Re: Curebie (Anti-Cure) Social Problem ( Young)

[Guest guest]

Wow , thank you for the insight. I see exactly what you are saying and as

the parent of a 7 year old with autism, I haven't gotten to the point of

thinking of how those things affect an adult with autism.

The failure of the medical community to make proper diagnoses and treatment

available is synonymous with anti-cure attempts and definitely affecting us all

on a large scale:

It is affecting the cause of autism from being exposed and communicated to the

public.

It is keeping children from being treated for the root cause of their ailment at

a young age.

It is affecting school/teacher compliance on effective treatments such as

dietary intervention.

It is affecting the way children and adults with autism are treated by society

(ignorance of what causes symptoms).

It is affecting relationships between caregivers of people with autism and their

extended family and friends.

It is causing oodles of money to be wasted on behavior modification.

It is effectively confusing the public into thinking there are several causes of

autism.

It is fueling the money-making business of " finding a cure " by continual funding

genetic and other useless studies.

AND adding what you have said:

It is affecting perceptions of necessity or usefulness of adult work programs

for the disabled.

I have to go, I'd like to add more to this later.

Liz

> > > >

> > > > I was wondering if it's ok to talk about cure vs. anti-cure autism

social problems here. The ideas put forth on this forum I have come to

understand are not liked by some. However despite having an ASD myself I have

not taken a side and when I try to think openly to figure things out I am

censored in a anti-cure forum. I think of social problems as science

problems in part.

> > > >

> > > > Can anyone share their opinion?

> > > >

> > > > When I first posted here as an autism self-advocate in introduction one

person called me an ASPIE and an ASAN. Please know my perceptions of these

things were at first not even aware of ASAN and never quite liking titling

myself as anything though others have the freedom to.

> > > >

> > > > Young

> > > >

> > >

> >

>

[Guest guest]

I don't know what causes autism. I do not know much about research. I do not

know much other then about myself and what's important for my quality of life

which happen to be in general similar to other people.

" It is affecting perceptions of necessity or usefulness of adult work programs

for the disabled. "

I have seldom heard an argue against work programs other then people calling

participants retarded and a waste of tax payer money in attempt. I know that the

services I get I have used highly constructivly to employ myself and others with

disabilities. I have regular people that are employed by me in a center. I work

with some of them outside of the day program and they sell candles and other

products we make to local businesses and individuals. We goto events and pass

out 1,000+ samples and now I am about to do 25,000 magnets and samples in an

area of 100,000 people.

I would argue that programs should exist to train us, help familiarize us,

provide opportunity to us and be positive with us. I am surrounded by positivity

even when I get upset. I get upset getting frustrated with wanting to achieve

more and get determined even more to reach for what has not been accomplished

before. I am mad, I am determined and these supports that take me out of the

house balance me out. I would feel very threatened and devastated if what I do

get to help me is taken away from me.

Young

>

> Wow , thank you for the insight. I see exactly what you are saying and

as the parent of a 7 year old with autism, I haven't gotten to the point of

thinking of how those things affect an adult with autism.

>

> The failure of the medical community to make proper diagnoses and treatment

available is synonymous with anti-cure attempts and definitely affecting us all

on a large scale:

>

> It is affecting the cause of autism from being exposed and communicated to the

public.

>

> It is keeping children from being treated for the root cause of their ailment

at a young age.

>

> It is affecting school/teacher compliance on effective treatments such as

dietary intervention.

>

> It is affecting the way children and adults with autism are treated by society

(ignorance of what causes symptoms).

>

> It is affecting relationships between caregivers of people with autism and

their extended family and friends.

>

> It is causing oodles of money to be wasted on behavior modification.

>

> It is effectively confusing the public into thinking there are several causes

of autism.

>

> It is fueling the money-making business of " finding a cure " by continual

funding genetic and other useless studies.

>

> AND adding what you have said:

>

> It is affecting perceptions of necessity or usefulness of adult work programs

for the disabled.

>

>

> I have to go, I'd like to add more to this later.

>

> Liz

[Guest guest]

Well, you probably already know this, but these disability work programs are

heavily supported by government funding and grants. I was offered a position

supervising people who train disabled workers like you. This position would

have required meeting a quota of outside placements of the disabled (seeking out

opportunities for them) as well as periodically justifying the necessity of the

in-house training/work program.

The person who offered me the position told me that the in-house program was

always being threatened to be shut down by the government due to the workers'

" lack of progression " , basically. He argued that this program gave the

lower-functioning people purpose and gratification even if they were unable to

perform services to the public. He is absolutely right.

I am sorry that the stress of instability of these kinds of programs has fallen

on you. I hope that you will keep advocating for those who are in your shoes.

You have an army of advocates in your corner, we are just several years behind.

I think that it is a good idea to educate people on groups like ours so that we

are aware of this situation and can keep our eyes open for opportunities to

effect changes to these programs to make them more stable.

Liz

> >

> > Wow , thank you for the insight. I see exactly what you are saying

and as the parent of a 7 year old with autism, I haven't gotten to the point of

thinking of how those things affect an adult with autism.

