Re: Question about MTHFR related strokes.

[Guest guest]

What do you even mean by 'strokes'? Since it is in quotes, I'm assuming you

don't mean the classic stroke symptoms?

MTHFR mutations with elevated homocysteine call for lots of B12, folate and B6.

Do you take the other two? Every try regular old B12 (cyanocobalamin)? For

folate, I use 5-methyl tetrahydofolate. B6 is in the P-5P form. B12 is mB12.

What is your current dose of mB12 and how do you administer it (oral?)? Adjust

your diet to include lots of food that contain these vitamins.

We do not see anything here. I don't know how to word this, but my son has the

mutations: 1 copy C677T and 1 copy A1298C. He is almost 9.

Pam

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> I have just gone through a bad week of MTHFR/homocysteine related " metabolic

strokes " .I have had these since my mid-twenties,but only found out the cause a

few months ago.I saw neurologists off and on for years who never did the right

tests to find out the cause.I have had to triple my dose of MB12 for them to go

away by about 90%.Autism has been the only diagnosis I have been able to get,but

increasingly I am coming around to seeing this is BS,and what I really have is

some sort of polymorphic metabolic syndrome.I was wondering just how common 

these " strokes " are in autism ?I have seen very little about this

specifically.Is it possible we are looking at a situation in autism,similar to

mitochondrial disease,whereby most people with  " autism "  have " dysfunction "

rather than disease?

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[Guest guest]

I have the same mutations.I also have high homocysteines.What I have are painful

constrictions of the arteries in my brain,that can go on for hours or days

without the MB12.

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> > I have just gone through a bad week of MTHFR/homocysteine related " metabolic

strokes " .I have had these since my mid-twenties,but only found out the cause a

few months ago.I saw neurologists off and on for years who never did the right

tests to find out the cause.I have had to triple my dose of MB12 for them to go

away by about 90%.Autism has been the only diagnosis I have been able to get,but

increasingly I am coming around to seeing this is BS,and what I really have is

some sort of polymorphic metabolic syndrome.I was wondering just how common 

these " strokes " are in autism ?I have seen very little about this

specifically.Is it possible we are looking at a situation in autism,similar to

mitochondrial disease,whereby most people with  " autism "  have " dysfunction "

rather than disease?

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[Guest guest]

, what about trying Vinpocetine? It is supposed to increase circulation in

the brain. You are already taking B6 and magnesium, right? I would think that

the blood supplements would be the best remedy and I truly believe Vinpocetine

gets better circulation to the frontal lobes because I have seen what I think

are results of this (increased language) and so have others.

>

> I have just gone through a bad week of MTHFR/homocysteine related " metabolic

strokes " .I have had these since my mid-twenties,but only found out the cause a

few months ago.I saw neurologists off and on for years who never did the right

tests to find out the cause.I have had to triple my dose of MB12 for them to go

away by about 90%.Autism has been the only diagnosis I have been able to get,but

increasingly I am coming around to seeing this is BS,and what I really have is

some sort of polymorphic metabolic syndrome.I was wondering just how common 

these " strokes " are in autism ?I have seen very little about this

specifically.Is it possible we are looking at a situation in autism,similar to

mitochondrial disease,whereby most people with  " autism "  have " dysfunction "

rather than disease?

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[Guest guest]

Curcumin, too (component of turmeric)?

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> > I have just gone through a bad week of MTHFR/homocysteine related " metabolic

strokes " .I have had these since my mid-twenties,but only found out the cause a

few months ago.I saw neurologists off and on for years who never did the right

tests to find out the cause.I have had to triple my dose of MB12 for them to go

away by about 90%.Autism has been the only diagnosis I have been able to get,but

increasingly I am coming around to seeing this is BS,and what I really have is

some sort of polymorphic metabolic syndrome.I was wondering just how common 

these " strokes " are in autism ?I have seen very little about this

specifically.Is it possible we are looking at a situation in autism,similar to

mitochondrial disease,whereby most people with  " autism "  have " dysfunction "

rather than disease?

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[Guest guest]

Good evening,

Where can one get Vinpocetine?

Is it better to have been or at least started chelation prior to administering

Vinpocetine? Does yeast or GI issues need to be undercontrol? Any side effects

to be aware of?

I had a brain map performed on my son. He has lead and mercury. We are

starting the AC protocol and if need to go to IV chelation. I want this crap

out of his body.

With this in mind, is there any recommendation as to when to administer

Vinpocetine?

Expressive Language is a major issue of ours.

Thanks in advance,

Jerry

From: elizabethsoliday@...

