growing weary, what am I missing

[Guest guest]

My son is doing well in some ways.  He is completely verbal, in regular ed,

excels in math and writing, good at technical stuff, and has two friends.  These

are the areas he still struggles with:

1. anger when a conversational partner goes off topic.

2. motivation to do simple things expected of him that he does not see the

" payoff " for.  Eg. Look like you are interested during class.  Work on the

research assigned, not go to a gaming website.  Answer a small talk question in

a pleasant voice without scowling. etc.

3. Perseveration on computers, comics, animation techniques, and video games to

the detriment of responsibilities and relationships.

4. Talks in a loud voice all the time, akward social behavior, lack of

reciprocity.

5. Cannot accept a negative consequence for a negative behavior. Constant power

struggles.

6. Emotional immaturity.

7. Fakes aggression when he does not get his way.  Eg. Shakes his fist at the

teacher.  He has no intention of hitting, and does it in such a laughable way

that even they know this.  It still gets him in trouble and isolates him/ makes

him a target with his regular ed peers.

8. Low muscle tone, lack of strength.

 

His bowel movements are perfect, but slightly green since adding LDM-100 to his

biofilm protocol.  We are chelating with ALA.  I am beyond broke, but always

thinking of what else I could add to get him a step further.

 

This is what he is taking:

1. Biofilm Defense  (Step 1)

2. EDTA

3. Lactoferrin

4. ALA (when we have a 3 day weekend)

5. LDM-100   (Step 2)

6. Vit A, D, E, B6, and C

7. OLE

8. OoO

9. Uva Ursa

10. Curcumin

11. Potassium

12. Tyrosine

13. Lysine

14. Selenium (minerals seperate from chelation)

15. Chromium.

16. Apple Pectin ( Step 3 or after chelation)

17. Alpha Ketoglutaric Acid

18. Lactobacillus GG (at night)

19. Melatonin (at night)

20. 10mg Adderral (This is the only thing that helps his angry behavior.  Also

improves the quality of his school work 10 fold.)

 

We have done tons of GSE and Sacch Boulardii with no effect and I am out of

CoQ10 and EFA right now.

 

These are things I am thinking of adding that I have not tried recently:

1. Taurine (to prevent seizures in adolecence.)

2. Broccoli sprouts (Lyme?)

3. Rizol or Moducare (Lyme?)

4. An antibiotic for strep (PANDAS?)

5. Adrenal support

6. L Carnitine or Carnosine (and I can't remember why)

7. Glutathione

8. DMSA  (maybe lead)

 

It feels like I have already turned over every rock I can find but a few.  The

money I have invested over the years has really gotten me into trouble.  Can

anyone see something I have overlooked?  I do not intend to try HBOT, mucsle

testing, Zyto, or diets.  No money, no faith in those treatments.  

Sorry so long,

Jen

Jen

[Guest guest]

s wrote:

>

> My son is doing well in some ways. He is completely verbal, in regular

> ed, excels in math and writing, good at technical stuff, and has two

> friends. These are the areas he still struggles with:

> 1. anger when a conversational partner goes off topic.

> 2. motivation to do simple things expected of him that he does not see

> the " payoff " for. Eg. Look like you are interested during class. Work

> on the research assigned, not go to a gaming website. Answer a small

> talk question in a pleasant voice without scowling. etc.

> 3. Perseveration on computers, comics, animation techniques, and video

> games to the detriment of responsibilities and relationships.

> 4. Talks in a loud voice all the time, akward social behavior, lack of

> reciprocity.

> 5. Cannot accept a negative consequence for a negative behavior.

> Constant power struggles.

> 6. Emotional immaturity.

> 7. Fakes aggression when he does not get his way. Eg. Shakes his fist

> at the teacher. He has no intention of hitting, and does it in such a

> laughable way that even they know this. It still gets him in trouble

> and isolates him/ makes him a target with his regular ed peers.

> 8. Low muscle tone, lack of strength.

>

> His bowel movements are perfect, but slightly green since adding

> LDM-100 to his biofilm protocol. We are chelating with ALA. I am

> beyond broke, but always thinking of what else I could add to get him

> a step further.

>

Is there a DDI hair test result?

>

> This is what he is taking:

>

It would be more helpful to indicate dosages and forms (e.g. what kind

of chromium? picolinate?)

As well, tell us what he is _not_ taking, i.e. diet...

