Re: expressive speech - for those who know seizures.

[Guest guest]

I have a question in regard to this. My son has been GFCF, pretty much all

allergen free for quite awhile. Every once in awhile I will see what I think

are absence seizures reoccur. I am wondering whether an EEG would even pick up

anything if his diet is so restricted (and possibly preventing the

occurances)...in that regard I wonder if it is even worth bringing him to find

out? (we have very limited financial resources, so have to choose where to spend

wisely). I wouldn't want to reintroduce some food that caused the absence

seizures just to see, I mean that would be cruel.

However, I am wondering what people would do in the situation? Just keep

chelating till foods don't seem to cause the problem or is it important that he

is on seizure meds if he is having the occassional episode from some kind of

trigger?

I am interested in your opinions.

Thanks,

Liz

> > >

> > > You might want to rule-out seizures. Or try to fix the things that

commonly cause seizures in our kids - metals, infections/bacteria ,

neurotransmitter problems, etc. Seizures can cause a block in speech areas.Â

> >

> > Yes.

> >

> > The thing I hear having the most success in those who don't talk is

antiseizure medications or related things, which is pretty suggestive it is

often either seizures or something closely related.

> >

> > Seizures and related phenomena are common in autisic children.

> >

> > If in doubt, check for them. If in doubt that they have been completely

ruled out, try an antiseizure medication (at a modest dose) to see if it helps.

> >

> > Andy

> >

> > http://www.noamalga m.com/index. html

> > Amalgam Illness: Diagnosis and Treatment

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> > Hair Test Interpretation: Finding Hidden Toxicities

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> > http://www.noamalgam.com/nourishinghope.html

> > Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children

> >

> > http://www.noamalga m.com/biological treatments. html

> > Biological Treatments for Autism and PDD

> >

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> >

> >

> >

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> >

> >

[Guest guest]

I don't know if I count as someone who " knows " seizures but my son is on

Lamictal as well for absence seizures and stimming. We tried the 1 hour EEG and

it showed nothing (of course he was sedated to get with melatonin or else we

never would have gotten him to be still) the 24 hour EEG was a huge bust

couldn't get the leads on his head- thankfully they gave us our $900 dollars

back! So, my opinion if you have limited resources and you want more definitive

info I would go with the SPECT scan. Its $1500 which is a lot! But spending

$1000 on something that may or may not show something or spending time and money

on treatments that aren't focused on his problem are costly too. So, were I to

do it over again I would go straight to the SPECT scan, JMO. And people that

have absence seizures have them many times a day as well. So reintroducing a

food to see if it aggravates or increases the number of times per day for a

short period like 24hours I think would be acceptable. That being said you

would want to get them under control as soon as possible after that. My son has

been doing it for years- pediatrician said he was fine and he'll grow out of it,

pedi neurologist wasn't very helpful or concerned. I'm pissed too that I could

have started sooner. But I hope no permanent damage was done from those years

of undiagnosed issues. He's now 6.

HTH,

SHannon

> > > >

> > > > You might want to rule-out seizures. Or try to fix the things that

commonly cause seizures in our kids - metals, infections/bacteria ,

neurotransmitter problems, etc. Seizures can cause a block in speech areas.Â

> > >

> > > Yes.

> > >

> > > The thing I hear having the most success in those who don't talk is

antiseizure medications or related things, which is pretty suggestive it is

often either seizures or something closely related.

> > >

> > > Seizures and related phenomena are common in autisic children.

> > >

> > > If in doubt, check for them. If in doubt that they have been completely

ruled out, try an antiseizure medication (at a modest dose) to see if it helps.

> > >

> > > Andy

> > >

> > > http://www.noamalga m.com/index. html

> > > Amalgam Illness: Diagnosis and Treatment

> > >

> > > http://www.noamalgam.com/hairtestbook.html

> > > Hair Test Interpretation: Finding Hidden Toxicities

> > >

> > > http://www.noamalgam.com/nourishinghope.html

> > > Nourishing Hope for Autism: Nutrition Intervention for Healing Our

Children

> > >

> > > http://www.noamalga m.com/biological treatments. html

> > > Biological Treatments for Autism and PDD

> > >

> > >

> > >

> > >

> > >

> > > ____________ _________ _________ _________ _________ _________ _

> > > Hotmail: Free, trusted and rich email service.

