Re: Got tested for pyroluria - have questions

[Guest guest]

If I thought I was mercury toxic I would get a hair toxic elements test from

doctors data and then interpret the results using Dr Andy Cutlers counting rules

ad outlined in his book amalgam illness.

>

>

> Hi,

>

> I don't technically have autism (although I might be somewhere on the bottom

part of the spectrum), nor do I have a family member with autism - but I've been

an occassional lurker of this group because I've strongly suspected that I

suffer from mercury intoxication, and this group is such a treasure when it

comes to this and related issues.

>

> Anyway - I recently took a home urine test for pyroluria through the

Bio-Center Laboratory, and I received my test results back today. I have some

questions and concerns about the results - and I thought that this might be a

good place to ask since it's possible that some members here are familiar with

this test.

>

> According to Bio-Center, the " normal " range for the pyroluria (pyrroles) urine

test is 0 - 20 ug/dL. Anything higher than 20 would be strongly suggestive of

pyroluria, I think. Well, my result is an astronomical 126! In some ways, I'm

glad to see this result - for it could be an important explanation for my severe

psychological issues.

>

> But, I worry that the result might be " too good to be true " . See - shortly

after I sent my sample back to Bio-Center, I emailed a Bio-Center employee with

the worry that the timing of my sample-collection may have been " off " - and that

it may result in a " false low " or " diluted " result. At the end of the email, I

mentioned how important an accurate result is to me - since an accurate

diagnosis could explain my lifelong struggles. This may or may not be

reasonable, but I worry that this revelation that I've been having problems may

have caused them to have a certain " bias " when it came to evaluating my sample

and generating the result. Maybe they had so much sympathy for me that they

inflated the result?

>

> Part of me thinks it's stupid to have this worry - but there is that part of

me that is skeptical and unsure. Bio-Center has a good reputation, right?

Would the soundness of the scientific process win out over any personal biases?

>

> For anyone who've taken this test, may I ask what your results were? I just

want a feel for how atypical my results might be. How confident should I be

that this is a sound, accurate result?

>

> Thanks for any feedback,

>

> ~Svetaswan

>

[Guest guest]

Hi Ideals,

I got the Hair Elements test done last year, actually. I even had the results

posted to the Living Network website and the generous folks at the Frequent-Dose

Chelation group helped me interpret them.

Apparently, my hair test did not meet the counting rules for " deranged mineral

transport " - and there is really nothing in the results that reveals mercury

intoxication. But I was told (and I pretty much agree) that just because I

didn't meet the rules doesn't mean that I should rule out some degree of mercury

intoxication. Everyone's body chemistry is different....besides, I have a lot

of mental and physical symptoms that are consistent with " amalgam

illness " /mercury toxicity. So I'm not yet willing to drop mercury intoxication

from the list of things that could be going on with me.

Also - if I have pyroluria (and the test result says that I have it in spades) -

it would mean that my body has been deficient in zinc. And supposedly, zinc is

important in your body's defenses from heavy-metal toxicity - from what I've

read, it is involved in making something called " metallthionen " (sp.) that binds

with heavy metals and excretes them from the body.

~Svetaswan

> >

> >

> > Hi,

> >

> > I don't technically have autism (although I might be somewhere on the bottom

part of the spectrum), nor do I have a family member with autism - but I've been

an occassional lurker of this group because I've strongly suspected that I

suffer from mercury intoxication, and this group is such a treasure when it

comes to this and related issues.

> >

> > Anyway - I recently took a home urine test for pyroluria through the

Bio-Center Laboratory, and I received my test results back today. I have some

questions and concerns about the results - and I thought that this might be a

good place to ask since it's possible that some members here are familiar with

this test.

> >

> > According to Bio-Center, the " normal " range for the pyroluria (pyrroles)

urine test is 0 - 20 ug/dL. Anything higher than 20 would be strongly

suggestive of pyroluria, I think. Well, my result is an astronomical 126! In

some ways, I'm glad to see this result - for it could be an important

explanation for my severe psychological issues.

> >

> > But, I worry that the result might be " too good to be true " . See - shortly

after I sent my sample back to Bio-Center, I emailed a Bio-Center employee with

the worry that the timing of my sample-collection may have been " off " - and that

it may result in a " false low " or " diluted " result. At the end of the email, I

mentioned how important an accurate result is to me - since an accurate

diagnosis could explain my lifelong struggles. This may or may not be

reasonable, but I worry that this revelation that I've been having problems may

have caused them to have a certain " bias " when it came to evaluating my sample

and generating the result. Maybe they had so much sympathy for me that they

inflated the result?

> >

> > Part of me thinks it's stupid to have this worry - but there is that part of

me that is skeptical and unsure. Bio-Center has a good reputation, right?

Would the soundness of the scientific process win out over any personal biases?

> >

> > For anyone who've taken this test, may I ask what your results were? I just

want a feel for how atypical my results might be. How confident should I be

that this is a sound, accurate result?

> >

> > Thanks for any feedback,

> >

> > ~Svetaswan

> >

>

[Guest guest]

I have had both of my kids tested for this, as their symptoms seemed right on

target with pyroluria, but both had urine kryptopyrrole levels <20. We tested

through Great Plains Lab. I am sure both are mercury toxic. We have been

chelating for about 35 rounds with overall good results.

>

>

> Hi,

>

> I don't technically have autism (although I might be somewhere on the bottom

part of the spectrum), nor do I have a family member with autism - but I've been

an occassional lurker of this group because I've strongly suspected that I

suffer from mercury intoxication, and this group is such a treasure when it

comes to this and related issues.

>

> Anyway - I recently took a home urine test for pyroluria through the

Bio-Center Laboratory, and I received my test results back today. I have some

questions and concerns about the results - and I thought that this might be a

good place to ask since it's possible that some members here are familiar with

this test.

>

> According to Bio-Center, the " normal " range for the pyroluria (pyrroles) urine

test is 0 - 20 ug/dL. Anything higher than 20 would be strongly suggestive of

pyroluria, I think. Well, my result is an astronomical 126! In some ways, I'm

glad to see this result - for it could be an important explanation for my severe

psychological issues.

>

> But, I worry that the result might be " too good to be true " . See - shortly

after I sent my sample back to Bio-Center, I emailed a Bio-Center employee with

the worry that the timing of my sample-collection may have been " off " - and that

it may result in a " false low " or " diluted " result. At the end of the email, I

mentioned how important an accurate result is to me - since an accurate

diagnosis could explain my lifelong struggles. This may or may not be

reasonable, but I worry that this revelation that I've been having problems may

have caused them to have a certain " bias " when it came to evaluating my sample

and generating the result. Maybe they had so much sympathy for me that they

inflated the result?

>

> Part of me thinks it's stupid to have this worry - but there is that part of

me that is skeptical and unsure. Bio-Center has a good reputation, right?

Would the soundness of the scientific process win out over any personal biases?

>

> For anyone who've taken this test, may I ask what your results were? I just

want a feel for how atypical my results might be. How confident should I be

that this is a sound, accurate result?

>

> Thanks for any feedback,

>

> ~Svetaswan

>