stimming

[Guest guest]

S.

Thanks for the prayers. I have definitely felt them lately, from everyone. DH

is off today and I'm making him help me, tired or not. I'm just as tired. He's

taking to speech this afternoon, and taking with him to do the

grocery shopping.

Loriann

[Guest guest]

Loriann,

It very well could have been the wind. I have heard of some autistic

people, when able to verbalize what it was like when they were little,

saying that the rain, and the wind would drive them nuts! The sound

actually hurt their ears. Well, if it was bad enough, I can see a total

withdrawl, kind of like what happens to Matt a lot of time right after

school. Just seems to need a down time after holding it all together all

day! Keep track if it happens again when it is windy! Maybe some ear

muffs when it is windy would help to dull the sound.

By the way, I have been praying for you and , while home alone, that

you find some peace. Keep plugging along. Consider your self

{{{{{{{{{{{{{{hugged}}}}}}}}}}}}}}}}}.

S

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[Guest guest]

Hi,

has always had a problem with wind. Little babies kinda gasp from

wind, I think....but he continued disliking it to this day, and he gets wild

eyed and flaps and takes off. Weird, huh?

Ann with , and

[Guest guest]

Brook does the same thing with wind. It really upsets him and sets him off

stimming too. Marisa

[Guest guest]

In a message dated 6/2/00 6:20:03 AM Eastern Daylight Time,

kayte.brimacombe@... writes:

<< Donna - I'm really sorry to hear that Maddie's so ill - It sounds dreadful.

I was going to suggest the bubble machine too thought I know when they're in

that much pain nothing much helps. I usually end up singing for hours

(I've got a terrible voice) I try to tell myself that these things are

usually self-limiting and DO end eventually. Hope things improve soon. >>

Thanks Kayte and Leah, for the bubble suggestion. I may go to the store this

morning as my lips are sore......LOLOL I tried singing to Maddie yesterday

(she doesn't usually like singing, but she adores Barnie so I thought I'd

try) and she actually put her hand over my mouth.......ROTFLOL

<<So I'd

like to hear any ideas around this too. btw he's also a terrible dribbler -

constantly wet chin which gets sore - any suggestions?>>

I just posted in the Self-stim subject line Kayte, on some things we do. As

far as dribbling, I don't know. Maybe he's teething? Anybody else on ideas

for that one?

Donna

[Guest guest]

Donna - I'm really sorry to hear that Maddie's so ill - It sounds dreadful.

I was going to suggest the bubble machine too thought I know when they're in

that much pain nothing much helps. I usually end up singing for hours

(I've got a terrible voice) I try to tell myself that these things are

usually self-limiting and DO end eventually. Hope things improve soon.

Sara - I loved the restaurant story - what an achievement!

Re.Stimming

almost always has 'twiddly' object which he mouths and flicks. This

seems to be a sensory issue as he does'nt need it when he's doing SI stuff.

I've seen the staff at his nursery take his 'object' off him, to try to get

him to focus on whatever it is they want, but he then just finds something

else, like the hard skin around their/his nails or feet, instead! So I'd

like to hear any ideas around this too. btw he's also a terrible dribbler -

constantly wet chin which gets sore - any suggestions?

Kayte

[Guest guest]

Thank you for everyones input. The OT is suggesting more time on the floor

for JJ. Things like crawling under beanbag chairs. Also recommended a

weighted vest. ( And yes I saved everyones ideas for making a vest from a

while back. ) Also want less table time and more time on a wedge on the

floor. But she is having problems getting the Spec Ed teacher to do this.

They just don't see that he does better for while after having OT input.

I think they also see that he is so low functioning what is the use. The IQ

is only 15.75, but we all know with a child like JJ it is impossible to use

the standardized testing. He probably should not even walk or feed himself

if we looked just at this IQ. And I hate IQ's!!! I guess this is one of

the reasons.

Got to go,

& Garry, parents of (9 ds), (8 ds/g-tube), JJ (6

ds/autism/celiac), (5 ds), and Esther (3 ds). All adopted.

----------

[Guest guest]

kayte it is good to use the object as a reward after work of any kind, and

then i would redirect away from the other self distractions, is the stuff at

school too hard?Remember to start off a few minutes at a time for each

activity, this takes time mostly, we use to have to do it after each peice of

clothing or each cut at school now he dresses himself and will go for most of

the day at school withut even asking for his string, he gets to keep it in

his pocket so its comforting for him to just check occassionally. As for the

chin, nathan is also a frequent drueller and wet chin, i put some caramax or

desetin on his chin (they are good barriers for the skin) and ths helps

trememndously for us may for you, shawna mom to nathan 8yrs w/ds pdd and

nicholas 7yrs, wife to geoff.

[Guest guest]

i didnt think anyone did iq testing anymore, i know they test developmentally

wise but not iq's , hmmm shawna mom to nathan8yrs w/ds pdd and nicholas 7yrs,

and wife to geoff.

[Guest guest]

IQ's do not show FUNCTIONAL ABILITY> Ask for a Vineland score - that at least

give practical information!!