> > > http://clk.atdmt. com/GBL/go/ 196390708/ direct/01/

> > >

> > >

[Guest guest]

ya know my husband would talk about absence seizures and I wasn't sure till I

went to you tube and saw them. We actually had NEVER heard of stimming even

though we had been to many professionals who had never mentioned it to us. Can

you beleive it? We went to the Kennedy Krieger Institute and nobody mentioned it

to us. Again my husband went to youtube and we saw it and went OMG thats what he

does! SO, i suggest to go to youtube and search for absence seizures and you

can actually see kids having them-it isn't scary and a picture is worth a

thousand words.

HTH,

>

> > > >

>

> > > > You might want to rule-out seizures. Or try to fix the things that

commonly cause seizures in our kids - metals, infections/bacteria ,

neurotransmitter problems, etc. Seizures can cause a block in speech

areas.Â

>

> > >

>

> > > Yes.

>

> > >

>

> > > The thing I hear having the most success in those who don't talk is

antiseizure medications or related things, which is pretty suggestive it is

often either seizures or something closely related.

>

> > >

>

> > > Seizures and related phenomena are common in autisic children.

>

> > >

>

> > > If in doubt, check for them. If in doubt that they have been completely

ruled out, try an antiseizure medication (at a modest dose) to see if it helps.

>

> > >

>

> > > Andy

>

> > >

>

> > > http://www.noamalga m.com/index. html

>

> > > Amalgam Illness: Diagnosis and Treatment

>

> > >

>

> > > http://www.noamalga m.com/hairtestbo ok.html

>

> > > Hair Test Interpretation: Finding Hidden Toxicities

>

> > >

>

> > > http://www.noamalga m.com/nourishing hope.html

>

> > > Nourishing Hope for Autism: Nutrition Intervention for Healing Our

Children

>

> > >

>

> > > http://www.noamalga m.com/biological treatments. html

>

> > > Biological Treatments for Autism and PDD

>

> > >

>

> > >

>

> > >

>

> > >

>

> > >

>

> > > ____________ _________ _________ _________ _________ _________ _

>

> > > Hotmail: Free, trusted and rich email service.

>

> > > http://clk.atdmt. com/GBL/go/ 196390708/ direct/01/

>

> > >

>

> > >

[Guest guest]

Of course I don't know exactly what you mean by " snakelike " stim, but if you

mean he sticks his tongue out randomly or repeatedly you may want to talk to

your Dr. and ask him if tardive dyskenisia is a possibility. It is a side

effect of the medication and can become permanent.

HTH,

SHannon

> > > > > >

> > > > > > You might want to rule-out seizures. Or try to fix the things

that commonly cause seizures in our kids - metals, infections/bacteria ,

neurotransmitter problems, etc. Seizures can cause a block in speech

areas.Â

> > > > >

> > > > > Yes.

> > > > >

> > > > > The thing I hear having the most success in those who don't talk is

antiseizure medications or related things, which is pretty suggestive it is

often either seizures or something closely related.

> > > > >

> > > > > Seizures and related phenomena are common in autisic children.

> > > > >

> > > > > If in doubt, check for them. If in doubt that they have been

completely ruled out, try an antiseizure medication (at a modest dose) to see if

it helps.

> > > > >

> > > > > Andy

> > > > >

> > > > > http://www.noamalga m.com/index. html

> > > > > Amalgam Illness: Diagnosis and Treatment

> > > > >

> > > > > http://www.noamalgam.com/hairtestbook.html

> > > > > Hair Test Interpretation: Finding Hidden Toxicities

> > > > >

> > > > > http://www.noamalgam.com/nourishinghope.html

> > > > > Nourishing Hope for Autism: Nutrition Intervention for Healing Our

Children

> > > > >

> > > > > http://www.noamalga m.com/biological treatments. html

> > > > > Biological Treatments for Autism and PDD

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >__________________________________________________________

> > > > > Hotmail: Free, trusted and rich email service.

> > > > > http://clk.atdmt. com/GBL/go/ 196390708/ direct/01/

> > > > >

> > > > >