RE: Go thru likely needed protocols without testing ... good?

February 9, 2010

> 1. continue Enzymatic's DigestGold, continue Calcium & Magnesium, continue

Biotin 1000 mcg/day

My son needed more biotin than that, to control yeast, especially during certain

protocols.

> 6. Add Methyl B12. He wanted to do shots of 25mg/ML per day, but I knew that

ds's father would never comply. So, DAN! backed off to oral methyl B12 (Kirkman)

2500 mcg/day

My son required carnitine, folic acid, and B2 for proper absorption of mB12.

And, it tended to increase yeast. It did cause a lot of benefits tho, so it was

worth fighting the extra yeast.

>>With my kid being a " gut " kid (gut issues of constipation),

At my house, most constipation issues were caused by magnesium deficiency and

yeast overgrowth. I have written other ideas here

http://www.danasview.net/constip.htm

Dana

February 10, 2010

I would work on increasing biotin slowly to 10 mg....

I would wait on the antibiotics and anti-fungals until you test with an

Organic Acid Test from Great Plains....will tell if these are needed....I

would start with Nystatin and use Sacchromyces Boullardi for the

bacteria....

Cysteine is great for someone with an impaired sulphur system....my 7 yr old

has very low cysteine so he takes it....The tests for this is an amino acid

urine test (also from GPL)....

I would wait on B12 shots....I wanted to do them and my dr wanted to wait

and within 6 mo of using Nystatin, the shots were unnecessary....

If your son is doing well on D3...I would stick with it, but if you find it

is making him sick, I would start at 1K and work your way up to 5......(I

got very toxic from D3 and it took a year before I could take it again)

ANN

_____

From: [mailto: ]

On Behalf Of mcdmcd888

Sent: Monday, February 08, 2010 11:15 PM

Subject: [ ] Go thru likely needed protocols without testing

.... good?

Saw a DAN! doc for the first time for DS, age 13, recently.

DS is mainly mild Aspie-ish, OCD was obvious when age 7-9, has had gut

issues for most of life since stopped breastfeeding, enzymes have been

extremely helpful. I have provided his history before, so won't repeat here

unless you want it.

The DAN! has advised this as a starting point with NO TESTS having been

performed:

1. continue Enzymatic's DigestGold, continue Calcium & Magnesium, continue

Biotin 1000 mcg/day

2. Add DIFLUCAN and FLAGYL (gave us a script for them)

3. Add Kirkman Pro BioGold probiotic 1 cap/day (we were taking Enzymatic's

brand of Pro Bio ... so ??)

4. Omega-3 with DHA + EPA adding to 1000mg/day apx. (he was taking 1

Coromega a day, so I can up it to 2/day)

5. Add N-acetyl-cysteine. Start at 500mg 2x/day and work to 1000 mg. 2x/day

(I'm worried about this supplement .... what is it needed for? Shouldn't we

test first to see if this is required? I'm finally getting some good

behavior from him with controlling yeast and using neurofeedback ... won't

this potentially throw a monkey wrench into the equation?? If so, what test

should we take and who can do the test to see if this is really needed??)

6. Add Methyl B12. He wanted to do shots of 25mg/ML per day, but I knew that

ds's father would never comply. So, DAN! backed off to oral methyl B12

(Kirkman) 2500 mcg/day

7. Continue Vitamin D3 but reduce from 5K iu's/day to 1K iu/day (I disagree

based on recent reports from the Vitamin D Council. I will have his 25 OH(D)

level tested, but the Vitamin D Council suggests that ASD patients need to

have their activated Vit D3 levels higher than normal to function).

Please reply with your opinion on any of these. In particular, I am

concerned about item#5 and possibly item#6. I already have item#2

(prescriptions) in hand and am wondering if I can administer them now

without #3, #5 and #6 or not. I am thinking that I would need #3 to

accompany, but that the others can be entered into the equation later IF

they are deemed " needed " based on testing results.

