Re: Andy/Others, Help! I think my child had a seizure.

[Guest guest]

We also changed brands of PharmaGaba this week from Thorne to Natural Factors.

>

> This happened a little while ago. My wife walked into the room where my son

was laying on a bean bag watching his favorite Elmo movie. He was faced away

eyes open and unresponsive. She called his name, went over to him, got in his

face and loudly called his name and told him you have to look at me. He then

looked in her direction. His eyes then rapidly went back and forth quickly for a

few seconds and then he apparently was back with us. I was not in the room until

after this. When I came in the room, he was lethargic, had a racing heart, felt

hot and feverish. All he wanted to do then was sleep. It scared us really bad.

>

> Was this a seizure?

>

> The special ed teacher at school mentioned on Monday that he fell a few times,

which they found unusual. Now I am wondering if these were seizures?

>

> I am very worried.

>

> We've done 17 rounds of AC DMSA chelation and we just finished round 14 of

ALA/DMSA chelation this past weekend. I assume these must be related.

> We also had been giving about 1000mg/day of acetyl-l-carnitine, which we

dropped about a week ago.

>

[Guest guest]

drewbaxter69 wrote:

>

> This happened a little while ago. My wife walked into the room where

> my son was laying on a bean bag watching his favorite Elmo movie. He

> was faced away eyes open and unresponsive. She called his name, went

> over to him, got in his face and loudly called his name and told him

> you have to look at me. He then looked in her direction. His eyes then

> rapidly went back and forth quickly for a few seconds and then he

> apparently was back with us. I was not in the room until after this.

> When I came in the room, he was lethargic, had a racing heart, felt

> hot and feverish. All he wanted to do then was sleep. It scared us

> really bad.

>

> Was this a seizure?

>

> The special ed teacher at school mentioned on Monday that he fell a

> few times, which they found unusual. Now I am wondering if these were

> seizures?

>

> I am very worried.

>

And rightfully so. A brain scan seems in order. Get the actual result

for your files, not just what your doctor will tell you.

>

> We've done 17 rounds of AC DMSA chelation and we just finished round

> 14 of ALA/DMSA chelation this past weekend. I assume these must be

> related.

> We also had been giving about 1000mg/day of acetyl-l-carnitine, which

> we dropped about a week ago.

>

>

[Guest guest]

Scratch that about the PharmaGABA. He has not had the new brand of PharmaGABA

yet.

>

> This happened a little while ago. My wife walked into the room where my son

was laying on a bean bag watching his favorite Elmo movie. He was faced away

eyes open and unresponsive. She called his name, went over to him, got in his

face and loudly called his name and told him you have to look at me. He then

looked in her direction. His eyes then rapidly went back and forth quickly for a

few seconds and then he apparently was back with us. I was not in the room until

after this. When I came in the room, he was lethargic, had a racing heart, felt

hot and feverish. All he wanted to do then was sleep. It scared us really bad.

>

> Was this a seizure?

>

> The special ed teacher at school mentioned on Monday that he fell a few times,

which they found unusual. Now I am wondering if these were seizures?

>

> I am very worried.

>

> We've done 17 rounds of AC DMSA chelation and we just finished round 14 of

ALA/DMSA chelation this past weekend. I assume these must be related.

> We also had been giving about 1000mg/day of acetyl-l-carnitine, which we

dropped about a week ago.

>

[Guest guest]

He's been on Fluconazole for a couple of weeks. He got one of his 2 daily doses

about 20 minutes prior.

>

> This happened a little while ago. My wife walked into the room where my son

was laying on a bean bag watching his favorite Elmo movie. He was faced away

eyes open and unresponsive. She called his name, went over to him, got in his

face and loudly called his name and told him you have to look at me. He then

looked in her direction. His eyes then rapidly went back and forth quickly for a

few seconds and then he apparently was back with us. I was not in the room until

after this. When I came in the room, he was lethargic, had a racing heart, felt

hot and feverish. All he wanted to do then was sleep. It scared us really bad.

>

> Was this a seizure?

>

> The special ed teacher at school mentioned on Monday that he fell a few times,

which they found unusual. Now I am wondering if these were seizures?

>

> I am very worried.

>

> We've done 17 rounds of AC DMSA chelation and we just finished round 14 of

ALA/DMSA chelation this past weekend. I assume these must be related.

