Re: Sulfer Donor vs Methyl Donors

November 6, 2010

Hi Zurama

Unless plasma cysteine status is known, giving cystine or cysteine may be

helpful, harmful or indifferent, there is no test available.

The best way to tell is to trial a thiol exclusion diet as described in the

below link.

http://livingnetwork.co.za/chelationnetwork/food/high-sulfur-sulphur-food-list/

Kenny

>

> Since learning by trial and error and thanks to this list that Mickie needs

antioxidants, that are Sulfer donors and not Methyl donors, then taking MSM

shouldn't be a problem right?

>

> I wanted to start him on cystine, and wonder if this is recommended. Also

which Cystine?

>

> Zurama

> Mickie 13 years

> Round 37

> DMSA 25mg ALA 25mg

>

November 7, 2010

How did you determine that he needs sulfur donors?

Most of the self proclaimed expertise on this is wrong, and dangerously so.

Andy

http://www.noamalgam.com/index.html

Amalgam Illness: Diagnosis and Treatment

http://www.noamalgam.com/hairtestbook.html

Hair Test Interpretation: Finding Hidden Toxicities

http://www.noamalgam.com/nourishinghope.html

Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children

http://www.noamalgam.com/biologicaltreatments.html

Biological Treatments for Autism and PDD

>

> Since learning by trial and error and thanks to this list that Mickie needs

antioxidants, that are Sulfer donors and not Methyl donors, then taking MSM

shouldn't be a problem right?

>

> I wanted to start him on cystine, and wonder if this is recommended. Also

which Cystine?

>

> Zurama

> Mickie 13 years

> Round 37

> DMSA 25mg ALA 25mg

>

November 7, 2010

Hello Andy:

Well he did not do well on Mb12. Back in 08 he was a the shots and the nasal

spray. At the beginning he seemed to do well-wained weight and was calmer,

then he regressed and the self injurious behaviors came back. He seems to

handle ALA just fine and though he is severe, I now hear from his teachers

that he is having an easier time transitioning and is very calm.

I guess it's really difficult for me to know if when he hurts is because of

Dmsa or Ala, but he hurts even when not chelating. His digestive distress is

always there and was there before chelation and before this dreadful

diagnosis.

Zurama

On Sat, Nov 6, 2010 at 11:40 PM, andrewhallcutler <AndyCutler@...>wrote:

>

> How did you determine that he needs sulfur donors?

>

> Most of the self proclaimed expertise on this is wrong, and dangerously so.

>

> Andy

>

> http://www.noamalgam.com/index.html

> Amalgam Illness: Diagnosis and Treatment

>

> http://www.noamalgam.com/hairtestbook.html

> Hair Test Interpretation: Finding Hidden Toxicities

>

> http://www.noamalgam.com/nourishinghope.html

> Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children

>

> http://www.noamalgam.com/biologicaltreatments.html

> Biological Treatments for Autism and PDD

>

> >

> > Since learning by trial and error and thanks to this list that Mickie

> needs antioxidants, that are Sulfer donors and not Methyl donors, then

> taking MSM shouldn't be a problem right?

> >

> > I wanted to start him on cystine, and wonder if this is recommended. Also

> which Cystine?

> >

> > Zurama

> > Mickie 13 years

> > Round 37

> > DMSA 25mg ALA 25mg

> >

>

--

Zurama

Mickie 13yrs

Round #37

15mg DMSA 15mg ALA

November 7, 2010

the only way we could determine was to look at all the things that worked and

the things that caused tantrums, regressions, etc.Â It turned out all of the

nasty things were methyl donors, the positives were sulfur.

nancy j.

Help TACA win $50,000. Please vote every day in November.

http://www.refresheverything.com/tacarealhelpnow

Need help now?

http://www.talkaboutcuringautism.org/contact/real-help-now-live-chat.htm

From: andrewhallcutler <AndyCutler@...>

Subject: [ ] Re: Sulfer Donor vs Methyl Donors

Date: Saturday, November 6, 2010, 11:40 PM

Â

How did you determine that he needs sulfur donors?

