Re: Anyone have speech after 7 years of age

[Guest guest]

Certain anti-epileptic drugs (AEDs), such as Topamax, dramatically affect

speech. Phenolbarbital as well. Be very careful when switching/stopping

AEDs, as that can cause seizures to return, and those seizures can damage

the language centers of the brain (both of which are located in the left

hemisphere in the temporal lobe.) Work closely with a QUALIFIED neurologist

in pediatric epilepsy. If you're near a major pediatric epilepsy center

(UCLA, 's Hopkins, Cleveland Clinic, Duke, Miami Children's, NYU), go

there.

Monika

_____

From: [mailto: ]

On Behalf Of Kathy

Sent: Monday, September 20, 2010 6:38 AM

Cc:

Subject: Re: [ ] Re: Anyone have speech after 7 years of age

What would the antiseizure drugs have to do with speech?

Sent from my iPhone

On Sep 20, 2010, at 8:49 AM, " ken_vaccaro " <KEN@...

<mailto:KEN%40KEP.COM> > wrote:

>

>

> If your child has ability to form sounds, already says some words,

understands when spoken too. Then " yes " , if you keep doing what you are

doing to promote language. Eventually it will come.

>

> Language is a learned behavior (keep modeling it) over and over Don't stop

talking to him, reading to him,playing with him requiring an answer from

him. Model, model, model over and over. Green peppers, red tomatoes, yellow

bus. Do you want a cookie? Cookie, cookie. Say I want a cookie . Great!!!

job . Play pupets

>

> Like Andy said a good indicator is can he communicate noverbally, e. g.

pointing, pantomime body language. But IMO most importantly is he has

ability to make sounds and form words. Then he can speak and it will come

over time.

>

> Play games, puppets and anything that require a response and interaction

of him to " promote language " . Holding back and prompting are very effective

when done correctly. Please look into the original verbal behavior by Dr

Carbone. He goes into great detail how to promote functional

language.

>

> My son didn't speak till after five. (He had about 20-80 words) then. When

we started biomed and had him enrolled VBA program, his language took off

like you wont believe. Today he does not stop talking.

> Please look into the work of Dr Carbone and VB/ ABA verbal behavior, to

supplement anything you are already doing

> God bless

>

> My Best as always

> Kenny V

>

>

> > >

> > > Dear All,

> > >

> > > I just came back from our yearly neurologist check up and he shocked

me when he told me that " the fact that your son does not have language by

now-age 7, means he has a minimal chance of ever speaking.

> > >

> > > My son says like 20 words but is it true that beucse he was not

" spoken " full sentences or at least 3-4 words together,that he has minimal

chance of speaking ?

> > >

> > > Did anyone on this group have full speech after 7 years of age ??

> > >

> > > Disillusioned and Sad,

> > > Joanna

> > >

> >

>

>

[Guest guest]

For my son, there was something bacterial interferring with speech in his

brain. When he got pneumonia and had to receive IM broad spectrum

antibiotics (Vocomycin or Rocephan) for two days, followed by ten days oral

Omnicef --on the fourth day he sat up and said every word he had known

before regression. Look up the study on trials of vancomysin in children

with autism. the study said that the kids regressed to baseline after going

of the vancomycin, but my son did not regress back all the way. He retained

some speech (one syllable utterances and words), and we build on that.

My son did not gain reciprocal language until he was nine years old. The

language came back in stages. It was a combination of chelation, biomed,

and parent and therapeutic intervention. Even our relatives in New York

helped. We got our son Skype for the computer with a camera, and he was

able to see his aunt, cousins, uncle, and grandma up there and was compelled

to try to communicate with them, and then wow! He started talking to them

and to us. We were all asking him to talk by talking to him, asking

questions, and pointing this out. In the beginning, I used basic signs to

help facilitate the emergence of expressive speech. My son acquired

receptive speech first, then expressive, and then lastly reciprocal speech.

It is interesting that the way his speech sounds to me in person and then

how he sounds on the phone to me are very different. I don't notice the

differential as much in person, but when I talk to him on the phone, he

sounds like a child of about six (he is almost eleven). I know it will just

take him time to catch up, so we are diligent about speech therapy.

I was so glad when he could finally tell me " where " it hurt! Whenever we

went somewhere, I pointed out the stores signs. He learned " to read " the

signs. I sat for many hours repeating certain words (nouns) and

demonstrating verbs. The other wow! moment was about four days after

removing soy protein: he said his first sentence. Then there was the night

he finally said, " Wuv you Mommy. " I cried tears of joy that night!

