Chelation question - Seizure & normal EEG - Andy please

[Guest guest]

We started AC chelation for our 13.5 yr old, 98 lbs, non-verbal, diagnosed

severely autistic son with 12.5mg ALA and DMSA in May.

 

During the first round after the 2nd dose, he had a grand mal seizure for the

first time in his life and we stopped the round. Subsequently he had another

similar seizure after 3 weeks.

We saw a Pediatric Neurologist and an EEG was done. The EEG report came

'normal'. The report can be viewed here.

 

http://www.scribd.com/doc/34474553/Rik-EEG-Jun-2010

 

Since the EEG came clean, the doctor does not want to start any seizure

medication. And as I understand from Andy's book, older posts and other

experienced parents, it is not advisable to start chelating without seizure meds

in place.

 

We are scheduled to see the doctor for a follow-up on the 21st. What should we

do ?

 

Will be extremely grateful for your advice. Kindly respond.

Regards,

 

Deepa.

 

 

[Guest guest]

The EEG report doesn't look very thorough to me. Generally they recite all

kinds of stuff they did not see, and describe what they did see in more detail.

They no doubt didn't see a seizure on it, but most of the time they don't -

especially when they have to sedate the patient and don't have cooperation.

If you can, get the trace and show it to every doc you see in hopes one knows

how to interpret them and will discuss it with you. It might contain useful

information.

You might also ask the doc who took it to show you it and a completely normal

one, e. g. in a textbook, and explain any differences you see.

As it is, you have a kid who had 2 seizures but an uninformative EEG. The most

common result from an EEG on an epileptic is no seizures are observed. Most

medical books do suggest a trial of antiepileptic drug (AED) therapy under these

circumstances of 2 seizures but none seen on EEG.

Also, for non-talkers, the most likely intervention to make them talk is an AED.

It isn't a high probability, but I have been diligently collecting stories of

what worked for kids who just don't talk and that is one of the few things with

any real likelihood of doing so.

Seems to me insisting on a trial of an AED makes some sense. If the doctor

doesn't want to do it, try finding a real doctor instead of an oppositional

gatekeeper.

Since the EEG wasn't reported as having any information at all, and you didn't

get any discussion from the doctor of what sort of thing it might be, you don't

have much to go on for what sort of AED might work. Depakote is probably the

most broad spectrum, and has a very substantial side effect and risk profile,

but at least it is old enough that the risks are well known. Neurontin is very

low risk but least likely to work. Lamictal is newer and supposedly less risk

but it does have substantial risks and they're less well understood.

The one thing you can be sure of - if you don't use an AED, and also don't

chelate him, nothing is going to get better.

Andy

http://www.noamalgam.com/index.html

Amalgam Illness: Diagnosis and Treatment

http://www.noamalgam.com/hairtestbook.html

Hair Test Interpretation: Finding Hidden Toxicities

http://www.noamalgam.com/nourishinghope.html

Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children

http://www.noamalgam.com/biologicaltreatments.html

Biological Treatments for Autism and PDD

>

> We started AC chelation for our 13.5 yr old, 98 lbs, non-verbal, diagnosed

severely autistic son with 12.5mg ALA and DMSA in May.

>

> During the first round after the 2nd dose, he had a grand mal seizure for the

first time in his life and we stopped the round. Subsequently he had another

similar seizure after 3 weeks.

>

> We saw a Pediatric Neurologist and an EEG was done. The EEG report came

'normal'. The report can be viewed here.

>

> http://www.scribd.com/doc/34474553/Rik-EEG-Jun-2010

>

> Since the EEG came clean, the doctor does not want to start any seizure

medication. And as I understand from Andy's book, older posts and other

experienced parents, it is not advisable to start chelating without seizure meds

in place.

>

> We are scheduled to see the doctor for a follow-up on the 21st. What should we

do ?

>

> Will be extremely grateful for your advice. Kindly respond.

> Regards,

>

> Deepa.

>

>

>

>

>

>

>

>