Re: Newby at Andy's protocol....where to get the DMSA/ALA

[Guest guest]

DMSA is available at vrp.com

http://www.vrp.com/dispatcher?search=DMSA

as is ALA.

ALA is available at Vitamin Shoppe.

________________________________

From: Wrenn <ajwrenn@...>

Sent: Sun, October 10, 2010 8:39:08 PM

Subject: [ ] Newby at Andy's protocol....where to get the DMSA/ALA

Hey guys,

Some of you probably know me from chelatingkids2 group.. I have done

EVERYTHING with except Andy's protocol. We have done EDTA IV infusions,

HBOT, Ozone, Sensory Learning, Hard core Yasko, Fermented coconut kefir, etc

etc. I have taken a mental health break for the last 2 years. has done

GREAT and has finally gone back to school with a full time aid (I was

homeschooling him). He eats whatever he wants and loves ice cream. I know alot

of you are cringing with disgust!

Well, his stimming is back, to no surprise and his anxiety is also high. I

wanted to start his EDTA IV infusions again as when I stopped initially he said

to me, " need shot mommy, make head feel better. " Anyway, I just joined this

group and wanted to give this a good try, but I simply do not know how to

start. I hear alot of you say you do it without a DAN but I thought DMSA was an

RX.

Just need someone to point me in the right direction. I am normally not a newby

at this stuff, but someone who does the answering...but I feel I am in VERY new

waters and don't want to screw up his great school year.

regards,

Wrenn

From: andrewhallcutler <AndyCutler@...>

Subject: [ ] Re: Re Statistics on chelation

Date: Sunday, October 10, 2010, 7:49 PM

At least some DAN! doctors who speak on this at conferences deny the reports by

parents that their children got worse on chelation, and claim they have never

had such reports or experiences.

When the doctor says one thing and the parent says another, I'm inclined to

believe the parent. When it is one report, or maybe two, I do understand the

parent may be nuts, or confused, or not reporting accurately on what happened.

However in some cases a lot more than 1 or 2 parents are involved in reporting a

specific doctor wreaked havoc - and that doctor continues to report that he's

never seen a problem in his conference presentations.

So yes I think it is very wise that Assam is asking PARENTS for what happened!

That's the data I rely on - what parents say happened to their kids, or what

adults say happened to themselves.

Andy

http://www.noamalgam.com/index.html

Amalgam Illness: Diagnosis and Treatment

http://www.noamalgam.com/hairtestbook.html

Hair Test Interpretation: Finding Hidden Toxicities

http://www.noamalgam.com/nourishinghope.html

Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children

http://www.noamalgam.com/biologicaltreatments.html

Biological Treatments for Autism and PDD

> >

> >

> > Hello,

> > Â

> > I wonder if there is any statistics on chelation avialable. I am interested

>mainly in information on IV and ACP chelation methods. If anyone could refer me

>to the source of information on DAN! statistics on IV chelation, I would really

>appreciate it. As for the AC chlation method, I would like to ask parents on

>this list, please, if you could kindly share the following info with me:

>

> > Â

> > 1. For how many years you chelating, how many rounds you did?

> > 2. What protocol do you follow?

> > 3. What agents do you use?

> > 4. What is the child's age?

> > 5. What was the child's ATEC score before starting chelation and now?

> > 6. What is the child's primary diagnosis?

> > Â

> > I hope that everybody understands the reason of my interest. There are

>several ways to go, and I am in process of making decision about which one to

>go.

>

> > Â

> > I hope that listmates will answer my questions and deeply appreciate replies

>in advance.

> > Â

> > Sincerely,

> > Asem

>

[Guest guest]

Hi,

Usually the first step is to order " Amalgam Illness " and do a hair test

analysis. You probably have already determined your son to need chelating, so

the hair test, although helpful, is not necessary.

This is low dose chelation. You take chelators at their half life, so to

maintain a steady state (or as close) in the blood. This prevents redistribution

of the metals.

