Re: Why isn't anyone responding to my message?

[Guest guest]

Hi Steph the reason you didn't see my message until today is I was posting to the group for 2 weeks but my messages were not being sent to the group. I could not figure out why until I got a hold of and he said they monitor the messages. Well some how my messages never got sent to the group till yesterday. Talking all those meds do not have any side effects? I am so afraid of meds. Never had much luck with meds as I get side effects. How did the dr find out you had RA. I am going to the Rhuemy on the 7th. What do they usually do? Make you have an mri?

Bonnie

[Guest guest]

Hi Bonnie,

Yes, reading the side effects of the meds can be scary. My symptoms started in my last semester in college. Over several weeks, I lost the use of the left side of my body, which is my dominant side. After 12 doctors, lucky #13 was a rheumatologist. He said my SED rate was high (normal is 0-20, mine was 353). My rheumatoid factor was negative, and it still is.

I am fortunate that my meds have not given me any side effects. I have made some dietary changes. Upon advice of my rheumy I eat as much organic foods as possible -- specifically fruit, milk, pasta sauce, etc. The only leap I cannot make is gluten free pasta (blame the Italian in me!) I make sure my medication is always taken with food. I drink organic whole milk every day.

When my diagnosing rheumy gave me brochures on methotrexate & the new biologics I was very concerned. When I was dx'd the biologics Enbrel & Remicade had just been approved for arthritis in 1999. Like Harold mentioned earlier, the extreme side effects don't occur very regularly. The companies have to list everything anyone on the medication has ever experienced.

Choosing whether or not to take the meds is a personal choice every person with a chronic illness must make. For me it is a choice of quality of life. When I was dx'd I was 22 years old. I couldn't imagine living in the physical state I was experiencing forever. I seriously contemplated suicide. For me, the risk is worth it.

When I was dx'd, the rheumy did blood tests, X-rays, an MRI of my hip, a Cat scan of my arm and a bone density exam (commonly called a DEXA).

Take care,

Steph in VA

[Guest guest]

Hi Steph thanks for writing. Your so young to have RA. I am 51.

Bonnie

29:11 For I know the plans I have for you, "declares the Lord" "plans to prosper you and not to harm you, plans to give you hope and a future.

[Guest guest]

Hi Harold thanks for responding. I will have to find out Mon when I see the rheumy if he is going to put me on meds. Do any of you take flaxseed oil to help?

Bonnie

29:11 For I know the plans I have for you, "declares the Lord" "plans to prosper you and not to harm you, plans to give you hope and a future.

[Guest guest]

Yes, I take flaxseed oil and also fish oil and ginger in addition to a multivitamin, extra vitamins C, D and E, and calcium citrate. I have no idea if any of these things really work but I have heard they are all good and will not hurt so I take them. God bless.

----- Original Message -----

From: Bonnie P.

Rheumatoid Arthritis

Sent: Thursday, November 03, 2005 4:03 PM

Subject: Re: Why isn't anyone responding to my message?

Hi Harold thanks for responding. I will have to find out Mon when I see the rheumy if he is going to put me on meds. Do any of you take flaxseed oil to help?

Bonnie

29:11 For I know the plans I have for you, "declares the Lord" "plans to prosper you and not to harm you, plans to give you hope and a future.

[Guest guest]

I think I'm older than both of you put together. I'm 78 and sometimes I act like I'm going on 15. God bless.

----- Original Message -----

From: Bonnie P.

Rheumatoid Arthritis

Sent: Thursday, November 03, 2005 3:52 PM

Subject: Re: Why isn't anyone responding to my message?

Hi Steph thanks for writing. Your so young to have RA. I am 51.

Bonnie

29:11 For I know the plans I have for you, "declares the Lord" "plans to prosper you and not to harm you, plans to give you hope and a future.

[Guest guest]

I've just started putting flaxseed flour in some of my cooking. It says to add 2 tablespoons to breads, soups, whatever. I'm not sure what it does for RA but I know it's good for you so I am putting it in foods for my whole family to enjoy the benefits. I'm making a hotdish(yes I'm from Minnesota) tonight and I will put the flour in there. Actually I think it's called ground flaxseed.

Vicki

-------Original Message-------

From: Bonnie P.

Date: 11/03/05 18:05:34

Rheumatoid Arthritis

Subject: Re: Why isn't anyone responding to my message?