Sara

>>> Scherb@... - 06/02/0 12:05 PM >>>

Thank you for everyones input. The OT is suggesting more time on the floor

for JJ. Things like crawling under beanbag chairs. Also recommended a

weighted vest. ( And yes I saved everyones ideas for making a vest from a

while back. ) Also want less table time and more time on a wedge on the

floor. But she is having problems getting the Spec Ed teacher to do this.

They just don't see that he does better for while after having OT input.

I think they also see that he is so low functioning what is the use. The IQ

is only 15.75, but we all know with a child like JJ it is impossible to use

the standardized testing. He probably should not even walk or feed himself

if we looked just at this IQ. And I hate IQ's!!! I guess this is one of

the reasons.

Got to go,

& Garry, parents of (9 ds), (8 ds/g-tube), JJ (6

ds/autism/celiac), (5 ds), and Esther (3 ds). All adopted.

----------

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[Guest guest]

Sara. This was the Vineland Score.

& Garry, parents of (9 ds), (8 ds/g-tube), JJ (6

ds/autism/celiac), (5 ds), and Esther (3 ds). All adopted.

----------

>From: MIDVALE <Midvale@...>

><egroups>

>Subject: Re: Re: stimming

>Date: Fri, Jun 2, 2000, 3:15 PM

>

>IQ's do not show FUNCTIONAL ABILITY> Ask for a Vineland score - that at

>least give practical information!!

>

>Sara

>

[Guest guest]

IT was my understanding that Vineland scores abilities - I have never seen a

true IQ (as in chronologic age vice mental age to obtain a score) Maybe the

school has been smart enough not to show it to me. We also use the Brigance

test when trying to see advancement. Has that been used? All require that

there be a connection between the testor and the testee.

Sara

>>> Scherb@... - 06/02/0 11:50 PM >>>

Sara. This was the Vineland Score.

& Garry, parents of (9 ds), (8 ds/g-tube), JJ (6

ds/autism/celiac), (5 ds), and Esther (3 ds). All adopted.

----------

>From: MIDVALE <Midvale@...>

><egroups>

>Subject: Re: Re: stimming

>Date: Fri, Jun 2, 2000, 3:15 PM

>

>IQ's do not show FUNCTIONAL ABILITY> Ask for a Vineland score - that at

>least give practical information!!

>

>Sara

>

------------------------------------------------------------------------

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[Guest guest]

---Good morning Charlie-

Start taking some data on each occurence of the stims- You can choose

the one he exhibits most frequently or take data on all in

preparation for a functional behavioral analysis.You will need to

look at Antecedent, Behavior and Consequence, frequency,perhaps

duration. Most self-stim is by definition intrinsically rewarding,

and usually sensory based. Interupting the stim and redirecting is

very effective. Also the more skills your son gains, it is likely the

stims will decrease.

denise

In autism , charliesteele222@a...

wrote:

> Hi

>

> My son Mason has been doing some nice progress in his

program

> but has also been stimming a lot more I starting to get concerned

about how

> far it will go.

>

> Charlie

>

>

>

[Guest guest]

Luvox addresses OCD behaviors. It worked on our child.

Missy

Stimming

Hi there,

I have an autsitic son who ... given the opportunity would spend MOST of

his time stimming in one way or another. Most recently he has found a love

of opening and closing doors and drawers. We have put child locks on all we

can but he manages to get through .. same with locks on doors. He stims

with balls, toys and just about anything. Another thing is " fingers up the

nose " behavior. Has anyone found any medication to be helpful in decreasing

these things? He is involved in ABA therapy and spends alot of time running

about. I feel he could get more accomplished if he would just " slow down "

(he flutters from one thing to the next) ... and pay attention more. Any

ideas.... I'm desperate.

ann

[Guest guest]

Have you tried putting him on a DRO??? Basically, you pick a behavior you

want to target.... you might want to start with one minute.. every time he

achieves one minute without the targeted behavior.. he gets a reward. It

helps if you let him pick the reward ahead of time( a favorite toy, a break,

etc). You mentioned he is already recieving ABA, so I'm assuming you know

about data collection. You would want to baseline the targeted behavior

before you implement any program.

Over time, you would start giving a smiley face or star, something to that

effect, making him go longer without the preferred toy. the object is to

replace the undesired behavior with something more desireable ( i hate the

word appropriate).

good luck

sue

[Guest guest]

Excuse me but what is luvox

Charlie (Mason's

dad)

[Guest guest]

Sensory Integration Therapy worked with my daughter ie at the

time we found out she had Autism.

If you can find it through your pediatrican or friends try it, I

think within thirty days to sixty days you will see a much happier

child, which in turn makes for happier parents, happy family.

Then speech therapy is very important, most of the stimming ie

did was from her lack of ability to communicate to the world around

her.