One day we were working on the word " water. " he would always say " Wa. " For

a whole day we did water related activities, and whenever he would say

" Wa, " I would say " -ter. " So by the end of the day, I asked as I ran my

hand in running water, " What is this? " He then said " TER! " Back to the

drawing board! We had to go back over our lessons and this time whenever he

said " TER! " I said, " Water. " By the end of that day, he said, " water. "

Be sure to use whole words when correcting. I learned this the hard way. I

also taught my son functional signs to express wants and needs, and he

picked up signs so easily that he did not want to say the words for which he

knew signs. The path of least resistance... so I had to stop accepting

signs and made him say the word for the things he wanted. I made him " work "

for everything. He loved Blues Clues, so if he wanted to watch, I gave him

a choice between two videos, and he had to point to it at first (as he had

lost the pointing skill after regression). Then I made him point and say

" This " or " That. " Then he had to say, " This one, or " that one. " From

there we grew to making choices out of three or four options.

We practiced receptive speech by first giving him a one component command

and then moved on to two components: " Bring me the paper. " then " Bring me

the paper and a pen. " Then you can expand to things like " Bring me the

paper on the table and the pen on the window sill. "

Another thing you can do is to " label " EVERYTHING in your house. My son

still does this on his own. by labeling objects it helps them to process

that words represent a visual picture. You can use blank index cards and

put velcro on the back and the other part of the Velcro on the object. Just

about everything in the house has been labeled at one point or another. Put

the " wall " card on the wall, and the " computer " card on the computer etc...

For verbs I would have him " jump " and take a picture. then I would download

this and put the verb caption underneath. It was through pictures and

captions that we potty-trained him.

The other thing is that we rarely left him to his own devices. Even when he

was on the computer, his dad would sit next to him and we would ask

questions --even if he couldn't yet answer them.

Hope this helps.

[Guest guest]

At age 7 we were hoping someday my son would be able to answer a YES or NO

question.

Today age 14 he is in high school giving speeches.

Hang in there and don't give up. If you give up, you both lose. No matter what,

ALMOST ALL IMPROVE, REGARDLESS - go to your high school special needs classes

and ask parents for verification.

OUR NUTSHELL:

GFCF DIET was critical start - stopped nosedive of losing skills

B-12+Folinic from kirkmans gave us some language (under $20)

HIGH VITAMIN A protocol gave EYE CONTACT and huge conceptual gains (under $20)

AC CHELATION (round 30) - son has stated he wants to continue because it is

making the 'voices in my head go away and I can think better.' (under $30 so

far)That's enough for us. We're sticking with it and watching the progress.

These therapies are relatively cheap - no $$$'s for Pharma's or Dr's and they

implicate VACCINES as the CAUSE so don't expect to find them mainstream anytime

soon. Do your own research and you will find HUNDREDS of kids benefiting.

YMMV

[Guest guest]

The difference between your son and the children in the study is that your son

received IV vanco which is systemic, where the children in the study received

oral vanco which does not leave the digestive tract.

Caryn

>

> For my son, there was something bacterial interferring with speech in his

> brain. When he got pneumonia and had to receive IM broad spectrum

> antibiotics (Vocomycin or Rocephan) for two days, followed by ten days oral

> Omnicef --on the fourth day he sat up and said every word he had known

> before regression. Look up the study on trials of vancomysin in children

> with autism. the study said that the kids regressed to baseline after going

> of the vancomycin, but my son did not regress back all the way. He retained

> some speech (one syllable utterances and words), and we build on that.

>

> My son did not gain reciprocal language until he was nine years old. The

> language came back in stages. It was a combination of chelation, biomed,

> and parent and therapeutic intervention. Even our relatives in New York

> helped. We got our son Skype for the computer with a camera, and he was

> able to see his aunt, cousins, uncle, and grandma up there and was compelled

> to try to communicate with them, and then wow! He started talking to them

> and to us. We were all asking him to talk by talking to him, asking

> questions, and pointing this out. In the beginning, I used basic signs to

> help facilitate the emergence of expressive speech. My son acquired

> receptive speech first, then expressive, and then lastly reciprocal speech.

> It is interesting that the way his speech sounds to me in person and then

> how he sounds on the phone to me are very different. I don't notice the

> differential as much in person, but when I talk to him on the phone, he

> sounds like a child of about six (he is almost eleven). I know it will just

> take him time to catch up, so we are diligent about speech therapy.

