Re: CHELATION: DAN PROTOCOL VS CUTLER PROTOCOL

April 19, 2010

go with Andy!Your child will be safe.It may take longer thats all.

>

> Hi

>

> Please can you comment on your experiences with either of the chelation

> protocols.

> I know Cutler is safer and slower. My DAN protocol is more agressive

> DMSA 175mg oral (every 8 hours) and DMSA suppositories (1/ day) for three

> days, rest and repeat every other week

> for a 44 lb child (4 yo).

> I have not started yet, but the DAN is protocol is very expensive (around

> 400 every two months if my husband understood correctly

> I though it was 200). Insurance I do not think they feel they want to pay

> since my DAN has not contacted them justifying the

> use of chelation. I am worried about safety, too. I have done previously

> the DMSA suppositories (6 rounds), and I hate the 6 hour urine collection

> test.

>

> I read Andy protocol and I feel comfortable that he seems to know his stuff.

> It is a long term protocol tho, which is ok

>

> I would like to know if you have done the DAN protocol similar to the one we

> have and if you have had success, how

> long a protocol like this last? ....

>

> Any opinions would be appreciated

>

> Thanks

>

> -Daphnia

>

April 19, 2010

the DAN! protocol is not a fast, quick-fix solution by any means. Any DAN! who

tells you this is being deceptive. Using a chelator in more reasonable doses is

less stressful on the organs, and using a chelator more frequently than 8 hours

will minimize the amount of metal redistribution in the body as the blood levels

of the chelator are kept at a constant level during a round.

I just chose not to risk it... and went with the less convenient, but more

scientifically/chemically/biomedically/physically reasonable option of low

dose/high frequency chelation (aka Cutler protocol).

I have never done an aggressive chelation protocol, although it has been

recommended to me by prior DAN! doctors. I do know several parents who tried 8

hour DMSA chelation with disastrous results. Lots of regression. I see parents

who abandon DAN! and I see those who, for some reason, continue despite the

regressions. There are some still in the midst of a DAN! protocol after 5+

years.

Going out on your own isn't expensive, but it requires diligence and patience

and research (you should do this regardless). I think I spend $50/month on

chelators and support supplements.

My son has never regressed. Never had any negatives. I currently give 50mgs

DMSA/25 mgs ALA (9yrs/65lbs); over 100 rounds completed. Started out nonverbal

and out of touch and is now fully integrated in the 3rd grade classroom with a

floating aide to keep him on task. Parents are surprised to learn he has a full

blown ASD diagnosis from 2004. He had a sleep over last night with a typically

developing friend who CALLED HIM to come over. Cool.

There are no guarantees, but I feel I am doing the safest method possible at

this point.

Pam

>

> Hi

>

> Please can you comment on your experiences with either of the chelation

> protocols.

> I know Cutler is safer and slower. My DAN protocol is more agressive

> DMSA 175mg oral (every 8 hours) and DMSA suppositories (1/ day) for three

> days, rest and repeat every other week

> for a 44 lb child (4 yo).

> I have not started yet, but the DAN is protocol is very expensive (around

> 400 every two months if my husband understood correctly

> I though it was 200). Insurance I do not think they feel they want to pay

> since my DAN has not contacted them justifying the

> use of chelation. I am worried about safety, too. I have done previously

> the DMSA suppositories (6 rounds), and I hate the 6 hour urine collection

> test.

>

> I read Andy protocol and I feel comfortable that he seems to know his stuff.

> It is a long term protocol tho, which is ok

>

> I would like to know if you have done the DAN protocol similar to the one we

> have and if you have had success, how

> long a protocol like this last? ....

>

> Any opinions would be appreciated

>

> Thanks

>

> -Daphnia

>

April 20, 2010

The Andy Cutler, Mark Schauss interview in the files section here might be

helpful, particularly page 7, 2nd paragraph.

Kenny.

>

> Hi

>

> Please can you comment on your experiences with either of the chelation

> protocols.

> I know Cutler is safer and slower. My DAN protocol is more agressive

> DMSA 175mg oral (every 8 hours) and DMSA suppositories (1/ day) for three

> days, rest and repeat every other week

> for a 44 lb child (4 yo).

> I have not started yet, but the DAN is protocol is very expensive (around

> 400 every two months if my husband understood correctly

> I though it was 200). Insurance I do not think they feel they want to pay

> since my DAN has not contacted them justifying the

> use of chelation. I am worried about safety, too. I have done previously

> the DMSA suppositories (6 rounds), and I hate the 6 hour urine collection

> test.

>

> I read Andy protocol and I feel comfortable that he seems to know his stuff.

> It is a long term protocol tho, which is ok

>

> I would like to know if you have done the DAN protocol similar to the one we

> have and if you have had success, how

> long a protocol like this last? ....

