Re: The WebMD & Autism Treatments

[Guest guest]

" It is simply no longer possible to believe much of the clinical research

that is published, or to rely on the judgment of trusted physicians or

authoritative medical guidelines. I take no pleasure in this conclusion,

which I reached slowly and reluctantly over my two decades as an editor of

The New England Journal of Medicine. " ~Dr. Marcia Angell, 2009

Please stop inflaming on this board.. I find it extremely offensive

.. make your own group for your nonsence

From: [mailto: ]

On Behalf Of

Sent: Sunday, August 01, 2010 6:23 PM

Subject: [ ] The WebMD & Autism Treatments

I was wondering if any of what you folks talk about here is on WebMD. If it

is not can you put that information there? The reason I say is not to

disagree with you as science is always in the state of discovery and search

of fact but I can only depend on these kinds of sources and not blogs. If

doctors agree with you then that is good so have them put it on the WebMD if

it is not already there. Can anyone reply with a WebMD link concerning the

treatments discussed here?

Young

[Guest guest]

I had been asked to help promote these advocacies. However if I cannot find a

way to help and it's insulting to try and help it seems kind of confusing.

I am talking on topic, not insulting or inflaming but you attack me but I am the

one inflaming which is weird. It just does not make sense. So if you will please

stop responding to my posts or even reading them to find ways to create conflict

where none was intended then you will find a way to get along. If my post cannot

be responded to then there is no merit in the controversy and progress does not

seem to be able to be made.

Now I am not expecting clear fact but rather dialog about it. I am not here to

judge a point of view. I'm simply creating relevant conversation as an equal

participant and had not intention of insulting and inflaming you and I am not

your mind to know your rules of conversation. I'm not trying to cause conflict

and it's just a vicious cycle for me to banter with you.

I am not taking a side concerning this issue I'm simply investigating by asking

questions. This is perfectly respectable and within the scope of the social

parameters.

Young

>

>

>

> " It is simply no longer possible to believe much of the clinical research

> that is published, or to rely on the judgment of trusted physicians or

> authoritative medical guidelines. I take no pleasure in this conclusion,

> which I reached slowly and reluctantly over my two decades as an editor of

> The New England Journal of Medicine. " ~Dr. Marcia Angell, 2009

>

>

>

> Please stop inflaming on this board.. I find it extremely offensive

> .. make your own group for your nonsence

[Guest guest]

Your insinuating there is no basis for what we do.. go hate somewhere else..

be part of the solution not the problem

From: [mailto: ]

On Behalf Of

Sent: Sunday, August 01, 2010 9:09 PM

Subject: [ ] Re: The WebMD & Autism Treatments

I had been asked to help promote these advocacies. However if I cannot find

a way to help and it's insulting to try and help it seems kind of confusing.

I am talking on topic, not insulting or inflaming but you attack me but I am

the one inflaming which is weird. It just does not make sense. So if you

will please stop responding to my posts or even reading them to find ways to

create conflict where none was intended then you will find a way to get

along. If my post cannot be responded to then there is no merit in the

controversy and progress does not seem to be able to be made.

Now I am not expecting clear fact but rather dialog about it. I am not here

to judge a point of view. I'm simply creating relevant conversation as an

equal participant and had not intention of insulting and inflaming you and I

am not your mind to know your rules of conversation. I'm not trying to cause

conflict and it's just a vicious cycle for me to banter with you.

I am not taking a side concerning this issue I'm simply investigating by

asking questions. This is perfectly respectable and within the scope of the

social parameters.

