Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 Hi Wannette Check out the following link and in the search box type in Vitamin D http://www.labtestsonline.org.uk/understanding/analytes/fsh/test.html They should be asked WHY patients are not allowed to know the reference ranges . As we are entitled to access our medical records, then we are entitled to the reference ranges that go with each test we have had done How to access your medical records.doc also look at this link http://www.ico.gov.uk/Home/what_we_cover/freedom_of_information.aspx. Perhaps they should be reminded of your rights. Read the information about Vitamin D here Vitamin D.doc and read also LACKING IN ESSENTIAL VITAMIN D.doc Luv - Sheila Can anyone tell me what the reference range for Vitamin D is ( NHS lab). I have rung the lab and they tell me they are not allowed to give out reference ranges to patients. I should have told them I am doctor- how would they know over the phone? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 I've copied the details below about reference ranges for Vit D from the Medical Journal of Australia website. Hope this helps. To the Editor: In addition to its well established link with rickets and osteoporosis, vitamin D deficiency has been associated with increased risk of autoimmune, malignant and cardiovascular disease.1 Marginal deficiency occurs at serum 25-hydroxyvitamin D [25(OH)D] levels of 25–50 nmol/L and frank deficiency at levels < 25 nmol/L,2 but there is some evidence that levels < 80 nmol/L3 or even < 110 nmol/L2 could be suboptimal. In Australia, vitamin D deficiency is most frequent in nursing home residents, dark-skinned veiled women, and residents of southern latitudes.2 However, those who are instructed to habitually minimise sun exposure following a diagnosis of skin cancer may also be at particular risk. Here is the website where I got the info (above) from. http://www.mja.com.au/public/issues/190_02_190109/letters_190109_fm- 7.html P > > Hello, > Can anyone tell me what the reference range for Vitamin D is ( NHS lab). > I have rung the lab and they tell me they are not allowed to give out > reference ranges to patients. I should have told them I am doctor- how > would they know over the phone? > Thanks, > Wannette > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 , If the test you had was 25-Hydroxy-D, the reference range that you were given is incorrect. I know this for a fact. Please see message that I sent to Wannette for reference range details. P Hi Wannette I recently had my results and was told it was a range of 1 - 300. What was your result ? ... mine was 23. julia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 Hi , Mine was 16...what does this actually mean, because I am under the impression that levels rise and fall according to the season..so what is the winter range? ( sounds like a catalogue!) so your doctor says this is too low and you are supplementing? Wannette From: <juliamoonrock@...>thyroid treatment Sent: Wednesday, 4 February, 2009 11:21:38Subject: Re: D Hi Wannette I recently had my results and was told it was a range of 1 - 300. What was your result ? ... mine was 23. julia From: wannette7 <wannette7 (DOT) .co.uk>thyroidpatientadvoc acygroups (DOT) comSent: Wednesday, 4 February, 2009 10:43:49Subject: [thyroidpatientadvo cacy] D Hello, Can anyone tell me what the reference range for Vitamin D is ( NHS lab).I have rung the lab and they tell me they are not allowed to give out reference ranges to patients. I should have told them I am doctor- how would they know over the phone?Thanks,Wannette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 Hi Sheila, Yes i tried lab tests on line, can't find the reference range there! See exactly, i think that anybody should be able to ring up and ask for a reference range, its not a trade secret, its the NHS, its public. Absolutely what use are our records without reference ranges, we have a right to see this, so yes, I am completely puzzled. I did try to put it to the person on the other end of hte phone that I knew my level I just didn't have the reference range , but oh no, only through your doctor. pathetic. Wannette From: Sheila <sheila@...>thyroid treatment Sent: Wednesday, 4 February, 2009 11:40:15Subject: RE: D Hi Wannette Check out the following link and in the search box type in Vitamin D http://www.labtests online.org. uk/understanding /analytes/ fsh/test. html They should be asked WHY patients are not allowed to know the reference ranges . As we are entitled to access our medical records, then we are entitled to the reference ranges that go with each test we have had done How to access your medical records.doc also look at this link http://www.ico. gov.uk/Home/ what_we_cover/ freedom_of_ information. aspx. Perhaps they should be reminded of your rights. Read the information about Vitamin D here Vitamin D.doc and read also LACKING IN ESSENTIAL VITAMIN D.doc Luv - Sheila Can anyone tell me what the reference range for Vitamin D is ( NHS lab).I have rung the lab and they tell me they are not allowed to give out reference ranges to patients. I should have told them I am doctor- how would they know over the phone? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 Hi Wannette, It doesn't quite work like that, even though levels do fluctuate depending on exposure to sun. 16 is very, very low. I put the info (below) in another message, but I've copied it again for you to have a look at. I've copied the details below about reference ranges for Vit D from the Medical Journal of Australia website. Hope this helps. To the Editor: In addition to its well established link with rickets and osteoporosis, vitamin D deficiency has been associated with increased risk of autoimmune, malignant and cardiovascular disease.1 Marginal deficiency occurs at serum 25-hydroxyvitamin D [25(OH)D] levels of 25–50 nmol/L and frank deficiency at levels < 25 nmol/L,2 but there is some evidence that levels < 80 nmol/L3 or even < 110 nmol/L2 could be suboptimal. In Australia, vitamin D deficiency is most frequent in nursing home residents, dark-skinned veiled women, and residents of southern latitudes.2 However, those who are instructed to habitually minimise sun exposure following a diagnosis of skin cancer may also be at particular risk. Here is the website where I got the info (above) from. http://www.mja.com.au/public/issues/190_02_190109/letters_190109_fm- 7.html P > Mine was 16...what does this actually mean, because I am under the impression that levels rise and fall according to the season..so what is the winter range? ( sounds like a catalogue!) so your doctor says this is too low and you are supplementing? Wannette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 Hi Wannette, I hope you don't mind me adding my two cents. My number was 28 and my doctor has me taking 50,000 units twice a week for a month. Before I went in for my test in which I WAS taking D before it, I had missed only one week without the D and my number went down very quickly. I could not believe I was down to 28 just missing a week of no D. My husband was 16 and the doctor put him on 50,000 once a week. We are not sure why my number went down so quickly hence my taking it twice a week for a month and then we will see where I am at. If you go to vitamindcouncil.com, you will find a lot of info about the benefits they are finding by taking a proper amount of Vit. D. Venizia -- In thyroid treatment , " patersonia " <patersonia@...> wrote: > > Hi Wannette, > It doesn't quite work like that, even though levels do fluctuate > depending on exposure to sun. 16 is very, very low. > > I put the info (below) in another message, but I've copied it again > for you to have a look at. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 Thanks P, I have had a look at this...so the NHS is measuring in nmols/ L? Wannette From: patersonia <patersonia@...>thyroid treatment Sent: Wednesday, 4 February, 2009 14:10:34Subject: Re: D Hi Wannette,It doesn't quite work like that, even though levels do fluctuate depending on exposure to sun. 16 is very, very low. I put the info (below) in another message, but I've copied it again for you to have a look at. I've copied the details below about reference ranges for Vit D fromthe Medical Journal of Australia website. Hope this helps.To the Editor: In addition to its well established link with ricketsand osteoporosis, vitamin D deficiency has been associated withincreased risk of autoimmune, malignant and cardiovascular disease.1Marginal deficiency occurs at serum 25-hydroxyvitamin D [25(OH)D]levels of 25–50 nmol/L and frank deficiency at levels < 25 nmol/L,2but there is some evidence that levels < 80 nmol/L3 or even < 110nmol/L2 could be suboptimal. In Australia, vitamin D deficiency ismost frequent in nursing home residents, dark-skinned veiled women,and residents of southern latitudes.2 However, those who areinstructed to habitually minimise sun exposure following a diagnosisof skin cancer may also be at particular risk.Here is the website where I got the info (above) from.http://www.mja. com.au/public/ issues/190_ 02_190109/ letters_190109_ fm-7.htmlP> Mine was 16...what does this actually mean, because I am under the impression that levels rise and fall according to the season..so what is the winter range? ( sounds like a catalogue!)so your doctor says this is too low and you are supplementing?Wannette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 Hi Venizia this is great, thank you. I have bought some over the counter D's at Boots, I am taking two 12.5ug, one tablet is 250% RDA. I am completely confused by all the different reference ranges I have seen and different units. Do you know if I am supplementing enough, or should I go and get a script? I will check out the Vitamin Council, thanks, Wannette From: venizia1948 <nelsonck@...