The chelators most use here are ALA (buy at any vitamin place) and or DMSA (not

Rx vrp.com). Some use DMPS (that is Rx). ALA is needed. The DMSA is needed if

there is lead. ALA has to be taken every 3 hours around the clock (including

night waking). DMSA is every 4 hours if by itself, every 3 if its with ALA.

You probably already have sup's on board. The bare minimum is zinc, magnesium,

vit c and vit e. Usually something to control yeast, and sometimes something to

support adrenals. Anything else is usually to help with symptoms along the way.

You do 3 days on, 4 off. Most people choose to do this Fri through to Mon

morning and take the week off to start again on Friday. Some only do every other

weekend. You need more time off than on.

Dosage is 1/8 to a max of 1/2 mg per pound. My kids are over 40lbs and take 4mg

ALA. So, you can see how low the dosages are. Shooting too high usually causes

more problems. You can increase dosages up to 50% after you ascertain that there

are negatives. Usually the ratio of ALA and DMSA is 1:1 1:2 or 2:1, but not

always. You need to find your child's own sweet spot, and its different for

everyone.

There, I think that is the Cole's notes version.

Good Luck!

From: Wrenn

Sent: Sunday, October 10, 2010 6:39 PM

Subject: [ ] Newby at Andy's protocol....where to get the DMSA/ALA

Hey guys,

Some of you probably know me from chelatingkids2 group.. I have done

EVERYTHING with except Andy's protocol. We have done EDTA IV infusions,

HBOT, Ozone, Sensory Learning, Hard core Yasko, Fermented coconut kefir, etc

etc. I have taken a mental health break for the last 2 years. has done

GREAT and has finally gone back to school with a full time aid (I was

homeschooling him). He eats whatever he wants and loves ice cream. I know alot

of you are cringing with disgust!

Well, his stimming is back, to no surprise and his anxiety is also high. I

wanted to start his EDTA IV infusions again as when I stopped initially he said

to me, " need shot mommy, make head feel better. " Anyway, I just joined this

group and wanted to give this a good try, but I simply do not know how to start.

I hear alot of you say you do it without a DAN but I thought DMSA was an RX.

Just need someone to point me in the right direction. I am normally not a newby

at this stuff, but someone who does the answering...but I feel I am in VERY new

waters and don't want to screw up his great school year.

regards,

Wrenn

From: andrewhallcutler <AndyCutler@...>

Subject: [ ] Re: Re Statistics on chelation

Date: Sunday, October 10, 2010, 7:49 PM

At least some DAN! doctors who speak on this at conferences deny the reports by

parents that their children got worse on chelation, and claim they have never

had such reports or experiences.

When the doctor says one thing and the parent says another, I'm inclined to

believe the parent. When it is one report, or maybe two, I do understand the

parent may be nuts, or confused, or not reporting accurately on what happened.

However in some cases a lot more than 1 or 2 parents are involved in reporting a

specific doctor wreaked havoc - and that doctor continues to report that he's

never seen a problem in his conference presentations.

So yes I think it is very wise that Assam is asking PARENTS for what happened!

That's the data I rely on - what parents say happened to their kids, or what

adults say happened to themselves.

Andy

http://www.noamalgam.com/index.html

Amalgam Illness: Diagnosis and Treatment

http://www.noamalgam.com/hairtestbook.html

Hair Test Interpretation: Finding Hidden Toxicities

http://www.noamalgam.com/nourishinghope.html

Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children

http://www.noamalgam.com/biologicaltreatments.html

Biological Treatments for Autism and PDD

> >

> >

> > Hello,

> > Â

> > I wonder if there is any statistics on chelation avialable. I am interested

mainly in information on IV and ACP chelation methods. If anyone could refer me

to the source of information on DAN! statistics on IV chelation, I would really

appreciate it. As for the AC chlation method, I would like to ask parents on

this list, please, if you could kindly share the following info with me:

> > Â

> > 1. For how many years you chelating, how many rounds you did?