> >

> > The failure of the medical community to make proper diagnoses and treatment

available is synonymous with anti-cure attempts and definitely affecting us all

on a large scale:

> >

> > It is affecting the cause of autism from being exposed and communicated to

the public.

> >

> > It is keeping children from being treated for the root cause of their

ailment at a young age.

> >

> > It is affecting school/teacher compliance on effective treatments such as

dietary intervention.

> >

> > It is affecting the way children and adults with autism are treated by

society (ignorance of what causes symptoms).

> >

> > It is affecting relationships between caregivers of people with autism and

their extended family and friends.

> >

> > It is causing oodles of money to be wasted on behavior modification.

> >

> > It is effectively confusing the public into thinking there are several

causes of autism.

> >

> > It is fueling the money-making business of " finding a cure " by continual

funding genetic and other useless studies.

> >

> > AND adding what you have said:

> >

> > It is affecting perceptions of necessity or usefulness of adult work

programs for the disabled.

> >

> >

> > I have to go, I'd like to add more to this later.

> >

> > Liz

>

[Guest guest]

Patton Army of Advocates!

Here is my current mission.

http://www.autismcandles.com/endofcampaign.html

>

> Well, you probably already know this, but these disability work programs are

heavily supported by government funding and grants. I was offered a position

supervising people who train disabled workers like you. This position would

have required meeting a quota of outside placements of the disabled (seeking out

opportunities for them) as well as periodically justifying the necessity of the

in-house training/work program.

>

> The person who offered me the position told me that the in-house program was

always being threatened to be shut down by the government due to the workers'

" lack of progression " , basically. He argued that this program gave the

lower-functioning people purpose and gratification even if they were unable to

perform services to the public. He is absolutely right.

>

> I am sorry that the stress of instability of these kinds of programs has

fallen on you. I hope that you will keep advocating for those who are in your

shoes. You have an army of advocates in your corner, we are just several years

behind. I think that it is a good idea to educate people on groups like ours so

that we are aware of this situation and can keep our eyes open for opportunities

to effect changes to these programs to make them more stable.

>

> Liz

[Guest guest]

I do not think research funding and studies related to autism are a waste of

money, as there is a population (us) who is more genetically susceptible to

autism. Otherwise, everyone who got exposure would have autism. (And we know

that does not happen.)

(I am all for research, especially in the field of genetics)

> > > > >

> > > > > I was wondering if it's ok to talk about cure vs. anti-cure autism

social problems here. The ideas put forth on this forum I have come to

understand are not liked by some. However despite having an ASD myself I have

not taken a side and when I try to think openly to figure things out I am

censored in a anti-cure forum. I think of social problems as science

problems in part.

> > > > >

> > > > > Can anyone share their opinion?

> > > > >

> > > > > When I first posted here as an autism self-advocate in introduction

one person called me an ASPIE and an ASAN. Please know my perceptions of these

things were at first not even aware of ASAN and never quite liking titling

myself as anything though others have the freedom to.

> > > > >

> > > > > Young

> > > > >

> > > >

> > >

> >

>

[Guest guest]

I wonder if anti-cure is rooted based on religion, political parties (abortion)

or conservatism mixed with pride so it is not apparent. As some of these social

politics in the autism community do not make sense even for pride. Personal

choice as to whether what some consider personal choice rights vs. forcing a way

based on conceived ethics (morality). I do not want to presume so I apologize

for saying it but I woke up this morning thinking of it.

> >

> > Wow , thank you for the insight. I see exactly what you are saying

and as the parent of a 7 year old with autism, I haven't gotten to the point of

thinking of how those things affect an adult with autism.

> >

> > The failure of the medical community to make proper diagnoses and treatment

available is synonymous with anti-cure attempts and definitely affecting us all

on a large scale:

> >

> > It is affecting the cause of autism from being exposed and communicated to

the public.

> >

> > It is keeping children from being treated for the root cause of their

ailment at a young age.

> >

> > It is affecting school/teacher compliance on effective treatments such as

dietary intervention.

> >

> > It is affecting the way children and adults with autism are treated by

society (ignorance of what causes symptoms).

> >

> > It is affecting relationships between caregivers of people with autism and

their extended family and friends.

> >

> > It is causing oodles of money to be wasted on behavior modification.

> >

> > It is effectively confusing the public into thinking there are several

causes of autism.

> >

> > It is fueling the money-making business of " finding a cure " by continual

funding genetic and other useless studies.

> >

> > AND adding what you have said:

> >

> > It is affecting perceptions of necessity or usefulness of adult work

programs for the disabled.

> >

> >

> > I have to go, I'd like to add more to this later.

> >

> > Liz

[Guest guest]

I am not sure .. these are good questions , not sure if it is in

topic, but the board is very liberal and I like that overall. I must admit I

am surprised by this thread though because you were the one not long ago

saying that we should not sure.. that their was nothing wrong and we should

accept the uniqueness of being different? Right? Or am I mistaking you with

someone else?