>

> Any opinions would be appreciated

>

> Thanks

>

> -Daphnia

>

April 20, 2010

Well, I used only AC protocol for 3 years. My son is fully recovered. Two of my

friends started AC protocol 2 years ago, without DAN! One 6yo girl lost her

diagnosis, attends mainstream school without support, still has some mild speech

delay which greatly improved in last half an year. The other 5yo girl had

diagnosis " severe autism " 2 years ago - she will go to mainstream school this

autumn, though still have some behavorial and speech problems - but rather like

Asperger, not as severe autistic.

Three other parents I know chose working with DAN! and did IV chelation for

three years. Their children still profoundly autistic, attend special school...

So my personal statistic does not prove DAN! protocol is any faster or more

effective than AC protocol.

Galina

>

> Hi

>

> Please can you comment on your experiences with either of the chelation

> protocols.

> I know Cutler is safer and slower. My DAN protocol is more agressive

> DMSA 175mg oral (every 8 hours) and DMSA suppositories (1/ day) for three

> days, rest and repeat every other week

> for a 44 lb child (4 yo).

> I have not started yet, but the DAN is protocol is very expensive (around

> 400 every two months if my husband understood correctly

> I though it was 200). Insurance I do not think they feel they want to pay

> since my DAN has not contacted them justifying the

> use of chelation. I am worried about safety, too. I have done previously

> the DMSA suppositories (6 rounds), and I hate the 6 hour urine collection

> test.

>

> I read Andy protocol and I feel comfortable that he seems to know his stuff.

> It is a long term protocol tho, which is ok

>

> I would like to know if you have done the DAN protocol similar to the one we

> have and if you have had success, how

> long a protocol like this last? ....

>

> Any opinions would be appreciated

>

> Thanks

>

> -Daphnia

>

April 20, 2010

I appreciate the group and its efforts. I feel comfortable with chelation

using the AC protocol because of you all. I'm a convert and my patients will

benefit from it. I also recommend them to your group. Thank you, thank you.

On Tue, Apr 20, 2010 at 9:00 PM, nikitasmom33 <nikitasmom33@...>wrote:

>

> Well, I used only AC protocol for 3 years. My son is fully recovered. Two

> of my friends started AC protocol 2 years ago, without DAN! One 6yo girl

> lost her diagnosis, attends mainstream school without support, still has

> some mild speech delay which greatly improved in last half an year. The

> other 5yo girl had diagnosis " severe autism " 2 years ago - she will go to

> mainstream school this autumn, though still have some behavorial and speech

> problems - but rather like Asperger, not as severe autistic.

> Three other parents I know chose working with DAN! and did IV chelation for

> three years. Their children still profoundly autistic, attend special

> school...

> So my personal statistic does not prove DAN! protocol is any faster or more

> effective than AC protocol.

> Galina

>

> >

> > Hi

> >

> > Please can you comment on your experiences with either of the chelation

> > protocols.

> > I know Cutler is safer and slower. My DAN protocol is more agressive

> > DMSA 175mg oral (every 8 hours) and DMSA suppositories (1/ day) for three

> > days, rest and repeat every other week

> > for a 44 lb child (4 yo).

> > I have not started yet, but the DAN is protocol is very expensive (around

> > 400 every two months if my husband understood correctly

> > I though it was 200). Insurance I do not think they feel they want to pay

> > since my DAN has not contacted them justifying the

> > use of chelation. I am worried about safety, too. I have done previously

> > the DMSA suppositories (6 rounds), and I hate the 6 hour urine collection

> > test.

> >

> > I read Andy protocol and I feel comfortable that he seems to know his

> stuff.

> > It is a long term protocol tho, which is ok

> >

> > I would like to know if you have done the DAN protocol similar to the one

> we

> > have and if you have had success, how

> > long a protocol like this last? ....

> >

> > Any opinions would be appreciated

> >

> > Thanks

> >

> > -Daphnia

> >

April 20, 2010

Hello:

We tried the higher dose DMSA oral with a DAN! 3 years ago. My son got very

stimmy, aggressive, and whinny. I tried for several months, but he then started

regressing in many areas and I gave it up. I went to IV chelation (weekly) for

the past two years. My son pulled every week (per UTM's), but there didn't seem

to be an end in sight and we were paying $336/week. On the positive side, he

did not have the side effects and the IV glutathione seemed to help him. With

IV's you know how much chelator is going in (since it goes in the vein directly)

and you do not get the gut issues. I am now moving to the AC protocol. I am

hoping with the lower dosing, we will not have the same issues.

April 20, 2010

Hi:

Congratulations! Can you tell me how old your son was when you started? How

many cycles did you do?

April 21, 2010

That is really wonderful to hear! Would chelation take care of OCD like

behavior, anxiety and sound sensitivities? Are you still chelating?

Has sleeping habits changed since doing the AC protocol? Would your son wake up

on the " off " days? We would like to minimize the sleep disruption if possible.

First round, took 10 minutes to wake my son up then 30 minutes for him to fall

asleep afterwards.

Thinking to start round 2 Friday morning and finish Sunday night. Would that

work? I will go to school to give him the dosage on Fridays.

Thanks for sharing!

