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Re: What is the difference between Aspergers and HFA?

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A timely op-ed in today's New York Times:

Disorder out of Chaos:

_http://www.nytimes.com/2010/02/10/opinion/10grinker.html?emc=eta1_

(http://www.nytimes.com/2010/02/10/opinion/10grinker.html?emc=eta1)

Good food for thought about what " high functioning " should consider.

In a message dated 2/10/2010 12:52:08 P.M. Central Standard Time,

Ladyshrink111@... writes:

----- Original Message -----

From: Andree

Thank you for your reply.

Interesting comment you make about the biomedical differences. I saw my

DD's DAN recently (I just see her for needs outside chelation) but she said

that labwork for HFA kids shows issues (metals, yeast, deficiencies etc) and

they typically respond well to treatments while labwork for Asperger kids

reveals few issues and they respond poorly to treatments. Do you know if

many docs share this view?

=====>I do not know about Asperger kids, few kids meet the strict

diagnosis because of that restricted interest criteria I talked about. I do

know

that many drs say and it is also my experience that PDD-NOS kids respond

very, very well to treatment. I do remember a couple of studies for various

treatments that did show improvement with Autistic kids but not Asperger kids.

It could also be that Asperger kids get identified later, come to Biomed

treatment later than their Autistic counterparts so that the treatment is

less effective as we know.

I see that soon Aspergers & PDD-NOS will be removed from the DSM, mostly

because there is no scientific rationale for distinguishing between these

forms of autism - if I understand correctly. Yet, if biomedical markers are

different, then there are medical differences too right?

====>I think this is a mistake, I think there are distinct differences in

the Autism vs. PDD-NOS and Asperger categories. Yes, there are medical

differences, cholesterol levels being one with Pdd-nos and Asperger kids

presenting with high cholesterol, Autism kids with low. This finding alone is

probably responsible for the advanced speech of the pdd-nos/Asperger kids vs

Autistic kids.

For us, I'm just trying to find the closest fit for DD between HFA &

Aspergers.

====>If it helps we were very close to Aspergers yet she responded

unbelievably well to chelation, viral treatment and thyroid supplementation.

>

>

> ----- Original Message -----

> From: Andree

>

> ===>Clinically speaking there is no such category as high functioning

Autism. Experts disagree as to whether Aspergers is a separate dx from

Autism. I agree that it is separate as Asperger kids differ even in Biomedical

presentation as well as behavioral presentation. Ours was the same, didn't

fit either category, missing the Asperger dx only by the criteria that she

had " restrictive interests " although I saw this come out early in chelation

rounds. These kids get relegated to the PDD-NOS category and I think this is

what regular people are talking about when they say " high functioning "

Autism.

>

>

>

>

>

> Is there a definition that is agreed upon?

>

> My DD is on the spectrum but not officially diagnosed and she has

elements of both groups, but isn't typical of either. She has advanced

vocabulary

and language skills, but isn't always adept in her communication,

understanding/ My DD is on the spectrum b

>

> Thanks

>

>

>

>

>

>

> [Non-text portions of this message have been removed]

>

[Non-text portions of this message have been removed]

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----- Original Message -----

From: Andree

===>Clinically speaking there is no such category as high functioning Autism.

Experts disagree as to whether Aspergers is a separate dx from Autism. I agree

that it is separate as Asperger kids differ even in Biomedical presentation as

well as behavioral presentation. Ours was the same, didn't fit either category,

missing the Asperger dx only by the criteria that she had " restrictive

interests " although I saw this come out early in chelation rounds. These kids

get relegated to the PDD-NOS category and I think this is what regular people

are talking about when they say " high functioning " Autism.

Is there a definition that is agreed upon?

My DD is on the spectrum but not officially diagnosed and she has elements of

both groups, but isn't typical of either. She has advanced vocabulary and

language skills, but isn't always adept in her communication,

understanding/following discussions.

Thanks

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Share on other sites

Thank you for your reply.

Interesting comment you make about the biomedical differences. I saw my DD's DAN

recently (I just see her for needs outside chelation) but she said that labwork

for HFA kids shows issues (metals, yeast, deficiencies etc) and they typically

respond well to treatments while labwork for Asperger kids reveals few issues

and they respond poorly to treatments. Do you know if many docs share this view?

