Guest guest Posted November 26, 2003 Report Share Posted November 26, 2003 No problem at all!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2005 Report Share Posted October 17, 2005 Hi All I have RA in the finger joints of my left hand. I was prescribed Sulphasalazine but got bad headcahes and have now had seriod injections into the joints. The injections seem to have stopped the swelling but I am worried about their long term effect/use? Any ideas or help would be greatly appreciated Ruth- new to the group (U.K.) Hi Everyone,My name is Kari and I have been lurking for a while but feel it is time to join the conversation. I was diagnoised with RA and Osteo-arthritis about 3 months ago. I have RA in my feet, hands, wrists and elbows. I have just started taking sulindac, sulphasalzine, folic acid and am due to start methotrexate this Sunday. I am thinking about the catch 22 thing as I am 38 and feel worse on the meds than not but worry about long-term joint damage vs long-term side effects from all the meds. I am contemplating going the natural route. What are some of the side-effects of the MTX??? Do you get more sick with colds etc,?My Rhumy is not the most forthcoming and I need to go in with a list of questions as he doesn't tell me stuff unless I ask. Right now my hands and elbows are the worst affected.I have been educated more by all of your feedback on this board, so thank you.Kari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2005 Report Share Posted October 17, 2005 Kari, why not do both until you get your RA under control..............Take the meds to help the joint pain but at the same time study about naturapathic methods and test until you find what works for you.......then and only when you feel you have figured out your problem try easing back on the medication. That was the route I took and it worked for me, I have been med free for 3 years now and have no further joint damage and I am mostly pain free and able to live a normal active life again. There are so many things we can do to improve our health........diet, exercise, proper amounts of water, proper breathing, stress relief. Dorey www.LivingWithRheumatoidArthritis.com ----- Original Message ----- From: " Kari " <safrcngrl@...> <Rheumatoid Arthritis > Sent: Friday, October 14, 2005 12:35 PM Subject: New to the group... > Hi Everyone, > > My name is Kari and I have been lurking for a while but feel it is > time to join the conversation. I was diagnoised with RA and Osteo- > arthritis about 3 months ago. I have RA in my feet, hands, wrists > and elbows. I have just started taking sulindac, sulphasalzine, > folic acid and am due to start methotrexate this Sunday. I am > thinking about the catch 22 thing as I am 38 and feel worse on the > meds than not but worry about long-term joint damage vs long-term > side effects from all the meds. I am contemplating going the natural > route. What are some of the side-effects of the MTX??? Do you get > more sick with colds etc,? > My Rhumy is not the most forthcoming and I need to go in with a list > of questions as he doesn't tell me stuff unless I ask. Right now my > hands and elbows are the worst affected. > > I have been educated more by all of your feedback on this board, so > thank you. > Kari > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2005 Report Share Posted October 17, 2005 May I ask please what diet you followed for this wonderful recovery? What amount of water would you drink per day too? Would a body conditioning class for fitness be too strenous do you think? Thank you Ruth nt: Monday, October 17, 2005 8:59 PM Subject: Re: New to the group... Kari, why not do both until you get your RA under control..............Take the meds to help the joint pain but at the same time study about naturapathic methods and test until you find what works for you.......then and only when you feel you have figured out your problem try easing back on the medication. That was the route I took and it worked for me, I have been med free for 3 years now and have no further joint damage and I am mostly pain free and able to live a normal active life again.There are so many things we can do to improve our health........diet, exercise, proper amounts of water, proper breathing, stress relief. Doreywww.LivingWithRheumatoidArthritis.com----- Original Message ----- From: "Kari" <safrcngrl@...><Rheumatoid Arthritis >Sent: Friday, October 14, 2005 12:35 PMSubject: New to the group...> Hi Everyone,>> My name is Kari and I have been lurking for a while but feel it is> time to join the conversation. I was diagnoised with RA and Osteo-> arthritis about 3 months ago. I have RA in my feet, hands, wrists> and elbows. I have just started taking sulindac, sulphasalzine,> folic acid and am due to start methotrexate this Sunday. I am> thinking about the catch 22 thing as I am 38 and feel worse on the> meds than not but worry about long-term joint damage vs long-term> side effects from all the meds. I am contemplating going the natural> route. What are some of the side-effects of the MTX??? Do you get> more sick with colds etc,?