> 1. Biofilm Defense (Step 1)

> 2. EDTA

>

Why? This is NEVER good in the presence of mercury. Quite dangerous.

> 3. Lactoferrin

> 4. ALA (when we have a 3 day weekend)

>

Do this every weekend, Friday afternoon to Monday morning.

How many rounds to you have under his belt?

> 5. LDM-100 (Step 2)

> 6. Vit A, D, E, B6, and C

>

What about the rest of the Bs? Folate? Quantities?

> 7. OLE

> 8. OoO

> 9. Uva Ursa

> 10. Curcumin

>

High sulfur. Have you tried a low-sulfur food diet?

> 11. Potassium

> 12. Tyrosine

>

How much?

> 13. Lysine

> 14. Selenium (minerals seperate from chelation)

>

What form? You don't have to worry about giving things separately with

ALA or DMSA.

> 15. Chromium.

> 16. Apple Pectin ( Step 3 or after chelation)

>

Fluff

> 17. Alpha Ketoglutaric Acid

> 18. Lactobacillus GG (at night)

> 19. Melatonin (at night)

> 20. 10mg Adderral (This is the only thing that helps his angry

> behavior. Also improves the quality of his school work 10 fold.)

>

Anything related to methamphetamine makes me extremely nervous. Try

substituting DMAE?

>

> We have done tons of GSE and Sacch Boulardii with no effect and I am

> out of CoQ10 and EFA right now.

>

> These are things I am thinking of adding that I have not tried recently:

>

Magnesium and zinc are suspiciously missing from the above. They are

badly needed. Magnesium can make the world of difference in " bad " behaviour.

> 1. Taurine (to prevent seizures in adolecence.)

> 2. Broccoli sprouts (Lyme?)

> 3. Rizol or Moducare (Lyme?)

> 4. An antibiotic for strep (PANDAS?)

> 5. Adrenal support

>

Again, a DDI hair test would help clarify the need for this

> 6. L Carnitine or Carnosine (and I can't remember why)

> 7. Glutathione

>

Don't do this randomly, especially if a low-sulfur diet helps. If

needed, NAC raises glutathione levels more effectively.

> 8. DMSA (maybe lead)

>

> It feels like I have already turned over every rock I can find but a

> few. The money I have invested over the years has really gotten me

> into trouble. Can anyone see something I have overlooked? I do not

> intend to try HBOT, mucsle testing, Zyto, or diets.

>

Diet is crucial. I don't mean fad diets. I mean helping him if he has

high plasma cysteine and therefore can't tolerate a lot of thiol foods.

Or phenols. Or GFCF. Understanding the way a body processes certain

chemicals in food is to understand the physiology of that body in

general. As they say, " garbage in, garbage out " .

> No money, no faith in those treatments.

> Sorry so long,

> Jen

> Jen

>

>

[Guest guest]

That is a REALLY long list of supplements. If you cut back, you will have money

to spare for dietary changes.

There are two things that I can 'see' from here - yeast and mercury, and you

will definitely need AT LEAST what commented.

Regards,

Summer McFarland

1.22 HEAL KIDS

1.224.325.5437

--------------------------------------------------------------------------------\

-------------------------------------

Over fourteen years of organic search engine optimization, marketing and design.

[Guest guest]

For my son, who was violent and aggressive....there were a few things that I

found helped.

There is a product that was the beginning of the way to being better for my son.

I do not sell it nor do I get anything from saying this. It is called

Brainlink....it is by PainandStress Center. It is an high amino acid blend that

helped amazingly! Even tho he was allergic to eggs and dairy....he was 1000%

better on than off for several years...but his brother it didn't help the same

way...but a good amino blend did help.

I didn't notice any GABA in your list of supps. We gave lots and lots of GABA

for several years. It is called the Feel Good Amino cuz it helps with mood and

such. We gave it at a high rate for a small child....from age 3-7 we gave it

1000 or more at a time and usually 3 or 4 times a day...if he goes from better

to worse...than it is too high a dose. I would start at 500 mgs and go from

there.

The next thing that helped was allergy testing both IgG and IgE. Then keeping a

list of intolerances. My one son was not allergic to a lot of things but was

intolerant of an incredible amount of things.

Enzymes (Houston was our brand of choice...I liked the idea of a powder so I

could fine tune the amounts.) helped some...but mostly for helping heal the gut.

