Guest guest Posted July 4, 2010 Report Share Posted July 4, 2010 I am just saying my info, I can only post what I have .. I have a recovered kid and I am spending my time tring to help you all .. I really don't care if some parents don't want to believe e.. I can't MAKE YOU. YOU WANT iep REPORTS FROM SCHOOL, HIS MEDICAL RECORDS.. COME ON.. IF I COULD GET A JOURNAIST OUT THERE THAT WOULD LOOK I COULD PROVE IT . BUT AS MOMS IF YOU WANT YOUR HEAD UP YOUR BUT SO MUCH THAT SOMETHING AS EASY AS RAW GOAT MILK .SOMETHING CURRENTLY AND SAFELY DRANK BY MOST OF THE WORLD IS SOMEHOW FAKE . WELL GOD HELP YOU AND YOUR KIDS BECAUSE I HAVE NOTHING TO GAIN FROM THIS AND YOU HAVE EVERYTHING TO LOSE FOR NOT. Its not like I said feed your kid poison ivy. its milk drank safely around the world . at the very least what. it doesn't work . oh no From: [mailto: ] On Behalf Of S Sent: Sunday, July 04, 2010 12:43 AM Subject: [ ] Re: I mean Cilantro chelation---Raw goat milk > > And yes, we can eat cookies with gluten :=) but I try not to. ~~~Hey if you can eat them, eat them. I think that is something a lot of parents on this list wish their kids could do. More than say, tie their own shoes. My son went off GFCF (and other allergies) when he responded to secretin, and then benefitted from enzymes. We are not going back either!!! > > In the beginning when I was tracking down reports and actually seeing what people considered " recovered " kids, I was shocked to say the least. So I don't put a lot of faith in people's internet accounts of recovery. My best example is the Mom who described her child as recovered, but he was nonverbal. I also don't believe videos as I had a kid with such a variable skill set from day to day, who you could film for 24 hours, let alone 5 minutes, on certain days and swear she was fine. Many have kids like this. ~~~Yes, my son is like that. Bystanders don't know he's autistic. I could make a convincing YouTube video if I wanted too, but he does still have some of the 'tism left in him. I also taught a second grader who I called " passing " because it was so close, I was asking her mother, " where's the autism? " I got to see it when she returned to school after she had experienced a grand mal seizure at home. Within a few weeks, she was back to " passing " again. > > > The numbness your son experiences is a normal response to the mercury mobilizing, which is what it does before it is excreted. ~~~ Then you advise to finish the round even after he complains of the numbness so the mercury cab be excreted through urine and stool? It is just moving to be dumped? I won't comment on raw goats milk because we haven't tried it. I butted in the debate because I was feeling a bit argumentative myself. What a weird parallel universe we live in when we have autism in our lives. There are so few people in my life who know what I'm talking about so I must find internet friends to debate with. I'm happy for anyone whose child has improved and/or recovered and I love and respect many children with autism who are far from recovered. I get so frustrated when I hear the stupid judgements some educators make about their students and the choices their parents make (or don't make.) I think that those of us that have to actually live this life and make these hard choices should stick together. When I say that, I'm including the families of fully recovered children because once you've lived it, it's like the Hotel California. " You can check out anytime you like, but you can never leave. " I bet that's why you still post here. Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2010 Report Share Posted July 4, 2010 Do no harm.. not do no hard .. hubby would not like that lol From: [mailto: ] On Behalf Of Crystal Palmer-Bull Sent: Sunday, July 04, 2010 3:34 PM Subject: RE: [ ] Re: I mean Cilantro chelation---Raw goat milk I feel every mom knows their child best.. and only they can see what their path is ahead… If your son writes a book someday … I am sure he will thank the mother who never gave up on him and obviously so if he is an author! I am sure he will know you were smart enough to sift thru what was out there and be his advocate. There are things I have tried and some that have been more helpful than others but I always consulted my dr and she always said it followed the line of good nutrition .. and that nothing I ever tried could have hurt him. I think the 1st rule of medicine .. to do no hard is often overlooked ,… even by dr’s and most of the time we are waiting for or helping the Body to heal itself. Good nutrition is something However I do not find controversial or experimental nor should it be a considered ½ baked or anything of the sort. The basis of good health starts with good nutrition point blank.. I think we all agree on that. Certainly traditional diets … used for thousands of years should not be considered controversial either. I believe most of the world drinks goat milk, as most places cannot sustain cattle and only westernized countries have a system of pasteurization on a mass level. So it is more than safe to say that raw goat milk is part of the daily diet for most of the world.. I think we are safe! I have no other reason but to want to share my experience … ion hopes that just one other child may find some relief…. Even if not on the same level as mine. I have many woman from these boards now trying it and having great results and the most negative result was one person noticing NO progress… but no negatives either … AND THAT WAS PASTURIZED >>> not even RAW.. I am hearing feedback like dry at night for the 1st time ever .. yeast infections gone in days .. and … elimination of constipation issues..so I am no dr but I already feel I have lived and my son have lived a purpose… MY community is passing a no animal law and I may face losing my mini goats and these same woman are so supportive now because seeing was believing … that they are writing letters on my behalf. It is not that farfetched, raw milks are being studied for all sorts of autoimmune and Gi issues. From: <mailto: %40> [mailto: <mailto: %40> ] On Behalf Of S Sent: Saturday, July 03, 2010 10:27 AM <mailto: %40> Subject: [ ] Re: I mean Cilantro chelation---Raw goat milk Well I guess if all the mercury is gone, you can have a cookie with gluten in it? I guess it is hard to read whether something is a spiteful argument or an honest debate in email. Not having a recovered child, I read these posts sometimes and wonder why people with recovered children would turn on each other, but maybe I'm not understanding the tone. Honestly though, everytime I try AC chelation (and we just tried it again last week) my son experiences numbness in either his legs, face or mouth. It scares him and