> > 2. What protocol do you follow?

> > 3. What agents do you use?

> > 4. What is the child's age?

> > 5. What was the child's ATEC score before starting chelation and now?

> > 6. What is the child's primary diagnosis?

> > Â

> > I hope that everybody understands the reason of my interest. There are

several ways to go, and I am in process of making decision about which one to

go.

> > Â

> > I hope that listmates will answer my questions and deeply appreciate replies

in advance.

> > Â

> > Sincerely,

> > Asem

>

[Guest guest]

>

> Hey guys,

>

> Some of you probably know me from chelatingkids2 group.. I have done

EVERYTHING with except Andy's protocol. We have done EDTA IV infusions,

HBOT, Ozone, Sensory Learning, Hard core Yasko, Fermented coconut kefir, etc

etc.   I have taken a mental health break for the last 2 years. has

done GREAT and has finally gone back to school with a full time aid (I was

homeschooling him). He eats whatever he wants and loves ice cream. I know alot

of you are cringing with disgust!

>

> Well, his stimming is back, to no surprise and his anxiety is also high. I

wanted to start his EDTA IV infusions again as when I stopped initially he said

to me, " need shot mommy, make head feel better. " Â Anyway, I just joined this

group and wanted to give this a good try, but I simply do not know how to

start. I hear alot of you say you do it without a DAN but I thought DMSA was

an RX.

DMSA is neither essential, nor prescription only.

ALA is essential, it is over the counter only - and inexpensive.

> Just need someone to point me in the right direction.

The files section, and the archives, are quite informative.

> I am normally not a newby at this stuff, but someone who does the

answering...but I feel I am in VERY new waters and don't want to screw up his

great school year.

>

> regards,

>

> Wrenn

Andy

http://www.noamalgam.com/index.html

Amalgam Illness: Diagnosis and Treatment

http://www.noamalgam.com/hairtestbook.html

Hair Test Interpretation: Finding Hidden Toxicities

http://www.noamalgam.com/nourishinghope.html

Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children

http://www.noamalgam.com/biologicaltreatments.html

Biological Treatments for Autism and PDD

[Guest guest]

,

Just like you we have done EVERYTHING but the AC Protocol, but will start

soon. We chelated for seven months IV EDTA then IV EDTA/DMPS. We always

saw gains while we were doing it but regression when we stopped. We stopped

because after seven months our son had an asthma attack after chelation.

The doctor said, " coincidence, " and of course bells went off in my head

because I've heard that word " coincidence " too many times. but we went back

for another treatment and the same thing happened, only this reaction

snowballed into pneumonia. In addition, our son developed an allergy to

some sulfa like sulfa drugs and broccoli, but no reaction to eggs. So we

took a break and then the stimming which had all but disappeared came back

with a vengeance.

Then we tested again last spring and found his lead levels high, so we went

back for IV EDTA once a week and on the fourth round he had an asthma attack

while in traffic on the freeway going home -- it was very scary. So we

quit. His doc wanted us to continue and give ORAL steroids before each

treatment. Seeing as how the last time our son got oral steroids he had a

psychotic episode, we declined. That is when I came back to this group

--which really put us on the right path years ago, and I only wish I'd

listened about chelating the AC way then.

Our son had come back from severe to high-functioning, but I confess, the

stimming has gotten worse and at times gets on my nerves. I'm pretty sure

it is yeast and probably that metals just got moved around during IV

chelation. I am reading like crazy so we can start the AC Protocol as soon

as he is over his last bout of cellulitis, off antibiotics, and we get the

yeast under control.

I had to start home-schooling my son this year as last year I finally

figured out they weren't really implementing his IEP and just made up

progress grades in reading and math for the whole year. So I'm trying to

juggle everything and get in the right mindset. I am so hopeful about the

AC Protocol. We plan to use ALA only as our son developed that sensitivity

to the DMPS and DMSA.