Next we looked into phenols and salicyclates. That was a terrible issue for us.

That could make the kids mean faster and longer than allergies. For us even

with no-fenol it was still a big issue.

Next we went GF/CF and whatever allergies free too. Soy can either be a

blessing or an incredible curse. No colorings or additives are allowed in my

house. Those were worse than phenols, salicyclates or yeast!!!!!

Then there was yeast control....(hysterical laughing here) and chelation. We

have done 60 rounds of Ala alone.. and about 30 rounds of DMSA alone. They are

now able to eat most phenol type foods with not too much of an issue.

Behavior issues can be a real problem. Age, gender, viruses are all a big part

of the picture besides metals. It is like a juggling match trying to find all

the pieces at the right time. We are also using a product called Beta Force

Beta 1-3 1-6 glucan. It is not cheap but it helps heal the macrophages and

helps the body to help itself. Also Vit D3 can also help with moods...and for

some folks viruses.

Just for my point of view....make you are taking care of you...if mom gets sick

what happens to our kiddos then...not a good picture. I know when money is

short...and depression and despair run rampant...not an easy solution....Jesus

bless you and yours as you struggle with this..

Ronni

> >

> > My son is doing well in some ways. He is completely verbal, in regular

> > ed, excels in math and writing, good at technical stuff, and has two

> > friends. These are the areas he still struggles with:

> > 1. anger when a conversational partner goes off topic.

> > 2. motivation to do simple things expected of him that he does not see

> > the " payoff " for. Eg. Look like you are interested during class. Work

> > on the research assigned, not go to a gaming website. Answer a small

> > talk question in a pleasant voice without scowling. etc.

> > 3. Perseveration on computers, comics, animation techniques, and video

> > games to the detriment of responsibilities and relationships.

> > 4. Talks in a loud voice all the time, akward social behavior, lack of

> > reciprocity.

> > 5. Cannot accept a negative consequence for a negative behavior.

> > Constant power struggles.

> > 6. Emotional immaturity.

> > 7. Fakes aggression when he does not get his way. Eg. Shakes his fist

> > at the teacher. He has no intention of hitting, and does it in such a

> > laughable way that even they know this. It still gets him in trouble

> > and isolates him/ makes him a target with his regular ed peers.

> > 8. Low muscle tone, lack of strength.

> >

> > His bowel movements are perfect, but slightly green since adding

> > LDM-100 to his biofilm protocol. We are chelating with ALA. I am

> > beyond broke, but always thinking of what else I could add to get him

> > a step further.

> >

> Is there a DDI hair test result?

>

>

> >

> > This is what he is taking:

> >

> It would be more helpful to indicate dosages and forms (e.g. what kind

> of chromium? picolinate?)

>

> As well, tell us what he is _not_ taking, i.e. diet...

>

> > 1. Biofilm Defense (Step 1)

> > 2. EDTA

> >

> Why? This is NEVER good in the presence of mercury. Quite dangerous.

>

> > 3. Lactoferrin

> > 4. ALA (when we have a 3 day weekend)

> >

> Do this every weekend, Friday afternoon to Monday morning.

>

> How many rounds to you have under his belt?

>

> > 5. LDM-100 (Step 2)

> > 6. Vit A, D, E, B6, and C

> >

> What about the rest of the Bs? Folate? Quantities?

>

> > 7. OLE

> > 8. OoO

> > 9. Uva Ursa

> > 10. Curcumin

> >

> High sulfur. Have you tried a low-sulfur food diet?

>

> > 11. Potassium

> > 12. Tyrosine

> >

> How much?

>

> > 13. Lysine

> > 14. Selenium (minerals seperate from chelation)

> >

> What form? You don't have to worry about giving things separately with

> ALA or DMSA.

>

> > 15. Chromium.

> > 16. Apple Pectin ( Step 3 or after chelation)

> >

> Fluff

>

> > 17. Alpha Ketoglutaric Acid

> > 18. Lactobacillus GG (at night)

> > 19. Melatonin (at night)

> > 20. 10mg Adderral (This is the only thing that helps his angry

> > behavior. Also improves the quality of his school work 10 fold.)

> >

> Anything related to methamphetamine makes me extremely nervous. Try

> substituting DMAE?

>

> >

> > We have done tons of GSE and Sacch Boulardii with no effect and I am

> > out of CoQ10 and EFA right now.

