Guest guest Posted August 3, 2005 Report Share Posted August 3, 2005 Hi Dyna I am pretty new to this list also.. and I also have palindromic Rheumatism. you are the first person that I know that has this. I am on Pred. Plaquenil ,celebrax,. and Mtx for mine.. I have been sick for 15 years with it. Donnadaynaccf <daynaccf@...> wrote: I'm very new to this listserv. Was diagnosed 8 months ago with RA and palindromic rheumatism. I take Plaquenil and Sulfasalazine and have for many months. Now I am getting hives on my feet on a regular basis. Has anyone else had experience with this phenomenon? Each day is a new experience as I imagine is the case with each one of you. Thanks in advance for your input.Dayna Jewsondaynaccf@... Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2005 Report Share Posted August 3, 2005 Hi Dayna, I got hives covering my entire body from Plaquenil then did some research on it and there are many people who suffer hives with Plaquenil. I would discuss this with your doctor as soon as you can. Dorey www.LivingWithRheumatoidArthritis.com ----- Original Message ----- From: " daynaccf " <daynaccf@...> <Rheumatoid Arthritis > Sent: Monday, August 01, 2005 8:02 PM Subject: hives I'm very new to this listserv. Was diagnosed 8 months ago with RA and palindromic rheumatism. I take Plaquenil and Sulfasalazine and have for many months. Now I am getting hives on my feet on a regular basis. Has anyone else had experience with this phenomenon? Each day is a new experience as I imagine is the case with each one of you. Thanks in advance for your input. Dayna Jewson daynaccf@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2005 Report Share Posted August 3, 2005 I thought you didn't take any medicine? So you have done both modern med and holistic approach? Are you taking any meds right now? If not, do you ever experience pain or have flare-ups? Dorey <ddorey@...> wrote: Hi Dayna, I got hives covering my entire body from Plaquenil then did some research on it and there are many people who suffer hives with Plaquenil.I would discuss this with your doctor as soon as you can. Doreywww.LivingWithRheumatoidArthritis.com----- Original Message ----- From: "daynaccf" <daynaccf@...><Rheumatoid Arthritis >Sent: Monday, August 01, 2005 8:02 PMSubject: hivesI'm very new to this listserv. Was diagnosed 8 months ago with RA andpalindromic rheumatism. I take Plaquenil and Sulfasalazine and have formany months. Now I am getting hives on my feet on a regular basis. Hasanyone else had experience with this phenomenon? Each day is a newexperience as I imagine is the case with each one of you. Thanks inadvance for your input.Dayna Jewsondaynaccf@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2005 Report Share Posted August 3, 2005 In the beginning I did, I did everything the doctors suggested, I was the perfect patient. Many medications.....starting with cortisone shots and Plaquenil, which I got hives from. I was put on another med that seemed to work, (can't remember the name of) but it was pulled from the market. Then gold injections, antibiotic treatment, , celebrex and finally methotrexte. none worked for me. The only thing that helped was draining my joints and shooting them with cortizone which I did 7 times. This gave me trouble in my hip joint. I also took advil during the day and tylenol for arthritis through the night. I only slept 45 minutes at a time though and then woke up crying and would have to get up and move some and sit until the pain eased. It was living hell as I know many here well understand. My primary doctor was wonderful, he would even call me at home just to check in with me.......see how I was doing. He wouldn't prescribe antidepressants when I finally asked for them, said he would help me work through it but that I was already way over medicated and he couldn't allow more. It was the occupational therapist who scared me into being WAY more proactive about my health. She said I was going to lose my fingers within a year because there was such limited circulation in my hands caused by the severe inflammation. That totally terrified me beyond belief and I took everything I'd learned and started applying it. I remained on the meds well after I started on the nutritional path. At first I thought maybe the nutrition combined with the meds was what was working, it was when I had to change to a new manufacturer for the gold injections that I was forced to stop the gold injections. The new brand didn't agree with my body, I began getting huge rashes. Then I got tired of fighting the yeast infections and heart burn caused by the antibiotics so I asked the doctor if I could try to stop taking this med.......He said ok, but later asked me to try methotrexate in it's place. I hated the methotrexate and complained so we stopped that, and I was forgetting my celebrex more than I was remembering so the rheumatologist just said if you don't need it don't take it.......I haven't had any for 3 years now. So long story, but that's how I ended up living without medication and I feel better for it. Anyway for the last almost 3 years I have been off all medications and my sed rate is, at last testing, 3, which is very good. I never even take Advil or Tylenol now. I do have the odd problem but I always catch it early and now know how to combat the problem. I know from testing what irritates my condition. Stress and diet are the leading causes, but certainly I have to be more cautious when the weather is very humid. For me a flare is 2 fingers showing sign of inflammation or my right foot feeling an odd pain. That's not too bad, I think considering all the gardening and other things I do. I have not had any sign of pain in my knees, ankles or shoulders for years now. (I lie) when I had the broken ankle and I over did it on crutches my shoulders hurt allot for a few days, I wasn't sure if that was RA or just from the crutches. I don't have the strength in my wrists that I once had but they are functional and pain free. Consider though that for 2 years I only had about 5% mobility in the wrists. So far all is well...........what happens down the road, I don't know but I continue to do what keeps me well and logically I can't see why I'd suffer joint deterioration when I don't have the heat, swelling or pain in the joint. Anyway, my apologies to anyone who thought I never went the medication route.......I did, just wasn't working for me, didn't reduce my pain or inflammation. Dorey www.LivingWithRheumatoidArthritis.com ----- Original Message ----- From: sunshine Rheumatoid Arthritis Sent: Wednesday, August 03, 2005 2:25 PM Subject: Re: hives I thought you didn't take any medicine? So you have done both modern med and holistic approach? Are you taking any meds right now? If not, do you ever experience pain or have flare-ups? Dorey <ddorey@...