Guest guest Posted October 20, 2010 Report Share Posted October 20, 2010 Hi all, We have been doing Biomedical interventions for DS for about 2 years and have recently discussed doing chelation for my 4.5 yr old son. DS's has metals slightly out of range (done by blood test) of Mercury, Lead and arsenic. But the test was done about a year after we believe he was exposed so it might be higher in tissues. My DAN Dr who is a well respected Dr. and who we have seen good results with, wants to do a challenge test with a single dose of 2 different kinds of chelators (suppositories, b/c DS is too yeasty for oral) done separately over 2 different weekends (with a few weeks in between), with urine testing before and after to see if he's pulling metals and which he responds better to. He is very cautious in general about dosing supps and meds, and about chelation and does not recommend it for all his patients and definitely does not do it in the beginning of treatment until all other interventions have been tried first. The doses are as follows: CaNa2 EDTA - 1000mg suppository. For the DMPS - 200mg suppository. I know there is a lot of controversy over challenge tests, and Dan dosing for chelation as opposed AC Protocol, but this dose does not seem too high to me or too extreme to be checking if my child has a metal issue or to see which chelator he responds to better. I don't know much about chelation as my child is a Yeast/Viral/Under-methylator kid that we have seen progress with treating those issues - but we are nowhere near recovery and the older he gets the more worried we are that we might not be getting at the root cause. My previous DAN got very upset when I mentioned AC protocol and I'm wary about bringing it up with this one. Has anyone had a bad experience with this type of challenge test? Is everyone on this board doing AC chelation? Any advice would be greatly appreciated! Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2010 Report Share Posted October 20, 2010 Do not put your child in harms way with a challenge test. Those are actually really high doses for a large adult, not sure why anyone would do such a large dosage on a child. What is a challenge test going to show or prove other than possibly regressing your child and doing dage that cannot be fixed. EDTA should be avoided. ALA is the workhorse chelator and if your child has lead you use dmsa dosed every 3 hours during the day every 4 hours at night during your sleep schedule not the Childs, you chelate for 72 hours straight, than rest for at least the same period. Use the DAN! For what they are good for, writing prescriptions for antifungals, antibacterials, anti vitals and leave there dangerous protocol alone. Also suppositories do not reduce yeast, just makes it awkward uncomfortable for your child every time you give a chelator. What's your famous DAN!'s name? > > Hi all, > > We have been doing Biomedical interventions for DS for about 2 years and have recently discussed doing chelation for my 4.5 yr old son. DS's has metals slightly out of range (done by blood test) of Mercury, Lead and arsenic. But the test was done about a year after we believe he was exposed so it might be higher in tissues. > My DAN Dr who is a well respected Dr. and who we have seen good results with, wants to do a challenge test with a single dose of 2 different kinds of chelators (suppositories, b/c DS is too yeasty for oral) done separately over 2 different weekends (with a few weeks in between), with urine testing before and after to see if he's pulling metals and which he responds better to. He is very cautious in general about dosing supps and meds, and about chelation and does not recommend it for all his patients and definitely does not do it in the beginning of treatment until all other interventions have been tried first. The doses are as follows: > > CaNa2 EDTA - 1000mg suppository. > For the DMPS - 200mg suppository. > > I know there is a lot of controversy over challenge tests, and Dan dosing for chelation as opposed AC Protocol, but this dose does not seem too high to me or too extreme to be checking if my child has a metal issue or to see which chelator he responds to better. > I don't know much about chelation as my child is a Yeast/Viral/Under-methylator kid that we have seen progress with treating those issues - but we are nowhere near recovery and the older he gets the more worried we are that we might not be getting at the root cause. > My previous DAN got very upset when I mentioned AC protocol and I'm wary about bringing it up with this one. Has anyone had a bad experience with this type of challenge test? Is everyone on this board doing AC chelation? Any advice would be greatly appreciated! > Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2010 Report Share Posted October 20, 2010 This board is about AC Chelation. On Wed, Oct 20, 2010 at 5:08 PM, Shiri <shiriw@...