Kareen

> >

> > Hi

> >

> > Please can you comment on your experiences with either of the chelation

> > protocols.

> > I know Cutler is safer and slower. My DAN protocol is more agressive

> > DMSA 175mg oral (every 8 hours) and DMSA suppositories (1/ day) for three

> > days, rest and repeat every other week

> > for a 44 lb child (4 yo).

> > I have not started yet, but the DAN is protocol is very expensive (around

> > 400 every two months if my husband understood correctly

> > I though it was 200). Insurance I do not think they feel they want to pay

> > since my DAN has not contacted them justifying the

> > use of chelation. I am worried about safety, too. I have done previously

> > the DMSA suppositories (6 rounds), and I hate the 6 hour urine collection

> > test.

> >

> > I read Andy protocol and I feel comfortable that he seems to know his stuff.

> > It is a long term protocol tho, which is ok

> >

> > I would like to know if you have done the DAN protocol similar to the one we

> > have and if you have had success, how

> > long a protocol like this last? ....

> >

> > Any opinions would be appreciated

> >

> > Thanks

> >

> > -Daphnia

> >

April 21, 2010

Well after four years of doing AC protocol and watching tons of parents report

the ills of DAN protcol..or come to me for help fixing their children after

using DAN protocol...

DAN is a no go if you want to get your child back. If you want recovery....use

AC.

We have 97 rounds done on a used to be PDD Child. I can't really express the

huge things that AC chelation has done for my son. He used to be really

withdrawn, refuse affection...he wouldn't let me hold him. We did his first

found at age 3 1/2 and on that round he let me hold him!

The problem with DAN protocol is purely scientific. Chelators need to be used

based upon their half life in the body. Simply, they wear off after a certain

time. All substances or medications do that.

DMSA lasts four hours in the body. Not 8. So every time you take chelator you

free up heavy metals so there needs to be more chelator there to keep absorbing

those metals. If there isn't, it resettles into the body/brain. the more times

that happens, the more re-poisoned you get. This is why the DAN protocol

produces horrible redistributions and side effect, in some case permanent

regressions in some children. They also do not use alpha lipoic acid to remove

brain mercury.

You need a steady blood level of chelator for a minimum of three days/two nights

followed by a break. And to use ALA at some point to clear brain mercury,

otherwise, brain mercury can stay in there anywhere from 25 years to forever. If

you don't remove it, you won't recover the child.

Your DAN protocol..I hate to say what you list below will be a disaster. As a

chelating adult it took me almost four years to be able to tolerate 50mg of dmsa

on AC protocol. I can't imagine how terrible a child would feel taking 175mg

orally every 8 hours. You can tell when it's wearing off and you need your next

dose and it doesn't feel nice. Sadly, most of the children being chelated cannot

tell you this.

There is no FAST way to safely chelate. The DAN protocol isn't going to get you

there faster, it isn't going to get you there at all. It's also very expensive

compared to buying dmsa and ala yourself and doing low dose Cutler chelation.

I have sadly seen so many parents post here over the years in dire panic because

of the serious regressions their children have had doing improper DAN chelation.

You do not need to do urine testing etc with AC chelation, you don't even need

that doctor if he/she isn't willing to support you in doing AC chelation.

Please also do not do any more of the DMSA suppository urine tests " DMSA

challenge testing " these also cause unsafe redistribution and are not

diagnostically significant.

Trust you gut....go with AC chelation

Jan

>

> Hi

>

> Please can you comment on your experiences with either of the chelation

> protocols.

> I know Cutler is safer and slower. My DAN protocol is more agressive

> DMSA 175mg oral (every 8 hours) and DMSA suppositories (1/ day) for three

> days, rest and repeat every other week

> for a 44 lb child (4 yo).

> I have not started yet, but the DAN is protocol is very expensive (around

> 400 every two months if my husband understood correctly

> I though it was 200). Insurance I do not think they feel they want to pay

> since my DAN has not contacted them justifying the

> use of chelation. I am worried about safety, too. I have done previously

> the DMSA suppositories (6 rounds), and I hate the 6 hour urine collection

> test.

>

> I read Andy protocol and I feel comfortable that he seems to know his stuff.

> It is a long term protocol tho, which is ok

>

> I would like to know if you have done the DAN protocol similar to the one we

> have and if you have had success, how

> long a protocol like this last? ....

>

> Any opinions would be appreciated

>

> Thanks

>

> -Daphnia

>

April 21, 2010

Hi Jan

we do exactly what u say and have done 4 rounds now on our 5 year old girl

when you say 3 days 2 nights is minimumm, do you think we should do more than

that really?

becasue we do friday morning to sunday evening - so exactly 3 days and 2 nights

- is it too little?

it is just convenient becasue it misses school, and is the same days every week

could we do more do u think, and if so what?

thanks

peter

From: mercurybabies2@...

Date: Wed, 21 Apr 2010 19:05:11 +0000

Subject: [ ] Re: CHELATION: DAN PROTOCOL VS CUTLER PROTOCOL