it scares me. When I hear people say essentialy that the only way to cure autism is to get the mercury out, I worry that in our case, we may be doing more damage than good. We did follow the strict 3 hour low dosing last week (just ALA.) Two and a half days in, he said, " Mom, I have to tell you that my face feels funny again. " I stopped the round because I worry that I could be doing neurological damage to my son. Another mom on my facebook page commented her son had seizures when she attempted AC chelation (of course this is second hand facebook info.) I would love to just follow a protocol and recover my son from autism, but it doesn't seem to be that easy for us. These cases all seem very complex and individual. Any advice for people who experience numbness with frequent low dose ALA ? Any advice on how to get a 15 year old to drink raw goats milk and not one day write a memoir about how his crazy mother pushed every autism therapy in the book on him Crystal? Jen > > > > From: Crystal Palmer-Bull <cpalmerbull@ <mailto:cpalmerbull%40crystalimagingstudio.net> <mailto:cpalmerbull%40crystalimagingstudio.net> <mailto:cpalmerbull%40crystalimagingstudio.net> > > > Subject: RE: [ ] Re: I mean Cilantro chelation > > <mailto: %40> <mailto: %40> <mailto: %40> <mailto: %40> <mailto: %40> > > Date: Thursday, July 1, 2010, 8:11 PM > > > > Things like that happen all the time.. impossible right ... wrong. My son > > was dx with autism.. it was real. but now he recovered . they say oh must > > not have been autism.. > > > > My dad had some health issues and was getting checked out they did some scan > > of his liver and said get your affairs in order you have end stage liver > > cancer yadda yadda. well My dad is still here and that was 20 years ago. > > turned out they were non cancer cysts on his liver . > > > > The medical community doesn't know crap most of the time and therefore it > > makes even more of these stories. > > > > You can say you don't believe me when my son looked me in the eye > > (sustainably ) for the 1st time just hours after dinking his 1st cup of RAW > > goat milk. you can say you don't believe me . that's fine . my kid is > > healthy and flourishing, reading and writing, singing and dancing and > > playing baseball and is very popular. You don't have to believe me but you > > should. > > > > From: <mailto: %40> <mailto: %40> <mailto: %40> <mailto: %40> <mailto: %40> [mailto: <mailto: %40> <mailto: %40> <mailto: %40> <mailto: %40> <mailto: %40> ] > > On Behalf Of andrewhallcutler > > Sent: Thursday, July 01, 2010 7:21 PM > > <mailto: %40> <mailto: %40> <mailto: %40> <mailto: %40> <mailto: %40> > > Subject: [ ] Re: I mean Cilantro chelation > > > > > We read a story about a study that eat " freshly chopped cilantro only 0.25 > > cup per day " ( which is not much), mixed with a bowl of fresh salad, I like > > to sprinkle them on top of my entree (stew meat or fish), for 3 weeks > > straight ( 0.25 cup of fresh chopped cilantro), and that made an autistic > > boy starting to talk. > > > > This kind of silliness reminds me of the news story in the 1980's about the > > guy diagnosed with inoperable brain cancer and sent home to die. He didn't > > like how it was going so he shot himself in the head. > > > > Someone called 911, they rushed him to the emergency room and saved him, and > > also found out the bullet had blown out the tumor and cured his cancer! > > > > I always thought of that as God reminding the surgeon of who really could > > perform miracles :-) > > > > However, shooting yourself in the head to try to cure your cancer based on > > this story makes more sense than most of what I see on the net about " and > > that autistic boy XXXXX. " At least the cancer story is actually true, when > > I've looked into these other stories they often are not. > > > > The ones that are fall under the umbrella that if you do something random to > > enough people, one of them will end up exhibiting whatever phenomenon you > > are looking for totally by chance. > > > > It's like the silly ads on my computer screen all the time " Tacoma Mom lost > > 43 pounds following one simple rule! " Etc. > > > > If you care about your kid at all, take responsibility and think things > > through. Comments like " it's just food, it must be safe! " are pretty silly > > in light of how many people get food poisoning, and of things like > > Lathyrism, a disease where eating a certain kind of pea causes paralysis in > > many people. > > > > You don't want some possibly made up story about somebody got better once > > (maybe) doing something wonderful and easy. > > > > You want lots of concrete, factual information, presented in a way you can > > check for yourself and understand it well, that is clearly related to your > > kid's situation. It should come from a credible source that has been saying > > the same thing for a while, not a different random thing every year or two. > > > > Whether or not this goes along with your personal worldview, or is too > > conservative, your kid deserves nothing less than you taking some personal > > responsibility to really figure out if what you are going to do for them is > > a good idea or not. Remember, they got turned autistic because you didn't do > > that - but that time it was a lot easier to excuse since there was this > > whole institution of people pretending to great expertise that were telling > > you made up lies about the safety of vaccines and the lack of any connection > > between them and autism. > > > > Andy > > > > http://www.noamalgam.com/index.html > > Amalgam Illness: Diagnosis and Treatment > > > > http://www.noamalgam.com/hairtestbook.html > > Hair Test Interpretation: Finding Hidden Toxicities > > > > http://www.noamalgam.com/nourishinghope.html > > Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children > > > > http://www.noamalgam.com/biologicaltreatments.html > > Biological Treatments for Autism and PDD > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2010 Report Share Posted July 5, 2010 [ ] Re: I mean Cilantro chelation---Raw goat milk > > And yes, we can eat cookies with gluten :=) but I try not to. ~~~Hey if you can eat them, eat them. I think that is something a lot of parents on this list wish their kids could do. More than say, tie their own shoes. My son went off GFCF (and other allergies) when he responded to secretin, and then benefitted from enzymes. We are not going back either!!! > > In the beginning when I was tracking down reports and actually seeing what people considered " recovered " kids, I was shocked to say the least. So I don't put a lot of faith in people's internet accounts of recovery. My best example is the Mom who described her child as recovered, but he