Young

>

>

>

> " It is simply no longer possible to believe much of the clinical research

> that is published, or to rely on the judgment of trusted physicians or

> authoritative medical guidelines. I take no pleasure in this conclusion,

> which I reached slowly and reluctantly over my two decades as an editor of

> The New England Journal of Medicine. " ~Dr. Marcia Angell, 2009

>

>

>

> Please stop inflaming on this board.. I find it extremely offensive

> .. make your own group for your nonsence

[Guest guest]

> " It is simply no longer possible to believe much of the clinical research

> that is published, or to rely on the judgment of trusted physicians or

> authoritative medical guidelines. I take no pleasure in this conclusion,

> which I reached slowly and reluctantly over my two decades as an editor of

> The New England Journal of Medicine. " ~Dr. Marcia Angell, 2009

This is the system we are working in.. and you need to wake up and smell

the cofee

From: [mailto: ]

On Behalf Of

Sent: Sunday, August 01, 2010 9:09 PM

Subject: [ ] Re: The WebMD & Autism Treatments

I had been asked to help promote these advocacies. However if I cannot find

a way to help and it's insulting to try and help it seems kind of confusing.

I am talking on topic, not insulting or inflaming but you attack me but I am

the one inflaming which is weird. It just does not make sense. So if you

will please stop responding to my posts or even reading them to find ways to

create conflict where none was intended then you will find a way to get

along. If my post cannot be responded to then there is no merit in the

controversy and progress does not seem to be able to be made.

Now I am not expecting clear fact but rather dialog about it. I am not here

to judge a point of view. I'm simply creating relevant conversation as an

equal participant and had not intention of insulting and inflaming you and I

am not your mind to know your rules of conversation. I'm not trying to cause

conflict and it's just a vicious cycle for me to banter with you.

I am not taking a side concerning this issue I'm simply investigating by

asking questions. This is perfectly respectable and within the scope of the

social parameters.

Young

>

>

>

> " It is simply no longer possible to believe much of the clinical research

> that is published, or to rely on the judgment of trusted physicians or

> authoritative medical guidelines. I take no pleasure in this conclusion,

> which I reached slowly and reluctantly over my two decades as an editor of

> The New England Journal of Medicine. " ~Dr. Marcia Angell, 2009

>

>

>

> Please stop inflaming on this board.. I find it extremely offensive

> .. make your own group for your nonsence

[Guest guest]

That's clearly not the case. The problem is once someone behaves like you are

doing now it seems to alienate the while " cause " . Now I understand you do not

know me and I am schooled simply in critical thought. To me your responses

possibly denote an emotion and cause to actually hinder rather then help the

point of view. This might be because you have been attacked in the past but I

guarantee you I'm not trying to be your enemy. However if you are unwilling to

tell me what the problems are other then other people hate you, have hated you

and or have disagreed then I cannot make up my own mind. It would seem you want

me to disagree with you by not helping me understand.

When concerning me remember I am only aware of some of the controversy and have

never been emotionally involved in it to believe either way. Some autism pride

advocates would say autism viewed as a disorder like to be caused by mercury is

insulting. Asking question that might imply any way will insult someone. It's up

to the individual to be insulted ultimately but I know my own mind to know that

I can think for myself and will speak freely.

Young

>

> Your insinuating there is no basis for what we do.. go hate somewhere else..

> be part of the solution not the problem

[Guest guest]

You're not interested in anything but antagonizing.. we all have work to do

and kids that want and need to be healed. stop using this board for your

personal agenda.. you are on the wrong board.. I am just direct enough to

tell you . others may try to be nice but in the end .. that does you no

favor. Make your own board

From: [mailto: ]

On Behalf Of

Sent: Sunday, August 01, 2010 9:09 PM

Subject: [ ] Re: The WebMD & Autism Treatments

I had been asked to help promote these advocacies. However if I cannot find

a way to help and it's insulting to try and help it seems kind of confusing.

I am talking on topic, not insulting or inflaming but you attack me but I am

the one inflaming which is weird. It just does not make sense. So if you

will please stop responding to my posts or even reading them to find ways to

create conflict where none was intended then you will find a way to get

along. If my post cannot be responded to then there is no merit in the

controversy and progress does not seem to be able to be made.

Now I am not expecting clear fact but rather dialog about it. I am not here

to judge a point of view. I'm simply creating relevant conversation as an

equal participant and had not intention of insulting and inflaming you and I

am not your mind to know your rules of conversation. I'm not trying to cause

conflict and it's just a vicious cycle for me to banter with you.

I am not taking a side concerning this issue I'm simply investigating by

asking questions. This is perfectly respectable and within the scope of the

social parameters.