> >

> > These are things I am thinking of adding that I have not tried recently:

> >

> Magnesium and zinc are suspiciously missing from the above. They are

> badly needed. Magnesium can make the world of difference in " bad " behaviour.

>

> > 1. Taurine (to prevent seizures in adolecence.)

> > 2. Broccoli sprouts (Lyme?)

> > 3. Rizol or Moducare (Lyme?)

> > 4. An antibiotic for strep (PANDAS?)

> > 5. Adrenal support

> >

> Again, a DDI hair test would help clarify the need for this

>

> > 6. L Carnitine or Carnosine (and I can't remember why)

> > 7. Glutathione

> >

> Don't do this randomly, especially if a low-sulfur diet helps. If

> needed, NAC raises glutathione levels more effectively.

>

> > 8. DMSA (maybe lead)

> >

> > It feels like I have already turned over every rock I can find but a

> > few. The money I have invested over the years has really gotten me

> > into trouble. Can anyone see something I have overlooked? I do not

> > intend to try HBOT, mucsle testing, Zyto, or diets.

> >

> Diet is crucial. I don't mean fad diets. I mean helping him if he has

> high plasma cysteine and therefore can't tolerate a lot of thiol foods.

> Or phenols. Or GFCF. Understanding the way a body processes certain

> chemicals in food is to understand the physiology of that body in

> general. As they say, " garbage in, garbage out " .

>

>

>

>

> > No money, no faith in those treatments.

> > Sorry so long,

> > Jen

> > Jen

> >

> >

[Guest guest]

> 3. Perseveration on computers, comics, animation techniques, and video games

to the detriment of responsibilities and relationships.

> 4. Talks in a loud voice all the time, akward social behavior, lack of

reciprocity.

> 5. Cannot accept a negative consequence for a negative behavior. Constant

power struggles.

> 6. Emotional immaturity.

At my house, these were eliminated with anti-virals and mB12/folic.

> 8. Low muscle tone, lack of strength.

Carnitine.

> We have done tons of GSE and Sacch Boulardii with no effect and I am out of

CoQ10 and EFA right now.

Of all of the supps on your list that I have used here, once my son no longer

needed them, they caused problems. It might be time to remove everything, wait

a week, then add things back to see if he no longer needs them.

Giving tons of GSE when my son had a major yeast problem was required. However,

once the yeast was gone, giving GSE caused bad bacteria overgrowth.

> 4. An antibiotic for strep (PANDAS?)

The OLE eliminated strep here.

> 6. L Carnitine or Carnosine (and I can't remember why)

Carnitine for low muscle tone.

Dana

[Guest guest]

>> >

> Is there a DDI hair test result?

Not a recent one. We did them when he was 8, he is almost 15 now.

Mercury was never high or even moderate, but a little was coming out. Cadmiun

and Aluminum were high and came down with DMSA. Lead was moderate and came down

as well. That was a long time ago, so I don't know if that is helpful.>

> >

> It would be more helpful to indicate dosages and forms (e.g. what kind

> of chromium? picolinate?)

>

> As well, tell us what he is _not_ taking, i.e. diet...

~~~No diet. Did GFCF from ages 2 to 8. Mostly not helpful. Bowel improved

with enzymes and secretin infusions. Treated yeast and clostridia successfully

back then with flagyl and biocidin.

>

> > 1. Biofilm Defense (Step 1, empty stomach AM)

> > 2. Oral Calcium Disodium EDTA 500mg

> >

> Why? This is NEVER good in the presence of mercury. Quite dangerous.

>

~~~The EDTA chelates the minerals/metals released when the enzyme breaks up the

biofilm. It doesn't make sense to me to give it just once a day however because

it has an hour half life. From my understanding, oral EDTA is not absorbed well

anyway. I guess I can drop it because Lactoferrin chelates iron and sometimes

we are doing ALA, AC chelation at the same time.