> My Rhumy is not the most forthcoming and I need to go in with a list> of questions as he doesn't tell me stuff unless I ask. Right now my> hands and elbows are the worst affected.>> I have been educated more by all of your feedback on this board, so> thank you.> Kari>>>>>>>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2005 Report Share Posted October 17, 2005 My rheumy is the same way. He is from India or somewhere in that area and he is hard to understand. Sometimes I think of getting a new doc but he is good. I felt sick when I first started MTX. I've been on it for about 2 years and I can take all six pills at once and not get sick. Now I also take Enbrel. My hands and feet are the worst but my knees and elbows are also affected. Vicki -------Original Message------- From: Kari Date: 10/17/05 14:22:59 Rheumatoid Arthritis Subject: New to the group... Hi Everyone,My name is Kari and I have been lurking for a while but feel it is time to join the conversation. I was diagnoised with RA and Osteo-arthritis about 3 months ago. I have RA in my feet, hands, wrists and elbows. I have just started taking sulindac, sulphasalzine, folic acid and am due to start methotrexate this Sunday. I am thinking about the catch 22 thing as I am 38 and feel worse on the meds than not but worry about long-term joint damage vs long-term side effects from all the meds. I am contemplating going the natural route. What are some of the side-effects of the MTX??? Do you get more sick with colds etc,?My Rhumy is not the most forthcoming and I need to go in with a list of questions as he doesn't tell me stuff unless I ask. Right now my hands and elbows are the worst affected.I have been educated more by all of your feedback on this board, so thank you.Kari --- USFamily.Net - $8.25/mo! -- Highspeed - $19.99/mo! --- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2005 Report Share Posted October 17, 2005 Hi Kari, welcome I've been on MTX for almost 10 years and have found that I don't get any sicker with MTX. I used to take 4 pills a week , but am up to a week. Seems everyone else in my family gets sick before I do... Side effects I notice is nausea and fatigue. The nausea is only the first couple weeks my MTX is increased...otherwise I have no problems from it. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Maggie http://www.4HockeyFans.com http://www.4FloridaHockey.com MSN: Maggies1429 AOL: Maggies85 Kari wrote: Hi Everyone, My name is Kari and I have been lurking for a while but feel it is time to join the conversation. I was diagnoised with RA and Osteo- arthritis about 3 months ago. I have RA in my feet, hands, wrists and elbows. I have just started taking sulindac, sulphasalzine, folic acid and am due to start methotrexate this Sunday. I am thinking about the catch 22 thing as I am 38 and feel worse on the meds than not but worry about long-term joint damage vs long-term side effects from all the meds. I am contemplating going the natural route. What are some of the side-effects of the MTX??? Do you get more sick with colds etc,? My Rhumy is not the most forthcoming and I need to go in with a list of questions as he doesn't tell me stuff unless I ask. Right now my hands and elbows are the worst affected. I have been educated more by all of your feedback on this board, so thank you. Kari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2005 Report Share Posted October 17, 2005 Ooops, lost my 8 somewhere LOL. I take 8 2.5 mg pills of MTX a week ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Maggie http://www.4HockeyFans.com http://www.4FloridaHockey.com MSN: Maggies1429 AOL: Maggies85 ~Maggie~ wrote: Hi Kari, welcome I've been on MTX for almost 10 years and have found that I don't get any sicker with MTX. I used to take 4 pills a week , but am up to a week. Seems everyone else in my family gets sick before I do... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2005 Report Share Posted October 18, 2005 --- Kari <safrcngrl@...> wrote: > Hi Everyone, > > My name is Kari and I have been lurking for a while > but feel it is > time to join the conversation. I was diagnoised with > RA and Osteo- > arthritis about 3 months ago. I have RA in my feet, > hands, wrists > and elbows. I have just started taking sulindac, > sulphasalzine, > folic acid and am due to start methotrexate this > Sunday. I am > thinking about the catch 22 thing as I am 38 and > feel worse on the > meds than not but worry about long-term joint damage > vs long-term > side effects from all the meds. I am contemplating > going the natural > route. What are some of the side-effects of the > MTX??? Do you get > more sick with colds etc,? > My Rhumy is not the most forthcoming and I need to > go in with a list > of questions as he doesn't tell me stuff unless I > ask. Right now my > hands and elbows are the worst affected. > > I have been educated more by all of your feedback on > this board, so > thank you. > Kari > Hi Kari , Well I have both allso and some others that come along with r/a well long term joint damage is a fact i see it every day with my mom and in my