Hi Harold thanks for responding. I will have to find out Mon when I see the rheumy if he is going to put me on meds. Do any of you take flaxseed oil to help?

Bonnie

29:11 For I know the plans I have for you, "declares the Lord" "plans to prosper you and not to harm you, plans to give you hope and a future.

--- USFamily.Net - $8.25/mo! -- Highspeed - $19.99/mo! ---

[Guest guest]

hi, Bonnie! I do not take flax seed oil, however, I do take evening primrose oil capsules. this was recommended by my ob/gyn (along with soy) for menopause/hot flashes. and then I read in the arthritis magazine, that it is good for RA also. it works for me! gentle hugs! MarciaHarold Van Tuyl <hvantuyl@...> wrote:

Yes, I take flaxseed oil and also fish oil and ginger in addition to a multivitamin, extra vitamins C, D and E, and calcium citrate. I have no idea if any of these things really work but I have heard they are all good and will not hurt so I take them. God bless.

----- Original Message -----

From: Bonnie P.

Rheumatoid Arthritis

Sent: Thursday, November 03, 2005 4:03 PM

Subject: Re: Why isn't anyone responding to my message?

Hi Harold thanks for responding. I will have to find out Mon when I see the rheumy if he is going to put me on meds. Do any of you take flaxseed oil to help?

Bonnie

29:11 For I know the plans I have for you, "declares the Lord" "plans to prosper you and not to harm you, plans to give you hope and a future.

FareChase - Search multiple travel sites in one click.

[Guest guest]

--- " Bonnie P. " <bpittinger@...> wrote:

> I sent a message this morning about how I am having

> pain all over and aches too. I had tendinitus in

> both shoulders but now I have aches and pains in my

> arms & legs. I was on mobic but found out its like

> vioxx so I stopped that and then they put me on

> relafen but then I had too many side effects from

> that so now I am not on anything. I am taking omega

> 3 flax seed oil and vitimans. I try to move around

> as much as I can. What do all of you take for

> arthritis?

> Bonnie

Hello Bonnie ,

I am given MTX , diclofenenac-ec xr or ( votrian )

and sulfasalazine , and folic acid I had to stop my

Remicaid after I could no longer work in Augest as I

could no longer afford it . these meds may help

controll my R/A but it is still progressing and they

dont do much of anything for my pain but I allso have

DDD in all three areas of my back with sereral areas

of disc concrens and the meds i have for this helps

some .

>

>

>

__________________________________

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[Guest guest]

In a message dated 11/4/2005 9:54:33 A.M. Central Standard Time, hoyt91@... writes:

I've just started putting flaxseed flour in some of my cooking. It says to add 2 tablespoons to breads, soups, whatever. I'm not sure what it does for RA but I know it's good for you so I am putting it in foods for my whole family to enjoy the benefits. I'm making a hotdish(yes I'm from Minnesota) tonight and I will put the flour in there. Actually I think it's called ground flaxseed.

Vicki

I read that flaxseed is beneficial with stopping food cravings and helps the cramping with

PMS and that time of the month.

I've been taking flaxseed pills off and on for a few months, but I may start taking it all of the

time, as it may help my RA.

I read a couple of reports on the internet that doctors are recommending that everyone

with RA take fish oil capsules as it helps with inflammation.

I haven't taken this fish oil more than a few times, so I can't say that it works for me.

Becky

[Guest guest]

I don't know much about the flaxseed oil

How long have u have RA?

SidwellStarsHutch@... wrote:

In a message dated 11/4/2005 9:54:33 A.M. Central Standard Time, hoyt91@... writes:

I've just started putting flaxseed flour in some of my cooking. It says to add 2 tablespoons to breads, soups, whatever. I'm not sure what it does for RA but I know it's good for you so I am putting it in foods for my whole family to enjoy the benefits. I'm making a hotdish(yes I'm from Minnesota) tonight and I will put the flour in there. Actually I think it's called ground flaxseed.

Vicki

I read that flaxseed is beneficial with stopping food cravings and helps the cramping with

PMS and that time of the month.

I've been taking flaxseed pills off and on for a few months, but I may start taking it all of the

time, as it may help my RA.

I read a couple of reports on the internet that doctors are recommending that everyone

with RA take fish oil capsules as it helps with inflammation.

I haven't taken this fish oil more than a few times, so I can't say that it works for me.

Becky

FareChase - Search multiple travel sites in one click.