>thyroid treatment Sent: Wednesday, 4 February, 2009 14:33:11Subject: Re: D Hi Wannette,I hope you don't mind me adding my two cents. My number was 28 and mydoctor has me taking 50,000 units twice a week for a month. Before Iwent in for my test in which I WAS taking D before it, I had missedonly one week without the D and my number went down very quickly. Icould not believe I was down to 28 just missing a week of no D.My husband was 16 and the doctor put him on 50,000 once a week. Weare not sure why my number went down so quickly hence my taking ittwice a week for a month and then we will see where I am at.If you go to vitamindcouncil. com, you will find a lot of info aboutthe benefits they are finding by taking a proper amount of Vit. D.Venizia-- In thyroidpatientadvoc acygroups (DOT) com, "patersonia"<patersonia@ ...> wrote:>> Hi Wannette,> It doesn't quite work like that, even though levels do fluctuate > depending on exposure to sun. 16 is very, very low. > > I put the info (below) in another message, but I've copied it again > for you to have a look at. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 PLEASE REMEMBER TO CHECK YOU HAVE DELETED MESSAGES ALREADY READ BEFORE SENDING TO THE FORUM. I HAVE DELETED THESE FOR YOU ON THIS OCCASION. LUV - SHEILA _________________________________________ Wannette, If your number was that low, I would get a script. If you do go over the counter, you need to make sure what you are taking is Vitamin D3. I am in the U.S. and the RDA here is not enough for people that are deficient in " D " . I would go back to your doctor maybe with info from the Vitamin Council and tell him you think you should be a prescritive dose. Let us know how you do. Venizia > this is great, thank you. > I have bought some over the counter D's at Boots, > I am taking two 12.5ug, one tablet is 250% RDA. > I am completely confused by all the different reference ranges I have seen and different units. > Do you know if I am supplementing enough, or should I go and get a script? > I will check out the Vitamin Council, thanks, > Wannette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 Wannette, You've made me think.... I am based in Australia, so I'm not sure what measurements the NHS uses. I've mainly seen measurements for Vit D (25-Hydroxy-D) in nmol/L used across a range of countries, but on a web search just then, I noticed a US study that recorded Vit D levels in ng/ml. http://www.nhs.uk/news/2008/06June/Pages/VitaminDinpregnancy.aspx I just had a look and found something on the NHS UK website that made reference to nmol/L. This particular study used Vitamin D blood results collected as part of the 'Health Survey England' in 2000. The measurement used was nmol/L. The article also makes reference to the reference ranges used during the study. http://www.nhs.uk/news/2009/01January/Pages/DementiaVitaminD.aspx Can you call your doctor to find out the units used when you had your Vit D test done? Surely they will give you this simple information. Perhaps if you speak to another person, they will also give you the reference range. I have no idea why they would keep this info from you - it doesn't make sense at all as the unit that something is recorded in isn't confidential, and neither is the reference range! Maybe you need to use my technique and call until you get the answers you need. I'm persistent in that way! P > > Thanks P, > I have had a look at this...so the NHS is measuring in nmols/ L? > Wannette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 Just another point Wannette. Perhaps it would be best to go back to the doctor to find out about an optimal dose of Vit D based on your personal medical circumstances. All that we can do on this forum is to mention our own experiences and none of us are medically trained. It is really important to check everything out with your doctor because they know your medical history. Might be better than trying to guess a dose to take. You might then be able to obtain the reference range, the measurement unit used and your optimal dose of Vit D all in one hit. Good luck with it all. P Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2009 Report Share Posted February 8, 2009 Hi C - I had emailed you, but didn't receive a reply? I am just this weekend trying to do some catching up on all these posts. Goodness! I just read last week about your most recent difficulty and had privately emailed you. I hope you are OK. I have had a lot going on and am in the midst of great confusion. Please contact me. D. (RI) > > Hi , > I was thinking about you my counterpart How are the vocals? > How are the knees? When do you see Glazer again? C > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2009 Report Share Posted February 8, 2009 Hi C - I had emailed you, but didn't receive a reply? I am just this weekend trying to do some catching up on all these posts. Goodness! I just read last week about your most recent difficulty and had privately emailed you. I hope you are OK. I have had a lot going on and am in the midst of great confusion. Please contact me. D. (RI) > > Hi , > I was thinking about you my counterpart How are the vocals? > How are the knees? When do you see Glazer again? C > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2009 