> wrote: Hi Dayna, I got hives covering my entire body from Plaquenil then did some research on it and there are many people who suffer hives with Plaquenil.I would discuss this with your doctor as soon as you can. Doreywww.LivingWithRheumatoidArthritis.com----- Original Message ----- From: "daynaccf" <daynaccf@...><Rheumatoid Arthritis >Sent: Monday, August 01, 2005 8:02 PMSubject: hivesI'm very new to this listserv. Was diagnosed 8 months ago with RA andpalindromic rheumatism. I take Plaquenil and Sulfasalazine and have formany months. Now I am getting hives on my feet on a regular basis. Hasanyone else had experience with this phenomenon? Each day is a newexperience as I imagine is the case with each one of you. Thanks inadvance for your input.Dayna Jewsondaynaccf@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2005 Report Share Posted August 4, 2005 I was woundering if you could e-mail me a copy of your diet I would likke to give it a try as I am on so much medication I would like to be able to get off some of it you can e-mail me at scorn720@... i would sure like to give it a try Sherrie Corn > Hi Dayna, I got hives covering my entire body from Plaquenil then did some > research on it and there are many people who suffer hives with Plaquenil. > > I would discuss this with your doctor as soon as you can. > > Dorey > www.LivingWithRheumatoidArthritis.com > ----- Original Message ----- > From: " daynaccf " <daynaccf@c...> > <Rheumatoid Arthritis > > Sent: Monday, August 01, 2005 8:02 PM > Subject: hives > > > I'm very new to this listserv. Was diagnosed 8 months ago with RA and > palindromic rheumatism. I take Plaquenil and Sulfasalazine and have for > many months. Now I am getting hives on my feet on a regular basis. Has > anyone else had experience with this phenomenon? Each day is a new > experience as I imagine is the case with each one of you. Thanks in > advance for your input. > Dayna Jewson > daynaccf@c... > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2005 Report Share Posted August 5, 2005 Hi Dayna, I was diagnosed last June with Ra and was put on Plaquenil. I began having skin problems on my face after a couple months. My face had an almost rashed look to it that came & went daily. I used to describe it like hives almost. I was thinking it might have been roscea until I stopped my plaquenil & it cleared up. So I eventually saw a dermatologist about it and found out that Plaquenil can cause skin problems. He said that people on it should use a sunscreen ALL the time because it can cause an almost allergy reaction. Not sure about on your feet *ha* but thought I'd share. > I'm very new to this listserv. Was diagnosed 8 months ago with RA and > palindromic rheumatism. I take Plaquenil and Sulfasalazine and have for > many months. Now I am getting hives on my feet on a regular basis. Has > anyone else had experience with this phenomenon? Each day is a new > experience as I imagine is the case with each one of you. Thanks in > advance for your input. > Dayna Jewson > daynaccf@c... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2005 Report Share Posted August 5, 2005 Hi, I'm actually darker complected as well. I have dark hair, eyes, & an almost almond skin. I normally never wear sunscreen either but I have been since I'm back on the Plaquenil and so far so good. Plaquenil is on the list causing " photosensitivity " I guess is the technical term. I'm glad you haven't had the problems from it though. > ----- Original Message ----- > From: TRACY > > > So I eventually saw a > dermatologist about it and found out that Plaquenil can cause skin > problems. He said that people on it should use a sunscreen ALL the > time because it can cause an almost allergy reaction. Not sure about > on your feet *ha* but thought I'd share. > > I'm on it and I've never used sunscreen in my life. I suspect the fairness of a person's skin has a lot to do with it. I'm half Native American so I have anything but fair skin. > > Nina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2005 Report Share Posted August 5, 2005 ----- Original Message ----- From: TRACY > So I eventually saw a dermatologist about it and found out that Plaquenil can cause skin problems. He said that people on it should use a sunscreen ALL the time because it can cause an almost allergy reaction. Not sure about on your feet *ha* but thought I'd share. I'm on it and I've never used sunscreen in my life. I suspect the fairness of a person's skin has a lot to do with it. I'm half Native American so I have anything but fair skin. Nina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2005 Report Share Posted August 5, 2005 ----- Original Message ----- From: TRACY > Hi, I'm actually darker complected as well. I have dark hair, eyes, & an almost almond skin. I normally never wear sunscreen either but I have been since I'm back on the Plaquenil and so far so good. Plaquenil is on the list causing "photosensitivity" I guess is the technical term. I'm glad you haven't had the problems from it though. I also have Lupus which is a skin sensitive problem, but I've never had skin problems from it either. Just lucky I guess because I love the sun. Nina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2005 Report Share Posted August 5, 2005 That's great. I actually wondered in the beginning with my skin problem if it was the rash that they normally associate with Lupus, but my dr. said nope. My rheumy was actually unsure what it was & thought maybe roscea, and I agreed but the derm said no. It's great to hear that you have been unaffected in that way!! > ----- Original Message ----- > From: TRACY > > > > Hi, I'm actually darker complected as well. I have dark hair, eyes, & > an almost almond skin. I normally never wear sunscreen either but I > have been since I'm back on the Plaquenil and so far so good. > Plaquenil is on the list causing " photosensitivity " I guess is the > technical term. I'm glad you haven't had the problems from it though. > > I also have Lupus which is a skin sensitive problem, but I've never had skin problems from it either. Just lucky I guess because I love the sun. > > Nina Quote Link to comment Share on other sites More sharing options...
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