I really do not want him to go backwards in behavior. We had a really good

January with yeast under control and neurofeedback.

Also, I had 2 RhoGam shots (one when he was a fetus and one immediately

post-birth) plus a flu shot when he was a fetus. However, the DAN! says that

the removal of mercury is the last resort action and they kind of go thru a

bunch of other protocols first. With my kid being a " gut " kid (gut issues of

constipation), I just wonder why he doesn't test for these things (heavy

metal, etc.)? Is it because the tests are not always conclusive? Is it

because it's cheaper to just go ahead and try the complete list of protocols

in a certain order?

Again, I really just want to target the " right " problem and not go backwards

in behavior. Your advice is much appreciated if you've already been thru

this route for a gut kid who was mild Aspie-ish. Or, if you just have

experience with this otherwise.

Thanks,

M

February 12, 2010

Thanks, to both replies (Dana and Ann). I am so overwhelmed with this that I'm

just going to fall back to what worked in January and not try anything new " just

yet " . I need to do more research, ask more questions, get tests done.

>

> I would work on increasing biotin slowly to 10 mg....

>

> I would wait on the antibiotics and anti-fungals until you test with an

> Organic Acid Test from Great Plains....will tell if these are needed....I

> would start with Nystatin and use Sacchromyces Boullardi for the

> bacteria....

>

> Cysteine is great for someone with an impaired sulphur system....my 7 yr old

> has very low cysteine so he takes it....The tests for this is an amino acid

> urine test (also from GPL)....

>

> I would wait on B12 shots....I wanted to do them and my dr wanted to wait

> and within 6 mo of using Nystatin, the shots were unnecessary....

>

> If your son is doing well on D3...I would stick with it, but if you find it

> is making him sick, I would start at 1K and work your way up to 5......(I

> got very toxic from D3 and it took a year before I could take it again)

>

> ANN

>

> _____

>

> From: [mailto: ]

> On Behalf Of mcdmcd888

> Sent: Monday, February 08, 2010 11:15 PM

>

> Subject: [ ] Go thru likely needed protocols without testing

> ... good?

>

> Saw a DAN! doc for the first time for DS, age 13, recently.

>

> DS is mainly mild Aspie-ish, OCD was obvious when age 7-9, has had gut

> issues for most of life since stopped breastfeeding, enzymes have been

> extremely helpful. I have provided his history before, so won't repeat here

> unless you want it.

>

> The DAN! has advised this as a starting point with NO TESTS having been

> performed:

> 1. continue Enzymatic's DigestGold, continue Calcium & Magnesium, continue

> Biotin 1000 mcg/day

> 2. Add DIFLUCAN and FLAGYL (gave us a script for them)

> 3. Add Kirkman Pro BioGold probiotic 1 cap/day (we were taking Enzymatic's

> brand of Pro Bio ... so ??)

> 4. Omega-3 with DHA + EPA adding to 1000mg/day apx. (he was taking 1

> Coromega a day, so I can up it to 2/day)

> 5. Add N-acetyl-cysteine. Start at 500mg 2x/day and work to 1000 mg. 2x/day

> (I'm worried about this supplement .... what is it needed for? Shouldn't we

> test first to see if this is required? I'm finally getting some good

> behavior from him with controlling yeast and using neurofeedback ... won't

> this potentially throw a monkey wrench into the equation?? If so, what test

> should we take and who can do the test to see if this is really needed??)

> 6. Add Methyl B12. He wanted to do shots of 25mg/ML per day, but I knew that

> ds's father would never comply. So, DAN! backed off to oral methyl B12

> (Kirkman) 2500 mcg/day

> 7. Continue Vitamin D3 but reduce from 5K iu's/day to 1K iu/day (I disagree

> based on recent reports from the Vitamin D Council. I will have his 25 OH(D)

> level tested, but the Vitamin D Council suggests that ASD patients need to

> have their activated Vit D3 levels higher than normal to function).