Report Share Posted February 8, 2009 Hi C - I had emailed you, but didn't receive a reply? I am just this weekend trying to do some catching up on all these posts. Goodness! I just read last week about your most recent difficulty and had privately emailed you. I hope you are OK. I have had a lot going on and am in the midst of great confusion. Please contact me. D. (RI) > > Hi , > I was thinking about you my counterpart How are the vocals? > How are the knees? When do you see Glazer again? C > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2009 Report Share Posted September 24, 2009 Oh my gosh did I miss something. D had more surgery on her neck? Oh the poor thing...I " m going to email her right now.. > > , > > I am wondering how your visit with DrGlazer went last week....??! > > Is there a plan? > > Take Care, Cam > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2009 Report Share Posted December 8, 2009 Hey C!! My knees are healed and my neck feels great!! I am sooo happy that Dr. Glazer had me get them all fixed up first. I honestly couldn't imagine having all that pain on top of it all AND them having to address it after. It is my hope that after March 17, 2011, surgery of any kind will be on the back burner for many, many years to come!!! Although, I do have bunions and I do want to get them fixed one day!! Ha! Ha! I tell my daughter all of the time, " If I could just have the surgery of my choice (meaning the bunions, both feet too!! They run in my family!!), I'd be a lot happier!! " and she says, " Mom, you are not really going to have another surgery down the road on your feet are you? " and I say, " H***, yeah! " !!!! But then, I'm done!!! Of course, unless some plastic surgeon would offer a free tummy tuck, well then, I'd probably go for that too!! Now.....if only my back felt so wonderful. I am just like everyone else here who is pre-revision -- pain is worse than ever, especially in the hips and legs and my tailbone hurts too if I sit straight for more than 5 minutes. I can walk for about 10 minutes though without pain, more just discomfort but I can only stand in one position for about 2 minutes before needing to lean on something. Needless, to say ALL Christmas shopping is being completed online this year. I am still in regular PT (which Dr. Glazer recommended I stay in right up until surgery) and I'm plugging along with some long hot baths, PT, anti-inflammatories, lots of moist heat and an occasional narcotic!! If only I could sleep for more than 20-30 minutes at a clip....... D > > Hi D. > How are you? Are you all healed up knees and neck? Drop me a line? > c > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2009 Report Share Posted December 8, 2009 Hi D, Awesome. I am glad both surgeries worked out so well. Now have a health winter and by summer you'll be oh so much better. C > Hey C!! > My knees are healed and my neck feels great!! I am sooo happy that Dr. Glazer had me get them all fixed up first. I honestly couldn't imagine having all that pain on top of it all AND them having to address it after. It is my hope that after March 17, 2011, surgery of any kind will be on the back burner for many, many years to come!!! Although, I do have bunions and I do want to get them fixed one day!! Ha! Ha! I tell my daughter all of the time, " If I could just have the surgery of my choice (meaning the bunions, both feet too!! They run in my family!!), I'd be a lot happier!! " and she says, " Mom, you are not really going to have another surgery down the road on your feet are you? " and I say, " H***, yeah! " !!!! But then, I'm done!!! Of course, unless some plastic surgeon would offer a free tummy tuck, well then, I'd probably go for that too!! Now.....if only my back felt so wonderful. I am just like everyone else here who is pre-revision -- pain is worse than ever, especially in the hips and legs and my tailbone hurts too if I sit straight for more than 5 minutes. I can walk for about 10 minutes though without pain, more just discomfort but I can only stand in one position for about 2 minutes before needing to lean on something. Needless, to say ALL Christmas shopping is being completed online this year. I am still in regular PT (which Dr. Glazer recommended I stay in right up until surgery) and I'm plugging along with some long hot baths, PT, anti-inflammatories, lots of moist heat and an occasional narcotic!! If only I could sleep for more than 20-30 minutes at a clip....... > D > > > > > > > > > > > Hi D. > > How are you? Are you all healed up knees and neck? Drop me a line? > > c > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2010 Report Share Posted May 6, 2010 , Will look forward to hearing your update after you see her. So glad it's finally over, and she's onto healing. Colorado Springs [ ] D 's surgery is finally completed. She is in a lot of pain and i am on my way to Boston to visit with her. I will keep you posted. Quote Link to comment Share on other sites More sharing options...
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