> We also had been giving about 1000mg/day of acetyl-l-carnitine, which we

dropped about a week ago.

>

[Guest guest]

This does sound like a seizure. In the book, Healing and Preventing Autism, Dr

Kartzinel has a chart with symptoms pertaining to different types of seizures.

You may want to take a look at it.

________________________________

From: drewbaxter69 <drewbaxter@...>

Sent: Wed, March 31, 2010 6:17:04 PM

Subject: [ ] Re: Andy/Others, Help! I think my child had a seizure.

 

Scratch that about the PharmaGABA. He has not had the new brand of PharmaGABA

yet.

>

> This happened a little while ago. My wife walked into the room where my son

was laying on a bean bag watching his favorite Elmo movie. He was faced away

eyes open and unresponsive. She called his name, went over to him, got in his

face and loudly called his name and told him you have to look at me. He then

looked in her direction. His eyes then rapidly went back and forth quickly for a

few seconds and then he apparently was back with us. I was not in the room until

after this. When I came in the room, he was lethargic, had a racing heart, felt

hot and feverish. All he wanted to do then was sleep. It scared us really bad.

>

> Was this a seizure?

>

> The special ed teacher at school mentioned on Monday that he fell a few times,

which they found unusual. Now I am wondering if these were seizures?

>

> I am very worried.

>

> We've done 17 rounds of AC DMSA chelation and we just finished round 14 of

ALA/DMSA chelation this past weekend. I assume these must be related.

> We also had been giving about 1000mg/day of acetyl-l-carnitine, which we

dropped about a week ago.

>

[Guest guest]

Just to recap for Andy...

Andy,

We've done 17 rounds of DMSA only and 14 rounds of DMSA/ALA. Dosage has settled

at 15mg/15mg. My son has been showing some small but noticeable gains, which has

encouraged us to keep going. My son is 6.4yo and weighs 44lbs. We did a round

last weekend, as we've been doing every weekend. My son showed some improvements

at his T-ball game on Tuesday. His teachers at school noticed some excessive

clumsiness which caused him to fall 3 times at school on Tuesday. On Wednesday,

he fell again 1 more time. Other than that, he's been doing fine. On Wednesday

evening, my son had what I would describe as an absence seizure. My wife and I

were not in the room and my wife came in the room and found my son motionless

and staring into space. Upon him " coming to " , he was very lethargic and sleepy.

We've not seen an event like this before ad seizures have never been an issue.

Some items to note: My son had been on 120mg/day of Fluconazole suspension for

about 3 weeks. This shouldn't be a big deal since we did a 30 day round back in

the fall. He got a dose about 20-25 minutes before the event. My son also had

swim team practice 2 hours before. We dropped our round of Diflucan after " the

event " . He's been fine since. Also, we dropped Acetyl-l-carnitine(1000mg/day)

and Ginkgo(60mg/day) a week and a half prior, due to hand flapping. My son still

takes Vinpocetine(15mg/day).

I am on the fence on whether to continue with another round this weekend. I

think it's very important to continue, but I'm wondering if chelation was

causing the unexpected seizure. What's your opinion about the relation?

I can't help but think low body temperature and low blood sugar combined with

the fluconizole and exposure to Elmo on the 50 " flatscreen combined to create

the " perfect storm " and that metal mobilization was not a factor. It's only a

guess though.

Would you forge ahead with another round this weekend or take a week off? Your

opinion is respected and appreciated.

PS: We think a similar event may have happened on July 4th at age 2.5, or it

could have been heat exhaustion.

My son had an MRI and regular EEG a couple of years ago, just to " check it off

my list " . They revealed no irregularities.

>

> This happened a little while ago. My wife walked into the room where my son

was laying on a bean bag watching his favorite Elmo movie. He was faced away

eyes open and unresponsive. She called his name, went over to him, got in his

face and loudly called his name and told him you have to look at me. He then

looked in her direction. His eyes then rapidly went back and forth quickly for a

few seconds and then he apparently was back with us. I was not in the room until

after this. When I came in the room, he was lethargic, had a racing heart, felt

hot and feverish. All he wanted to do then was sleep. It scared us really bad.

>

> Was this a seizure?

>

> The special ed teacher at school mentioned on Monday that he fell a few times,

which they found unusual. Now I am wondering if these were seizures?