Most of the self proclaimed expertise on this is wrong, and dangerously so.

Andy

http://www.noamalgam.com/index.html

Amalgam Illness: Diagnosis and Treatment

http://www.noamalgam.com/hairtestbook.html

Hair Test Interpretation: Finding Hidden Toxicities

http://www.noamalgam.com/nourishinghope.html

Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children

http://www.noamalgam.com/biologicaltreatments.html

Biological Treatments for Autism and PDD

>

> Since learning by trial and error and thanks to this list that Mickie needs

antioxidants, that are Sulfer donors and not Methyl donors, then taking MSM

shouldn't be a problem right?

>

> I wanted to start him on cystine, and wonder if this is recommended. Also

which Cystine?

>

> Zurama

> Mickie 13 years

> Round 37

> DMSA 25mg ALA 25mg

>

November 7, 2010

Exactly!!

On Sun, Nov 7, 2010 at 9:01 AM, nancy cook <endofautism@...> wrote:

>

> the only way we could determine was to look at all the things that worked

> and the things that caused tantrums, regressions, etc. It turned out all of

> the nasty things were methyl donors, the positives were sulfur.

>

> nancy j.

>

> Help TACA win $50,000. Please vote every day in November.

> http://www.refresheverything.com/tacarealhelpnow

>

> Need help now?

> http://www.talkaboutcuringautism.org/contact/real-help-now-live-chat.htm

>

> From: andrewhallcutler <AndyCutler@... <AndyCutler%40aol.com>>

> Subject: [ ] Re: Sulfer Donor vs Methyl Donors

> < %40>

> Date: Saturday, November 6, 2010, 11:40 PM

>

> How did you determine that he needs sulfur donors?

>

> Most of the self proclaimed expertise on this is wrong, and dangerously so.

>

> Andy

>

> http://www.noamalgam.com/index.html

>

> Amalgam Illness: Diagnosis and Treatment

>

> http://www.noamalgam.com/hairtestbook.html

>

> Hair Test Interpretation: Finding Hidden Toxicities

>

> http://www.noamalgam.com/nourishinghope.html

>

> Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children

>

> http://www.noamalgam.com/biologicaltreatments.html

>

> Biological Treatments for Autism and PDD

>

> >

>

> > Since learning by trial and error and thanks to this list that Mickie

> needs antioxidants, that are Sulfer donors and not Methyl donors, then

> taking MSM shouldn't be a problem right?

>

> >

>

> > I wanted to start him on cystine, and wonder if this is recommended. Also

> which Cystine?

>

> >

>

> > Zurama

>

> > Mickie 13 years

>

> > Round 37

>

> > DMSA 25mg ALA 25mg

>

> >

>

November 7, 2010

>

> the only way we could determine was to look at all the things that worked and

the things that caused tantrums, regressions, etc.Â It turned out all of the

nasty things were methyl donors, the positives were sulfur.

Could you list toe 'sulfur donors' so I can find out if I agree with what is on

your list?

Andy

http://www.noamalgam.com/index.html

Amalgam Illness: Diagnosis and Treatment

http://www.noamalgam.com/hairtestbook.html

Hair Test Interpretation: Finding Hidden Toxicities

http://www.noamalgam.com/nourishinghope.html

Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children

http://www.noamalgam.com/biologicaltreatments.html

Biological Treatments for Autism and PDD

November 9, 2010

I'm no expert on these, but wanted to chime in.

Check these links for a discussion on sulfur:

http://livingnetwork.co.za/chelationnetwork/food/high-sulfur-sulphur-food-list/

http://onibasu.com/archives/am/63442.html

For methyl donors you can try:

Methyl B12

I don't know why it would cause damage, permanent or otherwise. Andy has

recommended oral as less invasive and just as effective.

