Guest guest Posted November 3, 2000 Report Share Posted November 3, 2000 Janet, is this a typo? You have had AIH for 33 years????????? > I have had AIH since 1967. At present I am taking Prednisolone 5mgs and > Azathioprine (Imuran) 50 mgs per day as well as other medication for > complications associated with the AIH. I have had 6 relapses since the > first time when AIH was diagnosed, all a result of reduction in Prednisolone > I think. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2000 Report Share Posted November 4, 2000 No typo, yes AIH for 33 years (unless my maths are wrong - a not unheard-of occurrence). Diagnosed in 1967 aged 21 and still managing to crawl around (joking). Also on Steroids for all that time too. Between relapses I have been pretty well and its only now that the cirrhosis is making itself felt that things are not looking so good. I sometimes get the feeling from remarks made by doctors that they are surprised I am still here - I always was a stubborn creature. Janet UK Re: [ ] Digest Number 1252 > Janet, is this a typo? You have had AIH for 33 years????????? > > > I have had AIH since 1967. At present I am taking Prednisolone 5mgs and > > Azathioprine (Imuran) 50 mgs per day as well as other medication for > > complications associated with the AIH. I have had 6 relapses since the > > first time when AIH was diagnosed, all a result of reduction in > Prednisolone > > I think. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2002 Report Share Posted January 13, 2002 In a message dated 01/13/2002 5:46:44 AM Eastern Standard Time, writes: hey there michi man! sounds as if the KY folks may have rubbed off on ya....LOL..Hugs! Donna Howdy' there Maui MaMa! hows' them thar lil uns! I's sure likes ta know, who telin it around that I gta cense a homur! The old riber cage hasn't cracked like chicken bones for awhile! Well all from the Michi man fer now! Rusty Limbs looking for an Oil can! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2002 Report Share Posted January 23, 2002 Hi Hege , Try and stay with the MTX for a little while at least until you start to see some benefits. MTX is sort of a miracle drug, unless you're one of the few that it doesn't work for. You can get it injected but I'm lead to beleive that the nausea is only better in about 50% of people. Some of us have had quite large doses of oral MTX. I think one member was on 50mgs per week. I was on 25mg a week but the nausea got too much and I switched to ARAVA. Now I'm on 10mg MTX and the 20mg of ARAVA reduced to 3 times a week. As far as I'm aware you have to take the MTX as one dose per week. However this dose can be split into two equal doses taken no more than 24 hours apart. But check it out with your Doc. Cheers, Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2002 Report Share Posted January 24, 2002 Steve, My name is Dori, I have PA in my hands, hips and spine. I was on MTX (20Mg each week) for a short time when my doctor told me to stop taking it because of a " toxic reaction " . He put me on Arava 20Mg per day and Prednisone 5Mg per day. I am confused about Arava. The doctor said it works like MTX but without the problems and that I should be feeling the benefits in a few weeks. I don't know if it would have helped me or not since I wasn't on it long enough. I checked the web site for information on Arava but it isn't much help. Thought you might know more since you have been on both. - -- In @y..., Thatcher <steve.thatcher@u...> wrote: > Hi Hege , > > Try and stay with the MTX for a little while at least until you start to see > some benefits. MTX is sort of a miracle drug, unless you're one of the few > that it doesn't work for. You can get it injected but I'm lead to beleive that > the nausea is only better in about 50% of people. > > Some of us have had quite large doses of oral MTX. I think one member was on > 50mgs per week. > I was on 25mg a week but the nausea got too much and I switched to ARAVA. Now > I'm on 10mg MTX and the 20mg of ARAVA reduced to 3 times a week. > > As far as I'm aware you have to take the MTX as one dose per week. However > this dose can be split into two equal doses taken no more than 24 hours apart. > > But check it out with your Doc. > > Cheers, > > Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2002 Report Share Posted August 2, 2002 In a message dated 8/2/02 7:30:47 PM, writes: << like did you know you can go to the Regional meetings when they do the approvals and make a case for your child needed certain services???). I wonder if this applies in every state? >> No, every state runs it's own system ...just to confuse us all ;-) M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2002 Report Share Posted September 4, 2002 I don't usually post. Isn't Wylers grape juice, a salicylate? K > > , you're speaking my language here. What flavors does the dye free > wyler's come in? misses Sunny Delight more than anything in the > world. > Being able to offer a subsitute he might enjoy as well would be WONDERFUL! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2003 Report Share Posted February 4, 2003 In a message dated 2/4/2003 6:21:44 AM Eastern Standard Time, writes: > Someone was asking about pain suplements. I just read two articles for joint > > pains that worked. This is with the Flax Oil & Cottage Cheese diet. Thought > it might help. > I've been using MSM (along with glucosamine/chondroitin) for about 5 years. > I had pain in both feet and ankles, even With glucosamine, and then heard > about MSM. I take 2 " torpedoes " (1000 mg. tablets) per day with 1000 mg. > Vitamin C, and haven't had pain since I started. It is the Best for pain. I use BioDirected Joint, a combination of glucosamine, MSM, and Cetyl Myristoleate (CM). I also use the CM cream on the area. Great Stuff. Barbara RN, Health & Wellness Consultant How healthy do you want to be? Advanced wellness technologies for the 21st century. <A HREF= " http://www.5pillars.com/RN/ " >Natural Alternatives </A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2003 Report Share Posted July 31, 2003 To clarify, " language and learning differences " are CSA's focus. Here's their own description: Capitol School of Austin (CSA) began in 1990 as Austin's first private, non-profit organization for young children with language and learning differences. Founder and speech-language pathologist Amy Cunningham built the language-based program which began with only 3 students. Since it's inception, CSA classes have filled an educational gap for hundreds of Austin-area children, pre-school through the third grade. In August 2000, the Horizon Program was started to meet the needs of children with Autism Spectrum Disorders. The school's dedicated staff provides a personalized approach which focuses on student's strengths and individual development. Each program is multi-sensory, emphasizing language proficiency integrated with skills in self-help, socialization, and gross and fine motor movement. Â On Wednesday, July 30, 2003, at 08:40 PM, Autism Treatment wrote: > Message: 19 > Date: Wed, 30 Jul 2003 18:37:19 -0500 > From: " " <themillers@...> > Subject: RE: Bing - Capital School/ Horizon Program > > Capital school is a day school for children with speech delays/speech > issues. Horizon has inclusion with the speech delayed children, > however, > they are generally not on the spectrum. I just wanted to clarify this > as > " typical " to me means no delays at all (including speech). > > Please correct me if something has changed at Capital recently. But > the > whole point of the school is for speech issues. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2003 Report Share Posted July 31, 2003 To clarify, " language and learning differences " are CSA's focus. Here's their own description: Capitol School of Austin (CSA) began in 1990 as Austin's first private, non-profit organization for young children with language and learning differences. Founder and speech-language pathologist Amy Cunningham built the language-based program which began with only 3 students. Since it's inception, CSA classes have filled an educational gap for hundreds of Austin-area children, pre-school through the third grade. In August 2000, the Horizon Program was started to meet the needs of children with Autism Spectrum Disorders. The school's dedicated staff provides a personalized approach which focuses on student's strengths and individual development. Each program is multi-sensory, emphasizing language proficiency integrated with skills in self-help, socialization, and gross and fine motor movement. Â On Wednesday, July 30, 2003, at 08:40 PM, Autism Treatment wrote: > Message: 19 > Date: Wed, 30 Jul 2003 18:37:19 -0500 > From: " " <themillers@...> > Subject: RE: Bing - Capital School/ Horizon Program > > Capital school is a day school for children with speech delays/speech > issues. Horizon has inclusion with the speech delayed children, > however, > they are generally not on the spectrum. I just wanted to clarify this > as > " typical " to me means no delays at all (including speech). > > Please correct me if something has changed at Capital recently. But > the > whole point of the school is for speech issues. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2005 Report Share Posted September 16, 2005 well, I went and looked at FDA clinical watch and there are not abatacept studies in my area. Its wonderful if you can take meds and get no side effects. I unfortunately seem to get every side effect there is if I take a meds. So far I took plquinil last nite and all is well. Maybe I will get lucky with this meds and be able to stay on it for longer than two months. I was on Doxycycline for two months until it started making me vomit and my doc pulled me off it. There is not much else I can take. I am really getting tired of all the meds and doc visits. I almost want to just bail on them all and just go on with life. Toni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2005 Report Share Posted September 16, 2005 Toni there really isn't a medication out there that has no side effects, just like there is no food that doesn't have a side effect.......the only thing is some people experience the side effects, others don't, depends upon your specific body. But everything we eat, drink or do to our bodies has some type of side effect, may be not immediately notable, but over time either it's good or it's bad. Dorey ----- Original Message ----- From: aclavern33@... Rheumatoid Arthritis Sent: Friday, September 16, 2005 9:31 AM Subject: Re: Digest Number 1252 well, I went and looked at FDA clinical watch and there are not abatacept studies in my area. Its wonderful if you can take meds and get no side effects. I unfortunately seem to get every side effect there is if I take a meds. So far I took plquinil last nite and all is well. Maybe I will get lucky with this meds and be able to stay on it for longer than two months. I was on Doxycycline for two months until it started making me vomit and my doc pulled me off it. There is not much else I can take. I am really getting tired of all the meds and doc visits. I almost want to just bail on them all and just go on with life. Toni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2005 Report Share Posted November 15, 2005 RE: Quitting Smoking Most of you who have never smoked won't understand this but I LOVE SMOKING. I don't anymore because I realize what it does to my lungs and suffering from AS I need all the lung expansion I can get. I actually went on the patch system to help me quit and it worked quite well for me. The problem with me not smoking is that I have gained weight. I am currently at 199, I was at 187 last month. I am about 30 pounds over the weight I would like, the more weight, the more pressure and pain on my hips. Speaking of patches, I am guilty of sometimes glossing over the messages and usually read the ones that pertain to AS unless it's a cry for help which I try never to ignore. Getting back to patches, I seem to remember someone saying they are on or have tried the Fentanyl patch? I just got mine today and am getting ready to put it on. It lasts for 72 straight hours which means LESS PILLS TO TAKE, YEA! Anyway, I am hoping the patch will help control the pain but most important, this is replacing Morphine. Morphine and I just don't get a long well at all. It turns me into a walking zombie. I can fall asleep in one second. I have seriously dumped ice water in my lap numerous times from falling asleep with a glass of ice water either in my hand or on the table next to me. While watching TV I continually drop the remote to the TV tipping off to my wife that I have dropped off to sleep and she yells " MICHAEL YOU ARE ASLEEP AGAIN! " which really annoys me, it's not like I can help it when I fall asleep. I was told by the doctor giving me this that it was developed by an Anestheliogist doctor and it is supposed to provide good pain relief without the drowsy effects like some of the heavier narcotics have. Any information on this patch, websites, etc, would be appreciated. The VA gave me a four page document about this patch so maybe everything will be answered on this, wish me luck that this works and helps me to STAY AWAKE! E. Zehr mikezehr@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2005 Report Share Posted November 19, 2005 > > RE: Quitting Smoking > Hey When I quit smoking in 1999, I also started gaining weight and I was having trouble sleeping also. I was so bad, I would be driving my car and stop at a rail road track for a train and fall asleep behind the wheel! I finally got a sleep study done and they said I had sleep apnea. They said that my oxygen level dropped to 51% at night...which is really dangerous. I stopped breathing so often that it was like being in a fight all night long just to breathe so I woke up tired. I found out that untreated, sleep apnea can cause high blood pressure and other cardiovascular disease, memory problems, weight gain (you need to oxygen to burn the calories while you sleep), impotency, and headaches. I now sleep with a CPAP machine. Although my wife hates it..I pretend I am a fighter pilot and put on my mask. I am normally fall asleep within 5 minutes of laying down. Ed Quote Link to comment Share on other sites More sharing options...
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