> wrote: > > > Hi all, > > We have been doing Biomedical interventions for DS for about 2 years and > have recently discussed doing chelation for my 4.5 yr old son. DS's has > metals slightly out of range (done by blood test) of Mercury, Lead and > arsenic. But the test was done about a year after we believe he was exposed > so it might be higher in tissues. > My DAN Dr who is a well respected Dr. and who we have seen good results > with, wants to do a challenge test with a single dose of 2 different kinds > of chelators (suppositories, b/c DS is too yeasty for oral) done separately > over 2 different weekends (with a few weeks in between), with urine testing > before and after to see if he's pulling metals and which he responds better > to. He is very cautious in general about dosing supps and meds, and about > chelation and does not recommend it for all his patients and definitely does > not do it in the beginning of treatment until all other interventions have > been tried first. The doses are as follows: > > CaNa2 EDTA - 1000mg suppository. > For the DMPS - 200mg suppository. > > I know there is a lot of controversy over challenge tests, and Dan dosing > for chelation as opposed AC Protocol, but this dose does not seem too high > to me or too extreme to be checking if my child has a metal issue or to see > which chelator he responds to better. > I don't know much about chelation as my child is a > Yeast/Viral/Under-methylator kid that we have seen progress with treating > those issues - but we are nowhere near recovery and the older he gets the > more worried we are that we might not be getting at the root cause. > My previous DAN got very upset when I mentioned AC protocol and I'm wary > about bringing it up with this one. Has anyone had a bad experience with > this type of challenge test? Is everyone on this board doing AC chelation? > Any advice would be greatly appreciated! > Thanks! > > > -- Zurama Mickie 13yrs Round #35 15mg DMSA 15mg ALA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2010 Report Share Posted October 21, 2010 > > Hi all, > > We have been doing Biomedical interventions for DS for about 2 years and have recently discussed doing chelation for my 4.5 yr old son. DS's has metals slightly out of range (done by blood test) of Mercury, Lead and arsenic. But the test was done about a year after we believe he was exposed so it might be higher in tissues. > Blood tests are basically irrelevant and a poor diagnostic measure. Hair test with counting rules is much better. > My DAN Dr who is a well respected Dr. and who we have seen good results with, wants to do a challenge test with a single dose of 2 different kinds of chelators (suppositories, b/c DS is too yeasty for oral) done separately over 2 different weekends (with a few weeks in between), with urine testing before and after to see if he's pulling metals and which he responds better to. He is very cautious in general about dosing supps and meds, and about chelation and does not recommend it for all his patients and definitely does not do it in the beginning of treatment until all other interventions have been tried first. The doses are as follows: > Suppositories do not cause any less yeast than oral, that is simply not true. > CaNa2 EDTA - 1000mg suppository. > For the DMPS - 200mg suppository. > That is very very dangerous and I highly suggest you do not do this. EDTA has no use and is harmful for people with mercury. Chelators MUST be given on the half life and in low doses. These are not low doses at all. > I know there is a lot of controversy over challenge tests, and Dan dosing for chelation as opposed AC Protocol, but this dose does not seem too high to me or too extreme to be checking if my child has a metal issue or to see which chelator he responds to better. It is too high regardless of how it seems. If you do follow this protocol there is essentially no chance your kid gets better and a very good chance he gets substantially worse. > I don't know much about chelation as my child is a Yeast/Viral/Under-methylator kid that we have seen progress with treating those issues - but we are nowhere near recovery and the older he gets the more worried we are that we might not be getting at the root cause. > My previous DAN got very upset when I mentioned AC protocol and I'm wary about bringing it up with this one. Has anyone had a bad experience with this type of challenge test? Is everyone on this board doing AC chelation? Any advice would be greatly appreciated! > Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2010 Report Share Posted October 21, 2010 Comments interspersed. S S Single Dose Chelation Challenge test? Posted by: " Shiri " shiriw@... shiriweizman Wed Oct 20, 2010 5:14 pm (PDT) Hi all, We have been doing Biomedical interventions for DS for about 2 years and have recently discussed doing chelation for my 4.5 yr old son. DS's has metals slightly out of range (done by blood test) of Mercury, Lead and arsenic. But the test was done about a year after we believe he was exposed so it might be higher in tissues. *Blood tests are essentially useless for metals except current lead exposure. My DAN Dr who is a well respected Dr. and who we have seen good results with, wants to do a challenge test with a single dose of 2 different kinds of chelators (suppositories, b/c DS is too yeasty for oral) done separately over 2 different weekends (with a few weeks in between), with urine testing before and after to see if he's pulling metals and which he responds better to. *Doesn't matter if he's respected, needs to know his science. He is very cautious in general about dosing supps and meds, and about chelation and does not recommend it for all his patients and definitely does not do it in the beginning of treatment until all other interventions have been tried first. The doses are as follows: CaNa2 EDTA - 1000mg suppository. For the DMPS - 