Guest guest Posted July 23, 2010 Report Share Posted July 23, 2010 ,  I have a question. When my now 18 year old was a baby, he stayed awake all night, either crying or laughing. The doc put him on a soy formula. When we found out he was Autistic, we presumed he would never be able to drink milk. He cut that out of his diet years ago himself. He does eat some ice cream--mostly Pet Fudge Bars.. We have tried to go GFCF for years, with no luck. 2 years ago, after an endoscopy and 2 colonoscopies for chronic constipation and stomach pain, the doctor finally did an IGG and found that he had antibodies to gluten but the GI doc said no celiac. During the last week he has eaten soft serve ice cream every day, even though he hates the taste and look of milk; makes him gag. He just had 4 wisdom teeth removed.  My question: It may be possible to get rid of the gluten since he hasn't had anything with gluten for 10 days. Considering he has antibodies, do I need to try this again?. I can't tell a lot of difference in him now, but isn't it a bad thing to eat gluten if you have developed antibodies?  Thanks for your input. D. From: <Ladyshrink111@...> Subject: Re: [ ] Re: Other Topic-Severity of ASD-What helped the most. Date: Friday, July 23, 2010, 12:36 PM  I our case, we had little serotonin, methionine in milk is needed to make serotonin, so removing the milk left her with none. Course, I only figured this out years after it happened. Serotonin is responsible for mood, appetite, motivation. She also cried nonstop, not the crying kids do to punish you, there was no sound, just tears. She was not a milk guzzler, never craved it. We put her on raw milk (and this during the time the dams! were saying milk carried mercury to the brain, geesh) and chelated her and she recovered. The diet is always worth a try for the few stories we hear in which it's removal makes such a remarkable difference. But the diet for the diet's sake is just making more work. For a lot of kids it doesn't matter. It certainly doesn't cure anything. [ ] Re: Other Topic-Severity of ASD-What helped the most. Why do you think removing a food would cause such problems? > > > > I was wondering whether anyone would be interested in joining this discussion about the severity of ASD in their children and what helped the most. > > My child is 26 months old now and was diagnosed in Feburary of this year when he was 20 months old. Currently he has no words, doesnt event make a sound, does not understand that things have names, doesnt call us mama or dada. In a nutshell he does not make any sound whatsoever. > > He does not point to show us that he wants something. He has some eye contact but on his own terms. He is not hyperactive. Infact we think he is very hypoactive. He does not throw tantrums. If we take something away from him, he whines just a little bit then chooses to forget about it and carries on with something else. He does not ask us for food. We have no clue when he is hungry because he will just not tell us in any way. He does chew his food at all and is not open to new foods or textures. He does not have GI issues. DAN confirmed that with testing. > > Sometimes he leads us by hand and puts our hand on something that he wants. He knows to identify the numbers from 1 to 10. Although he doesnt know to count because he doesnt speak. At the same time, he is unable to tell us where the cat is in the book, or where the dog is in the book. He can show us head,ears,eyes,nose,elbow,toes,tummy,butt,arms,legs and knees. So we know he understands at least that when he ask him to do it. He does bring me toys to fix if it is not working. He wants to involve me in some engaging games that need back and forth interaction,not a ball rolling game but a game that i invented to encourage engagement. > > Please contribute and discuss. > > Regards > > Rochelle > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2010 Report Share Posted July 24, 2010 Have you considered Ionic Lithium from New Beginnings? It's more bioavailable and doesn't build up in the system the way the orotate can. Our NP says its better for long term use. nancy j a child is diagnosed with asd every 20 seconds From: Liz <elizabethsoliday@...> Subject: [ ] Re: Other Topic-Severity of ASD-What helped the most. Date: Saturday, July 24, 2010, 7:15 AM  I think low serotonin might be a problem for our son. The symptom was anger/aggression and no response to reasoning with him. The thing is, I think I may already be able to address this problem with lithium orotate, but I'm not sure. A couple days ago, I was reading that lithium increases the amount of tryptophan available. When my son has a symptom, I look at what causes that symptom and things that I use or have used that effectively address that symptom. Then I look at what I use and how it affects the causes I have found. I see that these things are related - lithium levels, blood sugar regulation, adrenal reserves, and serotonin levels. Problems