Young

>

>

>

> " It is simply no longer possible to believe much of the clinical research

> that is published, or to rely on the judgment of trusted physicians or

> authoritative medical guidelines. I take no pleasure in this conclusion,

> which I reached slowly and reluctantly over my two decades as an editor of

> The New England Journal of Medicine. " ~Dr. Marcia Angell, 2009

>

>

>

> Please stop inflaming on this board.. I find it extremely offensive

> .. make your own group for your nonsence

[Guest guest]

Last I knew you were not my father .. you don't get to talk to me like

that.. back off jerk

From: [mailto: ]

On Behalf Of

Sent: Sunday, August 01, 2010 9:33 PM

Subject: [ ] Re: The WebMD & Autism Treatments

That's clearly not the case. The problem is once someone behaves like you

are doing now it seems to alienate the while " cause " . Now I understand you

do not know me and I am schooled simply in critical thought. To me your

responses possibly denote an emotion and cause to actually hinder rather

then help the point of view. This might be because you have been attacked in

the past but I guarantee you I'm not trying to be your enemy. However if you

are unwilling to tell me what the problems are other then other people hate

you, have hated you and or have disagreed then I cannot make up my own mind.

It would seem you want me to disagree with you by not helping me understand.

When concerning me remember I am only aware of some of the controversy and

have never been emotionally involved in it to believe either way. Some

autism pride advocates would say autism viewed as a disorder like to be

caused by mercury is insulting. Asking question that might imply any way

will insult someone. It's up to the individual to be insulted ultimately but

I know my own mind to know that I can think for myself and will speak

freely.

Young

>

> Your insinuating there is no basis for what we do.. go hate somewhere

else..

> be part of the solution not the problem

[Guest guest]

So it would seem that the thought it special interest has something to loose by

acknowledgment the home grown science and discovery as what is seen here. If

someone get results by alternative treatment and it's not just effective with

one individual but least some in a group then I think this is science and fact.

So WebMD and the likes of them don't want to know or display this truth?

What does the special interest have to loose? Can you explain, does it have to

do with money in general and or liability?

Young

>

> > " It is simply no longer possible to believe much of the clinical research

> > that is published, or to rely on the judgment of trusted physicians or

> > authoritative medical guidelines. I take no pleasure in this conclusion,

> > which I reached slowly and reluctantly over my two decades as an editor of

> > The New England Journal of Medicine. " ~Dr. Marcia Angell, 2009

>

>

> This is the system we are working in.. and you need to wake up and smell

> the cofeements

[Guest guest]

Yet you start the conversation talking to me in those ways but it's ok because

you are you. This is redicilious.

>

> Last I knew you were not my father .. you don't get to talk to me like

> that.. back off jerk

[Guest guest]

We all know you're a " plant " so just leave us alone

From: [mailto: ]

On Behalf Of Crystal Palmer-Bull

Sent: Sunday, August 01, 2010 9:35 PM

Subject: RE: [ ] Re: The WebMD & Autism Treatments

Last I knew you were not my father .. you don't get to talk to me like

that.. back off jerk

From:

<mailto: %40>

[mailto:

<mailto: %40> ]

On Behalf Of

Sent: Sunday, August 01, 2010 9:33 PM

<mailto: %40>

Subject: [ ] Re: The WebMD & Autism Treatments

That's clearly not the case. The problem is once someone behaves like you

are doing now it seems to alienate the while " cause " . Now I understand you

do not know me and I am schooled simply in critical thought. To me your

responses possibly denote an emotion and cause to actually hinder rather

then help the point of view. This might be because you have been attacked in

the past but I guarantee you I'm not trying to be your enemy. However if you

are unwilling to tell me what the problems are other then other people hate

you, have hated you and or have disagreed then I cannot make up my own mind.

It would seem you want me to disagree with you by not helping me understand.

When concerning me remember I am only aware of some of the controversy and

have never been emotionally involved in it to believe either way. Some

autism pride advocates would say autism viewed as a disorder like to be

caused by mercury is insulting. Asking question that might imply any way

will insult someone. It's up to the individual to be insulted ultimately but

I know my own mind to know that I can think for myself and will speak

freely.

