Re: tonsils out for PANDAS- wilma

November 24, 2010

Thanks Wilma,

I would love to hear about her experience with this. My email is praboli at

dot com.

>

> > My second son has been diagnosed with PANDAS. We were seeing slow and steady

progress until we went to Hawaii and he got a GI bug. I had to stop all sups for

4 days because he couldn't hold them down. He also had a 103 fever for one day

and a low grade fever the remainder of the course of his illness. He got better,

but refused to eat anything but chips. Now I have him on his regular diet, but

he is left with verbal and eye tics. Azithromycin used to help, but it doesn't

seem to work anymore. My son is approx. 40 lbs.

> >

> > I thought it could have been yeast, but a high dose yeast protocol had no

effect on his tics. Then I tried OLE and saw some very transient improvement.

This leads me to think it's viral. I was wondering the dose/day for a 40 pound

boy.

> >

> > Also, I was told the rate limiting factor in my son's recovery from PANDAS

is his tonsils and adenoids with the recurring strep. Has anyone ever had a

tonsilectomy that produced some improvements with PANDAS?

> >

> > Thanks,

> >

> > Pam

> >

>

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