in any of these areas can cause aggression in males or depression in females. > > > > > > I was wondering whether anyone would be interested in joining this discussion about the severity of ASD in their children and what helped the most. > > > My child is 26 months old now and was diagnosed in Feburary of this year when he was 20 months old. Currently he has no words, doesnt event make a sound, does not understand that things have names, doesnt call us mama or dada. In a nutshell he does not make any sound whatsoever. > > > He does not point to show us that he wants something. He has some eye contact but on his own terms. He is not hyperactive. Infact we think he is very hypoactive. He does not throw tantrums. If we take something away from him, he whines just a little bit then chooses to forget about it and carries on with something else. He does not ask us for food. We have no clue when he is hungry because he will just not tell us in any way. He does chew his food at all and is not open to new foods or textures. He does not have GI issues. DAN confirmed that with testing. > > > Sometimes he leads us by hand and puts our hand on something that he wants. He knows to identify the numbers from 1 to 10. Although he doesnt know to count because he doesnt speak. At the same time, he is unable to tell us where the cat is in the book, or where the dog is in the book. He can show us head,ears,eyes,nose,elbow,toes,tummy,butt,arms,legs and knees. So we know he understands at least that when he ask him to do it. He does bring me toys to fix if it is not working. He wants to involve me in some engaging games that need back and forth interaction,not a ball rolling game but a game that i invented to encourage engagement. > > > Please contribute and discuss. > > > Regards > > > Rochelle > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2010 Report Share Posted July 25, 2010 Lithium was not effective here, neither was ACE. TMG helped somewhat so the depression was likely related somewhat to low methylation and a MTHFR issue. Nothing cured it but chelation. So in a way I used a nondiet as a bandaid to help the problem until we could get enough mercury out to solve the problem. She had all the issues; low lithium, hypoglycemia, adrenal issues and low serotonin as well as anorexia another symptom of low serotonin as is low motivation. [ ] Re: Other Topic-Severity of ASD-What helped the most. I think low serotonin might be a problem for our son. The symptom was anger/aggression and no response to reasoning with him. The thing is, I think I may already be able to address this problem with lithium orotate, but I'm not sure. A couple days ago, I was reading that lithium increases the amount of tryptophan available. When my son has a symptom, I look at what causes that symptom and things that I use or have used that effectively address that symptom. Then I look at what I use and how it affects the causes I have found. I see that these things are related - lithium levels, blood sugar regulation, adrenal reserves, and serotonin levels. Problems in any of these areas can cause aggression in males or depression in females. > > > > > > I was wondering whether anyone would be interested in joining this discussion about the severity of ASD in their children and what helped the most. > > > My child is 26 months old now and was diagnosed in Feburary of this year when he was 20 months old. Currently he has no words, doesnt event make a sound, does not understand that things have names, doesnt call us mama or dada. In a nutshell he does not make any sound whatsoever. > > > He does not point to show us that he wants something. He has some eye contact but on his own terms. He is not hyperactive. Infact we think he is very hypoactive. He does not throw tantrums. If we take something away from him, he whines just a little bit then chooses to forget about it and carries on with something else. He does not ask us for food. We have no clue when he is hungry because he will just not tell us in any way. He does chew his food at all and is not open to new foods or textures. He does not have GI issues. DAN confirmed that with testing. > > > Sometimes he leads us by hand and puts our hand on something that he wants. He knows to identify the numbers from 1 to 10. Although he doesnt know to count because he doesnt speak. At the same time, he is unable to tell us where the cat is in the book, or where the dog is in the book. He can show us head,ears,eyes,nose,elbow,toes,tummy,butt,arms,legs and knees. So we know he understands at least that when he ask him to do it. He does bring me toys to fix if it is not working. He wants to involve me in some engaging games that need back and forth interaction,not a ball rolling game but a game that i invented to encourage engagement. > > > Please contribute and discuss. > > > Regards > > > Rochelle > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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