Young

>

> Your insinuating there is no basis for what we do.. go hate somewhere

else..

> be part of the solution not the problem

[Guest guest]

You have chosen not to like me but it's not important to me that you do. You

chose to partake in the topic and attack without any constructive input but

attacking. Everyone has an agenda. I don't know much about this topic so I ask

questions. Asking questions is everyones personal agenda both as a respectable

behavior and right and as well as a courtesy to allow. If it's ok for you to ask

questions but insulting if I do then please observe this as it's not ok.

>

> You're not interested in anything but antagonizing.. we all have work to do

> and kids that want and need to be healed. stop using this board for your

> personal agenda.. you are on the wrong board.. I am just direct enough to

> tell you . others may try to be nice but in the end .. that does you no

> favor. Make your own board

[Guest guest]

Go run your candle scam and leave us alone

From: [mailto: ]

On Behalf Of

Sent: Sunday, August 01, 2010 9:38 PM

Subject: [ ] Re: The WebMD & Autism Treatments

Yet you start the conversation talking to me in those ways but it's ok

because you are you. This is redicilious.

>

> Last I knew you were not my father .. you don't get to talk to me like

> that.. back off jerk

[Guest guest]

Well I don't want to fill up this forum responding to your posts concerning a

serious question. I do not know what a plant is in context to me. I'm not a

vegetarian if it was a joke and I did not call you any names but you seem to be

in the right to call me names for no reason at all. I am wrong, you are right

and I have to not exist in your social sphere in order for you to be happy.

>

> We all know you're a " plant " so just leave us alone

[Guest guest]

Call the FBI.

Ultimately while others are being employed and you want to attack it because you

hate it will exist for many years to come. I can't wait for the likes of you to

confront me in person so I can defeat it in a righteous victory for equality.

Warm and fuzzy.

>

[Guest guest]

Blah blah blah sell crazy somewhere else

You know I have a Bridge in Brooklyn for sale?

From: [mailto: ]

On Behalf Of

Sent: Sunday, August 01, 2010 9:43 PM

Subject: [ ] Re: The WebMD & Autism Treatments

Well I don't want to fill up this forum responding to your posts concerning

a serious question. I do not know what a plant is in context to me. I'm not

a vegetarian if it was a joke and I did not call you any names but you seem

to be in the right to call me names for no reason at all. I am wrong, you

are right and I have to not exist in your social sphere in order for you to

be happy.

>

> We all know you're a " plant " so just leave us alone

[Guest guest]

I am not trying to sell you anything and in fact the candles and other products

even the local police department buy directly from a participant and are not for

sale online. Really I need a vacation as I always have orders.

With concern to the mentality of yours I can't wait to cross that bridge . It's

to bad hate comes from the pride in our own " autism " community. That's ok, even

in other groups of people hate against their own happens. I understand the

psychology of it. Just know blah blah blah you won't stop equality on the rise.

Young

And blah blah blah pooh..

>

> Blah blah blah sell crazy somewhere else

>

>

>

> You know I have a Bridge in Brooklyn for sale?

[Guest guest]

Take a hard look at yourself.. and why you feel " everyone " is hating on you

... it's all us right? I don't think so .. denial is not a river in Egypt

buddy.. please leave us alone.. we have no time to debate you we have kids

to save and lives to mend..

You are just that kinda guy who HAS TO HAVE THE LAST WORD RIGHT >> BUG off

From: [mailto: ]

On Behalf Of

Sent: Sunday, August 01, 2010 9:57 PM

Subject: [ ] Re: The WebMD & Autism Treatments

I am not trying to sell you anything and in fact the candles and other

products even the local police department buy directly from a participant

and are not for sale online. Really I need a vacation as I always have

orders.

With concern to the mentality of yours I can't wait to cross that bridge .

It's to bad hate comes from the pride in our own " autism " community. That's

ok, even in other groups of people hate against their own happens. I

understand the psychology of it. Just know blah blah blah you won't stop

equality on the rise.

Young

And blah blah blah pooh..

