Guest guest Posted May 12, 2000 Report Share Posted May 12, 2000 Hi Jeani: Perhaps a question you've already discussed but I can't remember - are you on Minocin or other AP yet? I noticed you said you're on 8 methotrexate and now starting shots. At 8 pills, 2.5mg each, that's quite a bit at 20mg. It doesn't appear to be helping you enough, and I'm so sorry you are going through so much. I was up to 10mg. mxt. until I started the Minocin and have done well (so far). I do agree with your doctor to be start the disability paperwork in the meantime. You'll probably feel more in control just by doing so. Sure do hope you can get this under control. God bless. Babs RA 8/98, DX 4/99, AP 11/99 200 mg. Minocin 112 mcg. Synthroid 2 mg. Hytrin 10 mg. Lipitor Mestinon Vits. & Misc. Suplmts. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2000 Report Share Posted July 19, 2000 Terry, This is a web site put together by a RD in South Africa. He has a page titled " how to get the most out of your first RD appt " . I tried to copy it, but it didn't work, so hopefully you can use the link below and get there. Tery http://www.arthritis.co.za/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2005 Report Share Posted September 10, 2005 Try Ebay and get a voice activated software like dragon. I might be going that route myself. Yours, Deborah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2005 Report Share Posted September 10, 2005 P.S. You know, people who dont have RA or joint problems can knit or type all day long and take it for granted. They just have no idea what it would feel like not to be able to hold a pen or open a door or type. Yours, Deborah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2005 Report Share Posted September 11, 2005 -- I am an attorney. I used to be a high school math teacher but I found standing all day and being emotionally available 8 hrs in a row to 30+ 15 and 16 year olds too exhausting. I have a job now that while it doesn't provide benefits or pay well, does allow me a flexible schedule so I can go in later (as mornings are slow for me) and stay until early evening. I also can work on weekends to make up time if I'm having a tough week. I like my job because while I am mostly sitting and working on a computer, I can move around the office and work with clients so I don't just sit and type all day. When my hands and wrists are especially sore, I use heat and take extra naproxen. I will go to bed early as well. I also do some tai chi warm up exercises that help with circulation and swelling. The most important thing I try to do is not freak out because I am not well. I used to think every time I had a flare up that it was the beginning of the end and that I would be permanently disabled by the time I was 30. I am thirty now and still hanging in there. <catdelouise@...> wrote: The RA in my fingers has been exacerbated by typing for work and pleasure! Its very frustrating because I so enjoy "speaking" with the people in my groups and it is very therapeutic for me. Right now I am using a thermometer cover and one finger to shift! I wonder if anyone has one of those voice activating machines that type as you speak? They are a bit over $100, so quite reasonable but money is tight righgt now.What does everone else here do?Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2005 Report Share Posted September 12, 2005 I have always taken incredible pride in my handwriting... it's going south very quickly. Strangely this bothers me more than the limp from ankle...I think you should get the voice thing, sounds really cool!SamOn Sep 10, 2005, at 11:56 AM, dbargad@... wrote:P.S. You know, people who dont have RA or joint problems can knit or type all day long and take it for granted. They just have no idea what it would feel like not to be able to hold a pen or open a door or type. Yours, Deborah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2006 Report Share Posted September 29, 2006 My son is only 6, but inertia is probably his biggest problem. He is also very passive. I am afraid he will need an aide throughout school because it seems like someone has to lead him around. Where did you read this article? I would like to read it! Thanks, Debbie > > School just started a month ago here and already we're seeing a few > issues. Trevor is having trouble with writing assignments. He has a > tough time getting started---not sure if it's because he has trouble > coming up with things to write about (even when given a starter > sentence) or if it's the timed factor of it. So far, the trouble seems > to be with his writing journal and when he's asked to just write > spontaneously about subjects. I found a very informative article on AS > kids and their problems with inertia but it doesn't give much by way > of suggestions on how to conquer it! I have a meeting on Thursday of > this week to discuss a 504 vs. an IEP with the principal (due to just > getting a diagnosis this summer). There are a few things I'd like > implemented for just this situation but I'd like to know if anyone > else has dealt with this sort of situation with their child and if so, > what has helped them work more successfully towards completing these > kinds of assignments. > I welcome the input! > Thanks. > Nikki > Quote Link to comment Share on other sites More sharing options...
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