We are using Respen-A patch

[Guest guest]

Hello group,

Our PDD-NOS daughter is 11.  We decided to give the patch a try and started on

Thanksgiving day.  We've seen small improvements in behavior, though no

fireworks or Eureka! moments.  She is slightly more compliant and doesn't seem

to be as resistant to tasks.  Every now and then we'll get an appropriate and

rather interesting question, for example a week ago she asked me " what does

perhaps mean? "   This was a rare gem. 

It hasn't touched her OCD tendencies and her anxiety is still quite high. 

However, small improvements are nonetheless improvements, so we have decided to

continue using it.  I hasten to say that our daughter is a very tough case and

does not respond favorably to most interventions- your kid/s might respond

better or more quickly.

I will caution that you have to supplement with quite a lot of calcium.  Also,

omega fatty acids are contraindicated, so no fish oil.  Finally, your kid needs

to eat at least one serving of meat (meat protein) daily.  I would suggest

emailing the pharmacy and telling them what your kid is currently taking.  You

might need to make some adjustments.

 

In my opinion, it is worth at least a trial of a few months.

Feel free to email me off list if you like.

Wishing you all the best,

Aliza

 

 

Need a sock monkey?http://www.etsy.com/shop/Americansockmonkey 

 

 

Please visit my Avon store:

www.youravon.com/aratterree

[Guest guest]

Thanks for posting. We are going to do a trial with my younger son who is a

little more severe than my older son. We are thinking it will be easier to see

results on a more severe child. Our boys are pretty good responders. They

responded well to the GFCF diet and are responding well to chelation. Hopefully

they will respond well to this. My hope is that it will make the next two years

or more of chelation a little more bearable for them and us.

TJ

________________________________

From: Aliza Ratterree <alizaratterree@...>

Sent: Thu, January 14, 2010 5:03:40 AM

Subject: [ ] We are using Respen-A patch

 

Hello group,

Our PDD-NOS daughter is 11.  We decided to give the patch a try and started on

Thanksgiving day.  We've seen small improvements in behavior, though no

fireworks or Eureka! moments.  She is slightly more compliant and doesn't

seem to be as resistant to tasks.  Every now and then we'll get an appropriate

and rather interesting question, for example a week ago she asked me " what does

perhaps mean? "   This was a rare gem. 

It hasn't touched her OCD tendencies and her anxiety is still quite high. 

However, small improvements are nonetheless improvements, so we have decided to

continue using it.  I hasten to say that our daughter is a very tough case and

does not respond favorably to most interventions- your kid/s might respond

better or more quickly.

I will caution that you have to supplement with quite a lot of calcium.  Also,

omega fatty acids are contraindicated, so no fish oil.  Finally, your kid needs

to eat at least one serving of meat (meat protein) daily.  I would suggest

emailing the pharmacy and telling them what your kid is currently taking.  You

might need to make some adjustments.

 

In my opinion, it is worth at least a trial of a few months.

Feel free to email me off list if you like.

Wishing you all the best,

Aliza

 

 

Need a sock monkey?http://www.etsy. com/shop/ Americansockmonk ey 

 

 

Please visit my Avon store:

www.youravon. com/aratterree

[Guest guest]

We started using the patch last week. We noticed some increased energy and some

increase in speech.

There is some increase in stimming. He likes to hold his hands in front of

himself and look at them.

The biggest issue is compliance. He is still very flexible at just under 4 years

old and can reach every part of his body, even in the middle of his upper back.

He has some sensory issues and doesn't like the way it feels on his skin.

Similar to a band-aid.

I think we'll keep trying.

TJ

________________________________

From: Aliza Ratterree <alizaratterree@...>

Sent: Thu, January 14, 2010 5:03:40 AM

Subject: [ ] We are using Respen-A patch

 

Hello group,

Our PDD-NOS daughter is 11.  We decided to give the patch a try and started on

Thanksgiving day.  We've seen small improvements in behavior, though no

fireworks or Eureka! moments.  She is slightly more compliant and doesn't

seem to be as resistant to tasks.  Every now and then we'll get an appropriate

and rather interesting question, for example a week ago she asked me " what does

perhaps mean? "   This was a rare gem. 

It hasn't touched her OCD tendencies and her anxiety is still quite high. 

However, small improvements are nonetheless improvements, so we have decided to

continue using it.  I hasten to say that our daughter is a very tough case and

does not respond favorably to most interventions- your kid/s might respond

better or more quickly.

I will caution that you have to supplement with quite a lot of calcium.  Also,

omega fatty acids are contraindicated, so no fish oil.  Finally, your kid needs

to eat at least one serving of meat (meat protein) daily.  I would suggest

emailing the pharmacy and telling them what your kid is currently taking.  You

might need to make some adjustments.