>

> I am very worried.

>

> We've done 17 rounds of AC DMSA chelation and we just finished round 14 of

ALA/DMSA chelation this past weekend. I assume these must be related.

> We also had been giving about 1000mg/day of acetyl-l-carnitine, which we

dropped about a week ago.

>

[Guest guest]

>

> This happened a little while ago. My wife walked into the room where my son

was laying on a bean bag watching his favorite Elmo movie. He was faced away

eyes open and unresponsive. She called his name, went over to him, got in his

face and loudly called his name and told him you have to look at me. He then

looked in her direction. His eyes then rapidly went back and forth quickly for a

few seconds and then he apparently was back with us. I was not in the room until

after this. When I came in the room, he was lethargic, had a racing heart, felt

hot and feverish. All he wanted to do then was sleep. It scared us really bad.

>

> Was this a seizure?

It sounds generally consistent with some sort of seizure. You could discuss it

with a doctor or especially a neurologist and see if they want to make a

diagnosis or get an EEG done.

> The special ed teacher at school mentioned on Monday that he fell a few times,

which they found unusual. Now I am wondering if these were seizures?

Just falling down is not a common type of seizure and doesn't sound really like

what you describe above, but there is infinite detail that might be missing.

The most helpful thing is to get to a doc and if appropriate (which is highly

likely) get an EEG and/or try an antiseizure medication.

Even if they tell you the EEG is 'normal,' get a copy of the written

interpretive report.

>

> I am very worried.

>

> We've done 17 rounds of AC DMSA chelation and we just finished round 14 of

ALA/DMSA chelation this past weekend. I assume these must be related.

Not necessarily, though possibly.

> We also had been giving about 1000mg/day of acetyl-l-carnitine, which we

dropped about a week ago.

Before these events? If so, reintroduce it.

Andy

http://www.noamalgam.com/index.html

Amalgam Illness: Diagnosis and Treatment

http://www.noamalgam.com/hairtestbook.html

Hair Test Interpretation: Finding Hidden Toxicities

http://www.noamalgam.com/nourishinghope.html

Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children

http://www.noamalgam.com/biologicaltreatments.html

Biological Treatments for Autism and PDD

[Guest guest]

I appreciate it Andy. We took this weekend off and I'm already working on

getting an EEG set up for this week, so we can get back to chelating next

weekend.

> >

> > This happened a little while ago. My wife walked into the room where my son

was laying on a bean bag watching his favorite Elmo movie. He was faced away

eyes open and unresponsive. She called his name, went over to him, got in his

face and loudly called his name and told him you have to look at me. He then

looked in her direction. His eyes then rapidly went back and forth quickly for a

few seconds and then he apparently was back with us. I was not in the room until

after this. When I came in the room, he was lethargic, had a racing heart, felt

hot and feverish. All he wanted to do then was sleep. It scared us really bad.

> >

> > Was this a seizure?

>

> It sounds generally consistent with some sort of seizure. You could discuss

it with a doctor or especially a neurologist and see if they want to make a

diagnosis or get an EEG done.

>

> > The special ed teacher at school mentioned on Monday that he fell a few

times, which they found unusual. Now I am wondering if these were seizures?

>

> Just falling down is not a common type of seizure and doesn't sound really

like what you describe above, but there is infinite detail that might be

missing.

>

> The most helpful thing is to get to a doc and if appropriate (which is highly

likely) get an EEG and/or try an antiseizure medication.

>

> Even if they tell you the EEG is 'normal,' get a copy of the written

interpretive report.

> >

> > I am very worried.

> >

> > We've done 17 rounds of AC DMSA chelation and we just finished round 14 of

ALA/DMSA chelation this past weekend. I assume these must be related.

>

> Not necessarily, though possibly.

>

> > We also had been giving about 1000mg/day of acetyl-l-carnitine, which we

dropped about a week ago.

>

> Before these events? If so, reintroduce it.

>

> Andy

>

> http://www.noamalgam.com/index.html

> Amalgam Illness: Diagnosis and Treatment

>

> http://www.noamalgam.com/hairtestbook.html

> Hair Test Interpretation: Finding Hidden Toxicities

>

> http://www.noamalgam.com/nourishinghope.html

> Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children

>

> http://www.noamalgam.com/biologicaltreatments.html

> Biological Treatments for Autism and PDD

>