> > 3. Lactoferrin 250mg (step 1)

> > 4. ALA 12mg every 3 hours (when we have a 3 day weekend)

> >

> Do this every weekend, Friday afternoon to Monday morning.

~~~Can't until summer. I have " shared " custody, which means my son is with me

from Sunday 11AM till Thursday evening. He returns Friday morning to catch the

school bus from my house. I cram supps in at that time. From Friday after

school till Sunday morning he is with Dad.

~~Dad knows we do biomedical, but has a " don't ask, don't tell " policy. He does

not want to contribute to it financially and reserves the right to blame me if

anything goes bad which is highly possible as I play " medicine doctor " .

~~We tried to do liquid ALA in juice that I put in his school lunch but the

timing was less than perfect.

>

> How many rounds to you have under his belt?

~~approx. 10 since Christmas. Did it every other weekend when he was 7-8 years

old with DMSA. We added ALA the last few months, but had a negative response

with the ALA.

> > 5. LDM-100 10 drops BID(Step 2)

> > 6. 5000IU Vit A, 1000IU Vit D, 400 mg E, 25mg B6, and 500mg Vit C

> >

> What about the rest of the Bs? Folate? Quantities?

~~We don't do a multivitamin, so I am missing the rest of the Bs.

>

> > 7. 500mg OLE

> > 8. 2 drops (60mg)OoO

> > 9. 455 mg Uva Ursa

> > 10. 600mg Curcumin

> >

> High sulfur. Have you tried a low-sulfur food diet?

He won't eat eggs. Responded well to No Phenol when he was younger. The above

supps are for strep, clostridia, oxidative stress, and yeast. All of those seem

to be under control, but we are always wary of strep as he goes to school and I

work in one. LDM-100 produced some good sized normal looking bowel movements,

but they are slightly green. Much better than the pale, yellow, soft stool

loaded with undigested food. I am sticking with LDM-100, but I guess I could

drop the others.

>

> > 11. 99mg Potassium

> > 12. 500mg Tyrosine

> >

> How much?

>

> > 13. 500mg Lysine

> > 14. 200mg Selenium as l-selenomethionine(minerals seperate from chelation)

> >

> What form? You don't have to worry about giving things separately with ALA or

DMSA.

~~Wouldn't the chelator go after the minerals? How are minerals different from

metals?

>

> > 15. 200 mg Chromium Picolinate.

> > 16. 500 mg Apple Pectin ( Step 3 or after chelation)

> >

> Fluff

~~~My sugar level drops when I take ALA and I feel very uncomfortable. Shaky,

headache, foggy. Diabetes runs like water in my family. My son was getting

cranky on AC chelation, so I added the chromium to help regulate his blood

sugar. That I do give with the ALA.

~~~The apple pectin is to absorb viral die off and encourage bowel movement

regularity. I don't give it on AC chelation until the end of the round. I give

it after school so it is spaced away from the biofilm enzymes and gut bug

killers. I really don't get it in him that often because it is difficult to

time.

>

> > 17. 300mg Alpha Ketoglutaric Acid for blood ammonia build up. I have

difficulty knowing when to time this. It was just a shot in the dark, because

he does act kind of funny sometimes. I doubt he has yeast or bacteria with

everything I'm throwing at him, so I thought it could be ammonia.

> > 18. Lactobacillus GG 10 billion organisms (at night)

> > 19. Melatonin 3mg (at night)

> > 20. 10mg Adderral (This is the only thing that helps his angry

> > behavior. Also improves the quality of his school work 10 fold.)

> >

> Anything related to methamphetamine makes me extremely nervous. Try

> substituting DMAE?

~~~ I have tried DMAE, sun-theanine, phosphatyl choline, tyrosine, and GABA.

Some of them calm him (and me) a little, but none of it produces the miracle

effect the adderal does. I agree with you. I am worried about stressing his

adreanals, building a tolerance, increasing overfocus, and depending on this

drug. Right now, it allows him to not have any outbursts at school, transition

without issue and produce real quality school work.

>>>> Magnesium and zinc are suspiciously missing from the above. They are

> badly needed. Magnesium can make the world of difference in " bad " behaviour.

~~Okay. I do have both of these in my cabinet. (Concentrace Minerals) How

much would you reccomend? Explain again why ALA does not chelate minerals?

> >

> Again, a DDI hair test would help clarify the need for this

~~I can order this without a doctor? I do have a nurse practicioner who would

order it, but money is so tight, and I'm really paying to educate her. I'd

rather get the test first and show her the results. She doesn't have an ego

about it.

Thanks for the help!

Jen

[Guest guest]

>

> My son... still struggles with:

> 1. anger when a conversational partner goes off topic.

> 2. motivation to do simple things expected of him that he does not see the

" payoff " for....

> 3. Perseveration on computers, comics, animation techniques, and video games

to the detriment of responsibilities and relationships.