>

> Blah blah blah sell crazy somewhere else

>

>

>

> You know I have a Bridge in Brooklyn for sale?

[Guest guest]

Equality? You forget you are speaking with someone as or more disabled than

you. Its America go grab it yourself stop asking for handouts, stop

playing this phony victim BS we all see thru it.. My 11yo daughter pulls

this scam better than you .. I wasn't born yesterday.like I said sell crazy

somewhere else and stop trying to distract people who really want to make

handicapped peoples lived better.

From: [mailto: ]

On Behalf Of

Sent: Sunday, August 01, 2010 9:57 PM

Subject: [ ] Re: The WebMD & Autism Treatments

I am not trying to sell you anything and in fact the candles and other

products even the local police department buy directly from a participant

and are not for sale online. Really I need a vacation as I always have

orders.

With concern to the mentality of yours I can't wait to cross that bridge .

It's to bad hate comes from the pride in our own " autism " community. That's

ok, even in other groups of people hate against their own happens. I

understand the psychology of it. Just know blah blah blah you won't stop

equality on the rise.

Young

And blah blah blah pooh..

>

> Blah blah blah sell crazy somewhere else

>

>

>

> You know I have a Bridge in Brooklyn for sale?

[Guest guest]

A plant .. planted here to distract us from our work.. a poser

From: [mailto: ]

On Behalf Of

Sent: Sunday, August 01, 2010 9:43 PM

Subject: [ ] Re: The WebMD & Autism Treatments

Well I don't want to fill up this forum responding to your posts concerning

a serious question. I do not know what a plant is in context to me. I'm not

a vegetarian if it was a joke and I did not call you any names but you seem

to be in the right to call me names for no reason at all. I am wrong, you

are right and I have to not exist in your social sphere in order for you to

be happy.

>

> We all know you're a " plant " so just leave us alone

[Guest guest]

I agree with Pam. I'm not getting the extreme reaction to his posts,

either. Perhaps there is information we don't have about , but so far, I

don't see his posts as objectionable, either. We've had much worse on

this list than someone questioning the value of other treatments or resources

that are mainstream and outside of or typically rejected by members on this

list.

Personal attacks and name-calling need to be taken outside of this

listserv. , please stop responding to these attacks and remarks as

you've

suggested you will do so we can all view and engage in more productive

discussions.

In a message dated 8/2/2010 8:53:15 A.M. Central Daylight Time,

phaselow@... writes:

,

So far, I've found you pretty innocuous. If you did come here to stir up

trouble, I really don't care. Sometimes I think it is good to challenge what

WE think, too!

There are many, many people who come to our sites trying to straddle the

worlds of traditional medicine and alternative medicine. I still struggle

with who to trust at times (I grew up with an MD for a dad) and often

question some of the autism treatments proposed on this site. I've been a

member

of these groups for nearly 7 YEARS. I have no trouble believing you honestly

feel if it isn't backed by an MD it isn't valid treatment. That is a

belief held by many.

A 'plant', means you came on the orders of a group out to tear us down.

Like a spy or a mole. When you challenge what we believe in on multiple

occasions (intentional or not), you will get that label from a few of the more

suspicious members. If you can tolerate it, stick around. I was called an

Idiot back in my first year.

Pam

> >

> > We all know you're a " plant " so just leave us alone

>

[Guest guest]

hee hee. Silly man! This is alternative medicine... most MD-based

organizations think we are crazy/desperate. Some of our interventions are based

purely on anectodal evidence and some is based on research that challenges long

held beliefs which is quite threatening to the current medical establishment,

because sadly it places some of the blame on them and their practices. Hard

pill to swallow, so to speak.

You can choose to believe who you wish to believe. That is your own journey to

navigate. Personally, I've seen my son improve beyond all expectations (of MDs)

as a result of our contraversial autism treatments (diet, supplements and

chelation for us), and I'm here to stay regardless of any stamp of approval from

WebMD.

Good luck to you!