>

> I was so glad when he could finally tell me " where " it hurt! Whenever we

> went somewhere, I pointed out the stores signs. He learned " to read " the

> signs. I sat for many hours repeating certain words (nouns) and

> demonstrating verbs. The other wow! moment was about four days after

> removing soy protein: he said his first sentence. Then there was the night

> he finally said, " Wuv you Mommy. " I cried tears of joy that night!

>

>

> One day we were working on the word " water. " he would always say " Wa. " For

> a whole day we did water related activities, and whenever he would say

> " Wa, " I would say " -ter. " So by the end of the day, I asked as I ran my

> hand in running water, " What is this? " He then said " TER! " Back to the

> drawing board! We had to go back over our lessons and this time whenever he

> said " TER! " I said, " Water. " By the end of that day, he said, " water. "

>

> Be sure to use whole words when correcting. I learned this the hard way. I

> also taught my son functional signs to express wants and needs, and he

> picked up signs so easily that he did not want to say the words for which he

> knew signs. The path of least resistance... so I had to stop accepting

> signs and made him say the word for the things he wanted. I made him " work "

> for everything. He loved Blues Clues, so if he wanted to watch, I gave him

> a choice between two videos, and he had to point to it at first (as he had

> lost the pointing skill after regression). Then I made him point and say

> " This " or " That. " Then he had to say, " This one, or " that one. " From

> there we grew to making choices out of three or four options.

>

> We practiced receptive speech by first giving him a one component command

> and then moved on to two components: " Bring me the paper. " then " Bring me

> the paper and a pen. " Then you can expand to things like " Bring me the

> paper on the table and the pen on the window sill. "

>

> Another thing you can do is to " label " EVERYTHING in your house. My son

> still does this on his own. by labeling objects it helps them to process

> that words represent a visual picture. You can use blank index cards and

> put velcro on the back and the other part of the Velcro on the object. Just

> about everything in the house has been labeled at one point or another. Put

> the " wall " card on the wall, and the " computer " card on the computer etc...

>

> For verbs I would have him " jump " and take a picture. then I would download

> this and put the verb caption underneath. It was through pictures and

> captions that we potty-trained him.

>

> The other thing is that we rarely left him to his own devices. Even when he

> was on the computer, his dad would sit next to him and we would ask

> questions --even if he couldn't yet answer them.

>

> Hope this helps.

>

>

>

[Guest guest]

Great advice! yes diet and biomedical interventions helped a great deal.

don't forget Acetyl-L-carnitine. This amino acid has worked wonders for my

son. We went gf/cf/ and sf and saw the most speech return after removing

soy.

[Guest guest]

My son has apraxia and had no language (words) with no words consistently by

four.  We started doing PROMPT with his SLP when he was around 3 1/2.  He is

now 8 and wont stop talking.  With my son, he had difficulty using his mouth

muscles to form the words.

From: ken_vaccaro <KEN@...>

Subject: [ ] Re: Anyone have speech after 7 years of age

Date: Monday, September 20, 2010, 8:49 AM

 

If your child has ability to form sounds, already says some words, understands

when spoken too. Then " yes " , if you keep doing what you are doing to promote

language. Eventually it will come.

Language is a learned behavior (keep modeling it) over and over Don't stop

talking to him, reading to him,playing with him requiring an answer from him.

Model, model, model over and over. Green peppers, red tomatoes, yellow bus. Do

you want a cookie? Cookie, cookie. Say I want a cookie . Great!!! job . Play

pupets

Like Andy said a good indicator is can he communicate noverbally, e. g.

pointing, pantomime body language. But IMO most importantly is he has ability to

make sounds and form words. Then he can speak and it will come over time.

Play games, puppets and anything that require a response and interaction of him

to " promote language " . Holding back and prompting are very effective when done

correctly. Please look into the original verbal behavior by Dr Carbone.

He goes into great detail how to promote functional language.

My son didn't speak till after five. (He had about 20-80 words) then. When we

started biomed and had him enrolled VBA program, his language took off like you

wont believe. Today he does not stop talking.

Please look into the work of Dr Carbone and VB/ ABA verbal behavior, to

supplement anything you are already doing

God bless

My Best as always

Kenny V

> >

> > Dear All,

> >

> > I just came back from our yearly neurologist check up and he shocked me when

he told me that " the fact that your son does not have language by now-age 7,

means he has a minimal chance of ever speaking.

> >

> > My son says like 20 words but is it true that beucse he was not " spoken "

full sentences or at least 3-4 words together,that he has minimal chance of

speaking ?

> >

> > Did anyone on this group have full speech after 7 years of age ??

> >

> > Disillusioned and Sad,

> > Joanna

> >

>