> 4. Talks in a loud voice all the time, akward social behavior, ...

>  

....  We are chelating with ALA.  I am beyond broke, but always thinking of what

else I could add to get him a step further.

>

> 20. 10mg Adderral (This is the only thing that helps his angry behavior.  Also

improves the quality of his school work 10 fold.)...

>

> Jen

Jen, I have a mild case of ADHD, not Autism. I take 15mg Adderall daily. It

provides self-control & focus. I don't find that it provides relief from my

competitiveness and criticalness. I question whether it actually makes him less

angry, rather from my experience it may just be giving him more self control

when he feels angry.

I also take a shorter list of supplements. The main ones are below:

Amino acids esp tyrosine which the body uses to make the neurotransmitter

dopamine. Adderall also stimulates the release of dopamine. Amino Day (1/2

tablet/dose) has a nice calming effect on me.

Multi vitamin/mineral for the cofactors required to make dopamine, etc.

PS + PC (phospholipids)esp by Jarrows. Improve my sluggish memory recall speed.

I understand the choline in PC helps to make acetylcholine for memory, etc.

Two fish oil capsules. Dr. Amen, a pioneer in the use of brain imaging

for psychiatric purposes strongly recommends it. It is related to healing of

the brain and supposedly has some of the same effects as mood stabilizer

medications such as Trileptal. Dr. Amen's clinic prescribed the lowest dose of

Trileptal along with the Adderall after a brain scan. However after a year+ on

the fish oil and other supplements I found I no longer needed the Trileptal for

my competitiveness, criticalness and related mood issues. I was not violent or

belligerent. I strongly recommend that you consider this for your son.

I recommend that you check out Dr. Amen's site, brainplace.com. I also

recommend his book, Healing the Hardware of the Soul. It has checklists for

helping folks identify the various types of ADHD, including the type that is

aggressive/violent. I have the more inattentive type often seen in " spacey "

girls. Dr. Amen occasionally does programs on PBS stations. He recommends

supplements, lifestyle changes as well as medication.

Re. Selenium.

made good points in his post. I'll add that A paper in our group's

files by J Rooney says very good things and some bad things about Selenium. It

may not be advisable to take it while on DMSA--the 'on' days. I think selenium

is related to glutathione & NAC. I think Andy has redistribution concerns about

them.

" However, it has been observed in rats that simultaneous

administration of selenium (in the form of sodium

selenite) and a chelating agent (DMSA or DMPS) leads

to reduced excretion and considerable redistribution of

mercury ... " J. Rooney p.151.

Joe

[Guest guest]

> " However, it has been observed in rats that simultaneous

> administration of selenium (in the form of sodium

> selenite) and a chelating agent (DMSA or DMPS) leads

> to reduced excretion and considerable redistribution of

> mercury ... " J. Rooney p.151.

>

> Joe

>

This is irrelevant since you do not want to use the harmful and toxic selenite

form of selenium, you want to give selenomethionine or some helpful form your

body naturally uses.

Andy

http://www.noamalgam.com/index.html

Amalgam Illness: Diagnosis and Treatment

http://www.noamalgam.com/hairtestbook.html

Hair Test Interpretation: Finding Hidden Toxicities

http://www.noamalgam.com/nourishinghope.html

Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children

http://www.noamalgam.com/biologicaltreatments.html

Biological Treatments for Autism and PDD

[Guest guest]

> >

> > Jen,

> >

> > Doesn't the Adderall come in a blue pill form? Does your son have issues

with food coloring?

>

.... Adderral is the only one that has had a positive effect. My son tells me he

can feel it kick in on the bus on the way to school. He wants to make sure he

times it this way because he has told me that it helps him not feel angry when

kids tease him at school. I've been coaching him forever to ignore them but he

couldn't before Adderral. ... Now he just shrugs " whatever " so they have to

find entertainment elsewhere. He has also said it helps him think so much

better. ... The handwriting and organization are better than my own!

>

> I think it wears off around the time he gets home, because he is not really

that different for me. ...

>

> This is not a recommendation for Adderral. I think we just turned over enough

rocks, that one of them finally helped. ... This is such a complicated

disorder...