200mg suppository. EDTA is contraindicated for mercury toxic folks despite it's old uses. This DMPS dose is way too high. Single dose challenges are dangerous and not particularly informative. Don't do it. I know there is a lot of controversy over challenge tests, and Dan dosing for chelation as opposed AC Protocol, but this dose does not seem too high to me or too extreme to be checking if my child has a metal issue or to see which chelator he responds to better. *Do a DDI hair elements test and apply counting rules so that you get useful info without harming your child. I don't know much about chelation as my child is a Yeast/Viral/Under-methylator kid that we have seen progress with treating those issues - but we are nowhere near recovery and the older he gets the more worried we are that we might not be getting at the root cause. My previous DAN got very upset when I mentioned AC protocol *Because people can and do do AC protocol on their own and that doc didn't want you to stop paying him. and I'm wary about bringing it up with this one. Has anyone had a bad experience with this type of challenge test? *Yes Is everyone on this board doing AC chelation? Any advice would be greatly appreciated! *Do a DDI hair elements test and apply counting rules. Refuse challenge tests. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2010 Report Share Posted October 21, 2010 The best thing to do is not to bring it up. Take control of your child's health and tell this doc to do the tests you want and the supps or prescriptions you need. As a mother who did many forms of chelation with my child over the years, I do believe the AC Protocol is the way to go. My son did not stim at all by the time we started chelation, and since beginning chelation, the stimming has just gotten worse and worse. My son had reactions to IV chelation both using DMPS and just using EDTA. I would NEVER do that again. With the IV he seemed to get better, more with it, but then the stimming would get worse and then I think what we see is just that metals have been moved around and redeposited elsewhere. When I mentioned the AC to our DAN, he also didn't like the idea --most probably because that meant less in his pocket, so he didn't like the idea. I wish, If i had anything to do over, I had done the AC Protocol with my son when he was young. I had a wonderful DO at the time who was willing to confer with Dr. Cutler. But we were scared and didn't do it at that time. Now this wonderful doctor has retired. We are trying to get my son's yeast under control --a very hard thing to do when he suffers repeat infections and has to be put on antibiotics often. It has been like a vicious cycle with the yeast. We have been where you are now, and we wish we had gone with the AC Protocol then. Once we get the yeast under control and we finish re-reading Andy's book (and get ready for the waking every three hours over the weekend) we will start this. In the end, this is your child and you have to decide what is in his best interest. Most parents here, however, are against challenge tests and different forms of chelation. After seeing the reaction in my child, I have concluded these other forms of chelation are dangerous and detrimental to our children. Like with so many other things in life, there is no quick, easy fix. Slow and steady wins the race, I think. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2010 Report Share Posted October 21, 2010 Really bad idea. You are playing Russian roulette with your child's brain and internal organs. TJ ________________________________ From: Shiri <shiriw@...> Sent: Wed, October 20, 2010 7:08:29 PM Subject: [ ] Single Dose Chelation Challenge test? Â Hi all, We have been doing Biomedical interventions for DS for about 2 years and have recently discussed doing chelation for my 4.5 yr old son. DS's has metals slightly out of range (done by blood test) of Mercury, Lead and arsenic. But the test was done about a year after we believe he was exposed so it might be higher in tissues. My DAN Dr who is a well respected Dr. and who we have seen good results with, wants to do a challenge test with a single dose of 2 different kinds of chelators (suppositories, b/c DS is too yeasty for oral) done separately over 2 different weekends (with a few weeks in between), with urine testing before and after to see if he's pulling metals and which he responds better to. He is very cautious in general about dosing supps and meds, and about chelation and does not recommend it for all his patients and definitely does not do it in the beginning of treatment until all other interventions have been tried first. The doses are as follows: CaNa2 EDTA - 1000mg suppository. For the DMPS - 200mg suppository. I know there is a lot of controversy over challenge tests, and Dan dosing for chelation as opposed AC Protocol, but this dose does not seem too high to me or too extreme to be checking if my child has a metal issue or to see which chelator he responds to better. I don't know much about chelation as my child is a Yeast/Viral/Under-methylator kid that we have seen progress with treating those issues - but we are nowhere near recovery and the older he gets the more worried we are that we might not be getting at the root cause. My previous DAN got very upset when I mentioned AC protocol and I'm wary about bringing it up with this one. Has anyone had a bad experience with this type of challenge test? Is everyone on this board doing AC chelation? Any advice would be greatly appreciated! Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2010 Report Share Posted October 22, 2010 Thanks for all of your responses! I will definitely not do the challenge test. I made an appointment to discuss doing AC Protocol with my DAN next week. Thanks again! Shiri > > Really bad idea. You are playing Russian roulette with your child's brain and > internal organs. > TJ > > > > > ________________________________ > From: Shiri <shiriw@...> > > Sent: Wed, October 20, 2010 7:08:29 PM > Subject: [ ] Single Dose Chelation Challenge test? > > Â > Hi all, > > We have been doing Biomedical interventions for DS for about 2 years and have > recently discussed doing chelation for my 4.5 yr old son. DS's has metals > slightly out of range (done by blood test) of Mercury, Lead and arsenic. But the > test was done about a year after we believe he was exposed so it might be higher > in tissues. > My DAN Dr who is a well respected Dr. and who we have seen good results with, > wants to do a challenge test with a single dose of 2 different kinds of > chelators (suppositories, b/c DS is too yeasty for oral) done separately over 2 > different weekends (with a few weeks in between), with urine testing before and > after to see if he's pulling metals and which he responds better to. He is very > cautious in general about dosing supps and meds, and about chelation and does > not recommend it for all his patients and definitely does not do it in the > beginning of treatment until all other interventions have been tried first. The > doses are as follows: > > CaNa2 EDTA - 1000mg suppository. > For the DMPS - 200mg suppository. > > I know there is a lot of controversy over challenge tests, and Dan dosing for > chelation as opposed AC Protocol, but this dose does not seem too high to me or > too extreme to be checking if my child has a metal issue or to see which > chelator he responds to better. > I don't know much about chelation as my child is a Yeast/Viral/Under-methylator > kid that we have seen progress with treating those issues - but we are nowhere > near recovery and the older he gets the more worried we are that we might not be > getting at the root cause. > > My previous DAN got very upset when I mentioned AC protocol and I'm wary about > bringing it up with this one. Has anyone had a bad experience with this type of > challenge test? Is everyone on this board doing AC chelation? Any advice would > be greatly appreciated! > Thanks! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2010 Report Share Posted October 22, 2010 You do know you don't need him for this protocol? Zurama On Fri, Oct 22, 2010 at 7:14 AM, Shiri <shiriw@...> wrote: > > > Thanks for all of your responses! I will definitely not do the challenge > test. I made an appointment to discuss doing AC Protocol with my DAN next > week. > Thanks again! > Shiri > > > > > > Really bad idea. You are playing Russian roulette with your child's brain > and > > internal organs. > > TJ > > > > > > > > > > ________________________________ > > From: Shiri <shiriw@...> > > > < %40> > > Sent: Wed, October 20, 2010 7:08:29 PM > > Subject: [ ] Single Dose Chelation Challenge test? > > > > Â > > Hi all, > > > > We have been doing Biomedical interventions for DS for about 2 years and > have > > recently discussed doing chelation for my 4.5 yr old son. DS's has metals > > > slightly out of range (done by blood test) of Mercury, Lead and arsenic. > But the > > test was done about a year after we believe he was exposed so it might be > higher > > in tissues. > > My DAN Dr who is a well respected Dr. and who we have seen good results > with, > > wants to do a challenge test with a single dose of 2 different kinds of > > chelators (suppositories, b/c DS is too yeasty for oral) done separately > over 2 > > different weekends (with a few weeks in between), with urine testing > before and > > after to see if he's pulling metals and which he responds better to. He > is very > > cautious in general about dosing supps and meds, and about chelation and > does > > not recommend it for all his patients and definitely does not do it in > the > > beginning of treatment until all other interventions have been tried > first. The > > doses are as follows: > > > > CaNa2 EDTA - 1000mg suppository. > > For the DMPS - 200mg suppository. > > > > I know there is a lot of controversy over challenge tests, and Dan dosing > for > > chelation as opposed AC Protocol, but this dose does not seem too high to > me or > > too extreme to be checking if my child has a metal issue or to see which > > chelator he responds to better. > > I don't know much about chelation as my child is a > Yeast/Viral/Under-methylator > > kid that we have seen progress with treating those issues - but we are > nowhere > > near recovery and the older he gets the more worried we are that we might > not be > > getting at the root cause. > > > > My previous DAN got very upset when I mentioned AC protocol and I'm wary > about > > bringing it up with this one. Has anyone had a bad experience with this > type of > > challenge test? Is everyone on this board doing AC chelation? Any advice > would > > be greatly appreciated! > > Thanks! > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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