I see that soon Aspergers & PDD-NOS will be removed from the DSM, mostly because

there is no scientific rationale for distinguishing between these forms of

autism - if I understand correctly. Yet, if biomedical markers are different,

then there are medical differences too right?

For us, I'm just trying to find the closest fit for DD between HFA & Aspergers.

>

>

> ----- Original Message -----

> From: Andree

>

> ===>Clinically speaking there is no such category as high functioning

Autism. Experts disagree as to whether Aspergers is a separate dx from Autism. I

agree that it is separate as Asperger kids differ even in Biomedical

presentation as well as behavioral presentation. Ours was the same, didn't fit

either category, missing the Asperger dx only by the criteria that she had

" restrictive interests " although I saw this come out early in chelation rounds.

These kids get relegated to the PDD-NOS category and I think this is what

regular people are talking about when they say " high functioning " Autism.

>

>

>

>

>

> Is there a definition that is agreed upon?

>

> My DD is on the spectrum but not officially diagnosed and she has elements

of both groups, but isn't typical of either. She has advanced vocabulary and

language skills, but isn't always adept in her communication,

understanding/following discussions.

>

> Thanks

>

>

>

>

>

>

>

Link to comment
Share on other sites

----- Original Message -----

From: Andree

Thank you for your reply.

Interesting comment you make about the biomedical differences. I saw my DD's

DAN recently (I just see her for needs outside chelation) but she said that

labwork for HFA kids shows issues (metals, yeast, deficiencies etc) and they

typically respond well to treatments while labwork for Asperger kids reveals few

issues and they respond poorly to treatments. Do you know if many docs share

this view?

=====>I do not know about Asperger kids, few kids meet the strict diagnosis

because of that restricted interest criteria I talked about. I do know that

many drs say and it is also my experience that PDD-NOS kids respond very, very

well to treatment. I do remember a couple of studies for various treatments

that did show improvement with Autistic kids but not Asperger kids. It could

also be that Asperger kids get identified later, come to Biomed treatment later

than their Autistic counterparts so that the treatment is less effective as we

know.

I see that soon Aspergers & PDD-NOS will be removed from the DSM, mostly

because there is no scientific rationale for distinguishing between these forms

of autism - if I understand correctly. Yet, if biomedical markers are different,

then there are medical differences too right?

====>I think this is a mistake, I think there are distinct differences in the

Autism vs. PDD-NOS and Asperger categories. Yes, there are medical differences,

cholesterol levels being one with Pdd-nos and Asperger kids presenting with high

cholesterol, Autism kids with low. This finding alone is probably responsible

for the advanced speech of the pdd-nos/Asperger kids vs Autistic kids.

For us, I'm just trying to find the closest fit for DD between HFA &

Aspergers.

====>If it helps we were very close to Aspergers yet she responded

unbelievably well to chelation, viral treatment and thyroid supplementation.

>

>

> ----- Original Message -----

> From: Andree

>

> ===>Clinically speaking there is no such category as high functioning

Autism. Experts disagree as to whether Aspergers is a separate dx from Autism. I

agree that it is separate as Asperger kids differ even in Biomedical

presentation as well as behavioral presentation. Ours was the same, didn't fit

either category, missing the Asperger dx only by the criteria that she had

" restrictive interests " although I saw this come out early in chelation rounds.

These kids get relegated to the PDD-NOS category and I think this is what

regular people are talking about when they say " high functioning " Autism.

>

>

>

>

>

> Is there a definition that is agreed upon?

>

> My DD is on the spectrum but not officially diagnosed and she has elements

of both groups, but isn't typical of either. She has advanced vocabulary and

language skills, but isn't always adept in her communication,

understanding/following discussions.

>

> Thanks

>

>

>

>

>

>

>

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Share on other sites

That is currently being revised for the 2013 edition of the DSM (Diagnostic &

Statistical Manual). NPR ran a story on it this morning.

http://www.npr.org/templates/story/story.php?storyId=123527833

Asperger's has a separate listing in the current edition but will come under

Autism Spectrum Disorders in the next edition. Some differentiate based on

whether the child's speech developed typically. Did she regress at some point?

With Asperger's social issues are often the biggest challenge while with autism

it's generally all three: communication, social, and self-stim or apparent need

for repetitive seemingly non-productive behaviors

S S

What is the difference between Aspergers and HFA?