toes but i can cover it with my shoes and my foot dr want touch them because of my RANARDS being very bad and my r/a being still active in my feet for some reason , my mom cann't it has ten yrs on her before the better meds so i'll take my meds , and from what my dr tells me the long term effects such as liver probs ? if the #s go up we'll stop or chang the meds and it go away but i dont have a liver prob to start with as for the #s or function as for poss of lukimia ? umm some of my family had some diease anyway but i'll take my chance than live the way i see my mother haveing to live now its a hard diease so we got to do what each of us feels right with and i guess what we each see and go through will effect us and our dessions the most so good luck with your choise and hope you have many pain free days . > > > > > > > __________________________________ Start your day with - Make it your home page! http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2005 Report Share Posted October 18, 2005 Your RA was just diagnosed about 3 months ago so it may still be progressing in spite of the medicines. That may be what is making you feel worse and maybe the medicines are helping, but not enough. You don't find out unless you stop the medications snd see if you get really bad. I prefer to keep adding medicines till I'm pretty well controlled and they try to cut back on those I think are doing the least good. I can be surprised at how effective some medications are. You are wise to consider the long term and not just how you feel today. Side effects of many medications decrease with time and their effectiveness can increase with time at least for a while. Permanent joint damage is no fun so you should try to avoid it. I'm on 15 mg Methotrexate with no appreciable side effects and never had any. Many others have no side effects but we do hear a lot from the few who do have significant side effects. I do believe in a generally healthy diet but I have not tried to combat RA with diet. From what I read there is no diet that is universally good for people with RA, but many people have food allergies that make their RA worse. If I were goint to consider natural methods seriously I would go to a nutritionist for tests for food allergies and proceed to eliminate food groups to which I showed some allergic reaction. There may be better ways to go about it but that's what I would do. God bless. ----- Original Message ----- From: Kari Rheumatoid Arthritis Sent: Friday, October 14, 2005 12:35 PM Subject: New to the group... Hi Everyone,My name is Kari and I have been lurking for a while but feel it is time to join the conversation. I was diagnoised with RA and Osteo-arthritis about 3 months ago. I have RA in my feet, hands, wrists and elbows. I have just started taking sulindac, sulphasalzine, folic acid and am due to start methotrexate this Sunday. I am thinking about the catch 22 thing as I am 38 and feel worse on the meds than not but worry about long-term joint damage vs long-term side effects from all the meds. I am contemplating going the natural route. What are some of the side-effects of the MTX??? Do you get more sick with colds etc,?My Rhumy is not the most forthcoming and I need to go in with a list of questions as he doesn't tell me stuff unless I ask. Right now my hands and elbows are the worst affected.I have been educated more by all of your feedback on this board, so thank you.Kari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2005 Report Share Posted October 19, 2005 --- In Rheumatoid Arthritis , " Kari " <safrcngrl@y...> wrote: > route. What are some of the side-effects of the MTX??? Do you get > more sick with colds etc,? I was really worried about getting sick, but have been quite well on MTX. I haven't had any more colds than usual, and I've gotten over them in the usual amount of time. Getting a flu shot is important to me. Sierra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2005 Report Share Posted October 23, 2005 Hi Ruth, for me the biggest problem in my diet seemed to be bread, and I didn't know until I had removed it from my diet for 30 days. I eat a diet high in fresh fruits and vegetables, low in preservatives or processed foods. I reduced salt and sugar and tend to eat protein mostly at the evening meal. I don't eat dairy but that's because years ago I found I didn't feel well when eating dairy, long before I got RA or knew much about nutritional health. This works for me in combination with taking my daily supplement, practicing meditation and of course regular exercise. If you are interested in body conditioning classes I would suggest there will be an instructor who can help you decide if it would be right for you or even modify the exercises to suit your body. Dorey www.LivingWithRheumatoidArthritis.com ----- Original Message ----- From: Ruth Petford Rheumatoid Arthritis Sent: Monday, October 17, 2005 1:16 PM Subject: Re: New to the group... May I ask please what diet you followed for this wonderful recovery? What amount of water would you drink per day too? Would a body conditioning class for fitness