This is obviously a board about recovery .. and most of us spend our

precious time of our children's early intervention years making sure we are

focused on getting our children as healthy as possible as quick as we can as

their brains and such are growing and our time is limited. We may not be the

best palace to debate cures vers not. we all are on the cure wagon and no

one really has time to debate things we already believe in. AS caregivers to

handicapped children and sometimes some of us have our own handicaps and

take care of children and parents with dishabilles too.. we sometimes just

don't have the time or energy or good health to debate something we all

consider settled. But I bet you could make a group for

autistics themselves and debate it there. it would be a great insight for

others to see how all different autistics view themselves and their

condition and their place in society.

From: [mailto: ]

On Behalf Of

Sent: Monday, July 12, 2010 2:01 PM

Subject: [ ] Re: Curebie (Anti-Cure) Social Problem (

Young)

I wonder if anti-cure is rooted based on religion, political parties

(abortion) or conservatism mixed with pride so it is not apparent. As some

of these social politics in the autism community do not make sense even for

pride. Personal choice as to whether what some consider personal choice

rights vs. forcing a way based on conceived ethics (morality). I do not want

to presume so I apologize for saying it but I woke up this morning thinking

of it.

> >

> > Wow , thank you for the insight. I see exactly what you are saying

and as the parent of a 7 year old with autism, I haven't gotten to the point

of thinking of how those things affect an adult with autism.

> >

> > The failure of the medical community to make proper diagnoses and

treatment available is synonymous with anti-cure attempts and definitely

affecting us all on a large scale:

> >

> > It is affecting the cause of autism from being exposed and communicated

to the public.

> >

> > It is keeping children from being treated for the root cause of their

ailment at a young age.

> >

> > It is affecting school/teacher compliance on effective treatments such

as dietary intervention.

> >

> > It is affecting the way children and adults with autism are treated by

society (ignorance of what causes symptoms).

> >

> > It is affecting relationships between caregivers of people with autism

and their extended family and friends.

> >

> > It is causing oodles of money to be wasted on behavior modification.

> >

> > It is effectively confusing the public into thinking there are several

causes of autism.

> >

> > It is fueling the money-making business of " finding a cure " by continual

funding genetic and other useless studies.

> >

> > AND adding what you have said:

> >

> > It is affecting perceptions of necessity or usefulness of adult work

programs for the disabled.

> >

> >

> > I have to go, I'd like to add more to this later.

> >

> > Liz

[Guest guest]

Unique and normal are two seperate things. I do have the ability to make a forum

but from time to time I'd just like to ask questions. I do not think I am

posting to change anyones mind but rather figure out why there are different

sides. Ultimately it does not matter there are different sides unless one side

or it's exreme was to subject an individual to lets say a lack of quality of

life services or a lack of choice. Pride can do this, let's say for an agenda to

make autism into a self-idenity like a race that never needs accomodation. There

are individual exremes which cannot be rationalized to be practical in the real

world vs. sides that need more consideration. What I am finding though after

consultation is that no matter the exremes laws protect me so I don't need to

worry. If my disabilities relating to autism are insulting to another person

becuase they wish to view themselves a certain way it's impractical to just hide

my truth. Dignity works two ways in this regard. Pride is not often universal

with respects to this.

I hope you understand. I am also finding that abortion politics with regard to

autism and religion can be found in far right wing. Now I know some things about

politics and in my own life I don't think I am part of a political party. I just

wish to understand and in so doing seeking truth can make someone else feel

threatened and then there is no possibility of friendship or mutual respect as

humans it seems.

I've found if I am attempting to even be very nice some (only so far) still see

me as a threat just for asking questions and seeking to discover. The autism

politics are extremely divided. It's a god thing my job does not entail the

politics because I'd likely have to much stress to function.

Young

> > >

> > > Wow , thank you for the insight. I see exactly what you are saying

> and as the parent of a 7 year old with autism, I haven't gotten to the point

> of thinking of how those things affect an adult with autism.

> > >

> > > The failure of the medical community to make proper diagnoses and

> treatment available is synonymous with anti-cure attempts and definitely

> affecting us all on a large scale:

> > >

> > > It is affecting the cause of autism from being exposed and communicated

> to the public.

> > >

> > > It is keeping children from being treated for the root cause of their

> ailment at a young age.

> > >

> > > It is affecting school/teacher compliance on effective treatments such

> as dietary intervention.

> > >

> > > It is affecting the way children and adults with autism are treated by

> society (ignorance of what causes symptoms).

> > >

> > > It is affecting relationships between caregivers of people with autism

> and their extended family and friends.

> > >

> > > It is causing oodles of money to be wasted on behavior modification.

> > >

> > > It is effectively confusing the public into thinking there are several

> causes of autism.

> > >

> > > It is fueling the money-making business of " finding a cure " by continual

> funding genetic and other useless studies.

> > >

> > > AND adding what you have said:

> > >

> > > It is affecting perceptions of necessity or usefulness of adult work

> programs for the disabled.

> > >

> > >

> > > I have to go, I'd like to add more to this later.

> > >

> > > Liz

>

>

>

>

>

>