Posted by: " Andree " mam78@... iam2l84t

Wed Feb 10, 2010 8:41 am (PST)

Is there a definition that is agreed upon?

My DD is on the spectrum but not officially diagnosed and she has elements of

both groups, but isn't typical of either. She has advanced vocabulary and

language skills, but isn't always adept in her communication,

understanding/following discussions.

Thanks

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saving today.

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AYAAAAAAAAAAAAAAAAAAADNAAAAAAAAAAAAAAAAAAADZr47liI=

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Some say that PDD really stands for Physician Didn't Decide...

S S

Re: What is the difference between Aspergers and HFA?

Posted by: " " Ladyshrink111@... ladyshrink222

Wed Feb 10, 2010 9:36 am (PST)

----- Original Message -----

From: Andree

===>Clinically speaking there is no such category as high functioning Autism.

Experts disagree as to whether Aspergers is a separate dx from Autism. I agree

that it is separate as Asperger kids differ even in Biomedical presentation as

well as behavioral presentation. Ours was the same, didn't fit either category,

missing the Asperger dx only by the criteria that she had " restrictive

interests " although I saw this come out early in chelation rounds. These kids

get relegated to the PDD-NOS category and I think this is what regular people

are talking about when they say " high functioning " Autism.

------------------------------------------------------------

Compete with the big boys. Click here to find products to benefit your

business.

Small Business Tools

http://tagline.excite.com/c?cp=uayHaR2DJ_OiSTdagyX1_gAAKZRr_2tbQBaG-3loGUsiTeHAA\

AYAAAAAAAAAAAAAAAAAAADNAAAAAAAAAAAAAAAAAAARMb47liI=

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I did Great Plains Organic Oats testing on my high functioning PPD-NOS guy.

Really helped me a lot showing what I needed to work on with him. I think work

it!

Tammy

[ ] Re: What is the difference between Aspergers and

HFA?

Thank you for your reply.

Interesting comment you make about the biomedical differences. I saw my DD's

DAN recently (I just see her for needs outside chelation) but she said that

labwork for HFA kids shows issues (metals, yeast, deficiencies etc) and they

typically respond well to treatments while labwork for Asperger kids reveals few

issues and they respond poorly to treatments. Do you know if many docs share

this view?

I see that soon Aspergers & PDD-NOS will be removed from the DSM, mostly

because there is no scientific rationale for distinguishing between these forms

of autism - if I understand correctly. Yet, if biomedical markers are different,

then there are medical differences too right?

For us, I'm just trying to find the closest fit for DD between HFA &

Aspergers.

>

>

> ----- Original Message -----

> From: Andree

>

> ===>Clinically speaking there is no such category as high functioning

Autism. Experts disagree as to whether Aspergers is a separate dx from Autism. I

agree that it is separate as Asperger kids differ even in Biomedical

presentation as well as behavioral presentation. Ours was the same, didn't fit

either category, missing the Asperger dx only by the criteria that she had

" restrictive interests " although I saw this come out early in chelation rounds.

These kids get relegated to the PDD-NOS category and I think this is what

regular people are talking about when they say " high functioning " Autism.

>

>

>

>

>

> Is there a definition that is agreed upon?

>

> My DD is on the spectrum but not officially diagnosed and she has elements

of both groups, but isn't typical of either. She has advanced vocabulary and

language skills, but isn't always adept in her communication,

understanding/following discussions.

>

> Thanks

>

>

>

>

>

>

>

Link to comment
Share on other sites

I see PDD-NOS has a catch all. My guys doesn't fit any one diagnoses. Some

would say asbergers but you don't see the auditory processing, speech delay and

my guys a little too social, but still off. Doesn't really matter. With age,

boy is his unique gifts really showing, his writing skills.

Tammy

[ ] Re: What is the difference between Aspergers and

HFA?

Some say that PDD really stands for Physician Didn't Decide...

S S

Re: What is the difference between Aspergers and HFA?

Posted by: " " Ladyshrink111@... ladyshrink222

Wed Feb 10, 2010 9:36 am (PST)

----- Original Message -----

From: Andree

===>Clinically speaking there is no such category as high functioning Autism.