was nonverbal. I also don't believe videos as I had a kid with such a variable skill set from day to day, who you could film for 24 hours, let alone 5 minutes, on certain days and swear she was fine. Many have kids like this. ~~~Yes, my son is like that. Bystanders don't know he's autistic. I could make a convincing YouTube video if I wanted too, but he does still have some of the 'tism left in him. I also taught a second grader who I called " passing " because it was so close, I was asking her mother, " where's the autism? " I got to see it when she returned to school after she had experienced a grand mal seizure at home. Within a few weeks, she was back to " passing " again. > > > The numbness your son experiences is a normal response to the mercury mobilizing, which is what it does before it is excreted. ~~~ Then you advise to finish the round even after he complains of the numbness so the mercury cab be excreted through urine and stool? It is just moving to be dumped? I won't comment on raw goats milk because we haven't tried it. I butted in the debate because I was feeling a bit argumentative myself. What a weird parallel universe we live in when we have autism in our lives. There are so few people in my life who know what I'm talking about so I must find internet friends to debate with. I'm happy for anyone whose child has improved and/or recovered and I love and respect many children with autism who are far from recovered. I get so frustrated when I hear the stupid judgements some educators make about their students and the choices their parents make (or don't make.) I think that those of us that have to actually live this life and make these hard choices should stick together. When I say that, I'm including the families of fully recovered children because once you've lived it, it's like the Hotel California. " You can check out anytime you like, but you can never leave. " I bet that's why you still post here. Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2010 Report Share Posted July 5, 2010 > > > > ====> You brought up seizures in your former post and I wanted to say that 30 percent of our kids will develop seizures during their lifetime, those are kids who are not chelated as the figure was derived long before chelation came upon the scene. Chelation can make underlying seizure issues temporarily worse but chelation doesn't " cause " seizures. Seizures are more evidence of vaccine damage and mercury toxicity. ~~~The child I taught was not doing any biomed including chelation. She was so high functioning that when she went long periods being seizure free, I honestly could not pick her out as autistic. This after many years of early intervention through public/educational services. Her fraternal twin sister was completely NT. Some moms on my face book mentioned seizures while doing AC chelation. I think when your kid is prone to seizures, chemical changes as well as stressful situations can set them off pretty easily. > > Seizures, as well as everything else our kids are at higher risk for, like Bipolar Disorder, Depression and every autoimmune disorder know to man is WHY it matter what removes mercury and what doesn't. It may seem nicer to remain quiet and let people think milk removes mercury until they develop one or more of these conditions, but it doesn't seem nice to me. ~~~I see. I thought I saw a competition between people who had both recovered children from autism. That seemed strange to me because if my kid recovered and your kid recovered I'd be happy for both of us. You are concerned with others believing raw goat milk chelates mercury, which it doesn't. Heard. Do you understand that some people recover from autism without using AC chelation? For example, Raun Kaufman whose father wrote " Son-Rise " in the seventies. Some people have replicated that program with the same result, others have not been as successful. Maurice's kids recovered with ABA alone. There are lots of people who have tried AC chelation with their autistic children and not reached anywhere near the results you did. I can't take one child as proof that all autistic kids have mercury poisoning and will recover if they follow AC chelation. I am willing to try, but I can't just take your word for it, so I continue to read everything. When he was little we did hair tests and stool samples, but I'm not confident they were accurate. > > > ====>Yes, the mercury is just moving to be excreted. I can't believe I forgot this but after 's post I remembered that we also had hand problems, not so much numbness, but pain, about a year before we quit chelating. We massaged her hands for months and months every night before bed. And this was just not on round, but all the time. It was not horrible pain, she said it was like an ache. But after the pain left, her fine motor was spectacular and she learned to tie her shoes. > > So, yes, for sure, finish the round and do a lot more rounds.====> ~~~I am going to do that. We did the one round after several months of not doing any. We stopped early (2.5 days) because I was afraid of the numbness. Now I swear his language is less persevrative, less short responses designed to get me to go away and leave him be. I am encouraged to try again. It is much easier to implement this protocol in the summer anyway. > > As women I think we sometimes worry more about feelings, even over substance. And for the sake of our childrens' future, that doesn't seem productive to me and aren't we here primarily to accomplish something. I think we all need to put on our big girl pants and quit falling apart everytime someone doesn't agree with our idea. ~~~I don't think you need to protect Crystal's feelings. Her kid is recovered so I'm not too worried about her circumstances. I mistakenly thought you were comparing your children as to who was more recovered, and that seemed silly to me. I understand you a little better now. I agree that being able to eat whatever you want and not take supplements is a more complete medical recovery, but kudos to Crystal for her child's success too. I'd like to point out that I have had lunch with Raun Kaufman and he told me he eats Mcs too. As for my kid, we use some enzymes, but he eats like any other kid and I don't see reactions. As a special ed teacher, I don't see huge differences between kids on the GFCF diet and those that aren't. I regret to say, I've never seen a huge improvement in cognition or behavior after one of my students went on the diet either. Of course that doesn't mean that kid doesn't feel better, and I just can't tell. Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2010 Report Share Posted July 5, 2010 ----- Original Message ----- From: S ===>Right, no competition, and celebrating whatever makes the child better, but rather a continued discussion of what makes them less vulnerable beyond just getting " normal " behavior. If your goal is just normal behavior and you're not worried about what mercury can cause in the future, that is a parent's perogative. Having seen many Bipolar kids, who never exhibited any mercury toxicity symptoms before the start of their illness, I was much more worried about that and other physical ailments, like autoimmune diseases; diabetes, lupus, ms, alzheimers in later life. And Bipolar disorder may be the only thing I've seen that makes Autism look easy. Many of the not so completely recovered kids (even kids who just needed a multivitamin to maintain) I have known have gone on to develop mood disorders in adolescence and adolescence is tough enough, didn't want to go there. Because I think the goal is much more than normal behavior, it's a health issue. Yes, I've heard of spontaneously recovered kids, believe they exist, but the mercury's still there and again I just wasn't after " normal " behavior and she's NOT normal. She is calm and cooperative and pleasant, all the time, every single freaking moment. In a recent conference with her third grade teacher who went on and on about this, I almost found myself apologizing, was wondering if I should.... until the teacher said she reminded her of kids she taught 30 years ago; curious, motivated, respectful and just nice. And she has no learning disabilities, that makes her abnormal as it's pretty rare to find that today. Cure your kids and they will rule the world because it's a pretty sorry world out there with lots of compromised children. As to the issue of kids who have done AC chelation without complete recovery, yes I know it doesn't happen for everyone. But I don't understand the not trying; is like saying that unless she could go to Harvard then it's fruitless to teach her to read (this brilliant analogy from a friend of mine). I promised myself I would be happy if she learned to take care of herself and had one friend when we started and that I would be happy if that was all we got. I'm glad I didn't have to, but I swear I would have been satisfied. Let us know how it goes with the future rounds. > > > > ====> You brought up seizures in your former post and I wanted to say that 30 percent of our kids will develop seizures during their lifetime, those are kids who are not chelated as the figure was derived long before chelation came upon the scene. Chelation can make underlying seizure issues temporarily worse but chelation doesn't " cause " seizures. Seizures are more evidence of vaccine damage and mercury toxicity. ~~~The child I taught was not doing any biomed including chelation. She was so high functioning that when she went long periods being seizure free, I honestly could not pick her out as autistic. This after many years of early intervention through public/educational services. Her fraternal twin sister was completely NT. Some moms on my face book mentioned seizures while doing AC chelation. I think when your kid is prone to seizures, chemical changes as well as stressful situations can set them off pretty easily. > > Seizures, as well as everything else our kids are at higher risk for, like Bipolar Disorder, Depression and every autoimmune disorder know to man is WHY it matter what removes mercury and what doesn't. It may seem nicer to remain quiet and let people think milk removes mercury until they develop one or more of these conditions, but it doesn't seem nice to me. ~~~I see. I thought I saw a competition between people who had both recovered children from autism. That seemed strange to me because if my kid recovered and your kid recovered I'd be happy for both of us. You are concerned with others believing raw goat milk chelates mercury, which it doesn't. Heard. Do you understand that some people recover from autism without using AC chelation? For example, Raun Kaufman whose father wrote " Son-Rise " in the seventies. Some people have replicated that program with the same result, others have not been as successful. Maurice's kids recovered with ABA alone. There are lots of people who have tried AC chelation with their autistic children and not reached anywhere near the results you did. I can't take one child as proof that all autistic kids have mercury poisoning and will recover if they follow AC chelation. I am willing to try, but I can't just take your word for it, so I continue to read everything. When he was little we did hair tests and stool samples, but I'm not confident they were accurate. > > > ====>Yes, the mercury is just moving to be excreted. I can't believe I forgot this but after 's post I remembered that we also had hand problems, not so much numbness, but pain, about a year before we quit chelating. We massaged her hands for months and months every night before bed. And this was just not on round, but all the time. It was not horrible pain, she said it was like an ache. But after the pain left, her fine motor was spectacular and she learned to tie her shoes. > > So, yes, for sure, finish the round and do a lot more rounds.====> ~~~I am going to do that. We did the one round after several months of not doing any. We stopped early (2.5 days) because I was afraid of the numbness. Now I swear his language is less persevrative, less short responses designed to get me to go away and leave him be. I am encouraged to try again. It is much easier to implement this protocol in the summer anyway. > > As women I think we sometimes worry more about feelings, even over substance. And for the sake of our childrens' future, that doesn't seem productive to me and aren't we here primarily to accomplish something. I think we all need to put on our big girl pants and quit falling apart everytime someone doesn't agree with our idea. ~~~I don't think you need to protect Crystal's feelings. Her kid is recovered so I'm not too worried about her circumstances. I mistakenly thought you were comparing your children as to who was more recovered, and that seemed silly to me. I understand you a little better now. I agree that being able to eat whatever you want and not take supplements is a more complete medical recovery, but kudos to Crystal for her child's success too. I'd like to point out that I have had lunch with Raun Kaufman and he told me he eats Mcs too. As for my kid, we use some enzymes, but he eats like any other kid and I don't see reactions. As a special ed teacher, I don't see huge differences between kids on the GFCF diet and those that aren't. I regret to say, I've never seen a huge improvement in cognition or behavior after one of my students went on the diet either. Of course that doesn't mean that kid doesn't feel better, and I just can't tell. Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2010 Report Share Posted July 5, 2010 Your right.. My recovered kid that has no regression issues at all and can now eat and purge whatever toxins he comes into contact with .. is still full of mercury, You are completely right.. is that what you want to hear? I stand corrected because some lady of can't visualize a body actually working as it should .. not every kid who comes into contact with heavy metals becomes autistic.. obviously their bodies purge it without chelating DUH I have return my child to a normal balance and his body handles what ever it come into contact with or has in it system already just fine. But I don't have to convince you .. it's a waste of time to ALA is an antioxidant.. it chelates.. enough said . Open your mind lady You right I should do all sorts of expensive (not proven accurate hair tests to prove to some stranger that my son is not toxic) would you believe me if I did anyway.. you would just say I faked it because . in your head you already know there are substances yet to be indentified in raw milks .. wrap your head around taht From: [mailto: ] On Behalf Of Sent: Monday, July 05, 2010 8:32 AM Subject: Re: [ ] Re: I mean Cilantro chelation---Raw goat milk [ ] Re: I mean Cilantro chelation---Raw goat milk > > And yes, we can eat cookies with gluten :=) but I try not to. ~~~Hey if you can eat them, eat them. I think that is something a lot of parents on this list wish their kids could do. More than say, tie their own shoes. My son went off GFCF (and other allergies) when he responded to secretin, and then benefitted from enzymes. We are not going back either!!! > > In the beginning when I was tracking down reports and actually seeing what people considered " recovered " kids, I was shocked to say the least. So I don't put a lot of faith in people's internet accounts of recovery. My best example is the Mom who described her child as recovered, but he was nonverbal. I also don't believe videos as I had a kid with such a variable skill set from day to day, who you could film for 24 hours, let alone 5 minutes, on certain days and swear she was fine. Many have kids like this. ~~~Yes, my son is like that. Bystanders don't know he's autistic. I could make a convincing YouTube video if I wanted too, but he does still have some of the 'tism left in him. I also taught a second grader who I called " passing " because it was so close, I was asking her mother, " where's the autism? " I got to see it when she returned to school after she had experienced a grand mal seizure at home. Within a few weeks, she was back to " passing " again. > > > The numbness your son experiences is a normal response to the mercury mobilizing, which is what it does before it is excreted. ~~~ Then you advise to finish the round even after he complains of the numbness so the mercury cab be excreted through urine and stool? It is just moving to be dumped? I won't comment on raw goats milk because we haven't tried it. I butted in the debate because I was feeling a bit argumentative myself. What a weird parallel universe we live in when we have autism in our lives. There are so few people in my life who know what I'm talking about so I must find internet friends to debate with. I'm happy for anyone whose child has improved and/or recovered and I love and respect many children with autism who are far from recovered. I get so frustrated when I hear the stupid judgements some educators make about their students and the choices their parents make (or don't make.) I think that those of us that have to actually live this life and make these hard choices should stick together. When I say that, I'm including the families of fully recovered children because once you've lived it, it's like the Hotel California. " You can check out anytime you like, but you can never leave. " I bet that's why you still post here. Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2010 Report Share Posted July 5, 2010 I feel my child is healthier and less at risk now then during the ALA or cilantro.. soo , I feel comfortable. I feel my seizures are brought on by an autoimmune disorder that I have .. and I wish I started the goat milk sooner myself.. been almost a week now .. I haven't felt this good since before had my immune issues.. So I feel we are right on the right path for us I think our body .. despite what some may think, is dealing just fine with his heavy metals. much better than anything we have tried But thanks I'll keep doing what it working From: [mailto: ] On Behalf Of S Sent: Monday, July 05, 2010 10:52 AM Subject: [ ] Re: I mean Cilantro chelation---Raw goat milk > > > > ====> You brought up seizures in your former post and I wanted to say that 30 percent of our kids will develop seizures during their lifetime, those are kids who are not chelated as the figure was derived long before chelation came upon the scene. Chelation can make underlying seizure issues temporarily worse but chelation doesn't " cause " seizures. Seizures are more evidence of vaccine damage and mercury toxicity. ~~~The child I taught was not doing any biomed including chelation. She was so high functioning that when she went long periods being seizure free, I honestly could not pick her out as autistic. This after many years of early intervention through public/educational services. Her fraternal twin sister was completely NT. Some moms on my face book mentioned seizures while doing AC chelation. I think when your kid is prone to seizures, chemical changes as well as stressful situations can set them off pretty easily. > > Seizures, as well as everything else our kids are at higher risk for, like Bipolar Disorder, Depression and every autoimmune disorder know to man is WHY it matter what removes mercury and what doesn't. It may seem nicer to remain quiet and let people think milk removes mercury until they develop one or more of these conditions, but it doesn't seem nice to me. ~~~I see. I thought I saw a competition between people who had both recovered children from autism. That seemed strange to me because if my kid recovered and your kid recovered I'd be happy for both of us. You are concerned with others believing raw goat milk chelates mercury, which it doesn't. Heard. Do you understand that some people recover from autism without using AC chelation? For example, Raun Kaufman whose father wrote " Son-Rise " in the seventies. Some people have replicated that program with the same result, others have not been as successful. Maurice's kids recovered with ABA alone. There are lots of people who have tried AC chelation with their autistic children and not reached anywhere near the results you did. I can't take one child as proof that all autistic kids have mercury poisoning and will recover if they follow AC chelation. I am willing to try, but I can't just take your word for it, so I continue to read everything. When he was little we did hair tests and stool samples, but I'm not confident they were accurate. > > > ====>Yes, the mercury is just moving to be excreted. I can't believe I forgot this but after 's post I remembered that we also had hand problems, not so much numbness, but pain, about a year before we quit chelating. We massaged her hands for months and months every night before bed. And this was just not on round, but all the time. It was not horrible pain, she said it was like an ache. But after the pain left, her fine motor was spectacular and she learned to tie her shoes. > > So, yes, for sure, finish the round and do a lot more rounds.