be too strenous do you think? Thank you Ruth nt: Monday, October 17, 2005 8:59 PM Subject: Re: New to the group... Kari, why not do both until you get your RA under control..............Take the meds to help the joint pain but at the same time study about naturapathic methods and test until you find what works for you.......then and only when you feel you have figured out your problem try easing back on the medication. That was the route I took and it worked for me, I have been med free for 3 years now and have no further joint damage and I am mostly pain free and able to live a normal active life again.There are so many things we can do to improve our health........diet, exercise, proper amounts of water, proper breathing, stress relief. Doreywww.LivingWithRheumatoidArthritis.com----- Original Message ----- From: "Kari" <safrcngrl@...><Rheumatoid Arthritis >Sent: Friday, October 14, 2005 12:35 PMSubject: New to the group...> Hi Everyone,>> My name is Kari and I have been lurking for a while but feel it is> time to join the conversation. I was diagnoised with RA and Osteo-> arthritis about 3 months ago. I have RA in my feet, hands, wrists> and elbows. I have just started taking sulindac, sulphasalzine,> folic acid and am due to start methotrexate this Sunday. I am> thinking about the catch 22 thing as I am 38 and feel worse on the> meds than not but worry about long-term joint damage vs long-term> side effects from all the meds. I am contemplating going the natural> route. What are some of the side-effects of the MTX??? Do you get> more sick with colds etc,?> My Rhumy is not the most forthcoming and I need to go in with a list> of questions as he doesn't tell me stuff unless I ask. Right now my> hands and elbows are the worst affected.>> I have been educated more by all of your feedback on this board, so> thank you.> Kari>>>>>>>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2005 Report Share Posted October 23, 2005 I did the steriod injections as well Ruth, I had my shoulders and one knee injected. They worked great but it wears off and goes back to hurting. For me the injection worked for 30 days. Also after a year I had a concern with my hips not rotating as they should, the Rheumatologist suggested this was due to the steriod use........I've never had another shot and recovered from the hip problems. Dorey www.LivingWithRheumatoidArthritis.com ----- Original Message ----- From: Ruth Petford Rheumatoid Arthritis Sent: Monday, October 17, 2005 12:38 PM Subject: Re: New to the group... Hi All I have RA in the finger joints of my left hand. I was prescribed Sulphasalazine but got bad headcahes and have now had seriod injections into the joints. The injections seem to have stopped the swelling but I am worried about their long term effect/use? Any ideas or help would be greatly appreciated Ruth- new to the group (U.K.) Hi Everyone,My name is Kari and I have been lurking for a while but feel it is time to join the conversation. I was diagnoised with RA and Osteo-arthritis about 3 months ago. I have RA in my feet, hands, wrists and elbows. I have just started taking sulindac, sulphasalzine, folic acid and am due to start methotrexate this Sunday. I am thinking about the catch 22 thing as I am 38 and feel worse on the meds than not but worry about long-term joint damage vs long-term side effects from all the meds. I am contemplating going the natural route. What are some of the side-effects of the MTX??? Do you get more sick with colds etc,?My Rhumy is not the most forthcoming and I need to go in with a list of questions as he doesn't tell me stuff unless I ask. Right now my hands and elbows are the worst affected.I have been educated more by all of your feedback on this board, so thank you.Kari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2005 Report Share Posted October 24, 2005 Sulfaxalazine is one of the older drugs for treating RA and many people have adverse reactions to sulfa medications. It is important to be on a DMARD (Disease-Modifying Anti-Rheumatic Drug) and while steroids are often effective in treating the symptoms of RA they do little or nothing to slow joint damage and thus are not classed as DMARDs. Another older drug is Plaquenil but that has largely been replaced by Methotrexate. I think it is important to be treated by a rheumatologist because most other doctors do not know enough about RA to treat it effectiely. It is also important to be on a DMARD. Please try to get more effective treatment for your illness. Welcome to the group and God bless. ----- Original Message ----- From: Ruth Petford Rheumatoid Arthritis Sent: Monday, October 17, 2005 12:38 PM Subject: Re: New to the group... Hi All I have RA in the finger joints of my left hand. I was prescribed Sulphasalazine but got bad headcahes and have now had seriod injections into the joints. The injections seem to have stopped the swelling but I am worried about their long term effect/use? Any ideas or help would be greatly appreciated Ruth- new to the group (U.K.