 

In my opinion, it is worth at least a trial of a few months.

Feel free to email me off list if you like.

Wishing you all the best,

Aliza

 

 

Need a sock monkey?http://www.etsy. com/shop/ Americansockmonk ey 

 

 

Please visit my Avon store:

www.youravon. com/aratterree

[Guest guest]

Our rx should be here soon. I am very excited about trying this. Our son is also

a tough case and reacts adversely to most treatments and VERY chemically

sensitive. Our DAN said a side effect is hyperactivity, which I am not looking

forward to (as he already has alot of that) but told us to start with 1/2 a

patch for a few days. Anyone else been told that? Glad to hear others are seeing

some positive results!! Jill

>

> We started using the patch last week. We noticed some increased energy and

some increase in speech.

> There is some increase in stimming. He likes to hold his hands in front of

himself and look at them.

> The biggest issue is compliance. He is still very flexible at just under 4

years old and can reach every part of his body, even in the middle of his upper

back. He has some sensory issues and doesn't like the way it feels on his skin.

Similar to a band-aid.

> I think we'll keep trying.

> TJ

>

>

>

>

> ________________________________

> From: Aliza Ratterree <alizaratterree@...>

>

> Sent: Thu, January 14, 2010 5:03:40 AM

> Subject: [ ] We are using Respen-A patch

>

>  

> Hello group,

>

> Our PDD-NOS daughter is 11.  We decided to give the patch a try and started

on Thanksgiving day.  We've seen small improvements in behavior, though no

fireworks or Eureka! moments.  She is slightly more compliant and doesn't

seem to be as resistant to tasks.  Every now and then we'll get an appropriate

and rather interesting question, for example a week ago she asked me " what does

perhaps mean? "   This was a rare gem. 

>

> It hasn't touched her OCD tendencies and her anxiety is still quite high. 

However, small improvements are nonetheless improvements, so we have decided to

continue using it.  I hasten to say that our daughter is a very tough case and

does not respond favorably to most interventions- your kid/s might respond

better or more quickly.

>

> I will caution that you have to supplement with quite a lot of calcium. 

Also, omega fatty acids are contraindicated, so no fish oil.  Finally, your kid

needs to eat at least one serving of meat (meat protein) daily.  I would

suggest emailing the pharmacy and telling them what your kid is currently

taking.  You might need to make some adjustments.

>  

> In my opinion, it is worth at least a trial of a few months.

>

> Feel free to email me off list if you like.

>

> Wishing you all the best,

>

> Aliza

>  

>  

>

>

>

> Need a sock monkey?http://www.etsy. com/shop/ Americansockmonk ey 

>  

>  

> Please visit my Avon store:

> www.youravon. com/aratterree

>

>

[Guest guest]

We are using a 1/2 because of the stimming. Seems to be enough. Wish there was

another way to administer besides a patch.

TJ

________________________________

From: Jill <jilypil@...>

Sent: Wed, February 10, 2010 12:13:08 PM

Subject: [ ] Re: We are using Respen-A patch

 

Our rx should be here soon. I am very excited about trying this. Our son is also

a tough case and reacts adversely to most treatments and VERY chemically

sensitive. Our DAN said a side effect is hyperactivity, which I am not looking

forward to (as he already has alot of that) but told us to start with 1/2 a

patch for a few days. Anyone else been told that? Glad to hear others are seeing

some positive results!! Jill

>

> We started using the patch last week. We noticed some increased energy and

some increase in speech.

> There is some increase in stimming. He likes to hold his hands in front of

himself and look at them.

> The biggest issue is compliance. He is still very flexible at just under 4

years old and can reach every part of his body, even in the middle of his upper

back. He has some sensory issues and doesn't like the way it feels on his skin.

Similar to a band-aid.

> I think we'll keep trying.

> TJ

>

>

>

>

> ____________ _________ _________ __

> From: Aliza Ratterree <alizaratterree@ ...>

>

> Sent: Thu, January 14, 2010 5:03:40 AM

> Subject: [ ] We are using Respen-A patch

>

>  

> Hello group,

>

> Our PDD-NOS daughter is 11.  We decided to give the patch a try and

started on Thanksgiving day.  We've seen small improvements in behavior,

though no fireworks or Eureka! moments.  She is slightly more compliant

and doesn't seem to be as resistant to tasks.  Every now and then we'll get

an appropriate and rather interesting question, for example a week ago she asked

me " what does perhaps mean? "   This was a rare gem. 

>

> It hasn't touched her OCD tendencies and her anxiety is still quite

high.  However, small improvements are nonetheless improvements, so we

have decided to continue using it.  I hasten to say that our daughter is a

very tough case and does not respond favorably to most interventions- your kid/s

might respond better or more quickly.