>

> Please reply with your opinion on any of these. In particular, I am

> concerned about item#5 and possibly item#6. I already have item#2

> (prescriptions) in hand and am wondering if I can administer them now

> without #3, #5 and #6 or not. I am thinking that I would need #3 to

> accompany, but that the others can be entered into the equation later IF

> they are deemed " needed " based on testing results.

>

> I really do not want him to go backwards in behavior. We had a really good

> January with yeast under control and neurofeedback.

>

> Also, I had 2 RhoGam shots (one when he was a fetus and one immediately

> post-birth) plus a flu shot when he was a fetus. However, the DAN! says that

> the removal of mercury is the last resort action and they kind of go thru a

> bunch of other protocols first. With my kid being a " gut " kid (gut issues of

> constipation), I just wonder why he doesn't test for these things (heavy

> metal, etc.)? Is it because the tests are not always conclusive? Is it

> because it's cheaper to just go ahead and try the complete list of protocols

> in a certain order?

>

> Again, I really just want to target the " right " problem and not go backwards

> in behavior. Your advice is much appreciated if you've already been thru

> this route for a gut kid who was mild Aspie-ish. Or, if you just have

> experience with this otherwise.

>

> Thanks,

> M

>

February 12, 2010

I think you are on the right path....there is such a huge learning curve

with this stuff....I have been doing biomed with my 7 yr old for 3 yrs and

we are just starting chelation...he is doing fantastic and I believe that is

because my dr took the time to figure out gut issues and yeast first....I

have been taking him to an osteopath to do cranial/sacral weekly for 3 yrs

as well as working on somatic issues for him and finally he is starting to

improve.....

I wish you all the best and hope that this journey is a smooth one for

you!!!!

ANN

_____

From: [mailto: ]

On Behalf Of mcdmcd888

Sent: Friday, February 12, 2010 10:15 AM

Subject: [ ] Re: Go thru likely needed protocols without

testing ... good?

Thanks, to both replies (Dana and Ann). I am so overwhelmed with this that

I'm just going to fall back to what worked in January and not try anything

new " just yet " . I need to do more research, ask more questions, get tests

done.

>

> I would work on increasing biotin slowly to 10 mg....

>

> I would wait on the antibiotics and anti-fungals until you test with an

> Organic Acid Test from Great Plains....will tell if these are needed....I

> would start with Nystatin and use Sacchromyces Boullardi for the

> bacteria....

>

> Cysteine is great for someone with an impaired sulphur system....my 7 yr

old

> has very low cysteine so he takes it....The tests for this is an amino

acid

> urine test (also from GPL)....

>

> I would wait on B12 shots....I wanted to do them and my dr wanted to wait

> and within 6 mo of using Nystatin, the shots were unnecessary....

>

> If your son is doing well on D3...I would stick with it, but if you find

it

> is making him sick, I would start at 1K and work your way up to 5......(I

> got very toxic from D3 and it took a year before I could take it again)

>

> ANN

>

> _____

>

> From: @ <mailto: %40>

[mailto: @

<mailto: %40> ]

> On Behalf Of mcdmcd888

> Sent: Monday, February 08, 2010 11:15 PM

> @ <mailto: %40>

> Subject: [ ] Go thru likely needed protocols without testing

> ... good?

>

> Saw a DAN! doc for the first time for DS, age 13, recently.

>

> DS is mainly mild Aspie-ish, OCD was obvious when age 7-9, has had gut

> issues for most of life since stopped breastfeeding, enzymes have been

> extremely helpful. I have provided his history before, so won't repeat

here

> unless you want it.

>

> The DAN! has advised this as a starting point with NO TESTS having been

> performed:

> 1. continue Enzymatic's DigestGold, continue Calcium & Magnesium, continue

> Biotin 1000 mcg/day

> 2. Add DIFLUCAN and FLAGYL (gave us a script for them)

> 3. Add Kirkman Pro BioGold probiotic 1 cap/day (we were taking Enzymatic's

> brand of Pro Bio ... so ??)

