Re: Re: I am in desperate need of help and will do anything to stop this agony...

[Guest guest]

Hello, Great suggestions from our list mates. I feel for you also. We learn so

much from pain-but it is our path to not give up. I would like to add that an

Immunologist might be able to help-different than an Allergy doctor.Also where

does your daughter stand in the methylation cycle/genetic areas? Hang in

there-stay strong.

Charlotte

From: Haven DeLay <hdelay@...>

Subject: Re: [ ] Re: I am in desperate need of help and will do

anything to stop this agony...

Date: Wednesday, December 1, 2010, 5:55 PM

 

I believe we have to get out kids ready for chelation, decide on a diet, get

the proper metabolic supports in place, get yeast under control etc..

When you went gf/cf, did you then go soy protein free? Gf/cf improved many

of our son's issues, but when we removed soy protein --WOW! It was amazing.

From there we moved toward natural, got rid of refined sugars (except for

special occasions, I confess).

could your daughter possibly have a problem with sulfur? Our son does, so

when we continue chelation, it will be with ALA only.

Also, I too, suggest moving to all cotton clothing. I know my son prefers

soft cotton everything. He does okay with linen. He does not like to wear

blue jeans.

Sometimes when we start something new, it does get much worse before it gets

better. Stopping chelation before enough metals are removed (doing too few

rounds) can be problematic as well, I think, but Andy or Dana would half to

clrify this.

I know when we first removed casein from our son's diet, he went through

horrible withdrawal. I cried every day for three weeks! then things

started getting better.

I do regret doing IV chelation and would recommend only using the AC

protocol after the reactions my son had with IV.

My son used to poop on the floor. If he got the slightest upset about being

out in a public place, he would start to gag and projectile vomit! We did

diet and metabolic supports, and we used ABA methodology in dealing with

behaviors. We couldn't even try chelation for a long time due to our son's

low neutrophil count.

My heart goes out to you. You need another perspective. I think the

may have given you a good idea to contact Dr. Woeller's website. I

know for us sometimes getting another opinion put us on a better path. It

is my own opinion that you re-consider chelation. Have you done a hair

test?

Tammy also gives good advice when she says just have her wear underwear

first. sometimes it is about slow desensitization. Once she is comfortable

with the underwear, you can add a shirt.

What kind of food allergy testing did you have done?

Have you also used enzymes?