>

> Jen

>

Jen, I take the blue Adderall--it is not the XR. I prefer to break the 10mg

tablets into 4 pieces so I can take only what I need. My pda's alarms remind me

when to take a dose. Also I very much dislike the sensation of coming down off

of a 10 mg dose..(I assume the slow release XR is different) It is very,

depressing and disturbing. I'll never do it again. My doc says not everyone

experiences this but parents with kids on the ADHD meds might want look for mood

changes as the dose wears off.

I was a very healthy youth, no ADHD let alone autism. My problems started

around the time I got Lyme disease in my late 20's while working on an M.A. I

admit I used to look down on the mentally strange kids when I was young. Now I

understand much better the challenges they face. It can be really weird and

disturbing to experience the personality changes that take place when taking the

psych meds. It must be even more troubling to a child who does not

intellectually know what to expect it. I have so much more compassion now that

I've experienced some of it myself.

I can definitely relate to feeling it " kick in! " I also time my first dose so

it will be working before I arrive at work.

I also can relate to the ability to be more patient and understanding with

others! I'm sure it must be very frustrating for parents but our brain just

works better when we are on the meds. My handwriting also improves and I do not

rush around as much. when I am not on the meds I feel like I'm moving too

slowly so I do everything quickly and drive everyone around me nuts. On the

meds I am more relaxed and focused and so I don't talk, walk/run, write, etc as

quickly. After I started taking the Adderall my boss commented that my work

space was more organized.

Just one more tip--beware of possible interactions with other foods or drinks.

The first week I was on the Adderall I took a 5mg dose with coffee on an empty

stomach just before leaving work. Accidentally I suppose I grabbed the

caffeinated not he decaf--a big mistake. About 20 minutes later it kicked in

while I was driving on a rather dangerous windy parkway with a 35mph limit. I

was nuts! My heart was pounding like never before or since. I wanted to drive

60mph! If I had been in a bar I would have gotten into a fight. I've never

been so frightened in my life. I suppose what I experienced was similar to a

large dose of methamphetamine--Adderall is a form of amphetamine. Thankfully it

only lasted about 10 minutes. I did not drink another cup of coffee for over a

year!

I am grateful for the Adderall but I realize it is not a supplement. I am not

low on amphetamines and so need a supplement! I continue to look for deeper

causes for my problems and hope chelation will be at least part of that

solution. I am grateful to Andy and others who are trying to provide safe and

effective ways to do that.

I've taken the time to write because I'm sure it is difficult wondering what is

going on inside the little one you love so much. While I don't claim to know

the answer either, I hope that an expression of an adult's experience will help

you to understand a bit better.

Thanks,

Joe

[Guest guest]

> Wait. I'm very confused that you are talking about both " giving/taking

> ALA " and then " AC chelation " . You are giving ALA NOT on AC chelation????

> If so, please stop this immediately!

~~~No, I just meant I give the chromium at the same time I give the first ALA

dose he gets in the morning when doing AC chelation. I only give Chromium once

a day though, ALA every three hours.

~~~ I have tried DMAE, sun-theanine, phosphatyl choline, tyrosine, and GABA.

> >

> How much? Sometimes you need a LOT of these to have an effect.

~~~How much is a lot for a 100lb teen?

>

> What about forskolin?

~~~Never heard of it. I will look it up.

Thanks for the help!

Jen

[Guest guest]

Joe wrote:

>

> I am grateful for the Adderall but I realize it is not a supplement. I am not

low on amphetamines and so need a supplement! I continue to look for deeper

causes for my problems and hope chelation will be at least part of that

solution. I am grateful to Andy and others who are trying to provide safe and

effective ways to do that.

~~~Good luck with that. I agree adderral is a temporary band-aid, but a

necessary one in order to function and have quality of life.

>

> I've taken the time to write because I'm sure it is difficult wondering what

is going on inside the little one you love so much. While I don't claim to know

the answer either, I hope that an expression of an adult's experience will help

you to understand a bit better.

~~~You hit the nail on the head. Even though we are lucky that he is verbal (it

wasn't always that way), it doesn't mean that he is good at explaining to me how

he feels physically or emotionally. Autistics are not great at that. I am on

the watch for suicidal thoughts or other ugly, uncomfortable feelings that

sometimes occur with psychiatric medications or just plain autism for that

matter. I really value adult feedback!

Good luck in your journey. It was nice of you to share!

Jen

[Guest guest]

>

> ~~I have wished we could try Dr. Amen's clinic. Did you find it very helpful?

Did your scan give you a lot of insight as to the type of ADHD you have?