Experts disagree as to whether Aspergers is a separate dx from Autism. I agree

that it is separate as Asperger kids differ even in Biomedical presentation as

well as behavioral presentation. Ours was the same, didn't fit either category,

missing the Asperger dx only by the criteria that she had " restrictive

interests " although I saw this come out early in chelation rounds. These kids

get relegated to the PDD-NOS category and I think this is what regular people

are talking about when they say " high functioning " Autism.

----------------------------------------------------------

Compete with the big boys. Click here to find products to benefit your

business.

Small Business Tools

http://tagline.excite.com/c?cp=uayHaR2DJ_OiSTdagyX1_gAAKZRr_2tbQBaG-3loGUsiTeHAA\

AYAAAAAAAAAAAAAAAAAAADNAAAAAAAAAAAAAAAAAAARMb47liI=

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The DSM is written by doctors. They would love to blur the distinction to make

it easier for them to pretend that low functioning kids don't even exist.

Autism = Completely screwed up

PDD = A little less screwed up

Asperger's = Hardly screwed up at all.

>

> That is currently being revised for the 2013 edition of the DSM (Diagnostic &

Statistical Manual). NPR ran a story on it this morning.

> http://www.npr.org/templates/story/story.php?storyId=123527833

> Asperger's has a separate listing in the current edition but will come under

Autism Spectrum Disorders in the next edition. Some differentiate based on

whether the child's speech developed typically. Did she regress at some point?

With Asperger's social issues are often the biggest challenge while with autism

it's generally all three: communication, social, and self-stim or apparent need

for repetitive seemingly non-productive behaviors

> S S

>

> What is the difference between Aspergers and HFA?

> Posted by: " Andree " mam78@... iam2l84t

> Wed Feb 10, 2010 8:41 am (PST)

>

>

>

> Is there a definition that is agreed upon?

>

> My DD is on the spectrum but not officially diagnosed and she has elements of

both groups, but isn't typical of either. She has advanced vocabulary and

language skills, but isn't always adept in her communication,

understanding/following discussions.

>

> Thanks

>

>

> ------------------------------------------------------------

> Want to work all of your life? Click here for investment information and

start saving today.

> Investing

>

http://tagline.excite.com/c?cp=BwmzwGWAianhsoaH3J1VlwAAKZRr_2tbQBaG-3loGUsiTeHAA\

AYAAAAAAAAAAAAAAAAAAADNAAAAAAAAAAAAAAAAAAADZr47liI=

>

>

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Sorry to butt in, I've been lurking here daily for months, anticipating

chelation.

May I please ask?

What is you opinion of a Sensory Processing Disorder dx?

Do you think it's possible as a standalone condition?

I ask, because that it what we have, and daughter is responding to biomedical

(diet/supplements) however, I often ponder Aspbergers or PPD-NOS.

Thanks for your thoughts, much respected.

&

4

> >

> >

> > ----- Original Message -----

> > From: Andree

> >

> > ===>Clinically speaking there is no such category as high functioning

Autism. Experts disagree as to whether Aspergers is a separate dx from Autism. I

agree that it is separate as Asperger kids differ even in Biomedical

presentation as well as behavioral presentation. Ours was the same, didn't fit

either category, missing the Asperger dx only by the criteria that she had

" restrictive interests " although I saw this come out early in chelation rounds.

These kids get relegated to the PDD-NOS category and I think this is what

regular people are talking about when they say " high functioning " Autism.

> >

> >

> >

> >

> >

> > Is there a definition that is agreed upon?

> >

> > My DD is on the spectrum but not officially diagnosed and she has elements

of both groups, but isn't typical of either. She has advanced vocabulary and

language skills, but isn't always adept in her communication,

understanding/following discussions.

> >

> > Thanks

> >

> >

> >

> >

> >

> >

> >

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Share on other sites

----- Original Message -----

From: Shepard Salzer

Some say that PDD really stands for Physician Didn't Decide...

S S

===>Lol, shhhhh....allow us to have some dignity. I really do believe there

are the " new " Autism kids, the mercury poisoned that fit neither the Autistic dx

or the Asperger dx. But yes, that's what we call it.

Re: What is the difference between Aspergers and HFA?