LOL

,ie's Mom

> Hi there,

> I have an autsitic son who ... given the opportunity would spend

MOST of his time stimming in one way or another. Most recently he

has found a love of opening and closing doors and drawers. We have

put child locks on all we can but he manages to get through .. same

with locks on doors. He stims with balls, toys and just about

anything. Another thing is " fingers up the nose " behavior. Has

anyone found any medication to be helpful in decreasing these

things? He is involved in ABA therapy and spends alot of time

running about. I feel he could get more accomplished if he would

just " slow down " (he flutters from one thing to the next) ... and

pay attention more. Any ideas.... I'm desperate.

> ann

>

>

[Guest guest]

Sensory Integration Therapy worked with my daughter ie at the

time we found out she had Autism.

If you can find it through your pediatrican or friends try it, I

think within thirty days to sixty days you will see a much happier

child, which in turn makes for happier parents, happy family.

Then speech therapy is very important, most of the stimming ie

did was from her lack of ability to communicate to the world around

her.

LOL

,ie's Mom

> Hi there,

> I have an autsitic son who ... given the opportunity would spend

MOST of his time stimming in one way or another. Most recently he

has found a love of opening and closing doors and drawers. We have

put child locks on all we can but he manages to get through .. same

with locks on doors. He stims with balls, toys and just about

anything. Another thing is " fingers up the nose " behavior. Has

anyone found any medication to be helpful in decreasing these

things? He is involved in ABA therapy and spends alot of time

running about. I feel he could get more accomplished if he would

just " slow down " (he flutters from one thing to the next) ... and

pay attention more. Any ideas.... I'm desperate.

> ann

>

>

[Guest guest]

Try deep pressure massage....or big bear hugs if he'll tolerate them. Make

it a game.

What he doing sounds sensory.

Do you get any services for him yet? OT maybe?

Penny

Stimming

Hi,

Any suggestions for a new behavior? My little guy 2 yr 3 mo old has

started

stimming ALOT .. he will stamp around or slap his leg while saying " ahhh "

...

" Ahhhh " .. etc. For some reason now he looks and acts more on the

spectrum

than I've ever seen him. I can't figure out the reasons for the increased

stimming. Any help out there for a desperate mom?

ann

[Guest guest]

That's what I thought. And when they're stimming (my step son 13 twirls his

finger or a pencil in the air, among other things) do you let them continue,

or try to stop it and move them onto something else. Because I notice that

he mostly does it during down time. If you have him focus on a task, he

usually doesn't do it.

Stimming

In a message dated 6/2/2003 6:54:05 PM Eastern Standard Time,

melville@... writes:

> what do you mean by stimming?

Stimming refers to self-stimulation. In most of our kids that means

dangling objects in front of their face, masturbating, hair flipping....can

be lots

of things. Basically, it's a repetitive obsessive behavior that they use

to

comfort themselves.

Donna

[Guest guest]

In a message dated 6/5/2003 4:08:59 PM Eastern Standard Time,

melville@... writes:

> That's what I thought. And when they're stimming (my step son 13 twirls his

> finger or a pencil in the air, among other things) do you let them continue,

> or try to stop it and move them onto something else. Because I notice that

> he mostly does it during down time. If you have him focus on a task, he

> usually doesn't do it.

>

If it doesn't interfere with his learning or engagement with the family, I

would let him do it (unless it's something really inappropriate, like

masturbating in public). I know that Joan has used Andy's ropes as a way to

reward

him for a job well done. Greenspan would say to use the object or behavior

as a way to get the child to complete circles of communication. I heard a

taped session of Greenspan and some parents who were saying that their little

boy with autism would obsess on a timer in the kitchen....they couldn't get him

to eat or work on eating skills because he was so obsessed with it...and if

they took it out of the room, he'd flip out. Greenspan says USE the

timer.... " Here, let's feed the timer...yum yum yum says the timer " ...get it?

We've

used balls and many dangly things in this way to get Maddie to interact with us

rather than take them from her.

Donna

[Guest guest]

This is one of our biggest successes so far I'm sorry I can't pinpoint exactly what stopped it for but I can list what we have added when we noticed it had stopped.

Selenium, Magnesium, Krill [no sniggering] Doubled up on enzymes, and MB12 we also space them all out now. At the same time we dropped SNT, and TMG, I have half an idea that when he doesen't tolerate something he stimms more.

Also notice sugar can spark off stimming.

Another thing I find reduces stimming is physical exercise and long tickling sessions [sensory].

Not scientific I know but he really doesen't stimm at all anymore and something in there worked for our little serial stimmer

Vicky

[Guest guest]

I always thought it was fruit sugar, my son cannot tolerate any fruit in any shape or form, absolute hell time, now if someone could let his school know!!!!

Vicky

[Guest guest]

Suggestions for replacing the Fructose?

I bake cookies at home for him so can i use honey, or normal sugar. I would love to try replaceing the Fructose.

regards

Chriso

Re: Re: Stimming

I always thought it was fruit sugar, my son cannot tolerate any fruit in any shape or form, absolute hell time, now if someone could let his school know!!!!

Vicky

[Guest guest]

How about Xylitol?

Re: Re: Stimming

I always thought it was fruit sugar, my son cannot tolerate any fruit in any shape or form, absolute hell time, now if someone could let his school know!!!!

Vicky