, plus a lot of lysine. There were a few aminos I

had to give separately, not just lysine.

Dana

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> Dana,

> Which aminos did you have to give separately?

This list is off the top of my head, so I may be missing some: carnitine,

taurine, lysine, creatine, cysteine.

Dana

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