Trimethylglycine (TMG) or Dimethylglycine (TMG)

Whenever I hear muscle tone, I think carnitine. Have you tried this?

http://onibasu.com/archives/am/245333.html

http://www.luckyvitamin.com/p-29099-jarrow-formulas-l-carnitine-liquid-caps-500-\

mg-100-vegetarian-capsules

Some find it better to use glutathione precursors rather than to supplement it

directly. If it's working for you, don't change anything. If not, check out this

thread.

/message/248259

>

> This is all kind of new to me, so I'm just starting to figure out what is a

> methyl doner and what is a sulfur doner,

November 9, 2010

On my way to read these, thank you.......

No Methyl donors for him though. He was on oral Glutathione and also the

lotion, on TMG, DMG. and not good idea for him either.

The MB12 seemed to speed up his methylation process to much, and his body

couldn't handle it.

I started him on Carnitine a few weeks ago....

On Tue, Nov 9, 2010 at 4:19 AM, tohope2day <hope-one@...> wrote:

>

> I'm no expert on these, but wanted to chime in.

>

> Check these links for a discussion on sulfur:

>

http://livingnetwork.co.za/chelationnetwork/food/high-sulfur-sulphur-food-list/

>

> http://onibasu.com/archives/am/63442.html

>

> For methyl donors you can try:

>

> Methyl B12

>

> I don't know why it would cause damage, permanent or otherwise. Andy has

> recommended oral as less invasive and just as effective.

>

> Trimethylglycine (TMG) or Dimethylglycine (TMG)

>

> Whenever I hear muscle tone, I think carnitine. Have you tried this?

>

> http://onibasu.com/archives/am/245333.html

>

http://www.luckyvitamin.com/p-29099-jarrow-formulas-l-carnitine-liquid-caps-500-\

mg-100-vegetarian-capsules

>

> Some find it better to use glutathione precursors rather than to supplement

> it directly. If it's working for you, don't change anything. If not, check

> out this thread.

>

> /message/248259

>

> >

> > This is all kind of new to me, so I'm just starting to figure out what is

> a

> > methyl doner and what is a sulfur doner,

>

--

Zurama

Mickie 13yrs

Round #37

15mg DMSA 15mg ALA

November 10, 2010

Hi All,

I'm not on this list often, thank God we've been getting better. What really

helped my daughter (age 3 1/2 now and talking-- finally!) was to take a natural

form of MSM. Here's the link

http://www.encognitive.com/node/1123

Within four days she went from a semi-cognative sentence to a full paragraph.

, the director of the study says that we all need sulfur nowadays because

it's not in our food. Pesticide use (even organic) binds the sulfur in the soil

so it doesn't make it into the plants. This has helped with her candida as

well, it took about three months and then magically no more vaginal rash. She

is potty trained and has had a rash since birth, with or without diapers.

Sulfur brings oxygen into the cells where it is needed. No need for Hbot.

The only drawback is it tastes like heck. It's the opposite of salt. If your

body needs salt you salt your food and it tastes better. With sulfur it tastes

terrible until your body doesn't need it. It took me a month to not taste it.

I am 32 yo and mildly asperger-ish.

At the bottom of the link is 's phone number, you call him and he will

mail you the sulfur for about $25 per pound. If anyone wants more of our

experiance I'm at tlkovacs@...

God Bless,

Lorraine

> > >

> > > This is all kind of new to me, so I'm just starting to figure out what is

> > a

> > > methyl doner and what is a sulfur doner,

> >

>

> --

> Zurama

> Mickie 13yrs

> Round #37

> 15mg DMSA 15mg ALA

>

November 11, 2010

McGean doesn't provide an address on his website because he is homeless.

Here he is in the news:

" Man Arrested After Standoff;

Had Threatened Salt Lake Mayor "

http://www.ksl.com/index.php? & sid=141350

And he describes his mental illness (strangely, in the third person) on this

blog:

http://blogs.philadelphiaweekly.com/trouble/2006/01/25/better-than-sylvester-sta\

llone-and-i-say-that-as-a-philadelphian/

Regardless, this is an interesting thread. And it's always a thrill to hear

about kids who improve!