Date: Wed, 10 Feb 2010 17:39:45 +0000

Subject: [ ] Re: Question about MTHFR related " strokes " .

, what about trying Vinpocetine? It is supposed to increase

circulation in the brain. You are already taking B6 and magnesium, right? I

would think that the blood supplements would be the best remedy and I truly

believe Vinpocetine gets better circulation to the frontal lobes because I have

seen what I think are results of this (increased language) and so have others.

>

> I have just gone through a bad week of MTHFR/homocysteine related " metabolic

strokes " .I have had these since my mid-twenties,but only found out the cause a

few months ago.I saw neurologists off and on for years who never did the right

tests to find out the cause.I have had to triple my dose of MB12 for them to go

away by about 90%.Autism has been the only diagnosis I have been able to get,but

increasingly I am coming around to seeing this is BS,and what I really have is

some sort of polymorphic metabolic syndrome.I was wondering just how common

these " strokes " are in autism ?I have seen very little about this

specifically.Is it possible we are looking at a situation in autism,similar to

mitochondrial disease,whereby most people with " autism " have " dysfunction "

rather than disease?

>

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[Guest guest]

What is a brain map?

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> > I have just gone through a bad week of MTHFR/homocysteine related " metabolic

strokes " .I have had these since my mid-twenties,but only found out the cause a

few months ago.I saw neurologists off and on for years who never did the right

tests to find out the cause.I have had to triple my dose of MB12 for them to go

away by about 90%.Autism has been the only diagnosis I have been able to get,but

increasingly I am coming around to seeing this is BS,and what I really have is

some sort of polymorphic metabolic syndrome.I was wondering just how common

these " strokes " are in autism ?I have seen very little about this

specifically.Is it possible we are looking at a situation in autism,similar to

mitochondrial disease,whereby most people with " autism " have " dysfunction "

rather than disease?

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[Guest guest]

You can get it from supplement stores or order it online, it is not a

prescription med.

My child and a friend's child who I know both have mercury and lead and our kids

have done GREAT on Vinpocetine. They are both speech delayed and on special

diets. Mine has chelated, hers hasn't yet. I think it is important to not have

continuing insults on the immune system (foods, chemicals, etc.) because the

inflammation is the problem in the first place!!

I suggest you start chelating with small doses of DMSA right away! My son also

made language gains with DMSA! My child is 7 years old, approx 55 pounds and he

takes 5mg three times per day. This dose seems to be working very well with no

side effects for him. My friend had no side effects with hers either. We had

lots of conversational type language coming out though! (and both of ours are

considered " nonverbal " !)

Please let me know if you try it, I get so excited over this supplement, for

some it is truly amazing. If you don't get results right away though, just

chelate for awhile and then maybe try again. Best of luck to you and your

child!

Liz

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> > I have just gone through a bad week of MTHFR/homocysteine related " metabolic

strokes " .I have had these since my mid-twenties,but only found out the cause a

few months ago.I saw neurologists off and on for years who never did the right

tests to find out the cause.I have had to triple my dose of MB12 for them to go

away by about 90%.Autism has been the only diagnosis I have been able to get,but

increasingly I am coming around to seeing this is BS,and what I really have is

some sort of polymorphic metabolic syndrome.I was wondering just how common

these " strokes " are in autism ?I have seen very little about this

specifically.Is it possible we are looking at a situation in autism,similar to

mitochondrial disease,whereby most people with " autism " have " dysfunction "

rather than disease?

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[Guest guest]

> Where can one get Vinpocetine?

I bought mine at my local health food store.

> Is it better to have been or at least started chelation prior to administering

Vinpocetine? Does yeast or GI issues need to be undercontrol? Any side effects

to be aware of?

It caused severe hyper here, altho it also helped with language. Start very low

dose, like 1/4 capsule.

Dana

[Guest guest]

I have not tried Vinpocetine,nor have I ever heard of it before.Thanks.

As far as I know folate metabolism is unrelated to mercury.

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> > I have just gone through a bad week of MTHFR/homocysteine related " metabolic

strokes " .I have had these since my mid-twenties,but only found out the cause a

few months ago.I saw neurologists off and on for years who never did the right

tests to find out the cause.I have had to triple my dose of MB12 for them to go

away by about 90%.Autism has been the only diagnosis I have been able to get,but

increasingly I am coming around to seeing this is BS,and what I really have is

some sort of polymorphic metabolic syndrome.I was wondering just how common

these " strokes " are in autism ?I have seen very little about this

specifically.Is it possible we are looking at a situation in autism,similar to

mitochondrial disease,whereby most people with " autism " have " dysfunction "

rather than disease?

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