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2005 Report Share Posted October 24, 2005 Hello and thank you for your reply. I am seeing a specialist in RA , ATM! In the U.K. it takes months to see someone at all :-(( I explained at my last appointment that the sulfaxalazine gave me headcahes and he is to send a prescription for Methotrexate to my G.P. who will then give it to me <g> I can only get to see the Specialist once every 6 months and so there are lots of changes, peaks and throughs in the time between appointments. Ruth (U.K.) xalazine is one of the older drugs for treating RA and many people have adverse reactions to sulfa medications. It is important to be on a DMARD (Disease-Modifying Anti-Rheumatic Drug) and while steroids are often effective in treating the symptoms of RA they do little or nothing to slow joint damage and thus are not classed as DMARDs. Another older drug is Plaquenil but that has largely been replaced by Methotrexate. I think it is important to be treated by a rheumatologist because most other doctors do not know enough about RA to treat it effectiely. It is also important to be on a DMARD. Please try to get more effective treatment for your illness. Welcome to the group and God bless. ----- Original Message ----- From: Ruth Petford Rheumatoid Arthritis Sent: Monday, October 17, 2005 12:38 PM Subject: Re: New to the group... Hi All I have RA in the finger joints of my left hand. I was prescribed Sulphasalazine but got bad headcahes and have now had seriod injections into the joints. The injections seem to have stopped the swelling but I am worried about their long term effect/use? Any ideas or help would be greatly appreciated Ruth- new to the group (U.K.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 Hi Carey, I'm Bobby, I'm 78 and I've had cml for 13 years this May. My doctor is Dr. Talpaz at the U. of Mich, although I am from outside Cleveland, OH, as I am in a clinical trial there for Sprycel. Welcom to the group, I too am new to the site, have only been posting about 2 weeks, and everyone is very compassionate and helpful. No one wants cml,. but the upside is meeting great people and sharing experiences. Welcome aboard! Bobby cnickels_nc <careynkarl@...> wrote: My name is Carey I'm 38 and from Charlotte, NC. I was daignosed with CML on December 19, 2007 (Merry Christmas too me) and began taking Gleevec 400mg on December 20, 2007. I have responded very well to Gleevec so far and reached hematologic remission on February 27, 2008. I had a PCR done on that date and will get the info about that on March 31st at my next apt. I see a Dr Ellis at the NCI in Winston Salem. I have been reading the board for a while now, and decided it was time to post and introduce myself. I thank you all for the information you have given me. It is so nice to know that I am not alone. I have several side effects, but knowing there are many people going through them too makes me feel better some how. a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 Thank you for the welcome Aliza > > welcome carey > aliza yaffa > > > > **************Create a Home Theater Like the Pros. Watch the video on AOL > Home. > (http://home.aol.com/diy/home-improvement-eric-stromer?video=15? ncid=aolhom00030000000001) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 Wow 13 years is so encouraging. Thanks for the welcome Bobby. > My name is Carey I'm 38 and from Charlotte, NC. I was daignosed with > CML on December 19, 2007 (Merry Christmas too me) and began taking > Gleevec 400mg on December 20, 2007. I have responded very well to > Gleevec so far and reached hematologic remission on February 27, 2008. > I had a PCR done on that date and will get the info about that on March > 31st at my next apt. I see a Dr Ellis at the NCI in Winston Salem. > > I have been reading the board for a while now, and decided it was time > to post and introduce myself. I thank you all for the information you > have given me. It is so nice to know that I am not alone. I have > several side effects, but knowing there are many people going through > them too makes me feel better some how. > > > > > > > a (Bobby) Doyle > Brecksville, Ohio, USA > DX 05/1995 > 02/2000 - Gleevec Trial/OHSU > 06/2002 - Gleevec/Trisenox Trial/OHSU > 06/2003 - Gleevec/Zarnestra Trial/OHSU > 04/2004 - Sprycel Trial/MDACC, CCR in 10 months > #840 - Zavie's Zero Club > 09/2006 - out of CCR > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 Hi Carey, have only been a member about 2 weeks but already cant wait to read the emails . I have gotten so much information and hugs. Eva Brown @...: rcd1929@...: Wed, 19 Mar 2008 13:07:14 -0700Subject: Re: [ ] New to the group... Hi Carey, I'm Bobby, I'm 78 and I've had cml for 13 years this May. My doctor is Dr. Talpaz at the U. of Mich, although I am from outside Cleveland, OH, as I am in a clinical trial there for Sprycel. Welcom to the group, I too am new to the site, have only been posting about 2 weeks, and everyone is very compassionate and helpful. No one wants cml,. but the upside is meeting great people and sharing experiences. Welcome aboard! Bobbycnickels_nc <careynkarl@...