>

> I will caution that you have to supplement with quite a lot of calcium. 

Also, omega fatty acids are contraindicated, so no fish oil.  Finally, your

kid needs to eat at least one serving of meat (meat protein) daily.  I would

suggest emailing the pharmacy and telling them what your kid is currently

taking.  You might need to make some adjustments.

>  

> In my opinion, it is worth at least a trial of a few months.

>

> Feel free to email me off list if you like.

>

> Wishing you all the best,

>

> Aliza

>  

>  

>

>

>

> Need a sock monkey?http://www.etsy. com/shop/ Americansockmonk ey 

>  

>  

> Please visit my Avon store:

> www.youravon. com/aratterree

>

>

[Guest guest]

Jill. Have you tried taurine for the chemical sensitivity?

On Feb 10, 2010, at 2:13 PM, Jill wrote:

> Our rx should be here soon. I am very excited about trying this. Our son is

also a tough case and reacts adversely to most treatments and VERY chemically

sensitive. Our DAN said a side effect is hyperactivity, which I am not looking

forward to (as he already has alot of that) but told us to start with 1/2 a

patch for a few days. Anyone else been told that? Glad to hear others are seeing

some positive results!! Jill

>

>

> >

> > We started using the patch last week. We noticed some increased energy and

some increase in speech.

> > There is some increase in stimming. He likes to hold his hands in front of

himself and look at them.

> > The biggest issue is compliance. He is still very flexible at just under 4

years old and can reach every part of his body, even in the middle of his upper

back. He has some sensory issues and doesn't like the way it feels on his skin.

Similar to a band-aid.

> > I think we'll keep trying.

> > TJ

> >

> >

> >

> >

> > ________________________________

> > From: Aliza Ratterree <alizaratterree@...>

> >

> > Sent: Thu, January 14, 2010 5:03:40 AM

> > Subject: [ ] We are using Respen-A patch

> >

> > Â

> > Hello group,

> >

> > Our PDD-NOS daughter is 11. We decided to give the patch a try and

started on Thanksgiving day. We've seen small improvements in behavior,

though no fireworks or Eureka! moments.  She is slightly more compliant and

doesn't seem to be as resistant to tasks. Every now and then we'll get an

appropriate and rather interesting question, for example a week ago she asked me

" what does perhaps mean? " Â This was a rare gem.Â

> >

> > It hasn't touched her OCD tendencies and her anxiety is still quite high.Â

However, small improvements are nonetheless improvements, so we have decided to

continue using it. I hasten to say that our daughter is a very tough case and

does not respond favorably to most interventions- your kid/s might respond

better or more quickly.

> >

> > I will caution that you have to supplement with quite a lot of calcium.Â

Also, omega fatty acids are contraindicated, so no fish oil. Finally, your kid

needs to eat at least one serving of meat (meat protein) daily. I would

suggest emailing the pharmacy and telling them what your kid is currently

taking. You might need to make some adjustments.

> > Â

> > In my opinion, it is worth at least a trial of a few months.

> >

> > Feel free to email me off list if you like.

> >

> > Wishing you all the best,

> >

> > Aliza

> > Â

> > Â

> >

> >

> >

> > Need a sock monkey?http://www.etsy. com/shop/ Americansockmonk eyÂ

> > Â

> > Â

> > Please visit my Avon store:

> > www.youravon. com/aratterree

> >

> >

[Guest guest]

I have not heard of that...Do you know what a starting dose should be for a 60lb

child? I'll definately check into it! Thanks!! Jill

>

> > Our rx should be here soon. I am very excited about trying this. Our son is

also a tough case and reacts adversely to most treatments and VERY chemically

sensitive. Our DAN said a side effect is hyperactivity, which I am not looking

forward to (as he already has alot of that) but told us to start with 1/2 a

patch for a few days. Anyone else been told that? Glad to hear others are seeing

some

[Guest guest]

Actually Andy mentioned Oil of Oregano for chemical sensitivity too. I don't

know the starting doses. I begin s...l....o....w and low with EVERYTHING I TRY.

On Feb 12, 2010, at 12:02 PM, Jill wrote:

> I have not heard of that...Do you know what a starting dose should be for a

60lb child? I'll definately check into it! Thanks!! Jill

>

>

> >

> > > Our rx should be here soon. I am very excited about trying this. Our son

is also a tough case and reacts adversely to most treatments and VERY chemically

sensitive. Our DAN said a side effect is hyperactivity, which I am not looking

forward to (as he already has alot of that) but told us to start with 1/2 a

patch for a few days. Anyone else been told that? Glad to hear others are seeing

some

>

>