====> ~~~I am going to do that. We did the one round after several months of not doing any. We stopped early (2.5 days) because I was afraid of the numbness. Now I swear his language is less persevrative, less short responses designed to get me to go away and leave him be. I am encouraged to try again. It is much easier to implement this protocol in the summer anyway. > > As women I think we sometimes worry more about feelings, even over substance. And for the sake of our childrens' future, that doesn't seem productive to me and aren't we here primarily to accomplish something. I think we all need to put on our big girl pants and quit falling apart everytime someone doesn't agree with our idea. ~~~I don't think you need to protect Crystal's feelings. Her kid is recovered so I'm not too worried about her circumstances. I mistakenly thought you were comparing your children as to who was more recovered, and that seemed silly to me. I understand you a little better now. I agree that being able to eat whatever you want and not take supplements is a more complete medical recovery, but kudos to Crystal for her child's success too. I'd like to point out that I have had lunch with Raun Kaufman and he told me he eats Mcs too. As for my kid, we use some enzymes, but he eats like any other kid and I don't see reactions. As a special ed teacher, I don't see huge differences between kids on the GFCF diet and those that aren't. I regret to say, I've never seen a huge improvement in cognition or behavior after one of my students went on the diet either. Of course that doesn't mean that kid doesn't feel better, and I just can't tell. Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2010 Report Share Posted July 5, 2010 All the talk about cilantro and it just occurred to me (DUH) that I cook with cilantro all the time. What am I thinking? I guess that may be helping my son, as well as helping us? Come to think of it, I started using more spices (and that be one of them) after we went CF. We also started Vitamin C (2 - 3 times per day). So, I guess I *am* doing some form of chelating; I just never really thought about it. P.S. I do not know if I mentioned it or not already, but my son just noticed that there were houses behind us and was very anxious to tell his daddy, " Dada, (pointing towards the back yard) house 9as he signed it and smiled). " For us, that was a major accomplishment for him to come out of *his* world and realize there is an environment around him! > > > > > > > > ====> You brought up seizures in your former post and I wanted to say that > 30 percent of our kids will develop seizures during their lifetime, those > are kids who are not chelated as the figure was derived long before > chelation came upon the scene. Chelation can make underlying seizure issues > temporarily worse but chelation doesn't " cause " seizures. Seizures are more > evidence of vaccine damage and mercury toxicity. > > ~~~The child I taught was not doing any biomed including chelation. She was > so high functioning that when she went long periods being seizure free, I > honestly could not pick her out as autistic. This after many years of early > intervention through public/educational services. Her fraternal twin sister > was completely NT. > Some moms on my face book mentioned seizures while doing AC chelation. I > think when your kid is prone to seizures, chemical changes as well as > stressful situations can set them off pretty easily. > > > > > Seizures, as well as everything else our kids are at higher risk for, like > Bipolar Disorder, Depression and every autoimmune disorder know to man is > WHY it matter what removes mercury and what doesn't. It may seem nicer to > remain quiet and let people think milk removes mercury until they develop > one or more of these conditions, but it doesn't seem nice to me. > > ~~~I see. I thought I saw a competition between people who had both > recovered children from autism. That seemed strange to me because if my kid > recovered and your kid recovered I'd be happy for both of us. You are > concerned with others believing raw goat milk chelates mercury, which it > doesn't. Heard. > > Do you understand that some people recover from autism without using AC > chelation? For example, Raun Kaufman whose father wrote " Son-Rise " in the > seventies. Some people have replicated that program with the same result, > others have not been as successful. Maurice's kids recovered with > ABA alone. > > There are lots of people who have tried AC chelation with their autistic > children and not reached anywhere near the results you did. I can't take one > child as proof that all autistic kids have mercury poisoning and will > recover if they follow AC chelation. I am willing to try, but I can't just > take your word for it, so I continue to read everything. When he was little > we did hair tests and stool samples, but I'm not confident they were > accurate. > > > > > > > ====>Yes, the mercury is just moving to be excreted. I can't believe I > forgot this but after 's post I remembered that we also had hand > problems, not so much numbness, but pain, about a year before we quit > chelating. We massaged her hands for months and months every night before > bed. And this was just not on round, but all the time. It was not horrible > pain, she said it was like an ache. But after the pain left, her fine motor > was spectacular and she learned to tie her shoes. > > > > So, yes, for sure, finish the round and do a lot more rounds.