Posted by: " " Ladyshrink111@... ladyshrink222

Wed Feb 10, 2010 9:36 am (PST)

----- Original Message -----

From: Andree

===>Clinically speaking there is no such category as high functioning Autism.

Experts disagree as to whether Aspergers is a separate dx from Autism. I agree

that it is separate as Asperger kids differ even in Biomedical presentation as

well as behavioral presentation. Ours was the same, didn't fit either category,

missing the Asperger dx only by the criteria that she had " restrictive

interests " although I saw this come out early in chelation rounds. These kids

get relegated to the PDD-NOS category and I think this is what regular people

are talking about when they say " high functioning " Autism.

----------------------------------------------------------

Compete with the big boys. Click here to find products to benefit your

business.

Small Business Tools

http://tagline.excite.com/c?cp=uayHaR2DJ_OiSTdagyX1_gAAKZRr_2tbQBaG-3loGUsiTeHAA\

AYAAAAAAAAAAAAAAAAAAADNAAAAAAAAAAAAAAAAAAARMb47liI=

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----- Original Message -----

From: sarahsu9

===,

I couldn't know unless I saw your dd, but I rarely see sensory processing

disorder alone with a child. If you'd care to share the entirety of her symptoms

we could make a good guess but the truth is that the dx's don't matter. In the

lion's share of cases it's neurological damage caused by vaccines. I know

everyone knows but a lesser dx doesn't make the child more valuable. Chelation

is the best chance for a cure.

But I did it also, even though I had been dx'ing kids for years and years,

looked over and over the various categories and really could not decide where

she fit. And to make it worse ours had such varying skill sets from day to day

she could be dx'd with them all in a week and some weeks only ADD, before

chelation. We finally took her to two different pediatric dev. neuros and she

was having such good days, BOTH times that they thought we were disordered.

Honestly, she did things there (drew a diamond at age 3, which is a 7 year old

skill, never saw that before). that frankly made us look stupid. I quit worrying

about it and just chelated her. I just know now, after chelation she would be

dx'd with nothing, just a delightful 8.5 year old in a typical public school

with no issues, excelling.

Best wishes for your child,

Sorry to butt in, I've been lurking here daily for months, anticipating

chelation.

May I please ask?

What is you opinion of a Sensory Processing Disorder dx?

Do you think it's possible as a standalone condition?

I ask, because that it what we have, and daughter is responding to biomedical

(diet/supplements) however, I often ponder Aspbergers or PPD-NOS.

Thanks for your thoughts, much respected.

&

4

> >

> >

> > ----- Original Message -----

> > From: Andree

> >

> > ===>Clinically speaking there is no such category as high functioning

Autism. Experts disagree as to whether Aspergers is a separate dx from Autism. I

agree that it is separate as Asperger kids differ even in Biomedical

presentation as well as behavioral presentation. Ours was the same, didn't fit

either category, missing the Asperger dx only by the criteria that she had

" restrictive interests " although I saw this come out early in chelation rounds.

These kids get relegated to the PDD-NOS category and I think this is what

regular people are talking about when they say " high functioning " Autism.

> >

> >

> >

> >

> >

> > Is there a definition that is agreed upon?

> >

> > My DD is on the spectrum but not officially diagnosed and she has elements

of both groups, but isn't typical of either. She has advanced vocabulary and

language skills, but isn't always adept in her communication,

understanding/following discussions.

> >

> > Thanks

> >

> >

> >

> >

> >

> >

> >

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Thank you sincerely for your time and response.

It rings very true with me, especially given day to day, it could be various

dx's, also dependent on how well we are 'patched' up with supplements, yeast

control.

Yes, metal toxicity is valid and emotional to me, the pieces are there. I

believe it. I think I've known it all along.

I have been treating with OT and Biomed for the sensory.

Having a further neurological evalution done in the next 2 weeks, perhaps to

satisfy my own curiosity, perhaps to have later for school if I need it. We

have issues.

While it will be interesting to hear the outcome, I have also become distrustful

and leery of medical professionals in my life, and their motivations.

Thanks again,

&

4

> > >

> > >

> > > ----- Original Message -----

> > > From: Andree

> > >

> > > ===>Clinically speaking there is no such category as high functioning

Autism. Experts disagree as to whether Aspergers is a separate dx from Autism. I

agree that it is separate as Asperger kids differ even in Biomedical

presentation as well as behavioral presentation. Ours was the same, didn't fit

either category, missing the Asperger dx only by the criteria that she had

" restrictive interests " although I saw this come out early in chelation rounds.