> wrote:My name is Carey I'm 38 and from Charlotte, NC. I was daignosed with CML on December 19, 2007 (Merry Christmas too me) and began taking Gleevec 400mg on December 20, 2007. I have responded very well to Gleevec so far and reached hematologic remission on February 27, 2008. I had a PCR done on that date and will get the info about that on March 31st at my next apt. I see a Dr Ellis at the NCI in Winston Salem.I have been reading the board for a while now, and decided it was time to post and introduce myself. I thank you all for the information you have given me. It is so nice to know that I am not alone. I have several side effects, but knowing there are many people going through them too makes me feel better some how.a (Bobby) DoyleBrecksville, Ohio, USADX 05/199502/2000 - Gleevec Trial/OHSU06/2002 - Gleevec/Trisenox Trial/OHSU06/2003 - Gleevec/Zarnestra Trial/OHSU04/2004 - Sprycel Trial/MDACC, CCR in 10 months#840 - Zavie's Zero Club09/2006 - out of CCR[Non-text portions of this message have been removed] _________________________________________________________________ Spread the Love by installing 30 free Messenger Emoticons. Get them now! http://g.msn.ca/ca55/212 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2008 Report Share Posted March 19, 2008 Thank you for your thoughts. We take care of each other. **************Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom00030\ 000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2008 Report Share Posted March 20, 2008 Thank you for the welcome Eva. My name is Carey I'm 38 and from Charlotte, NC. I was daignosed with CML on December 19, 2007 (Merry Christmas too me) and began taking Gleevec 400mg on December 20, 2007. I have responded very well to Gleevec so far and reached hematologic remission on February 27, 2008. I had a PCR done on that date and will get the info about that on March 31st at my next apt. I see a Dr Ellis at the NCI in Winston Salem.I have been reading the board for a while now, and decided it was time to post and introduce myself. I thank you all for the information you have given me. It is so nice to know that I am not alone. I have several side effects, but knowing there are many people going through them too makes me feel better some how.a (Bobby) DoyleBrecksville, Ohio, USADX 05/199502/2000 - Gleevec Trial/OHSU06/2002 - Gleevec/Trisenox Trial/OHSU06/2003 - Gleevec/Zarnestra Trial/OHSU04/2004 - Sprycel Trial/MDACC, CCR in 10 months#840 - Zavie's Zero Club09/2006 - out of CCR[Non-text portions of this message have been removed] > > > > > > > _________________________________________________________________ > Spread the Love by installing 30 free Messenger Emoticons. Get them now! > http://g.msn.ca/ca55/212 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2008 Report Share Posted March 20, 2008 Welcome Carey sounds like you are doing well .I was a Christmas Dx also Dec 23 /05 I,m66 sure ruined Christmas in 05 [ ] New to the group... My name is Carey I'm 38 and from Charlotte, NC. I was daignosed with CML on December 19, 2007 (Merry Christmas too me) and began taking Gleevec 400mg on December 20, 2007. I have responded very well to Gleevec so far and reached hematologic remission on February 27, 2008. I had a PCR done on that date and will get the info about that on March 31st at my next apt. I see a Dr Ellis at the NCI in Winston Salem. I have been reading the board for a while now, and decided it was time to post and introduce myself. I thank you all for the information you have given me. It is so nice to know that I am not alone. I have several side effects, but knowing there are many people going through them too makes me feel better some how. ________________________________________________________________________________\ ____ Looking for last minute shopping deals? Find them fast with Search. http://tools.search./newsearch/category.php?category=shopping Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2008 Report Share Posted March 20, 2008 Thank you for the welcome Ceil. I am so sorry to hear about your husband's illnesses. > > Welcome Carey > > I rarely post but read every thing every day. You will find a world of > information, compassion and meet the most upbeat people in the world. I am 75 yrs > young and was dx in June 2006 with CML. I started on 400mgs of Gleevec and > still on it. I am still working 3 days a week even though I get tired very > easily, but work is therapy. My last cytogenitic blood test was great. I have > been 0% since Aug 2006. Outside of some side effects, I think I am doing okay. > My husband is 81 and not well. He has bladder cancer and a very bad heart, but > we keep moving along. I call us the walking wounded. I am in Zavie's 0 club > and very proud of it. So hang in there and we will be here for you. > You are in the best company of people that you can be in. > > Love & Hugs > Ceil > > > > **************Create a Home Theater Like the Pros. Watch the video on AOL > Home. > (http://home.aol.com/diy/home-improvement-eric-stromer?video=15? ncid=aolhom00030000000001) > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.