-Ann

>

> What really helped my daughter (age 3 1/2 now and talking-- finally!) was to

take a natural form of MSM. Here's the link

>

> http://www.encognitive.com/node/1123

>

> At the bottom of the link is 's phone number, you call him and he will

mail you the sulfur for about $25 per pound.

November 11, 2010

OK- I am really on overload now. I am reading (both of Andy's books) and

reading some more (posts to this list and a couple of others as well),

desperately trying to get up to speed after a 10 year hiatus. I used a DAN doc

(nationally high profile, now co-authoring a book with a celeb) 10 years ago and

all we got out of it was financial loss and a mistrust not only of the

allopathic physician but of the " alternative " health professional as well. That

being said, I am again working with a local practitioner who is willing to work

with us using Andy's protocol. We have had one appointment already (which I

felt ill-prepared for-I left my list of recommended and useless labs at home on

the counter!) and I'm not even sure exactly what labs were done. I did request

a plasma cysteine though, so I hope that was done. The practitioner we are

seeing now we saw initially almost 10 years ago. We were referred to her by our

DAN doc (because he was out of state) for IV Glutathione. What a big mistake!

After being assured by the nurse that there were no side-effects, my son did

indeed have a reaction. He immediately started blinking his eyes and for a few

months afterward had a redness that extended from just under his eyes all the

way down to his cheekbones! Our DAN doc subsequently told me that, yes, some of

his kids do have a " histamine reaction " to IV Glutathione and have to take

Benadryl beforehand. That was the end of our biological intervention journey

other than continuing on with the GFCF diet and enzymes. Later, we did NAET and

my son eventually went off the diet but continued with his enzymes for some

time. My son cannot tolerate anything with NAC in it. I tried telling that to

our current NP a couple of years ago when I took my kids back to her for their

inhalant allergies (I figured, surely she can't do anything to hurt them for

their allergies) Wrong! She recommended a supp that included NAC, which we

tried against my better judgement... My son " bonked out " and I ended up giving

yet another supplement away! I'm guessing that he has high plasma sulfate (or

is it cysteine-I was a little confused, seems like they were being used

interchangably in the files). What do you think Andy's thoughts would be in

regard to the organic sulphur? We use organic foods as much as we can, but

still eat too much crap... What is the relationship between sulfer, cysteine,

phenols and salicylates? I am reading as much as time will allow, as my laundry

piles up and my house looks like a disaster!!! Wondering how I might ever find

the time to implement the SCD... Looks like my son has pathogenic yeast,

bacteria, and leaky gut. The results of the OAT test that was done was e-mailed

to me yesterday. The NP gave me a script for Zithromax a couple of weeks ago

for my son's PANDAS (I never filled it as I knew he probably already had yeast

issues from the last round of antibiotics that he did)... what a mess! I don't

even know where to start. How do I make sense of it all and in what order do I

implement needed interventions?

Thanks, Rosie

> > > >

> > > > This is all kind of new to me, so I'm just starting to figure out what

is

> > > a

> > > > methyl doner and what is a sulfur doner,

> > >

> >

> > --

> > Zurama

> > Mickie 13yrs

> > Round #37

> > 15mg DMSA 15mg ALA

> >

November 11, 2010

So, my suggestion:Â do the diet, gfcfsf and get his gut healed, kill yeast and

viral stuff, then retest and see what the tests say.Â That way you get some

room to breath (and do your laundry)Â If you need to, then do scd.Â JMHO and I

know some would do chelation first, but most dan docs say heal the gut first.Â

Remember, it's just my humble opinion, so please don't jump on my case everyone

if you disagree.

nancy j.

Help TACA win $50,000. Please vote every day in November.

http://www.refresheverything.com/tacarealhelpnow

Need help now?

http://www.talkaboutcuringautism.org/contact/real-help-now-live-chat.htm

From: rsemak1 <semak4@...>

Subject: [ ] Re: Sulfer Donor vs Methyl Donors

Date: Thursday, November 11, 2010, 8:34 AM