====> > > ~~~I am going to do that. We did the one round after several months of not > doing any. We stopped early (2.5 days) because I was afraid of the numbness. > Now I swear his language is less persevrative, less short responses designed > to get me to go away and leave him be. I am encouraged to try again. It is > much easier to implement this protocol in the summer anyway. > > > > > As women I think we sometimes worry more about feelings, even over > substance. And for the sake of our childrens' future, that doesn't seem > productive to me and aren't we here primarily to accomplish something. I > think we all need to put on our big girl pants and quit falling apart > everytime someone doesn't agree with our idea. > > ~~~I don't think you need to protect Crystal's feelings. Her kid is > recovered so I'm not too worried about her circumstances. I mistakenly > thought you were comparing your children as to who was more recovered, and > that seemed silly to me. I understand you a little better now. I agree that > being able to eat whatever you want and not take supplements is a more > complete medical recovery, but kudos to Crystal for her child's success too. > I'd like to point out that I have had lunch with Raun Kaufman and he told me > he eats Mcs too. > > As for my kid, we use some enzymes, but he eats like any other kid and I > don't see reactions. As a special ed teacher, I don't see huge differences > between kids on the GFCF diet and those that aren't. I regret to say, I've > never seen a huge improvement in cognition or behavior after one of my > students went on the diet either. Of course that doesn't mean that kid > doesn't feel better, and I just can't tell. > Jen > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2010 Report Share Posted July 6, 2010 I wonder what the threshold is between cooking with cilantro and chelating? Will any amount chelate? I mean (for example), ALA is present in food so does that also mean we chelate when we eat meat? The original study came to fruition after a guy noticed people had more mercury in their urine after consuming " large amounts " of cilantro in a Vietnamese soup. Tablespoons? Love to know. I wouldn't juice it. I seem to be just fine cooking with it. Watching your child awaken is one of the best experiences. I hope you continue to see more. Pam > > > > > > > > > > > > ====> You brought up seizures in your former post and I wanted to say that > > 30 percent of our kids will develop seizures during their lifetime, those > > are kids who are not chelated as the figure was derived long before > > chelation came upon the scene. Chelation can make underlying seizure issues > > temporarily worse but chelation doesn't " cause " seizures. Seizures are more > > evidence of vaccine damage and mercury toxicity. > > > > ~~~The child I taught was not doing any biomed including chelation. She was > > so high functioning that when she went long periods being seizure free, I > > honestly could not pick her out as autistic. This after many years of early > > intervention through public/educational services. Her fraternal twin sister > > was completely NT. > > Some moms on my face book mentioned seizures while doing AC chelation. I > > think when your kid is prone to seizures, chemical changes as well as > > stressful situations can set them off pretty easily. > > > > > > > > Seizures, as well as everything else our kids are at higher risk for, like > > Bipolar Disorder, Depression and every autoimmune disorder know to man is > > WHY it matter what removes mercury and what doesn't. It may seem nicer to > > remain quiet and let people think milk removes mercury until they develop > > one or more of these conditions, but it doesn't seem nice to me. > > > > ~~~I see. I thought I saw a competition between people who had both > > recovered children from autism. That seemed strange to me because if my kid > > recovered and your kid recovered I'd be happy for both of us. You are > > concerned with others believing raw goat milk chelates mercury, which it > > doesn't. Heard. > > > > Do you understand that some people recover from autism without using AC > > chelation? For example, Raun Kaufman whose father wrote " Son-Rise " in the > > seventies. Some people have replicated that program with the same result, > > others have not been as successful. Maurice's kids recovered with > > ABA alone. > > > > There are lots of people who have tried AC chelation with their autistic > > children and not reached anywhere near the results you did. I can't take one > > child as proof that all autistic kids have mercury poisoning and will > > recover if they follow AC chelation. I am willing to try, but I can't just > > take your word for it, so I continue to read everything. When he was little > > we did hair tests and stool samples, but I'm not confident they were > > accurate. > > > > > > > > > > > ====>Yes, the mercury is just moving to be excreted. I can't believe I > > forgot this but after 's post I remembered that we also had hand > > problems, not so much numbness, but pain, about a year before we quit > > chelating. We massaged her hands for months and months every night before > > bed. And this was just not on round, but all the time. It was not horrible > > pain, she said it was like an ache. But after the pain left, her fine motor > > was spectacular and she learned to tie her shoes. > > > > > > So, yes, for sure, finish the round and do a lot more rounds.====> > > > > ~~~I am going to do that. We did the one round after several months of not > > doing any. We stopped early (2.5 days) because I was afraid of the numbness. > > Now I swear his language is less persevrative, less short responses designed > > to get me to go away and leave him be. I am encouraged to try again. It is > > much easier to implement this protocol in the summer anyway. > > > > > > > > As women I think we sometimes worry more about feelings, even over > > substance. And for the sake of our childrens' future, that doesn't seem > > productive to me and aren't we here primarily to accomplish something. I > > think we all need to put on our big girl pants and quit falling apart > > everytime someone doesn't agree with our idea. > > > > ~~~I don't think you need to protect Crystal's feelings. Her kid is > > recovered so I'm not too worried about her circumstances. I mistakenly > > thought you were comparing your children as to who was more recovered, and > > that seemed silly to me. I understand you a little better now. I agree that > > being able to eat whatever you want and not take supplements is a more > > complete medical recovery, but kudos to Crystal for her child's success too. > > I'd like to point out that I have had lunch with Raun Kaufman and he told me > > he eats Mcs too. > > > > As for my kid, we use some enzymes, but he eats like any other kid and I > > don't see reactions. As a special ed teacher, I don't see huge differences > > between kids on the GFCF diet and those that aren't. I regret to say, I've > > never seen a huge improvement in cognition or behavior after one of my > > students went on the diet