These kids get relegated to the PDD-NOS category and I think this is what

regular people are talking about when they say " high functioning " Autism.

> > >

> > >

> > >

> > >

> > >

> > > Is there a definition that is agreed upon?

> > >

> > > My DD is on the spectrum but not officially diagnosed and she has

elements of both groups, but isn't typical of either. She has advanced

vocabulary and language skills, but isn't always adept in her communication,

understanding/following discussions.

> > >

> > > Thanks

> > >

> > >

> > >

> > >

> > >

> > >

> > >

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Share on other sites

> ====>I think this is a mistake, I think there are distinct differences in

the Autism vs. PDD-NOS and Asperger categories. Yes, there are medical

differences, cholesterol levels being one with Pdd-nos and Asperger kids

presenting with high cholesterol, Autism kids with low. This finding alone is

probably responsible for the advanced speech of the pdd-nos/Asperger kids vs

Autistic kids.

I also think it's a mistake, but isn't the ultimate mistake the fact that autism

is listed in the DSM instead of medical textbooks? We should have more solid

medical markers of the various types of autism by now and talk about this more

in medical terms.

I don't think that my DD's cholesterol has ever been tested. I'll have to see if

we can test it at some point. What is the relationship between cholesterol and

speech?

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----- Original Message -----

From: sarahsu9

While it will be interesting to hear the outcome, I have also become

distrustful and leery of medical professionals in my life, and their

motivations.

=====>Good, keep the distrust, it's healthy.

Thanks again,

&

4

> > >

> > >

> > > ----- Original Message -----

> > > From: Andree

> > >

> > > ===>Clinically speaking there is no such category as high functioning

Autism. Experts disagree as to whether Aspergers is a separate dx from Autism. I

agree that it is separate as Asperger kids differ even in Biomedical

presentation as well as behavioral presentation. Ours was the same, didn't fit

either category, missing the Asperger dx only by the criteria that she had

" restrictive interests " although I saw this come out early in chelation rounds.

These kids get relegated to the PDD-NOS category and I think this is what

regular people are talking about when they say " high functioning " Autism.

> > >

> > >

> > >

> > >

> > >

> > > Is there a definition that is agreed upon?

> > >

> > > My DD is on the spectrum but not officially diagnosed and she has

elements of both groups, but isn't typical of either. She has advanced

vocabulary and language skills, but isn't always adept in her communication,

understanding/following discussions.

> > >

> > > Thanks

> > >

> > >

> > >

> > >

> > >

> > >

> > >

Link to comment
Share on other sites

----- Original Message -----

From: Andree

> ====>I think this is a mistake, I think there are distinct differences in

the Autism vs. PDD-NOS and Asperger categories. Yes, there are medical

differences, cholesterol levels being one with Pdd-nos and Asperger kids

presenting with high cholesterol, Autism kids with low. This finding alone is

probably responsible for the advanced speech of the pdd-nos/Asperger kids vs

Autistic kids.

I also think it's a mistake, but isn't the ultimate mistake the fact that

autism is listed in the DSM instead of medical textbooks? We should have more

solid medical markers of the various types of autism by now and talk about this

more in medical terms.

I don't think that my DD's cholesterol has ever been tested. I'll have to see

if we can test it at some point. What is the relationship between cholesterol

and speech?

===>Think Autism is also listed in the ICD-9. You need cholesterol to make

myelin sheaths which are responsible for higher order cognitive processes,

speech, reading, etc.

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> The DSM is written by doctors. They would love to blur the distinction to

make it easier for them to pretend that low functioning kids don't even exist.

> Autism = Completely screwed up

> PDD = A little less screwed up

> Asperger's = Hardly screwed up at all.

I had an autism, a PDD/sensory, an Asperger/ADD, and an ADHD. Thankfully they

are all either recovered or almost recovered. Here is how I would rate them:

Autism = completely screwed up

PDD = significantly screwed up

Asperger = moderately screwed up

ADHD = moderately screwed up

My ADHD child had certain problems that were significantly more serious than my

autism child. They just presented in different ways that were not related to

intellect.

Dana

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