>

> Jen

>

Jen, yes, I found it helpful. Firstly I'm hard headed and did not want to go to

a doctor, let alone a psych. Additionally the scans are very expensive. The

woman I am seriously dating insisted--I was driving her nuts with my lack of

time management, poor organization, critical comments, ect! I read several of

Dr. Amen's books and although his work is not yet mainstream, I became convinced

that it has considerable value. I'm confident such tests will be a standard

part of psych care within a decade.

The challenge is to make the correlations between the scan results, symptoms and

appropriate treatments. His clinics have done over 50000 scans now so they have

quite body of data. In my case they nailed the treatment on the first attempt.

While it included medicine, even the supplements were helpful and led to the

elimination of one of the meds. I was very impressed and grateful. However my

symptoms were mild in comparison to most.

I'm a typical guy who is " visual " and respects science. It was easy for me to

see that my scan results did not look like the results of " healthy people " . The

explanations in the books and from the doctor assigned to my case made sense to

me. It made me more willing to cooperate with the recommended treatment.

I think the scans are best for the difficult cases. Doctors seem to do a good

job with a simple case of ADHD or depression. However if a person has a

combination of them or OCD or anxiety it seems to help to have the scans. For

example, I understand that when he sees an overactive area on one side of the

brain but not the other he has had good results with a mild anticonvulsant /mood

stabilizer such as Trileptal. That worked surprisingly well in my case.

However it is really weird how one's personally changes in such a short period

of time due to the meds.

Images of the various types of Adhd.

http://www.amenclinics.com/brain-science/spect-image-gallery/spect-atlas/images-\

of-attention-deficit-disorder-addadhd/

Images of PMS!

http://www.amenclinics.com/brain-science/spect-image-gallery/spect-atlas/images-\

of-pms/

Finally even for those who know they will not be getting a scan, questionnaires

in his books, esp Healing the Hardware of the Soul, can help people evaluate

their situation before they speak to their local doctor.

[Guest guest]

that is the problem with public schools, they dont modify their teaching methods

to match the childs... my son never learned anything in school, since I

homeschool him (may not be an option for you?) we do his learning through

movement based learning (many books out there on it) and kinestetics, he is

always moving which in sensory integration methods helps him with

focus/attention more so that he can learn... our kids cant just sit with pencil

and paper at a desk to learn. Your son wouldnt need medication if the school

would match his learning style. just my two cents

deborah

> >

> > Jen,

> >

> > Doesn't the Adderall come in a blue pill form? Does your son have issues

with food coloring?

>

> ~~~Candy is never a good thing, but we don't always avoid all colors. He has

taken 2, five mg XR capsules that look like the old Contact cold medicine. I

also have split a 20mg orange tablet in half with no issues.

>

> >

> > I'm also considering an ADHD medication but not sure which one. My son had

huge issues with staying on task like 10 prompts in a 2 minute time frame to

complete work at school. Did you go through several before finding Adderall? Do

you use the XR?

>

> ~~~~~Yes, we use the XR. I think he does better with the brand name drug than

the generic too. Over the years we tried Strattera (bad), Risperadal (sleepy,

drugged effect), and Prozac (not good). Adderral is the only one that has had a

positive effect. My son tells me he can feel it kick in on the bus on the way

to school. He wants to make sure he times it this way because he has told me

that it helps him not feel angry when kids tease him at school. I've been

coaching him forever to ignore them but he couldn't before Adderral. They taunt

him with his own catch phrases to get a reaction. Now he just shrugs " whatever "

so they have to find entertainment elsewhere. He has also said it helps him

think so much better. This is really apparent in the notes he takes during

classes. The handwriting and organization are better than my own!

>

> I think it wears off around the time he gets home, because he is not really

that different for me. He is not aggressive, just a pain in the butt to have a

conversation with. He either must talk about his topic, or not talk at all. He

fakes aggressive body language occasionally, like a really laughable fist

shaking. Low frustation tolerance.

>

> This is not a reccomendation for Adderral. I think we just turned over enough

rocks, that one of them finally helped. I'm sure each kid is different. This

is such a complicated disorder.

>

> I wish you the best. My advice is, if your child has a strong negative

reaction to a med do not be afraid to discontinue it. I waited a month with

Strattera because I was told to wait for the effects to be cumulative. My kid

was completely nuts with OCD and insomnia by the end of that month.

> Jen

>