[Guest guest]

Does anyone know if the ALA 25mg from Kirkmans is okay? I have been using it.

Thanks,

Kelley

Sent from Kelley Stone's i pod

[Guest guest]

I've used it for over 50 rounds without any problem. I get the hypoallergenic

version to avoid the flavorings (if they still add that; flavorings to capsules

seems silly if you swallow pills).

Pam

>

> Does anyone know if the ALA 25mg from Kirkmans is okay? I have been using it.

> Thanks,

> Kelley

>

>

> Sent from Kelley Stone's i pod

>

[Guest guest]

hi its fine. lots of us use it.

emma

mu to 1 dd with dcd, 2 ds with asd

>

> Does anyone know if the ALA 25mg from Kirkmans is okay? I have been using it.

> Thanks,

> Kelley

>

>

> Sent from Kelley Stone's i pod

>

[Guest guest]

Thanks so much for the replies! I just wanted to make sure it was the right ALA

form.

Kelley

Sent from Kelley Stone's i pod

[Guest guest]

Thanks so much, SO

If is 65 lbs.   A good starting dose of ALA and DMSA would be 8mg of

each? Am I doing this correct? 

And give these together every 3 hours during the day and every 4 hours at

night...When do you give the minerals and how often....apart from the chelators,

so the chelators aren't wasted on pulling the minerals out?

What good multi mineral does everyone use and what is a good yeast control? 

GSE or Oil of Oregano?  I am running a CDSA to see what critters are crawling

around in his belly in order to get the correct ones that are not resistent...

Sorry for all the questions.. But I think I am close to starting this, this next

weekend....

From: andrewhallcutler <AndyCutler@...>

Subject: [ ] Re: Re Statistics on chelation

Date: Sunday, October 10, 2010, 7:49 PM

At least some DAN! doctors who speak on this at conferences deny the reports by

parents that their children got worse on chelation, and claim they have never

had such reports or experiences.

When the doctor says one thing and the parent says another, I'm inclined to

believe the parent. When it is one report, or maybe two, I do understand the

parent may be nuts, or confused, or not reporting accurately on what happened.

However in some cases a lot more than 1 or 2 parents are involved in reporting a

specific doctor wreaked havoc - and that doctor continues to report that he's

never seen a problem in his conference presentations.

So yes I think it is very wise that Assam is asking PARENTS for what happened!

That's the data I rely on - what parents say happened to their kids, or what

adults say happened to themselves.

Andy

http://www.noamalgam.com/index.html

Amalgam Illness: Diagnosis and Treatment

http://www.noamalgam.com/hairtestbook.html

Hair Test Interpretation: Finding Hidden Toxicities

http://www.noamalgam.com/nourishinghope.html

Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children

http://www.noamalgam.com/biologicaltreatments.html

Biological Treatments for Autism and PDD

> >

> >

> > Hello,

> > Â

> > I wonder if there is any statistics on chelation avialable. I am interested

mainly in information on IV and ACP chelation methods. If anyone could refer me

to the source of information on DAN! statistics on IV chelation, I would really

appreciate it. As for the AC chlation method, I would like to ask parents on

this list, please, if you could kindly share the following info with me:

> > Â

> > 1. For how many years you chelating, how many rounds you did?

> > 2. What protocol do you follow?

> > 3. What agents do you use?

> > 4. What is the child's age?

> > 5. What was the child's ATEC score before starting chelation and now?

> > 6. What is the child's primary diagnosis?

> > Â

> > I hope that everybody understands the reason of my interest. There are

several ways to go, and I am in process of making decision about which one to

go.

> > Â

> > I hope that listmates will answer my questions and deeply appreciate replies

in advance.

> > Â

> > Sincerely,

> > Asem

>

[Guest guest]

Great stuff, never used anything else here

Mandi in UK

In a message dated 11/10/2010 13:31:17 GMT Daylight Time,

kamstone6@... writes:

Does anyone know if the ALA 25mg from Kirkmans is okay? I have been using

it.