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Re: Digest Number 1241

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My name is Kathy, it has been a long time since I have

written, I have PBC. I have had to cut down my hours

at work because of fatigue and SEVERE itching. I take

all kinds of meds for it, but it still persists. And

now I have such joint pain and nobody(all my docs)

seems to be able to help with this. Does anybody have

any suggestions? Thanks

kalters@...

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  • 5 months later...
Guest guest

Fran, why doesn't she stay on the antibiotics and add mtx injections or

pills? I was that ill too and needed the mtx to stop the progress. It wasn't

something I wanted to take but I definately needed the pain relief.

I tried going off of it this winter and was gradually cutting it back but

the pain grew with each passing week and my toes and fingers started

shifting quickly. I had to increase the mtx back to where it was before.

It may make the antibiotics take longer to work if on mtx but without the

pain relief, I wouldn't be here today. It also has given me back the ability

to participate in things that I had to give up because I was so disabled.

Such as dressing myself, feeding myself, quilting and knitting.

Please give your sister a big gentle hug from me.

Sus

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  • 1 year later...

my question is will taking that be too much

Vitamin A since my son also takes Kirkman's CLO?

> It is my understanding that vitamin A can be taken in much larger doses than

> normally indicated by RDA. Dermatologists for years gave massive amounts

> of vitamin A for Acne. I also have read that doctors in Eastern Countries

> give lots of vitamin A for virus's such as measles. I think the only time

> to be concerned regarding the amount of vitamin A is in an individual who

> may conceive as then it could harm the developing fetus. This has been

> discussed on several other autism sites and you could search the archives

> there. I do believe you have to be cautious however on the amount of

> vitamin D.

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  • 1 year later...

In a message dated 9/18/03 9:01:45 AM Eastern Daylight Time,

writes:

> Subject: Re: Re: Update on Sedona

>

> Hiya ,

>

> does the carn-aware , ambrotrose, gaba, and taurine dosages, go by weight or

> by age?

> Did you put her on those yourself..or where you advised by her physician?

> I am afraid to anything without talking to his neurologist first. As much as

> I'd like to just say the Heck with the doctors...I am still a little nervous

> about it. ya know?

>

> As far as I know, doesn't seem to have many if any side effects from

> the VNS. He is non verbal..so he can't tell me what he is experiencing....AND

> THAT JUST KILLS ME!

> Although I am pretty keyed into him...and I use " my maternal instinct " {ya

> know..that magical power that all of us mothers have ;) } Sometimes

> though, that is just not good enough for me...cuz then I feel horrobile when I

> don't know what he is trying to tell me...

> hope to hear from ya soon...

> Dee

>

Dee

On another list, they are talking aboit Biotin helping to return speech.

Have you taken you child to pathmed.com or to Bill Walsh' clinic in IL for

metabolic assessment? After assessment, they tell which supplementas in what

amounts to give, otherwise it's trial and error after lots of reading and

conferring with a doc with an open mind.

mjh

MJH

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  • 1 year later...

Lyn,

If you have been married through most of your husbands military career and into retirement you should be able to negociate Tricare for life as a part of your divorce. Please talk with a lawyer about this. Tricare for life is a suppliment to medicare. At a minimum you should be able to get a few years if not for life.

This will depending on the state you are in as well as if you have stayed home for most of your marriage to raise a family as most traditional military wives have done.

Good luck

Toni

In a message dated 9/5/05 1:36:32 P.M. Central Daylight Time, Rheumatoid Arthritis writes:

Date: Sun, 04 Sep 2005 22:16:24 -0000 From: "Lyn" <LynetteLyn@...>Subject: Medicare my only ins...soon!I am going through a divorce, I've had Medicare, with Tricare (military medical benefits), so basically everything I need is covered, no exclusions, RX, surgery, any doctors I want to see- with a small annual deductible. My health is very unstable due to multiple debilitating illnesses-JRA, Iritis, Uveitis, Glaucoma, Sleep Apnea, High BP, many joint replacements... My husband has filed for a divorce, so I will soon have Medicare only. I am trying to understand what that will mean for me...can anyone help me, even my attorney seems a bit confused and asked me to research this. Can anyone clarify this for me? How does it work, when you only have Medicare? What out of pocket costs will I have? Can I expect any changes in my medical care? What have others in similar situations done to not have to file medical bankruptcy?

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