> 4. Omega-3 with DHA + EPA adding to 1000mg/day apx. (he was taking 1

> Coromega a day, so I can up it to 2/day)

> 5. Add N-acetyl-cysteine. Start at 500mg 2x/day and work to 1000 mg.

2x/day

> (I'm worried about this supplement .... what is it needed for? Shouldn't

we

> test first to see if this is required? I'm finally getting some good

> behavior from him with controlling yeast and using neurofeedback ... won't

> this potentially throw a monkey wrench into the equation?? If so, what

test

> should we take and who can do the test to see if this is really needed??)

> 6. Add Methyl B12. He wanted to do shots of 25mg/ML per day, but I knew

that

> ds's father would never comply. So, DAN! backed off to oral methyl B12

> (Kirkman) 2500 mcg/day

> 7. Continue Vitamin D3 but reduce from 5K iu's/day to 1K iu/day (I

disagree

> based on recent reports from the Vitamin D Council. I will have his 25

OH(D)

> level tested, but the Vitamin D Council suggests that ASD patients need to

> have their activated Vit D3 levels higher than normal to function).

>

> Please reply with your opinion on any of these. In particular, I am

> concerned about item#5 and possibly item#6. I already have item#2

> (prescriptions) in hand and am wondering if I can administer them now

> without #3, #5 and #6 or not. I am thinking that I would need #3 to

> accompany, but that the others can be entered into the equation later IF

> they are deemed " needed " based on testing results.

>

> I really do not want him to go backwards in behavior. We had a really good

> January with yeast under control and neurofeedback.

>

> Also, I had 2 RhoGam shots (one when he was a fetus and one immediately

> post-birth) plus a flu shot when he was a fetus. However, the DAN! says

that

> the removal of mercury is the last resort action and they kind of go thru

a

> bunch of other protocols first. With my kid being a " gut " kid (gut issues

of

> constipation), I just wonder why he doesn't test for these things (heavy

> metal, etc.)? Is it because the tests are not always conclusive? Is it

> because it's cheaper to just go ahead and try the complete list of

protocols

> in a certain order?

>

> Again, I really just want to target the " right " problem and not go

backwards

> in behavior. Your advice is much appreciated if you've already been thru

> this route for a gut kid who was mild Aspie-ish. Or, if you just have

> experience with this otherwise.

>

> Thanks,

> M

>

February 12, 2010

Ann,

What happened d to you taking D3? I quit it b/c it was making me feel weird. I

have high hair calcium & need to get it down. By quitting calcium did I cause it

to go up? CAn taking Mag alone cause problems? I quit it after it caused

nervousness instead of calm.

So far I know to take K-2. Should I take IP-6 too?Â Guessing should stop the

cod liver oil with D for now & go with reg. omega 3's. Working on yeast &

chelating down the road.Â

Added biotin few weeks ago.

Any advice appreciated.

Kathy

calicocat477@...

>

> I would work on increasing biotin slowly to 10 mg....

>

> I would wait on the antibiotics and anti-fungals until you test with an

> Organic Acid Test from Great Plains....will tell if these are needed....I

> would start with Nystatin and use Sacchromyces Boullardi for the

> bacteria....

>

> Cysteine is great for someone with an impaired sulphur system....my 7 yr old

> has very low cysteine so he takes it....The tests for this is an amino acid

> urine test (also from GPL)....

>

> I would wait on B12 shots....I wanted to do them and my dr wanted to wait

> and within 6 mo of using Nystatin, the shots were unnecessary. ...

>

> If your son is doing well on D3...I would stick with it, but if you find it

> is making him sick, I would start at 1K and work your way up to 5......(I

> got very toxic from D3 and it took a year before I could take it again)

>

> ANN

>

> _____

>

> From: [mailto: @ groups.

com]