either. Of course that doesn't mean that kid > > doesn't feel better, and I just can't tell. > > Jen > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2010 Report Share Posted July 6, 2010 I cannot fully answer the source versus supplement issue, but I do know it is better to obtain source from diet than try to supplement with any vitamin, etc... Not sure if these are the same or not? Thanks for the well wishes. It has literally brought tears to my eyes. I never realized he did not know there were other houses behind us. It seems he is noticing more and more (pool at the therapy place he goes for speech) AND he is actually coming to me and pointing these things out to me (trying to get my attention). I cannot kick myself so hard for not coming to this realization before now, because I did ask his pedicatricians about autism before. (One said if he has a friend, across the street, then he does not have autism. And that was the end of that. Of course, that doctor got his education in the Carribean!!! So much for researching the local doctors.) After much reading about PDD or Spectrum disorders, I have started to wonder about myself, my family, and my husband. many things are beginning to make perfect sense. In a way, I am angry because I think my family knows this little secret and kept it from me. OTOH, I feel sorry for them that they do not want to face what is wrong in the family and by not doing so, they cannot heal themselves. Nonetheless, my children and I are on the road to recovery. If my husband chooses to keep on his path, then so be it. > > > > > > > > > > > > > > > > ====> You brought up seizures in your former post and I wanted to say that > > > 30 percent of our kids will develop seizures during their lifetime, those > > > are kids who are not chelated as the figure was derived long before > > > chelation came upon the scene. Chelation can make underlying seizure issues > > > temporarily worse but chelation doesn't " cause " seizures. Seizures are more > > > evidence of vaccine damage and mercury toxicity. > > > > > > ~~~The child I taught was not doing any biomed including chelation. She was > > > so high functioning that when she went long periods being seizure free, I > > > honestly could not pick her out as autistic. This after many years of early > > > intervention through public/educational services. Her fraternal twin sister > > > was completely NT. > > > Some moms on my face book mentioned seizures while doing AC chelation. I > > > think when your kid is prone to seizures, chemical changes as well as > > > stressful situations can set them off pretty easily. > > > > > > > > > > > Seizures, as well as everything else our kids are at higher risk for, like > > > Bipolar Disorder, Depression and every autoimmune disorder know to man is > > > WHY it matter what removes mercury and what doesn't. It may seem nicer to > > > remain quiet and let people think milk removes mercury until they develop > > > one or more of these conditions, but it doesn't seem nice to me. > > > > > > ~~~I see. I thought I saw a competition between people who had both > > > recovered children from autism. That seemed strange to me because if my kid > > > recovered and your kid recovered I'd be happy for both of us. You are > > > concerned with others believing raw goat milk chelates mercury, which it > > > doesn't. Heard. > > > > > > Do you understand that some people recover from autism without using AC > > > chelation? For example, Raun Kaufman whose father wrote " Son-Rise " in the > > > seventies. Some people have replicated that program with the same result, > > > others have not been as successful. Maurice's kids recovered with > > > ABA alone. > > > > > > There are lots of people who have tried AC chelation with their autistic > > > children and not reached anywhere near the results you did. I can't take one > > > child as proof that all autistic kids have mercury poisoning and will > > > recover if they follow AC chelation. I am willing to try, but I can't just > > > take your word for it, so I continue to read everything. When he was little > > > we did hair tests and stool samples, but I'm not confident they were > > > accurate. > > > > > > > > > > > > > > > ====>Yes, the mercury is just moving to be excreted. I can't believe I > > > forgot this but after 's post I remembered that we also had hand > > > problems, not so much numbness, but pain, about a year before we quit > > > chelating. We massaged her hands for months and months every night before > > > bed. And this was just not on round, but all the time. It was not horrible > > > pain, she said it was like an ache. But after the pain left, her fine motor > > > was spectacular and she learned to tie her shoes. > > > > > > > > So, yes, for sure, finish the round and do a lot more rounds.====> > > > > > > ~~~I am going to do that. We did the one round after several months of not > > > doing any. We stopped early (2.5 days) because I was afraid of the numbness. > > > Now I swear his language is less persevrative, less short responses designed > > > to get me to go away and leave him be. I am encouraged to try again. It is > > > much easier to implement this protocol in the summer anyway. > > > > > > > > > > > As women I think we sometimes worry more about feelings, even over > > > substance. And for the sake of our childrens' future, that doesn't seem > > > productive to me and aren't we here primarily to accomplish something. I > > > think we all need to put on our big girl pants and quit falling apart > > > everytime someone doesn't agree with our idea. > > > > > > ~~~I don't think you need to protect Crystal's feelings. Her kid is > > > recovered so I'm not too worried about her circumstances. I mistakenly > > > thought you were comparing your children as to who was more recovered, and > > > that seemed silly to me. I understand you a little better now. I agree that > > > being able to eat whatever you want and not take supplements is a more > > > complete medical recovery, but kudos to Crystal for her child's success too. > > > I'd like to point out that I have had lunch with Raun Kaufman and he told me > > > he eats Mcs too. > > > > > > As for my kid, we use some enzymes, but he eats like any other kid and I > > > don't see reactions. As a special ed teacher, I don't see huge differences > > > between kids on the GFCF diet and those that aren't. I regret to say, I've > > > never seen a huge improvement in cognition or behavior after one of my > > > students went on the diet either. Of course that doesn't mean that kid > > > doesn't feel better, and I just can't tell. > > > Jen > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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