Pam

>

> I was wondering if any of what you folks talk about here is on WebMD. If it is

not can you put that information there? The reason I say is not to disagree with

you as science is always in the state of discovery and search of fact but I can

only depend on these kinds of sources and not blogs. If doctors agree with you

then that is good so have them put it on the WebMD if it is not already there.

Can anyone reply with a WebMD link concerning the treatments discussed here?

>

> Young

>

[Guest guest]

,

So far, I've found you pretty innocuous. If you did come here to stir up

trouble, I really don't care. Sometimes I think it is good to challenge what WE

think, too!

There are many, many people who come to our sites trying to straddle the worlds

of traditional medicine and alternative medicine. I still struggle with who to

trust at times (I grew up with an MD for a dad) and often question some of the

autism treatments proposed on this site. I've been a member of these groups for

nearly 7 YEARS. I have no trouble believing you honestly feel if it isn't

backed by an MD it isn't valid treatment. That is a belief held by many.

A 'plant', means you came on the orders of a group out to tear us down. Like a

spy or a mole. When you challenge what we believe in on multiple occasions

(intentional or not), you will get that label from a few of the more suspicious

members. If you can tolerate it, stick around. I was called an Idiot back in

my first year.

Pam

> >

> > We all know you're a " plant " so just leave us alone

>

[Guest guest]

Please send messages of this nature privately.

> >

> > Blah blah blah sell crazy somewhere else

> >

> >

> >

> > You know I have a Bridge in Brooklyn for sale?

>

>

>

>

>

>

[Guest guest]

And I agree with Pam and . It's good to have people questioning what you

think, it can make you uncomfortable but it can also make you think harder and

research more.

is not saying anything objectionable, just questioning things.

Re: [ ] Re: The WebMD & Autism Treatments

I agree with Pam. I'm not getting the extreme reaction to his posts,

either. Perhaps there is information we don't have about , but so far, I

don't see his posts as objectionable, either. We've had much worse on

this list than someone questioning the value of other treatments or resources

that are mainstream and outside of or typically rejected by members on this

list.

Personal attacks and name-calling need to be taken outside of this

listserv. , please stop responding to these attacks and remarks as

you've

suggested you will do so we can all view and engage in more productive

discussions.

In a message dated 8/2/2010 8:53:15 A.M. Central Daylight Time,

phaselow@... writes:

,

So far, I've found you pretty innocuous. If you did come here to stir up

trouble, I really don't care. Sometimes I think it is good to challenge what

WE think, too!

There are many, many people who come to our sites trying to straddle the

worlds of traditional medicine and alternative medicine. I still struggle

with who to trust at times (I grew up with an MD for a dad) and often

question some of the autism treatments proposed on this site. I've been a

member

of these groups for nearly 7 YEARS. I have no trouble believing you honestly

feel if it isn't backed by an MD it isn't valid treatment. That is a

belief held by many.

A 'plant', means you came on the orders of a group out to tear us down.

Like a spy or a mole. When you challenge what we believe in on multiple

occasions (intentional or not), you will get that label from a few of the more

suspicious members. If you can tolerate it, stick around. I was called an

Idiot back in my first year.

Pam

> >

> > We all know you're a " plant " so just leave us alone

>

[Guest guest]

Why don't you guys get a room. Please take this offline, 1-1. It has nothing to

do with what tis group is about.

It is also a good way to get banned. The moderator will throw you both off. It's

happened before more than once.

TJ

________________________________

From: Crystal Palmer-Bull <cpalmerbull@...>

Sent: Sun, August 1, 2010 10:37:39 PM

Subject: RE: [ ] Re: The WebMD & Autism Treatments

 

A plant .. planted here to distract us from our work.. a poser

From: [mailto: ]

On Behalf Of

Sent: Sunday, August 01, 2010 9:43 PM

Subject: [ ] Re: The WebMD & Autism Treatments

Well I don't want to fill up this forum responding to your posts concerning

a serious question. I do not know what a plant is in context to me. I'm not

a vegetarian if it was a joke and I did not call you any names but you seem

to be in the right to call me names for no reason at all. I am wrong, you

are right and I have to not exist in your social sphere in order for you to

be happy.

>

> We all know you're a " plant " so just leave us alone